Behavior Challenge Thread

[Schmeck]

Be careful of the sodium contents in the soup though especially if you are using canned condensed soups. I learned the hard way the EXTREMELY high sodium contents more than cancel out any liquid benefit they offer.

I want to reinforce this point! All that soup can actually make the hydration problem worse! It's like drinking salt water - it will only make you more thirsty, so you drink more, downward spiral into kidney failure.

Other ways to get dehydrated - drinking alcohol or caffeinated beverages. Also, dark sodas have phosphoric acid, which removes calcium from your body. Artificial sweeteners can make you crave carbs, so you drink more soda, etc.

How about a little lemon juice in plain water? And even a tiny bit of sugar? Or flavored seltzer?

 

[bookwormde]

Disdreaminmom

With the breadth of sensory issues certainly weather changes and their physical effect on the body are a potential stressor, my DS was doing exceptionally well until we had the snowstorm last week and he missed 2 days of school and this threw him “of track”. Plus he knows that if he misses too many days of school that we will have to delay our WDW trip in June, which starts the day before his birthday. He is starting to get back on track but starts a week of the state standards testing (DSTP in my state), so even though he has lots of accommodations for this it is never “easy”. We have a 3-day trip to DC at the end of the month and is looking forward to natural history museum so that is helping.

On the water thing, my DS drinks gallons of water (and nothing else) so I guess I should be happy about that “quirk”

bookwormde

 

[mechurchlady]

I hit 300 pounds for the first time in over 20 years probably. I do not know how I will loose the weight as I was on a maintenance diet that did well until my knees got worst and i started on the soda pop.

I may not get the scooter and have to wait weeks to find out. Lad tech played treasure hunt with my arms and finally found a vein then that one refused to bleed so she left it with a big lumpy bruise and then another bruised spot but it bled. sigh, wonder why I hate doctor visit.

Glad you liked my bird analogy. We hover and worry and they just spiral downward then pull up at the last minute. As you try to recover from your panic attack they will giggle and say that they had fun and are read to try something new. Kids can astound you. I now need a rest but need to catch up on the internet.

Hugs for Becky and get well soon. You can have mom and I will take your kids if you like. Mom is on red alert right now so no stress for her.

bookworm you are so special and helpful, neurovariants are so attuned to others yet seem to fail at times and I wonder why God gave the neurovariants such great people skills but no social skils. I wish I could hug you and give you a ton of chocolates as bookworm you are one of the people here who has helped me to work with mom and realize that her SID is severe and that when she goes off on a meltdown then that flames my SID and then we feed each other. I am so tired but at least now I can try to control my SID which she cannot.

One red alert SID mother for trade, will take 15 kids.

 

[saveaquarter]

Be careful of the sodium contents in the soup though especially if you are using canned condensed soups. I learned the hard way the EXTREMELY high sodium contents more than cancel out any liquid benefit they offer.

I am not a great water drinker but I found if I set out two half gallons of water on the counter and after breakfast I had to drink one half gallon int he time between then and before I could eat my lunch and the second one between lunch and before I had my dinner over the course of the morning and the afternoon I would do it.

Hope this helps some.

About 90% of the soup in our house is homemade, so we don't really have to worry too much about the high sodium content in condensed! That is a very good point though, and something we generally watch out for. Spacing out your water consumption like that is a really good idea, he does tend to end up chugging a bottle or two before bed to make up for the fact that he's hardly had any all day. We might need to try something like that! Thanks


churchlady, it sounds like you're having a rough go of things in general, and trying to deal with your mom on top of it all can't be easy. I admire the fact that you stick with her, though, and do your best to care for her.

 

[mechurchlady]

I have gained about 30 pounds in the past 3 years and probably one year. I just eat to escape as I cannot scream and yell at her though I want to. It is hard to be a neurovariant with your own needs that are countered by those of someone worse than you.

