Behavior Challenge Thread

:surfweb:

Oh my.

Last night the kids didn't want to go to sleep. Then the BIL showed up, fairly late, but he and DH sat out on the porch. Both kids either still weren't asleep or had fallen asleep and woke back up again, and we're talking like 11:00 at night. I was woken up this morning at 5:30 by youngest DS in the living room changing tv channels. :sad2: Are you kidding me?

I don't need a hug, Laurie, but you probably should stay clear until I've had some more coffee.
 
Sounds like the potential for a fun day. While there is anecdotal information that spectrum individuals need less sleep, adding sleep deprivation to the day can have some “interesting” repercussions. 5:30am is pretty much the standards for our older DS (unless we have done something physically demanding the days before), the good news is I am usually up at lest 30 minutes before that so DW gets to sleep a little longer.

bookwormde
 
Everyone report in, how is life and how are you? Everyone needing a hug please form a line to the right and have a magical day to day.

hugs
Laurie

I am forming a line:) to the right- maybe even getting a couple fast passes for the line again:)
Glad you had fun at DLR Laurie
Coffee is a good thing
Lack of sleep IS NOT

Did you ever have one of those days where it started out awesome and ended up rotten?? Because you said 1 little stupid thing that you should have kept your mouth shut but just couldn't do it??
yep describes my whole weekend:(

There are times i just need to HUSH and I just can't do it...talk about behavior challenged......

:hug: to all :)
 
:surfweb:
I don't need a hug, Laurie, but you probably should stay clear until I've had some more coffee.
I see you are in denial again and you know you need a hug or two and I have told you about my mother so you know that you are not so bad.
:surfweb::surfweb: :surfweb: :hug: :hug: :hug:

There are times i just need to HUSH and I just can't do it...talk about behavior challenged......

:hug: to all :)
We all make mistakees and you have read what people tell me here. Now chin up and think of the good things you have done today and you will see you are talkative because your talking helps people but sometimes you meet people who hate talkers and anyone different. Chin up Pudge or I am going to sit on you and drip dole whips on your nose, drop by drop.

Hey bookworm howdy and sleep for me is at least 3 hours solid sleep then a second session of 3 hours minimum for 6 to 8 a day. I dream of a day when I can sleep 6 to 8 hours a day. I slept 7 pm to 10:30 pm then 6 am to 10:30 am and maybe one hour before breakfast.

The good news is that my nose is cooled down and is only slightly sunburned but my arms are reddish brown. I was so worried as my nose burns so easily. I got momma's skin except for the nose, ouch.

Now for lots of hugs for everyone.
Laurie:surfweb: :hug: :hug: :hug:
 

Laurie, I will take a hug please.

My MS has been acting up and lately my hands act like I a wearing big mittens on them all the time. I had an accident with the coffee pot on Saturday. I apparently did not get it put together correctly so when I made coffee it ran out all over and of course I was not watching so came back into the kitchen to a huge mess. Cleaning up the coffee was actually my second kitchen clean up. On Thursday, I made peanut butter cookies. On the last batch, when I was taking them out of the oven, I lost control of the cookie sheet and the sil pad slide. The pad and all the cookies fell off. These peanut butter cookies are very crumbly until they cool so all of the cookies disintegrated into bits and went every where. I had to wait for the oven to get cold before I could clean the large amount of crumbs out. I was very good and did not eat the bigger pieces that I picked up from the floor - - although I wanted to because the recipe only made 30 cookies so I ruined almost half of them.

Saturday, while my family was here, my dear Sis-Inlaw opened the bottom drawer of the oven (I don’t remember why) and there were more cookie crumbs! I never occurred to me that they crumbs would have gotten in there also. So today, I got that cleaned out. But my other sister is now convinced that I am a danger in the kitchen and that I should not be allowed to cook anything. Not thinking to look in the bottom drawer was a shortfall she did not understand but in my defense I say she is border line OCD about cleaning stuff. AND she is wrong. I may be messy but not am dangerous. In my defense, I have not broken any dishes in at least a month and that saying a lot cause, stuff seems to mysteriously jump towards the floor all the time.
 
