Becker Muscular Dystrophy and Disneyland, CA

SeansMom

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Feb 25, 2005
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A good friend of mine and I were contemplating a trip to DL & DCA with our families. Our sons have been friends since they were small. Her son has MD and while he can walk and is fairly mobile, he'd need a WC/scooter for DL. As veterans of DL I have to say I'm at a bit of a loss on how to advise her. At home we normally do things her DS can do and make minor adjustments . This is an entirely new ball game. OH! The boys are now 16. My son would probably go because they're going, but he's actually not as into DL as he was when he was young :(. This could be a challenging trip, but I want it to be fun for all!

I think she has the following concerns:

1) Rides would be dangerous for his neck. (So no mountains, but what else?)

2) Endurance. Suggestions here would be helpful.

3) I have NO idea how WC accomadations are made for rides, where to go to get in line, if we need a special doctor's note, etc.

3) That he would enjoy the pool as much as the park, so I'm wondering what hotels/motels have the best pools.

4) It would be nice to fix some meals at the hotel room. What suites have at least a basic kitchen?

ANY input would be great. We'd like to all have fun.
 
A good friend of mine and I were contemplating a trip to DL & DCA with our families. Our sons have been friends since they were small. Her son has MD and while he can walk and is fairly mobile, he'd need a WC/scooter for DL. As veterans of DL I have to say I'm at a bit of a loss on how to advise her. At home we normally do things her DS can do and make minor adjustments . This is an entirely new ball game. OH! The boys are now 16. My son would probably go because they're going, but he's actually not as into DL as he was when he was young :(. This could be a challenging trip, but I want it to be fun for all!

I think she has the following concerns:

1) Rides would be dangerous for his neck. (So no mountains, but what else?)

2) Endurance. Suggestions here would be helpful.

3) I have NO idea how WC accomadations are made for rides, where to go to get in line, if we need a special doctor's note, etc.

3) That he would enjoy the pool as much as the park, so I'm wondering what hotels/motels have the best pools.

4) It would be nice to fix some meals at the hotel room. What suites have at least a basic kitchen?

ANY input would be great. We'd like to all have fun.

at least for endurance, disney's main answer is to use a wheelchair, so he will definitely need to look at such options for that.

on their website is a guide for people with disabilities, and it tells exactly where a wheelchair enters each ride.

check out the FAQs about the GAC - it may help with other issues he has.

he will not need a dr's note for the GAC or to use a wheelchair.

mechurchlady will chime in soon i am sure with more info!
 
We went on a make a wish trip with my daughter in a scooter last year and in most rides you go through the exit.
 

I think this is best moved to Disneyland (california) board as they cna help you with everything. The people here can help you with the endurance by reading hte FAQs for this board. I am not up to speeed and have a minor impedement so am not up to answering much right now.

1) Rides would be dangerous for his neck. (So no mountains, but what else?)

2) Endurance. Suggestions here would be helpful.
use the wheelchair for getting around as it is tiring standing ni lines. There is a nurse's station available for resting

3) I have NO idea how WC accomadations are made for rides, where to go to get in line, if we need a special doctor's note, etc.
They give you a little brochure with instructions on how and where to board rides. Some rides are mainsteam like Tower of Terror, Buzz Lightyear and Toy Story. Some you enter through the exit like Snow White. Some like Buzz, Toy Story, Pooh, Jungle Cruise, and Small World have vehicles that wheelchair users can ride in without leaving their chair. You can get that at the rental area and at Guest Services and City Hall.

No doctor's note is needed and legally they cannot ask for one. GAC is only for hidden disabilities like a person who can walk but not do stairs, vision limitations, and hearing limitations. If he is in a wheelchair he will not need the GAC


3) That he would enjoy the pool as much as the park, so I'm wondering what hotels/motels have the best pools.

4) It would be nice to fix some meals at the hotel room. What suites have at least a basic kitchen?
 
Thanks for all your replies. I did a bit of research last night and found the disabilities guide online and printed it out. That was a good idea as it does have more specific info.

Yeah, I think maybe I need to post on the DL board as those folks know there stuff, and although we've gone 5 times in the last 16 years, we've never gone with somebody who is using a scooter. So, hotel rooms and access to them are a big question for me.
Thanks again!
 
Sue can move it so you do not have to make another thread and I am sending the link to someone very smart to see if she can help.

hugs
Laurie
 
Hi Folks!
Laurie asked me to pop over to this thread and see if I could help with some ideas.