Never give up on people as they have the right to be here and loved jstu like the so called normal people. Especially the ones who never got the help they needed or like me went through a flawed system. I can tell you hun taht there are times when you are beyond your limits and there is not help in site. Just try to remember the good things about the person and understand taht usually they are not bad people but people driven by flawed brains and bodies that cause them to react differently from other people.

Give me chocolate and I do not care if I get os fat that I live in a muumuu dress for life.

hugs
laurie

 

[BeckyScott]

Well the kids have been pretty good about "stepping up to the plate", so far, not too bad. I don't know how long that's going to last, but now I see they are capable of more, at least with some things, when absolutely necessary. And DH ain't takin' no gruff from them.

I am definately up and mobile, but taking what I can get for as long as I can.

This has led to some very bizarre science discussions.

 

[DisDreaminMom]

I am growing to really enjoy the bizarre science discussions around our house. I've got one gifted kid and one Aspie and this combines for some truly enlightened thinking. How boring is it to have "normal" kids?

A friend of mine from California asked me in an email what the kids were "into" these days. I told her DD is riding my pony all the time and reading science books in her spare time. DS still wants to visit Europe and join the orchestra and play French Horn in the shadow of the Eiffel Tower. I concluded this by telling her how boring we were. She seemed to think I was mistaken.

Hey Mechurchlady, I'm pushing ever closer to my highest weight yet. After breaking my leg, I just don't have the ability to be physically active enough to stay thin. I eat to escape, too. Well, I just like food. I did start going to the YMCA and have been twice in the last week. I forgot how nice the endorphins make me feel after I work out. I just walk and do some light free weights, but even that is enough to wipe me out. It has been proven that any exercise is helpful to "clear the mind", even if it's just for 10 minutes a day walking. I just forgot how nice it makes me feel-and I sleep better.

 

[mechurchlady]

I gave up last night and ate and ate and ate chocolate and candy and chips. I am tired of taking care of mom. I am tired of the guilt if I go any place. I am tired of no freedom. I am tired of the neurovariations of mine causing problems. Ii am tired of dealing with her manure.

I am so tired that I am going to eat myself to the grave and thus she willl not have her servant to wait on her every minute of the day. I will end up in a nice hospital where I can sleep 6 hours straight. I cannnot rem,ember sleeping 6 hours straight for a long time. I am so tired. I give up.

 

[DisDreaminMom]

Isn't there anyone else that can help so you can get some much needed sleep? I worry about you...

 

[mechurchlady]

Isn't there anyone else that can help so you can get some much needed sleep? I worry about you...

I am an only child and my cousins cannot help nor her siblings. Calvin helps out sometimes. I am just depressed right now and tired. Long weekend and she is in one of her moods. I also have someone who is on this site of less than a year and is racking up posts very rapidly. They gave me a hard time about my suggestions about DLR. It was just ideas and they are taking over the site and trying to control it to the point that they are the ultimate authority of the park info when for example I was there at the parks. I post what I know and yield to those who know more or are specialists like Kathy who works for the cruise line.

I just tired hun and do not worry as I will eventually get through this. There is not help but I will just hide here and wait as long as possible to pee and drink water and eat. Avoid her as much as possible. Last night she was flipping out over voices which she swore she heard but I am right nest to the driveway and did not hear anything. She is very controlling right now. I took a break and had fun and relaxed but each day had to spend 3 to 5 hours driving home, getting her dinner, resting then back to parks.

Another problem is that I understand her neurovariations but few others would understand. I am off to get chips and candy so she wont bug me while I sleep 4 hours in theory. Enjoy your kids and pray that they get the help early on and do not end up like her.

Hugs Tight DisDreaminMom
Dont worry it will be ok. Honest it will. Some day I will be a free bird and you will see me spiralling and doing barrel rolls and for once taking off and you will put away your mitt and watch me have fun, some day in the future I will be a free bird. For now this fledling has to take care of the momma bird, should boot her rump out of the nest and let her learn to fly again.