:hug: Tiggerish-
Things fall off of my shelves and on to the floor- I turn around and glasses jump off the table- ok I am really klutzy and break all kinds of things
I am sorry about the cookies- they sounded YUMMY:

NOOOOOOOOOO not the dreaded Dole whip drip drop :lmao:
I will pick up my chin and kinda wallow in self pity- then get over it:rotfl:
I really need a DISNEY fix ASAP....

I like POGO but I get intense on certain games- I don't like 2 or more player games as I am always afraid that I will mess up:(

I hope everyone is gettting sleep and rest- I am in a mood and grumpy and just wanna pull covers up and stay in bed..but I can't as I will get the dreaded Doel whip drip drop:)
thank you for the hugs & Smile:goodvibes
 
OK, responses to a couple of things. Bookwormde, sleep deprivation for my son is like giving him mainlined heroin. It does not do his body "good"!! I actually find myself calculating his sleep in the week and make sure to try to see that he gets a good power nap at least one day on the weekends. Otherwise, it's meltdown city.

Mechurchlady, you are in fine fiddle these last few days. Very funny lady, you hugging rascal. The dole whip drip made me laugh out loud. I'm with Pudge, the Fastpass hug line thought popped into my head, too.

Becky, I find myself getting anxious when things get "out of schedule", not for myself entirely, but because I know DS will have some repercussions from it eventually. Weekends kill me when we have crazy plans or an evening party. Our coach turns into a pumpkin at 8 o' clock sharp. Party is over. Hasta la vista, baby. (I don't speak Spanish, so is this right? I've never spelled it before...)

Tiggerish, Hi. I think you are not a danger as long as you are aware of your own limits. I think you are coping well and the cookie accident could happen to anybody. I'm such a klutz, I drop things all the time. No shirt is spared from the food and drinks I have. People in glass houses never throw stones.

Pudge, I, too, suffer from the Open Mouth, Insert Foot disease. I have no filter. Any wonder where DS gets it? It's always been a problem. I just stink at lying, too. And don't ask about me in a business setting. If there is a problem, I'm the one to open my mouth. Some managers aren't too keen on that approach, but it solves lot's of problems for those that like to do that sort of thing. My oft used line is, "I'm not being mean, just honest". I do have people that call me on a regular basis just to ask my opinion because, as my old babysitter puts it, "You're the only one who will tell me what I need to hear, not just what I want to hear." We calls 'em likes we sees 'em.

I am SOOOO ready for my Disney trip. I am going nuts. I've spent a fortune on landscaping plants and flowers in the last week. Why? Because I can't plan any more Disney stuff and I'm certain that when I get home after Disney in mid-June, I'll be much happier if my yard looks a little more Magical. How's that for planning ahead? It's gonna look like Epcot at my house by then.:woohoo:
 
OUT OF THE WAY

Tiggerish gets a super hug and 15 peanut butter cookies.

As everyone here knows me pretty well they can tell you about my memory problems. I get distracted and humdillyding I am not watching what I am doing and can forget things. It is a birth defect probably and probabably SID related.

When tired or sick I loose fine motor skills like spilling glasses of water. I forget and leave the burner on the stove until next meal or mom tells me. Accdents happen and you will know when you are beyond being safe.

Your problem is you have MS and now you are looking at everything as a sign that you are no longer functioning. I am at high risk for cancer so anything weird on my skin has me worried. For a long time I was looking for signs of alheimers out of fear instead of realizing that my problems are neurovariancies. You see a normal everyday household accident as another sign that you are loosing motor skills. Trust me I have had my share of accidents that are just clumsy mistakes.

:thumbsup2 I feel you can adapt in time and find some great tricks to deal with your bad days. It is not the end and you ought to sit on them ladies and do the dole whip drip on their nose but that would be wasting something good on them.

I am doing better as far as the nose goes except it is peeling from too much sun, lol.

