Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)
- Thread starter llurgy
- Start date
Tnkrbelle565
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- May 14, 2004
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So glad that she was able to move!!!! 
llurgy
DIS Veteran
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- Oct 2, 2008
- Messages
- 585
Today's report so far:
Rehabilitation is very different. The emphasis is on having a good night's sleep in preparation for a hard day's work.
Everything was quiet until 8am. Bic was asleep and the ward was quiet. Then began a precession of people into the room. Lt. B. Camp was amongst them. "Straighten those legs girl!" "Why haven't you eaten - how can you eat meat if you don't eat your pudding?" "We're going to make your life in here miserable" "Get out of bed and do 20 press-ups"
The neuro surgeon also stopped in. He commented on the last CT scan done during the week. He was pleased that there was no swelling of the ventricles and said that the abscess measured about 3.5 cm, unchanged from the previous CT scan.
At 8.30 sharp, Bic had her first project - sit up in bed and color a picture. At 9.00, PT came in and put her through her paces. She had to get herself out of bed (with some help) and walk over to David to give him a hug and a kiss. This was at the request of Bic because he had missed out on this during the week. After getting back into bed, she was asked to get back out and stand using a walker whilst the bedding was changed. As soon as all that was over, OT made their visit. This was a bit more relaxed, squashing clay and doing some stretching and movement exercises in bed.
As fast as the day started, it suddenly quietened down and there stream of people into the room stopped. Bic had a headache after all this activity and just wanted to rest (better still, sleep).
The poor tired little baby fell asleep about 10.30am and is still asleep now at 11.50am - Well she could also be pretending to sleep to avoid having to eat her yogurt
Rehabilitation is very different. The emphasis is on having a good night's sleep in preparation for a hard day's work.
Everything was quiet until 8am. Bic was asleep and the ward was quiet. Then began a precession of people into the room. Lt. B. Camp was amongst them. "Straighten those legs girl!" "Why haven't you eaten - how can you eat meat if you don't eat your pudding?" "We're going to make your life in here miserable" "Get out of bed and do 20 press-ups"
The neuro surgeon also stopped in. He commented on the last CT scan done during the week. He was pleased that there was no swelling of the ventricles and said that the abscess measured about 3.5 cm, unchanged from the previous CT scan.
At 8.30 sharp, Bic had her first project - sit up in bed and color a picture. At 9.00, PT came in and put her through her paces. She had to get herself out of bed (with some help) and walk over to David to give him a hug and a kiss. This was at the request of Bic because he had missed out on this during the week. After getting back into bed, she was asked to get back out and stand using a walker whilst the bedding was changed. As soon as all that was over, OT made their visit. This was a bit more relaxed, squashing clay and doing some stretching and movement exercises in bed.
As fast as the day started, it suddenly quietened down and there stream of people into the room stopped. Bic had a headache after all this activity and just wanted to rest (better still, sleep).
The poor tired little baby fell asleep about 10.30am and is still asleep now at 11.50am - Well she could also be pretending to sleep to avoid having to eat her yogurt
maroo
DIS Veteran
- Joined
- Aug 3, 2008
- Messages
- 8,036
Today's report so far:
Rehabilitation is very different. The emphasis is on having a good night's sleep in preparation for a hard day's work.
Everything was quiet until 8am. Bic was asleep and the ward was quiet. Then began a precession of people into the room. Lt. B. Camp was amongst them. "Straighten those legs girl!" "Why haven't you eaten - how can you eat meat if you don't eat your pudding?" "We're going to make your life in here miserable" "Get out of bed and do 20 press-ups"
The neuro surgeon also stopped in. He commented on the last CT scan done during the week. He was pleased that there was no swelling of the ventricles and said that the abscess measured about 3.5 cm, unchanged from the previous CT scan.
At 8.30 sharp, Bic had her first project - sit up in bed and color a picture. At 9.00, PT came in and put her through her paces. She had to get herself out of bed (with some help) and walk over to David to give him a hug and a kiss. This was at the request of Bic because he had missed out on this during the week. After getting back into bed, she was asked to get back out and stand using a walker whilst the bedding was changed. As soon as all that was over, OT made their visit. This was a bit more relaxed, squashing clay and doing some stretching and movement exercises in bed.
As fast as the day started, it suddenly quietened down and there stream of people into the room stopped. Bic had a headache after all this activity and just wanted to rest (better still, sleep).
