celiacs please help

buzz for boys

<font color=royalblue><marquee>Certified Serious S
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My liitle girl is 2 1/2 and has been gf since she was 9 months old since going gf we have had no problems but have known when we have made mistakes with food or cross contamination as she always gets a bout of the runs for a few days.
Heres my problem she has had a reaction now for nearly 3 weeks and we cant work out why i have checked all her food and apart from her breakfast cereal it all stats suitable for coeliacs but on talking to coealic uk the cereal hasnt changed its the new codex ruling which now makes it unsuitable.
Im tearing my hair out now she has stopped eating and has still filled her nappy 4 times today.
Ive seen a dr to rule out the poss of a virus and everything was fine.
Any ideas anyone ???? :sick: :sad2:
 
I have a throbbing nose from a cross contamination. Cross contamination is a major issue for all persons with allergies and special diets.

It will probably be stinky and light coloured depending on how much fat she cannot absorb. Take her off the cereal NOW. Do you have a name for the cereal so I can do some ingredient research? When a person is on any diet they much read labels and hope that everything is up to what they say is in the product. It is also possible that a supplier contaminated the grain or that they changed the product and not the boxes.

I do a mental food diary but some do a real one on paper. What did I eat today and then from that list I eliminate known safe things like tomatos, eggs from the shell, bananas, and brands that are known safe like Lays chips. I also look for cross contamination like cutting the tomato on a surface that has wheat. Today I did cornbread with no problem then made the mistake of having a few nut crackers with my ham sandwich. Add one thing at a time until you find the culprit and not like me doing bread and crackers at the same time.

Prayers and hugs.

Also watch for waxy protein spots, I get those after a reaction.
 
I don't know how the ingredient laws differ from the UK and US, so I can only speak from my experience in the US.

There are products in the US that indeed contain trace gluten, but it isn't listed on the label. For example, some brands of frozen french fries where they are made of potato, but the conveyor belt in the manufacturing plant may have flour on it, to keep the potato from sticking. It isn't required to be listed as an ingredient. There were other things like that- boxes of raisins sometimes? The problem is, of course, that a product may be fine for your daughter for years, and then the manufacturer pulls a stunt like this out of the blue, and you are none the wiser until she reacts.

Then as mechurchlady pointed out, there's cross-contamination. And a manufacturing plant that for years did gluten-free may start a new line with something containing gluten. My DH works in food manufacturing, and I do know that in the case of where he works, they are very very picky about cleaning the lines between products. But I don't know anyone that is really gluten-free that would eat the products that they manufacture, simply because so many of their products do contain allergens that it's hard to be sure it's 100% no doubt not cross-contaminated. If the brand you're buying is coming from a plant that specializes in gluten-free products, that's your best bet, cause you know the allergen isn't even coming into the plant.

It also seems that recently, food manufacturers have been cutting corners as much as possible, which sometimes means using more filler, which is baaaaaddd for allergy-people. DH was just telling me a few days ago that the chicken nuggets they manufacture, they are starting to add soy to them for filler-- not that we ate them in the first place because they have a flour coating-- but they didn't contain soy before, the package hasn't really changed, and if someone wasn't paying attention they probably wouldn't notice. Actually, they're hoping people don't notice, that most people will continue to buy the product without realizing they're getting less real chicken and more filler, so it's not like they're making a big effort to point out the new recipe.

I had the same thing happen about a month ago with Rice Slices, I went to the health food store, and was all the way to the check-out when I noticed the package said "Improved Recipe" in the corner, checked the ingredient list, and found out their "improved" was that they added casein to them. UGH!!! What's the point of making rice cheese if you're going to put casein in it? And DS was totally addicted to the rice slices. The health food store manager hadn't even noticed the change.

I'd call the cereal manufacturer and find out. You might have to get transferred around a bit to find someone who knows anything. And switch her cereal to something else that is manufactured by a specialty company. The big thing I've noticed with cereal is Malt Extract, it seems to be in almost every cereal, even the ones you'd think would be gluten-free. I don't understand why a cereal like Corn Chex needs to have malt extract. And Rice Krispies. We've purchased the gluten-free Rice Krispies and they taste exactly like the Kellogg's ones, so why does Kellogg's put malt extract on theirs? It isn't adding anything to the flavor, but it's taking away some customers.
 
Hi and thanks for the thoughts x There is barley malt in the cereal but she has always been ok with it. I checked with kelloggs and they said nothing had changed. After hours on the net ive found that her sensititvity to malt may have changed. so i am know taking them away and see ig she starts to recover.
In the uk they have to label about possible cross contamination so I can rule that out now !!!
Will keep you posted !:rolleyes:
 

OMG, that is a no no no no for celiacs.
http://www.celiacdisease.net/gluten-free-diet

That is a long list and i NEVER EVER eat anything with barley, rye, oats, or wheat in the name. I never ever eat anything with malt unless the label says "Made from xxxx".

Wht happened? The gluten causes the body to react and damages the stomach. If the gluten gets into the blood stream then it can go to other body parts and cause a hissy fit ending with damage. Gluten consumption is like getting sunburned. A little sun is fun but when the tan turns to blisters then you are in trouble. As a small child she still probably has a healthy stomach compared to some people with celiac for years who are undiagnosed.

http://www.coeliac.org.uk/
Please read that from top to bottom then side to side and over and over again. Celiac is different from food allergies. I eat chocolate then get a tummy ache rarely and joint point. I get a nice buzz from egg filled chocolate pudding which was fun until I had to drive in winding roads to get to a highway while crashing. It was yummy though. If I eat wheat I pay dearly and sometimes it takes weeks for me to recover.

It is not as bad as the man with heart disease who is on a fat free diet. EEEEEKKKKKKKK:upsidedow :scared1: :scared1: Give her vitamin c and bioflavnoids, she will be better soon. Hopefully her sensitivity will improve but dont hold your breath.

Big hugs and chocolates for you and you are a great mom as great moms will do everything they can for their kids. You asked for help and found answers so that makes you a super duper mom, great job.

hugs
Laurie
 
Thanks for the replies - its interested me that in the usa things are different to the uk even though its the same illness. In the uk coeliacs are allowed to eat barley malt as long as its under 100mgs per 100g yet in the usa you are told to avoid it altogether!! :confused3

I took my dd to the hospital last night and we saw a lovely gastro dr who said she was temporarily lactose intolerant following her reaction to the barley malt he has advised us to keep her off milk and yoghurts for a couple of days and see what happens. Already today she has livened up and eat all her dinner and even had seconds :lmao:

As you can imagine im very relieved to finally get an answer :dance3:
louise x
 
Some people live in the dark ages and need to be enlightened. I glad to have helped and that the kid is better. I adhere to a strict no gluten diet but sometimes have had a bit of egg or soy. One thing I have noticed is that people with celiac tend to have other allergies or sensitivities. When I have been GF for a while then I can better handle dairy, soy and chocolate.

Big Hugs
Laurie
 












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