Big hugs and dole whips.
Laurie
:surfweb: :surfweb::cheer2: :grouphug::flower3: :cheer2: :hug::hug:
 
Thanks to all for the hugs and kind words. Laurie is correct, with MS you are always trying to decide if you are having a "normal" problem or if another little bit of your functioning is disappearing. I tend to assume I am having a normal problem and tomorrow it will be better, an attitude my neurologist hates because she feels I am unrealistic about the extent of my disabilities but the PT guy loves because he says I self adapt to whatever happens.

Any way, I lurk on this section of the boards because I see so much kindness, tolerance and acceptance shared here.
 
please don't lurk:goodvibes
Join in the fun, laughs and excitement:)

Laurie is AWESOME for hugs, dole whips and chocolate

The more the merrier;)


I am still having bad behavior issues:( my stress level is so high right now that I am crazed-
ever have an episode where you just have to keep going on and on and on and on cause you feel there is NO solution? or a satisfying solution at least.
I am so tact challenged...

Then I hear there is swine flu at Disney and then I hear it's not :confused3Need to check out the news tonight

I have chocolate cake tempting me.

All I want to do is TRY a dole whip:cloud9: and report back about my first one! Hubby said he'd take me for Moms day and I can have one

DD needs more tests but I am waiting for school to get out- she still has her moments as we all do

:grouphug: to all:)
 
Thanks to all for the hugs and kind words. Laurie is correct, with MS you are always trying to decide if you are having a "normal" problem or if another little bit of your functioning is disappearing. I tend to assume I am having a normal problem and tomorrow it will be better, an attitude my neurologist hates because she feels I am unrealistic about the extent of my disabilities but the PT guy loves because he says I self adapt to whatever happens.

Any way, I lurk on this section of the boards because I see so much kindness, tolerance and acceptance shared here.
Jump right in and join us in the fun and friendship. Help us solve problems, share you sad and happy times, rant away at idiots in your life, and be there to hold the hands of those who are having bad days.

Mrs Ervin was the wife of a famous pastor and at the end of her life she was very frail and had brittle bones. Despite the pain she found that she could talk to people via letters and the phone as well as be a mighty prayer warrior. Even when you are at home you can set at a computer and comfort someone, teach someone, mentor someone, guide someone, or send out a lifeline to someone who thinks nobody cares any more and is giving up hope.

Right now I am having a meltdown because on another board because this fake priest and con man is using anti-Hispanic words and jokes that denigrate Hispanics. I have enough information to contact government and ruin his life. I do not want to hurt him and his mother let alone the board but why is he allowed to pick on my race.

I am having a meltdown right now over losing a site I love. Yet I wipe away the tears and hug people. People around here need lots of ego stroking, hugs and hand holding. It is hard being disabled or having a disabled person in the family. I try to keep my life out of the picture as I know my life is not as hard as a person with CP, MS, or cancer. My life is not as hard as that of a mommy.

Come on everyone and gather around for coffee, cookies and dole whips. Let us hug and celebrate life. Let us savor the good moments and them baby steps.

Today Chef Jay was talking to me about the DCA event and he asked me about Pizza Oom Mow Mow and I told him I loved the checken barbecue pizza. He took my guidebook for the event and wrote in the corner of the next to last page something. He said to go to the restauarant and get a free pizza on him. Wow and I was not begging for food or laying sympathy or anything. Just getting info and wow he gave me a pizza. The magic of Disney lies in the heart of CMs.

chin up and hugs time
There has to be some funny stories out there and problems to solve and things to celebrate.

Hugs
Laurie:surfweb: :surfweb::hug: :hug: :dance3: :cheer2: :grouphug:
 
I got banned from that site because I would not tolerate hate speech. I am in shock and have been there for over 3 years. I loved that site and now all I do is cry and cry and cry. I will never fit in anywhere. Never fit in anywhere.

hugs
Laurie
 
I worry about anti-Hispanic sentiment over the whole Swine Flu thing. I know it's tempting to be fearful, but we have to be rational. I caught myself getting scared because DD has bad head cold symptoms and came down stairs last night crying about asthma and was on fire, burning hot. She was wheezing pretty badly, too. It's high allergy season here, and she was outside so much all weekend and I think it really got to her. The rational part of me was saying it's only an allergy gone haywire and now she's got inflammation in her lungs. The irrational part of me was totally freaking out because so many Hispanics work with DH and DD was around them this weekend, plus there are so many in kid's school. Many are illegal. We are in a heavy migrant worker area. DH told me I needed to not buy into the panic. I hope he's right. But I also know he had to be treated for TB thanks to some of his workers who got the drug resistant form of TB, so I'm not sure I'm being totally off the mark. Am I mad at anyone? No, just scared for my family. I worry for the families of these hard workers, too, as I know fear can make people pretty mean. They are all super nice guys that work with my DH. And none of them have been home in ages, it's just too busy right now to take off work.