The poor tired little baby fell asleep about 10.30am and is still asleep now at 11.50am - Well she could also be pretending to sleep to avoid having to eat her yogurt
wow...
these folks sounds SERIOUS!
which is a good thing, I suppose.
I bet they wake her up at 12:00 sharp to eat her lunch.
Thank you for the updates. Sounds like she is in very good hands!!!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Day 37 part two
Here is a message from Bic:
"Dear Family and Friends,
You have been so generous and thank you so much for making me feel so nice. I should be out of here soon, then I can see you.
My tummy is a bit weird and I also have a headache, but thats okay because it will go away soon. Every day I feel the same. In the rehabilitation center, at least I get more sleep with almost no interruptions. Where I was before, I was really tired when I woke up because I was interrupted almost every hour by the nurses. They took my orange juice (orange juice means b-l-o-o-d! and needles are called straws now).
On the subject of food, luckily I will be able to eat real food and I am going to have a swallow test to see if I can drink things like water and coke. Hopefully I will pass, cos Im dying for some coke. Im going to ask my um to have the coke frozen, but it will be flat. But thats okay with me.
I dont want to go into what I have to do during the day - theres just too much.
Tonight when we go down stairs, I get to go in the gift shop. I get a treat - this one is going to be either the cat or a ...I cant remember the other thing, but before I got a zebra, I called her Zoe, a bunny called Flopsey and a snake called Sarah.
If Tom and Sally are reading this, tell Elliana I will see her soon and I really like the card she sent me.
If Pastor Scott and Tony are reading this, I hope that I see you soon.
I will see you all soon. Thank you for all your cards and gifts!!!
See you all soon.
Love Bic Bic"
This afternoon, after a good rest, Bic and David played guess who and watched movies.
This evening, under protest, Bic got out of bed and went in her chair to look at a hidden object mural just outside the ward. She complained about feeling sick in her stomach, so we returned to her room, but we didn't make it to the bed before she vomited. After that, she felt a bit better and was relaxed - ready for sleep. We are not sure why she was ill - possibly part of recovering?
Day 38
Bic is a little depressed today and feeling sickly. We received a call about 4am asking that we comfort Bic. She had been sick (threw up) for half an hour and wasn't very happy. David went over, but by the time he arrived, she was trying to sleep. The vomiting didn't coincide with anything like meds been given and by all accounts, there was a lot of volume suggesting that she hadn't been digesting her food or her small intestine wasn't accepting the volume of food being introduced into her stomach. Her food was turned off at this point until she had been seen by a doctor.
Later, when we returned, she had already been for an x-ray to determine if the NG tube was positioned correctly in the stomach. She had also thrown up again, with still no feed going in.
The x-ray showed that the tube terminated a little too early at the bottom of the esophagus, so plans were made to push it about 3" further down into the stomach. The theory being worked on was that the food being introduced where it was is irritating the esophagus and causing her to vomit. If this doesn't work, they are looking at replacing the NG tube with an NJ tube, which terminates in the small intestine. They might have done this today, but being a Sunday, the radiologist do not work (they have to be called in).
The food was turned on at 3pm at a reduced rate. It wasn't long before Bic was complaining that her stomach was cramping again. She was given anti-nausea medicine and that seemed to ease the symptoms.
Bic has been quiet all day, not wanting to do anything including watch the TV. She is definitely not happy!
We are thinking that the tube adjustment or going to an NJ tube will not change anything. She has had the NG tube in for so long like this that it is unlikely this is the problem. We suspect that she has either contracted a bug or it is yet another part of her body that has become hypersensitive and is related to changes that are going on in her brain.
The doctor told us that the last blood test had a slightly elevated white blood cell count and that they were keeping a close eye on it. It coincides with her throwing up and also a change in antibiotics. He said that the pancreas can release a lot of white blood cells if it is squeezed, like by the action of throwing up. Another blood sample will be drawn tomorrow to see if there is something going on that we should be concerned with.
Something interesting we forgot to mention yesterday was that Bic says she cannot remember when she was unable to talk and that was only a couple of weeks ago! It is gratifying to realize that most of this awful ordeal will not be remembered by Becca.
Love
Mandy
Here is a message from Bic:
"Dear Family and Friends,
You have been so generous and thank you so much for making me feel so nice. I should be out of here soon, then I can see you.
My tummy is a bit weird and I also have a headache, but thats okay because it will go away soon. Every day I feel the same. In the rehabilitation center, at least I get more sleep with almost no interruptions. Where I was before, I was really tired when I woke up because I was interrupted almost every hour by the nurses. They took my orange juice (orange juice means b-l-o-o-d! and needles are called straws now).