The hotels at the Disneyland Resort do not have kitchens included (except for maybe the absolutel most expensive suite, where special arrangements can be made for their (usually celebrity or wealthy) occupants. That being said, each room does have a dorm-sized refridgerator, which would allow you to store some items.

If you are looking for a hotel that would accomodate some cooking, you probably want a Residence Inn, Courtyard, Homewood Suites, or something of that nature - which are farther down Harbor Blvd. (Homewood is by the Target - about a mile away.) Since I'm local and a DVC member, we stay on property and not off, so that isn't my strongest area, but I used to be a business traveller and used hotels like these a lot. They are pretty standard around the country in quality and accomodation style, so you won't be disappointed. (There is also a Super Target down the street for necessary items like medicine and such. Keep in mind also, that if you should have an emergency and need a hospital during your stay, there are several very close - including Children's Hospital of Orange County and UC Irvine Med Center)

I did find a link to the Disneyland "Good Neighbor hotel Comparison" chart on the DL website. It lists some of these hotels.
http://disneyland.disney.go.com/dis...sComparisonPage&tab=2&ResortCompareDropDown=1

I would definitely ask on the DL Boards to see if other hotels like the HoJo have special suites like that. AAA agents could help you with that, too, if you are a member. The Walt Disney Travel Company brouchure is available from almost every travel agent and it would have a tangible breakdown, also.

The downside to these hotels is that they are offsite and it is harder to just "pop back for a nap" if they are further down the road. You can do things like go over to the Grand Californian or Disneyland Hotel and find a place there to relax. The lobbies of each hotel tower at the DLH have large pit seating areas - especially the Wonder Tower - and you do not need a hotel key to get into the building as there are convention meeting rooms in the bottom of the Wonder. They are really quiet during the day. The GCH fireplace has long benches on either side that are really nice for a nap, too.

As far as pools go, they do not have wc entry, but they do all have lifejackets for use. There is also a really nice pair of shallow quiet pools at the DLH and a quiet lap-style pool at the GCH. My husband and I took 4 kids from ages 6 - 2 to the DLH quiet pool when we stayed a few weeks ago. It was really easy to manage them there. We just picked up our towels and life jackets when we walked into the gate (you need a room key to enter).

Will you be bringing your own wc or renting one? There are companies locally that will drop off a chair at your hotel, as the ones at the park can only go to security, where you must leave them. I don't have any names of these companies, but I know someone has posted them before. Maybe Laurie could help on that end. It's not like at WDW, where you can rent a wheelchair at the hotel on check-in - although you might be able to - I've never tried!

As far as rides go, I would say that he should safely be able to do anything that doesn't have a height restriction. That would be a good guideline to use. (Soarin and maybe the Jellyfish don't count, as they have a height restriction, but don't move anywhere but slowly move straight up in the air.) That means there are only like 10-12 things he wouldn't be able to do out of 150 or more.

Getting a teen interested - have you thought about picking up the hidden Mickey book and doing a Hidden Mickey Quest? You can pick one up at any bookstore or get it when you get there. Also, help them plan what they want to do and if there are any special things like tours. Once they are 16, they can do the Walk in Walt's Footsteps tour. That is very cool and it gives people a new appreciation for the place - let's them see it in a new light.

Hope some of this helps!!!!
 
Hi Folks!
Laurie asked me to pop over to this thread and see if I could help with some ideas. Hope some of this helps!!!!

Yes, you had some great advice. I appreciate it. You know, I downloaded and printed off a list of all the rides/shows/entertainment, and our friends' son should be able to do almost everything except the mountains.

I think renting a scooter and having it delivered is a fine idea. It would sure save time once we get there.

Hotels: Yeah, we've stayed onsite and LOVE it, but they didn't feel it was worth the $ and also wanted the kitchenette. I'm just concerned about transporting the scooter to a hotel offsite that has such amenities. I wonder if they'd settle for a fridge and a hotplate ;)?

I figured she knows so much about DLr and could help.

Yes, thanks for passing this along!
 
I would check with some of the rental companies, but a lot of the time you can't get a scooter for someone under 18. however, his dr should be able to help him get one from a lending closet or local rental company, and his insurance may even pay for it! i dunno about the companies in CA, but i would check well ahead of time about the rules on ages.
 













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