Anyway, DD woke up this AM and no fever. She was just upset and it made her hot and sweaty. Pollen is on everything and so far, I'll chalk it up to allergies.

DS has been having trouble keeping his hands to himself at school. He needs magnets inserted into his palms and then his hands will automatically clasp together when he's not holding something. :lmao:

Something I'm noticing about my DS. The older he gets (he's 6), the funnier that kid is. He can make people laugh like no child I've met at that age. He's wicked funny and can make the most subtle jokes, like word play. So basically if he's not totally annoying and poking people, he's cracking everyone up or being silly.

Tiggersih, you are welcome here anytime. I think we can all relate to your life story and it serves us well to have you in our ranks. I side with your PT, by the way. When I almost severed my own foot in a riding accident, I did my own PT. I tried working out in the gym, but that hurt, so I bought another horse and started riding again.

A year later, I was told by a doctor that my range of motion and mobility is remarkable for someone with my injury. He wanted to know who was the PT I used. It still hurts like hell to have an ankle that is permanently out of joint and a foot that has no arch, and plates and pins that rub together, but I keep trudging along. Your "normal" is just different from other people's. I'd say your attitude is very healthy and psychologists write books about how to think and behave like people like you.

Pudge, I'm reading a good book now called "The Four Day Win", by Martha Beck. It talks about anxiety and the underlying causes for eating or being a stress eater. I wouldn't call it a diet book. I'd call it a behavior study. My Aunt gave it to me because she sees me go a little off the deep end when I'm stressed out or upset. I must say it's very helpful. It's very funny, too. You'd enjoy it.

Bottom line: life is scary and hard. We can deal with it gracefully and with humor, or we can be angry and chicken.

Dole whips round the house, and fun with the Mouse!!:woohoo:
 
My cousin is being tested for swine flu. She's in college in Connecticut and a few kids in her building came back from spring break in Cancun feeling sick. She had a fever of 104 over the weekend.

Our good friend is a radiologist who routinely works ER shifts at his hospital, they had a meeting on Monday about all this. The expectation is for this to suddenly blow up, and from what we've heard the CDC is starting to cut back on their "official" testing and leaving it up to individual states. If the CDC starts using the states records in place of the tests they're running now, we're going to see the numbers jump dramatically. As of today, that same friend is on call until further notice. If this does continue to spread ERs will be swamped, as many already are in Texas and southern California.

I know you don't want to jump to any conclusions about your daughter, DisDreaminMom, but if she doesn't clear up, or this seems 'worse' than her usual symptoms, bring her to the doctor. Deaths only occur in those who didn't seek medical treatment in time (unless of course, we start seeing cytokine storms, as my husband pointed out). The prevalent feeling that seems to be a 'marker' for this particular strain is feeling like the lungs are on fire. You're also far better off making an emergency appointment with your GCP as opposed to rushing her to the ER, like I said before, they may start being on overload very soon.

With J being so severely immunocompromised, and in and out of hospital and doctors waiting rooms breathing in god knows what, we're keeping as on top of all this information as we possibly can.

Stay safe, everyone! Cover your mouth when you cough and yawn, avoid crowds (har har har - how many Disney trips are coming up?) and be extra vigilant about staying clean.
 
Oh man, you all know I really don't want to home school. But if it comes down to it, that's what I'd have to do, temporarily. Ain't enough Dole Whips in universe to get me thru that. :scared: I couldn't send youngest DS to school if it gets too close, his immune system is so wacky. And no sense sending oldest DS 'cause all he'd do is bring the cooties home with him. And I work at a community college, you know college kids show up for class when they really shouldn't, colleges are big cootie factories that way. And DH works with, hmm, well... yeah... not the most responsible group of people. Although he does at least work in a freezer and therefore already wearing some facial protection.