On the subject of food, luckily I will be able to eat real food and I am going to have a swallow test to see if I can drink things like water and coke. Hopefully I will pass, cos Im dying for some coke. Im going to ask my um to have the coke frozen, but it will be flat. But thats okay with me.
I dont want to go into what I have to do during the day - theres just too much.
Tonight when we go down stairs, I get to go in the gift shop. I get a treat - this one is going to be either the cat or a ...I cant remember the other thing, but before I got a zebra, I called her Zoe, a bunny called Flopsey and a snake called Sarah.
If Tom and Sally are reading this, tell Elliana I will see her soon and I really like the card she sent me.
If Pastor Scott and Tony are reading this, I hope that I see you soon.
I will see you all soon. Thank you for all your cards and gifts!!!
See you all soon.
Love Bic Bic"
This afternoon, after a good rest, Bic and David played guess who and watched movies.
This evening, under protest, Bic got out of bed and went in her chair to look at a hidden object mural just outside the ward. She complained about feeling sick in her stomach, so we returned to her room, but we didn't make it to the bed before she vomited. After that, she felt a bit better and was relaxed - ready for sleep. We are not sure why she was ill - possibly part of recovering?
Day 38
Bic is a little depressed today and feeling sickly. We received a call about 4am asking that we comfort Bic. She had been sick (threw up) for half an hour and wasn't very happy. David went over, but by the time he arrived, she was trying to sleep. The vomiting didn't coincide with anything like meds been given and by all accounts, there was a lot of volume suggesting that she hadn't been digesting her food or her small intestine wasn't accepting the volume of food being introduced into her stomach. Her food was turned off at this point until she had been seen by a doctor.
Later, when we returned, she had already been for an x-ray to determine if the NG tube was positioned correctly in the stomach. She had also thrown up again, with still no feed going in.
The x-ray showed that the tube terminated a little too early at the bottom of the esophagus, so plans were made to push it about 3" further down into the stomach. The theory being worked on was that the food being introduced where it was is irritating the esophagus and causing her to vomit. If this doesn't work, they are looking at replacing the NG tube with an NJ tube, which terminates in the small intestine. They might have done this today, but being a Sunday, the radiologist do not work (they have to be called in).
The food was turned on at 3pm at a reduced rate. It wasn't long before Bic was complaining that her stomach was cramping again. She was given anti-nausea medicine and that seemed to ease the symptoms.
Bic has been quiet all day, not wanting to do anything including watch the TV. She is definitely not happy!
We are thinking that the tube adjustment or going to an NJ tube will not change anything. She has had the NG tube in for so long like this that it is unlikely this is the problem. We suspect that she has either contracted a bug or it is yet another part of her body that has become hypersensitive and is related to changes that are going on in her brain.
The doctor told us that the last blood test had a slightly elevated white blood cell count and that they were keeping a close eye on it. It coincides with her throwing up and also a change in antibiotics. He said that the pancreas can release a lot of white blood cells if it is squeezed, like by the action of throwing up. Another blood sample will be drawn tomorrow to see if there is something going on that we should be concerned with.
Something interesting we forgot to mention yesterday was that Bic says she cannot remember when she was unable to talk and that was only a couple of weeks ago! It is gratifying to realize that most of this awful ordeal will not be remembered by Becca.
Love
Mandy
eyor44
DIS Veteran
- Joined
- May 26, 2008
- Messages
- 5,419
Once again, two steps forward and one step back. Sounds like a bug. I had the flu a couple weeks ago and my symptoms were the same. or the fact that she hasn't had food for so long that her system is having a hard time dealing with it. Hopefully they will figure it out quickly. Poor love has enough to deal with without being sick also.
Sounds like you all were really busy yesterday. I love all the pictures.
Sounds like you all were really busy yesterday. I love all the pictures.
MapleGirl
Perpetual Planner
- Joined
- Jul 31, 2007
- Messages
- 1,654
Oh Bic!!
I am so happy to hear that you are in rehab. Keep up the good work sweetie! All your DIS friends are cheering for you!
I hope your tummy feels better soon and you will be enjoying many delicious Cokes.
Thanks for posting Mandy. Loving thoughts from Boston are sent your way.
I am so happy to hear that you are in rehab. Keep up the good work sweetie! All your DIS friends are cheering for you!
I hope your tummy feels better soon and you will be enjoying many delicious Cokes.
Thanks for posting Mandy. Loving thoughts from Boston are sent your way.
