Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)
- Thread starter llurgy
- Start date
jessica52877
DIS Veteran
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- Feb 26, 2004
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- 6,518
Great photos! I especially love the drawing of Pooh, Piglet and Tigger!
Weren't all the pictures so cute! I LOVE kid art! Becca looked great! She is really starting to look like herself. She looked happy too (hope she was).
Tnkrbelle565
DIS Veteran
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- May 14, 2004
- Messages
- 8,490
Yay!!! So happy to see her up and around. She looks great 
fairygoodmother
Mouseketeer
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- Aug 22, 2008
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- 271
I just visited Becca's site for the first time in several days and I ecstatic! Praise God for the smile on Becca's face, the sitting up, the haircut, the drawings, the popsicles, the trip around the hospital...ALL of it!!
I am so pleased that she's doing well. Love, love, love, the pics with her new little doll! And I can hardly see the pic of Bics and her mum through the tears. You both look so happy...I pray that you are! God's continued blessings are asked for you each day!!
I am so pleased that she's doing well. Love, love, love, the pics with her new little doll! And I can hardly see the pic of Bics and her mum through the tears. You both look so happy...I pray that you are! God's continued blessings are asked for you each day!!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Hello Becca and family, it's so great to hear you're in good spirits! Sorry to hear about the swallow test results, but it sounds like you have a lot of very caring people helping to take care of you. I'm actually wishing for one of those apple-juice pops myself, sounds yummy!
It's nice to see the new photos, your room is looking so cheerful. You've got what looks like a good collection of cards and gifts!
I'm the one who sent the flannel pillow cases, happy to see them being put to good use. Would you like some more?
Becca loves the pillow cases, unfortunately the two you made and the one HeatherSue made are now int he laundry basket as she threw up last night all over them.....whoops.
She has a lot of meds by her NG tube and they are told by her to push them Veeeerrrrrry slowly otherwise she gets sick. Well last night they didnt push them slow enough.....whoops, messy bed time.
She said to them "Told Ya"
So she is pillowcaseless at the moment and she doesn't like it. I have to hurry and wash them
Mandy
llurgy
DIS Veteran
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- Oct 2, 2008
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- 585
How awesome to see her beautiful smile again!!!
The doll was sent by Carla (loviesmommie I think was the user name, sorry Carla, I dont quite remember)
Her name is Little Becca and our Becca loves her. Becca doesnt like Barbies or regular dolls, but she likes the rag doll kind.
When she had her bed linen changed the other day we found about ten minutes later that Little Becca had lost a shoe. We had to search through the laundry hamper for little Becca's shoe. We found it about halfway down.
Mandy
jenb1023
DIS Veteran
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- Jun 11, 2007
- Messages
- 2,506
Hi Mandy!
I am so thrilled to hear how long Becca has been able to sit up and support herself and that she wanted to try to stand and did!
It is so great to read about all the progress she made and I love the picture of her with Ainsley!
Hugs to all of you!
Jen
I am so thrilled to hear how long Becca has been able to sit up and support herself and that she wanted to try to stand and did!
It is so great to read about all the progress she made and I love the picture of her with Ainsley!
Hugs to all of you!
Jen
teresajoy
Remember the Tag Fairy?
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- Jan 22, 2001
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- 6,355
The pictures of Becca were so wonderful to see!!!
I'm so glad she liked Little Becca! Carla is a sweetheart!!!
maroo
DIS Veteran
- Joined
- Aug 3, 2008
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- 8,036
Becca is looking AWESOME!!
I have been keeping up on the blog and am so happy to see the smile on her face.
I love hearing about the things she is saying to you guys and to the nurses. She is so cute!! And so funny!
I just wanted to drop you guys a note...we are still praying for sweet Becca!!
I have been keeping up on the blog and am so happy to see the smile on her face.
I love hearing about the things she is saying to you guys and to the nurses. She is so cute!! And so funny!
I just wanted to drop you guys a note...we are still praying for sweet Becca!!
FSUDisneyGirl
<font color=#FF8000>Hey, my eye feels weird....AAA
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- Feb 28, 2006
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- 1,639
i am always thinking about becca. i haven't read the updates in about a week...i'm so glad to hear that she is getting back to her old self! what an awesome kid! 
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Thanks everyone for your continued prayers for Becca, we have a few downs but we are getting more ups to go with those downs.
Everyday I will post the blog from the evening before/or the same day as that help you all to keep track easier.
Yesterday went like this.....
Today Becca had another CT scan of her brain. This CT would enable the surgeon to make the decision about whether or not he could release Becca onto a different form of Heparin. If everything in her brain is stable then he can go ahead and release her, if not he wants to keep her on the IV Heparin in case he has to perform surgery on her head again.
The surgeon came to see us at around 11.30am saying all looked good on the CT and that he was quite confident in allowing the removal of the more controlable IV Heparin to the one that was a bit harder to manage. The new Heparin like drug will be administered via a shot in the belly area, kind of like an insulin shot. Although it isnt as easily withdrawn as the IV Heparin it is still easier to withdraw and manage than an oral blood thinner.