For Becky
Get well

 

[mechurchlady]

MOM WOKE ME IT WAS THE DOCTOR
AM SLEEPY SO FORGIVE MY TYPING

THYUROID IS UP AND CHOLESTEROL TOO.
found the cap lock button
typing laying down is not easy.
nothing for the bruises and my blood pressure is border line so nothing for that.
have to call the pharmacy to find the drugs and see if they are soy and gluten free.
I go back in two months


Now for the scream fest
the men lady who posts without thinking wrote me about how she is sorry for upsetting me. the patronizing .//// how dare she attack my posting when I made a grammar error. she was correcting me bacuse it might affect the site, ;............. so mad that she patronized me and brought up disabilities. will send mary jo and sue a copy later. I was suggesting and the site agent was to look up the info then act accordingly. why god do i attact the posting freaks and ninnies.

hugs and back to sleep again.

if this makes no sense then sorry. most of you moms of neurovariants will figure it out.

hugs and chocolates
laurie

 

[DisDreaminMom]

Mechurchlady, you made me cry.

Anyone have problems with shrieking (in a happy way)? My son makes an ear splitting sound when he's really happy. I don't even think he knows he's doing it, and I tell him to stop and then feel like a meanie for making him not be so happy anymore. I remember we took him to the beach in Michigan on vacation this last summer and he was playing in the water and making this ear splitting sound that is like nails on the chalkboard for every other vertebrate. I could hear him from across the street (he was with family and I went to get something from the car). I guess if he were a Zulu tribe member, he'd be making all sorts of sounds like he does, but it's not so socially acceptable here in the good old USA. It's almost a ululating sound (like the Middle Easterners make). He's done it for so long, that it's only when I'm around other people and see the faces they make that I notice it. It's also only when he's REALLY happy or stimulated in a good way, so he doesn't do it all the time.

help....

Also, as your kids get older, have you noticed that they will talk to ANYONE? I know we've discussed this before, so maybe I'm just venting. Can't I get him a remote control with a mute button on it?

 

[mechurchlady]

I talk to strangers and myself, a part of neurovariation as I need stimulation and love meeting and talking with people, strangers are the best as they do not hate you for your neurovariations.

You need to teach him to tone it down as it hurts mommy's delicate ears. Indoor voice manure is what you need.

Hugs for a wonderful lady and do not worry as I will get over this eventually. I just need to vent sometimes and remind people how bad things can get if you quit on neurovariants at a young age.

Big hugs and chocolates and snugs all around.
Laurie

 

[C&G'sMama]

First to DDM. DS will talk to anyone always has. Of course I'm the same way. I'm actually very shy and socially inept in "normal" situations (and I've learned to fake self confidence). But if I'm at the grocery store or WDW or whereever, I could talk to a lamp post.
Although because I'm almost 45 (in April) I usually know when to temper myself. DS not so much. He doesn't scream with delight but he sure can be loud and he sure can screech when he's ticked off


On to our big news. He swam without a bubble last night. Never thought it would happen. He will be 6 next month and has been taking lessons since his 3rd BirthDay. He uses one of those graduated bubbles they have at the Y and He's been on 1 for quite awhile. But when he has swam without it, it's only for short distances and he's usually perpendicular not parellel. But last night one of the teachers took him out of the group and worked with him for about 10 minutes and got him swimming the width of the pool (it's an old Y so it's only 4 lanes wide) But he did it. It wasn't pretty, but he did it. I cried, DD shook her head at me. I honestly didn't know if he would ever be able do it. While DP and I both swim like fish as does my mom, my own dad could never swim. He always sank even after many attempts at lessons. So now this means he can go to "Kids Night Out" on Friday nights at the Y with his big sister and his friends from school. One of the requirements is they be able to swim with out a bubble. So he's thrilled. And quite frankly it's kind of nice for us. $3.50 per kid for 2 hours while we get alone time. Can't complain there.

 

[mechurchlady]

CONGRATULATIONS

Tiny steps so small that only moms and neurovariants can see them.
Big hgu for you and thanks for the great happy news.
Laurie

 

[C&G'sMama]

CONGRATULATIONS

Tiny steps so small that only moms and neurovariants can see them.
Big hgu for you and thanks for the great happy news.
Laurie

And hugs to you. I know I for one am quite a ways from CA but I do have big prayers going your way.