Priskillet
Mouseketeer
- Joined
- Feb 26, 2009
- Messages
- 162
Just reading thru wanted to say hello and to send you well wishes are with you! 
Dear Becca: thank you so much for writing a letter to all of us here. I know there you have heard from many people you know very well...but you and your parents have also been hearing from lots of people from all over the country - and the world! Our family is from Toronto, Canada. All of us "met" on the DIS boards, when we were getting more information about WDW. Our son Mark was also granted a wish and he chose to go to WDW. We were there in November, a little while before you went. We had an amazing time, and it sounds like you did too.
Mark has cerebral palsy, and uses a walker or wheelchair to get around. He also has a wonderful personality, just like you. He does physiotherapy every day, so I can relate to how tough it can be to do the therapy on days when you just don't feel like it. you guys make your parents very, very proud!
I'm sorry your tummy is giving you trouble these days and hope they figure out a way to get you eating - and drinking (COKE!) your favorite things soon.
We think your parents are special people and that makes sense...they have a very special, special girl!
Thanks for letting us know how you're doing - it's great to hear from you directly!
Your friends,
The Bowen family from Toronto, Ontario, Canada
Mark has cerebral palsy, and uses a walker or wheelchair to get around. He also has a wonderful personality, just like you. He does physiotherapy every day, so I can relate to how tough it can be to do the therapy on days when you just don't feel like it. you guys make your parents very, very proud!
I'm sorry your tummy is giving you trouble these days and hope they figure out a way to get you eating - and drinking (COKE!) your favorite things soon.
We think your parents are special people and that makes sense...they have a very special, special girl!
Thanks for letting us know how you're doing - it's great to hear from you directly!
Your friends,
The Bowen family from Toronto, Ontario, Canada
maroo
DIS Veteran
- Joined
- Aug 3, 2008
- Messages
- 8,036
Becca...
You are so sweet to write us all a note!
Gosh, I hope you are feeling better today than you have been. That sounds like no fun at all!! Hopefully it is just a little bug or something and nothing too serious.
William - Lauren's little brother - is in the hospital right now, too and he is not feeling good at all either! But he has not been there nearly as long as you!!
Hang in there!
I am praying for you and your family!
You are so sweet to write us all a note!
Gosh, I hope you are feeling better today than you have been. That sounds like no fun at all!! Hopefully it is just a little bug or something and nothing too serious.
William - Lauren's little brother - is in the hospital right now, too and he is not feeling good at all either! But he has not been there nearly as long as you!!
Hang in there!
I am praying for you and your family!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Yesterdays report, sorry its late.
First thing this morning, Bic was very bright - despite throwing up phlegm during the night. She hasn't had any feed for some time now. Her mood has been up and down all day. One minute, she doesn't want to know, the next she has a big smile on her face.
For now, until the reason that Becca is throwing up is established all the nurses and Doctors are gowning up before they come into her room. Because she is throwing up and a reason hasn't yet been found they are erring on the side of caution and treating her as if she has a virus and needs to be in isolation.
Doctors have been debating what the problem is with Bic's stomach and shortly after lunch, they decided to remove the NG tube and replace it with an NJ tube going directly to the small intestine. We questioned the merit of this given that she has been fine with an NG tube for nearly a month now and suggested that this change was merely a work around that didn't address the root cause of her stomach upset.
The senior rehabilitation doctor then examined Bic and noted that the pain was originating from her right side and questioned whether the problem could be her gall bladder. The doctor suggested that because of her long stay in hospital (in bed), she could have a sludge build up in her gall bladder that would explain the symptoms that she is experiencing. As a result, they didn't make the change to the NJ tube choosing to hang on until tests of her gall bladder had been done.
The plan is to do an ultrasound of Bic's gall bladder tomorrow. If, indeed sludge is found, they will give her some medication that treats this condition. Depending on how she picks up her feeds after that will determine if they put an NJ tube in.
Bic was quite busy today with therapy. It was all done at a reduced intensity because of her belly pains, but she didn't skip any sessions this morning. She did get out of class this afternoon, though because rehabilitation wanted her to have a heart echo study done (ultrasound of the heart). They found that her heart was fine and of no concern as far as pushing Bic during the course of the therapy.
Rehabilitation also want a lung function test to be done to make sure there are no issues to be concerned about because of her pulmonary function.
Tomorrow, the speech therapist has promised to try Bic on Pringles tomorrow - she is really looking forward to that. Also, the swallow test on liquids to consistency of water are planned for Wednesday afternoon. They may even try her with some chewing tests (cookies baked with barium).