One of the stipulations of her going onto the Rehabilitation side of the hospital is that they wont take her whilst she is on Heparin IV, so them taking this away will be a giant leap in the right direction. A big bonus is that when the Heparin is taken from IV status it "should" free the PICC line up. With the PICC line free they should be able to take all her blood draws and administer all her meds through it as that was what it was originally placed for.
She is feeling a bit crappy today. She is keeping her oral meds down but her belly still feels nauseous all the time. She also got a headache this morning whilst she was sat in her chair, add that to the pukey feeling and she was not a happy camper. She is asleep at the moment (12 noon) and hopefully she will feel a little better when she awakens and she is ready to face her torture sessions of PT/OT and speech this afternoon.
Speech and OT/PT went fine, they took it gentle and only made her walk 5 steps to her chair
She then had to walk the five steps back to her bed an hour later, she doesnt mind that so much as it is going back to her comfort zone.....her bed.
She had her first Sub-Q shot of blood thinners this afternoon. She worried herself stupid from the time they put on the numbing Emla cream to when they did it 90 minutes later. Mandy had to explain to her that she had to have these shots 2 times per day for maybe 6 months. She was not happy to say the least, sobbing her eyes out she was, Mandy felt so sorry for her. She then found out that we would have to administer the shots when she got home and that made her even more upset. When given the choice of having to stay in the hospital for 6 months she gave in gracefully so long as we practiced for ages before we experimented on her.
Mandy has been practicing on an orange to give the shots, she is quite adept at the orange but says she will be scared when it comes to sticking the needle in Becca.
All this means that we MAY be moving over to the Re-Hab side tomorrow.....I say MAY because we all know what hospitals are like at saying one thing and doing another.
Becca has spent most of the day sleeping, she says she is tired because she isnt getting all that much sleep at night. She says there is always at least one baby crying somewhere on the ward. There have been a lot of babies having neurology testing done, it seems that as soon as one is released, another comes to take its place, poor babies, poor Becca and her sleep. The main problem is the nurses dont like the doors closed at night-time so the crying is really loud. Becca is hoping they dont have any babies on the re-hab side and that she is never going to have a baby because all they do is poop, throw up and cry with a little bit of sleep in-between.
Everyday I will post the blog from the evening before/or the same day as that help you all to keep track easier.
Yesterday went like this.....
Today Becca had another CT scan of her brain. This CT would enable the surgeon to make the decision about whether or not he could release Becca onto a different form of Heparin. If everything in her brain is stable then he can go ahead and release her, if not he wants to keep her on the IV Heparin in case he has to perform surgery on her head again.
The surgeon came to see us at around 11.30am saying all looked good on the CT and that he was quite confident in allowing the removal of the more controlable IV Heparin to the one that was a bit harder to manage. The new Heparin like drug will be administered via a shot in the belly area, kind of like an insulin shot. Although it isnt as easily withdrawn as the IV Heparin it is still easier to withdraw and manage than an oral blood thinner.
One of the stipulations of her going onto the Rehabilitation side of the hospital is that they wont take her whilst she is on Heparin IV, so them taking this away will be a giant leap in the right direction. A big bonus is that when the Heparin is taken from IV status it "should" free the PICC line up. With the PICC line free they should be able to take all her blood draws and administer all her meds through it as that was what it was originally placed for.
She is feeling a bit crappy today. She is keeping her oral meds down but her belly still feels nauseous all the time. She also got a headache this morning whilst she was sat in her chair, add that to the pukey feeling and she was not a happy camper. She is asleep at the moment (12 noon) and hopefully she will feel a little better when she awakens and she is ready to face her torture sessions of PT/OT and speech this afternoon.
Speech and OT/PT went fine, they took it gentle and only made her walk 5 steps to her chair
She then had to walk the five steps back to her bed an hour later, she doesnt mind that so much as it is going back to her comfort zone.....her bed.
She had her first Sub-Q shot of blood thinners this afternoon. She worried herself stupid from the time they put on the numbing Emla cream to when they did it 90 minutes later. Mandy had to explain to her that she had to have these shots 2 times per day for maybe 6 months. She was not happy to say the least, sobbing her eyes out she was, Mandy felt so sorry for her. She then found out that we would have to administer the shots when she got home and that made her even more upset. When given the choice of having to stay in the hospital for 6 months she gave in gracefully so long as we practiced for ages before we experimented on her.
Mandy has been practicing on an orange to give the shots, she is quite adept at the orange but says she will be scared when it comes to sticking the needle in Becca.
All this means that we MAY be moving over to the Re-Hab side tomorrow.....I say MAY because we all know what hospitals are like at saying one thing and doing another.
Becca has spent most of the day sleeping, she says she is tired because she isnt getting all that much sleep at night. She says there is always at least one baby crying somewhere on the ward. There have been a lot of babies having neurology testing done, it seems that as soon as one is released, another comes to take its place, poor babies, poor Becca and her sleep. The main problem is the nurses dont like the doors closed at night-time so the crying is really loud. Becca is hoping they dont have any babies on the re-hab side and that she is never going to have a baby because all they do is poop, throw up and cry with a little bit of sleep in-between.