Gotta keep that stuff miles and miles from my house.
 
Saveaquarter, thanks for the heads up on the lung thing. Fingers crossed for your cousin. I would say the main method of transmission is Spring Breakers here in the US. Gosh, when I was younger, the girls only brought back STD's from Mexico.:rotfl2:(That's actually not funny, but so predictable...)

So far, no fever yet, but DS has coughing, sneezing, and wheezing this morning, so I'm a little on edge. It is very bad storm weather here in the old Mid-South, and I know the barometric pressure makes our asthma wacky, too. But the head cold symptoms are not usually in that picture. Plus, I am just fine, and I'm normally the canary.

I was wondering if the cause of death in swine flu was a cytokine storm. I know enough about this stuff to be dangerous(LOL) but I worry about my family with asthma and severe allergy, because technically, they would be the ones to have the "storm" reaction. I miss having friends in the medical field that I see every day, because I like to know about this type of thing. So keep us up updated. My DD must have some immune issues, because she was the one who had repeated MRSA and has had cellulitis in her face and been hooked to an IV for two days after a visit to the public pool and the beach. She's pretty tough and rarely sick, but when she gets something, she really gets it!

My Aunt and Uncle are getting worried about our June trip. They are both cancer survivors and don't need to be playing games with superbugs. I'm gonna be one sad lady if this means we have to cancel.
 
Laurie

I have not read much of the current postings but from prior reading, this occurs from various triggers, in this case possible a viral infection. The virus causes and extremely exaggerated immune response which instead of just attacking the invading virus can attack healthy cells and from a pulmonary perspective creates such an extreme response that the fluid or other actions of the promoted antibodies render the lungs ineffective for gas transfer to and from the blood stream, which causes rapid death.

There are many chronic conditions caused by overactive autoimmune system but this syndrome becomes acute rapidly.

There are some good indications that the current virus either has lost or has mutated the portions of its characteristics which triggered this extreme response in a significant portion of the population as it has move out generationally into the world population, thereby exhibiting a limited mortality rate consistent with most other flu virus.

Obviously my specific knowledge in this area is very superficial so consider the above in that light.

bookwormde
 
Becky, THANK YOU! That never happens. And here I was feeling kind of sad that my meanie older sister won the County Bar Association Young Lawyer of the Year Award and I'm just, well, ME. And then come to find out I outsmarted one person today. Thanks again. I really needed that. (I'm not joking...):laughing:

I have read some books on the 1918 Flu and I think it's really interesting. The other interesting disease outbreak was the one that killed a bunch of horses too. I read about it a long time ago and I need to refresh my memory, but it wiped out like 80% of the workhorses in our town, right around the turn of the last century. I don't remember if it was flu or not, but it became a cross species killer. (I think it's called an Epizootic or something similar).

DS is getting worse. No fever so far, but the rescue inhaler is not making much of a dent in DD's wheezing and he'll be heading down that road soon, as far as I can tell. I've been plugging her up to the nebulizer with just Albuterol which seems to hold it off. I'm loath to get her on Predisone in case there are further issues. No sense in using the machine gun yet when all I (hope) I need is a pistol. We're on lockdown all weekend, though. I wouldn't normally bore you with the details, but you all are asthma literate here, too.

Of course, DS got in lots of trouble at school today. Had 3 tickets and got in time out for "touching and blowing". He's had at least one ticket every day this week, which is very unlike him. He gets so brain scrambled when he's sick. He asked to go to the park after school and so I drove over there. Right before we got out of the car, I asked him if he had been good today. I pulled his folder from his backpack and saw the report, and just put the car back in Drive and went home. He was bawling in the back seat, poor thing. But he has to learn that there are consequences for bad behavior that go beyond school. But I felt terrible and secretly cried on the way home, too. And now my throat is feeling funny. Poor pitiful me. Now I am going to have a 1 minute pity party...OK, now it's over.:headache:

Have a good weekend!
 












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