Today she has been down for her abdomen ultrasound as yet we havent heard the results from that.
Becca still hasnt had any feeds since Saturday, she should have been able to get pureed scrambled egg for her breakfast but it came up unpurreed, when we got a pureed repeat order she enjoyed a few spoonfulls of the sausage and the egg.
First thing this morning, Bic was very bright - despite throwing up phlegm during the night. She hasn't had any feed for some time now. Her mood has been up and down all day. One minute, she doesn't want to know, the next she has a big smile on her face.
For now, until the reason that Becca is throwing up is established all the nurses and Doctors are gowning up before they come into her room. Because she is throwing up and a reason hasn't yet been found they are erring on the side of caution and treating her as if she has a virus and needs to be in isolation.
Doctors have been debating what the problem is with Bic's stomach and shortly after lunch, they decided to remove the NG tube and replace it with an NJ tube going directly to the small intestine. We questioned the merit of this given that she has been fine with an NG tube for nearly a month now and suggested that this change was merely a work around that didn't address the root cause of her stomach upset.
The senior rehabilitation doctor then examined Bic and noted that the pain was originating from her right side and questioned whether the problem could be her gall bladder. The doctor suggested that because of her long stay in hospital (in bed), she could have a sludge build up in her gall bladder that would explain the symptoms that she is experiencing. As a result, they didn't make the change to the NJ tube choosing to hang on until tests of her gall bladder had been done.
The plan is to do an ultrasound of Bic's gall bladder tomorrow. If, indeed sludge is found, they will give her some medication that treats this condition. Depending on how she picks up her feeds after that will determine if they put an NJ tube in.
Bic was quite busy today with therapy. It was all done at a reduced intensity because of her belly pains, but she didn't skip any sessions this morning. She did get out of class this afternoon, though because rehabilitation wanted her to have a heart echo study done (ultrasound of the heart). They found that her heart was fine and of no concern as far as pushing Bic during the course of the therapy.
Rehabilitation also want a lung function test to be done to make sure there are no issues to be concerned about because of her pulmonary function.
Tomorrow, the speech therapist has promised to try Bic on Pringles tomorrow - she is really looking forward to that. Also, the swallow test on liquids to consistency of water are planned for Wednesday afternoon. They may even try her with some chewing tests (cookies baked with barium).
Today she has been down for her abdomen ultrasound as yet we havent heard the results from that.
Becca still hasnt had any feeds since Saturday, she should have been able to get pureed scrambled egg for her breakfast but it came up unpurreed, when we got a pureed repeat order she enjoyed a few spoonfulls of the sausage and the egg.
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
The day started early with a visit downstairs to the Ultrasound for an abdomen echo gram at 8am. The procedure wasn't quick but it wasn't as lengthy as the arms and legs.
We came back up from that hoping to have some pureed eggs for her breakfast only to find that even though we had ordered from the pureed menu the food had arrived "whole". A re-ordered breakfast came up at around 10am, so it was a late breakfast for Becca. She only tried a couple of mouthfuls but some is better than nothing.
The results from the Echo showed "some sludging" so she is now being given a medicine called Actigall. Sludging is a kind of pre-cursor to Gallstones and generally affects people that have been immobile for long stretches of time. The medicine will help speed up the gall bladders reaction time for clearing the stomach and so aid digestion. Hopefully this will help clear up the "pukey" feeling she is living with constantly.
Bic managed to do some therapy. She took a few steps and sat on a commode, but she complained of her stomach every time she got up.
Mandy wasn't well this afternoon and she had to retire to the Ronald McDonald house for the last part of the day.
We questioned the doctor about the fact that Bic had essentially not had any nutrition for the last three days only to find out that the doctor believed that she had put an order in for tube feeds to resume. The nurses responded by saying that no order had come through. The doctor expressed dismay at the new computer system and went away to investigate. Later we discovered that the doctor was attempting to get some low fat formula and the hospital appeared to be out of it! Pediolite was put forward as a backup - and this is still being figured out at 9pm!
They are going to start the feeds up slowly and see how Bic tolerates whatever they finally end up giving her. Hopefully replacing the very high fat content Jevity formula will make a difference to how she has been feeling. In any case, she definitely needs some food if she is going to bee able to cope with all the therapy that is planned.
In the meantime, Bic has had a few bites of quessidila and mandarin orange, which she enjoyed - Bic is now allowed soft chewable foods (it doesn't have to be pureed).