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Well we moved to Re-Hab at eight this morning!!!!
They have been doing evaluations for the most part so she hasnt had much hard work to do today. They let her have a real bath this morning which she loved though she was just a touch disappointed not to be able to put her whole body in the bath, they sat her in a chair because she is unable to hold herself up for a long time, not long enough to bathe anyway.
We have done the usual, seeing countless new doctors and answering the same questions over and over......all positive though as they are rehab based, still medical but more to do with her stamina/oxygen issues versus the fallout from the brain abscess. We have been told that the time spent on re-hab is generally 4 weeks with a 'very strict' early parole for really brilliant work.
So if Becca does okay we will be here for the duration, if she works really, really hard we could get out earlier. Where any form of exercise is concerned Becca is one of those that will only do the minimum, so we expect to be in here for the duration
We have to have a pulmonary function test on Monday and a heart echo. They want to know how safe it is to push/how hard and for how long in her rehabilitation sessions. So Monday is going to be another easy day as far as exercises go.
One bad thing we learnt about the PICC line is that they are unable to draw from it, it pushes fine when they want to administer but it wont draw blood so it looks as if we are stuck with the IV's.
On the re-hab unit they are quite regimented. The aim of the unit is to get the child back in the stride of daily living, so meals (when she gets to eat again) are a strict 9am, 12pm and 5pm. Visitation hours are also restricted. On weekdays she isnt allowed visitors in the daytime, we can have visitors after 5pm and at weekends, Saturday after 12pm and all day Sunday.
So YAY!! We are on Re-Hab
They have been doing evaluations for the most part so she hasnt had much hard work to do today. They let her have a real bath this morning which she loved though she was just a touch disappointed not to be able to put her whole body in the bath, they sat her in a chair because she is unable to hold herself up for a long time, not long enough to bathe anyway.
We have done the usual, seeing countless new doctors and answering the same questions over and over......all positive though as they are rehab based, still medical but more to do with her stamina/oxygen issues versus the fallout from the brain abscess. We have been told that the time spent on re-hab is generally 4 weeks with a 'very strict' early parole for really brilliant work.
So if Becca does okay we will be here for the duration, if she works really, really hard we could get out earlier. Where any form of exercise is concerned Becca is one of those that will only do the minimum, so we expect to be in here for the duration
We have to have a pulmonary function test on Monday and a heart echo. They want to know how safe it is to push/how hard and for how long in her rehabilitation sessions. So Monday is going to be another easy day as far as exercises go.
One bad thing we learnt about the PICC line is that they are unable to draw from it, it pushes fine when they want to administer but it wont draw blood so it looks as if we are stuck with the IV's.
On the re-hab unit they are quite regimented. The aim of the unit is to get the child back in the stride of daily living, so meals (when she gets to eat again) are a strict 9am, 12pm and 5pm. Visitation hours are also restricted. On weekdays she isnt allowed visitors in the daytime, we can have visitors after 5pm and at weekends, Saturday after 12pm and all day Sunday.
So YAY!! We are on Re-Hab
maroo
DIS Veteran
- Joined
- Aug 3, 2008
- Messages
- 8,036
Way to go Becca!!!!!!!
You are well on your way to recovery! And I know your Mom and Dad and all of your friends are so excited for you, too!!!!!
And...
Guess what landed in my mailbox this afternoon?!?!
Your CARD! Evidently my friends at the front desk only put the minimum postage on there and it needed some more...so it got sent back to me! Yea!!!!!
I have never been so excited to get anything back in my whole life!
So, I will send it out again on Monday! This time I will postmark it!!
So...my faith in humanity has been restored for the time being...since no one stole from Becca!!!
It will be a "congrats you are in rehab!" card!
You are well on your way to recovery! And I know your Mom and Dad and all of your friends are so excited for you, too!!!!!
And...
Guess what landed in my mailbox this afternoon?!?!
Your CARD! Evidently my friends at the front desk only put the minimum postage on there and it needed some more...so it got sent back to me! Yea!!!!!
I have never been so excited to get anything back in my whole life!
So, I will send it out again on Monday! This time I will postmark it!!
So...my faith in humanity has been restored for the time being...since no one stole from Becca!!!
It will be a "congrats you are in rehab!" card!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Yay for the meanies at the USPS!!!! 
Love
Mandy
Love
Mandy
Way to go Becca!!!!!!!
You are well on your way to recovery! And I know your Mom and Dad and all of your friends are so excited for you, too!!!!!
And...
Guess what landed in my mailbox this afternoon?!?!
Your CARD! Evidently my friends at the front desk only put the minimum postage on there and it needed some more...so it got sent back to me! Yea!!!!!
I have never been so excited to get anything back in my whole life!
So, I will send it out again on Monday! This time I will postmark it!!
So...my faith in humanity has been restored for the time being...since no one stole from Becca!!!
It will be a "congrats you are in rehab!" card!
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