 

[DisDreaminMom]

C & G's Mama, first things first- that's so great about the swimming! Your family must be so proud! What a big hurdle. I know normal people would be like, "So what. It's just swimming". But we all know on this thread that when one little struggle is overcome that it often overlaps into other areas of our lives. So maybe a harder challenge will be met, as well. Fear of swimming and drowning is a huge thing for my DS. We had a pool for a few years, and he would play in the house while we swam or play on the steps sitting in the water. Talk about panic attack-whew-don't try to get DS's head under water. I consider it torture to try. I guess no cruise ships for us.

I am just like you. I consider myself a social dope. I only have a handful of friends that I really like and can handle my, um, outspoken personality. But I can talk to anyone in a line, at WDW, in retail (I do work for the Disney Store, so I guess I'm no wallflower!) but I have this little problem of lack of filter sometimes, which DS gets from me.

Tonight we were working on his homework and he made his letters nicely. So I said, "Wow, that is gorgeous!" He looks at me and says, "What does gorgeous mean?" I said, "Beautiful, like me!"

And he says-with a straight face-,"No, actually like my friend's mom, Miss Devon."

He waits a second, thinks about it and says, "Well, your pretty, too. But not like her."

Filter? Anybody got a spare filter? One that fits a 6 year old? How can I not laugh?

Oh, and just for those of you who had a hard day, this morning on the way to school he says,"Playing the Bass is really unfair ." I say, "Why?" He says, "Cause you have to stand up to play the Bass but you get to sit down when you play the Cello". Who thinks like that??? And is 6???

 

[C&G'sMama]

Filter? Anybody got a spare filter? One that fits a 6 year old? How can I not laugh?

Our model didn't come with a filter either. It's on back order. It would be useful for the times we're in line and he looks at the clerk and says in his best one volume (loud, very loud, voice) MAMA, IS THAT A MAN OR A LADY Yes, it's happened more than once.

He's not afraid of the water but his sister is afraid for him. You know he drives her nuts (it's any little brother's duty) But when we told her he didn't need a bubble any more she told me she was afraid he would drown (I'm talking no bubble in a controlled situation). I told her he'd be fine. I thought that was the end of it. Well, we get home and DP asks her how she's doing and she bursts into tears. "I don't want my brother to die" Huh? So while he drives her crazy, she is very protective of him. Sometimes we wonder if we put too much weight on her little shoulders. We try to balance it out. But sometimes we wonder if we make her take on too much? Or is that just the life of the older child? It's not like he has no responsibilities. But on the other hand there are times when I'll ask her to help her brother with something.

 

[bookwormde]

DisDreamMom

Sorry the area that the filter fits in is being used for other things like inventiveness, complex non-linear processing, heightened sense of justice and so forth. I have retrofitted other parts to do the same job but it was a lot of work and only works part of the time.

One good thing about the retrofit system is that while it does not filter out all the undesirable particles, you can be sure that what does come out is “pure” (honest and heartfelt)

C&G’sMama

I have the opportunity to be around a lot of siblings of “special” children and they tend, as they mature, to be some of the most wonderful, companionate and well grounded young people that I see, so yes it is more “work” for them but the benefits are enormous.

bookwormde

 

[C&G'sMama]

C&G’sMama

I have the opportunity to be around a lot of siblings of “special” children and they tend, as they mature, to be some of the most wonderful, companionate and well grounded young people that I see, so yes it is more “work” for them but the benefits are enormous.

bookwormde

Oh definitely, we just worry sometimes. And she's a great kid. When she was in Kindergarten her teacher told us how she used to stick up for one of the other girls that was being picked on. We have considered getting her into a peer group at a local center to interact with other siblings of Special Needs kids. But, like everything else, which activity do you give up. And we take time to spend one on one time with each child. She and mommy will have girl time and go out and give DP a chance to check in with her. DS and I go out for "guy" time (it works for him).