Becca also had some other tests performed.
She had to have an RSV test just to make sure, this entailed pushing tubing up her nose, squirting saline up and then collecting the saline mixed with whatever is up there. They didn't get enough mucus out so that test has to be performed again today.
She also is going through a series of pinprick blood collections on her fingertips. They want to test her CO2 levels in her extremities, if they are really high they may start making her sleep with a CPAP mask on to try and raise her O2 levels whilst asleep.
Mandy finished up being "not very well" in the evening and then when David got back to the Mac house her took over being sick too.
We are in a sorry state.
We came back up from that hoping to have some pureed eggs for her breakfast only to find that even though we had ordered from the pureed menu the food had arrived "whole". A re-ordered breakfast came up at around 10am, so it was a late breakfast for Becca. She only tried a couple of mouthfuls but some is better than nothing.
The results from the Echo showed "some sludging" so she is now being given a medicine called Actigall. Sludging is a kind of pre-cursor to Gallstones and generally affects people that have been immobile for long stretches of time. The medicine will help speed up the gall bladders reaction time for clearing the stomach and so aid digestion. Hopefully this will help clear up the "pukey" feeling she is living with constantly.
Bic managed to do some therapy. She took a few steps and sat on a commode, but she complained of her stomach every time she got up.
Mandy wasn't well this afternoon and she had to retire to the Ronald McDonald house for the last part of the day.
We questioned the doctor about the fact that Bic had essentially not had any nutrition for the last three days only to find out that the doctor believed that she had put an order in for tube feeds to resume. The nurses responded by saying that no order had come through. The doctor expressed dismay at the new computer system and went away to investigate. Later we discovered that the doctor was attempting to get some low fat formula and the hospital appeared to be out of it! Pediolite was put forward as a backup - and this is still being figured out at 9pm!
They are going to start the feeds up slowly and see how Bic tolerates whatever they finally end up giving her. Hopefully replacing the very high fat content Jevity formula will make a difference to how she has been feeling. In any case, she definitely needs some food if she is going to bee able to cope with all the therapy that is planned.
In the meantime, Bic has had a few bites of quessidila and mandarin orange, which she enjoyed - Bic is now allowed soft chewable foods (it doesn't have to be pureed).
Becca also had some other tests performed.
She had to have an RSV test just to make sure, this entailed pushing tubing up her nose, squirting saline up and then collecting the saline mixed with whatever is up there. They didn't get enough mucus out so that test has to be performed again today.
She also is going through a series of pinprick blood collections on her fingertips. They want to test her CO2 levels in her extremities, if they are really high they may start making her sleep with a CPAP mask on to try and raise her O2 levels whilst asleep.
Mandy finished up being "not very well" in the evening and then when David got back to the Mac house her took over being sick too.
We are in a sorry state.
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Mandy got up early this AM to go across to the hospital whilst David stayed sleeping for a while.
Becca's IV's for drawing orange juice have blown, so sometime today she is going to have to have another IV placed. The PICC can be used for meds but will no longer work for drawing orange juice.
There was a follow up CT scan of her head with contrast this morning at 11am. This was done with contrast this time.
At 11.50am she was put through yet another RSV test with the tube and saline up the nose. Again I don't think they collected enough mucus from up her nose but that is probably because she doesn't have any mucus up her nose at all at this time, she is clear as a bell as far as cold symptoms are concerned.
She will be going for her swallow test this afternoon at 1pm.
We have a group meeting at 2pm with all the rehab staff and the doctors, it will be a "goal" meeting with whatwe hope to get out of re-hab in the coming weeks.
Speech, PT/OT and recreational Therapy still work with her 2 times per day in between all of the tests and other things.
Becca's IV's for drawing orange juice have blown, so sometime today she is going to have to have another IV placed. The PICC can be used for meds but will no longer work for drawing orange juice.
There was a follow up CT scan of her head with contrast this morning at 11am. This was done with contrast this time.
At 11.50am she was put through yet another RSV test with the tube and saline up the nose. Again I don't think they collected enough mucus from up her nose but that is probably because she doesn't have any mucus up her nose at all at this time, she is clear as a bell as far as cold symptoms are concerned.
She will be going for her swallow test this afternoon at 1pm.
We have a group meeting at 2pm with all the rehab staff and the doctors, it will be a "goal" meeting with whatwe hope to get out of re-hab in the coming weeks.
Speech, PT/OT and recreational Therapy still work with her 2 times per day in between all of the tests and other things.
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