Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)
- Thread starter llurgy
- Start date
The3rdDisneyBoy
Mouseketeer
- Joined
- Apr 8, 2009
- Messages
- 120
Aw, I just watched the video. Becca looks great.
Is this the week you guys are going home?
Is this the week you guys are going home?
Baloo
<font color="red"><br>Laughter is the bloom<br>of
- Joined
- Apr 21, 2000
- Messages
- 4,527
I am so very happy to see Becca up and talking and making jokes...Ainsley.."my lazy friend" 
.
I was reading Rebbecca's TR when she became ill...I love the picture of her modeling her poofy skirt from the Big Give....she looked like she was whirling and twirling in the skirt and having the time of her life with that huge smile on her face.
I have been following the hospital blog since it started.I don't comment on here much but Becca,Mandy and David have been in my thoughts and prayers every single day.
I always ask God to make Becca that whirly,twirly happy little girl again! 
I'm so glad to see she's getting better.God bless y'all...many good thoughts and prayers that things get better and better!!!
.I was reading Rebbecca's TR when she became ill...I love the picture of her modeling her poofy skirt from the Big Give....she looked like she was whirling and twirling in the skirt and having the time of her life with that huge smile on her face.
I have been following the hospital blog since it started.I don't comment on here much but Becca,Mandy and David have been in my thoughts and prayers every single day.
I always ask God to make Becca that whirly,twirly happy little girl again! I'm so glad to see she's getting better.God bless y'all...many good thoughts and prayers that things get better and better!!!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Day 78 - Queen (April 25, 2009)
Sorry about yesterdays lapse in not writing our daily update, Becca was out of her room so much yesterday that there wasn't time to do it and in the evening the time was taken up with Bath Duties.
Yesterday Becca's PICC line was finally taken out!!!! Becca's so happy about it! No more Lovonox shots in her poor bruised little belly, no more once a week painful dressing changes, no more chained to her IV pole 24 hours a day!!!
The procedure itself was a virtually painless one except for the dressing removal. Because the dressing was one that had only been put on two days previous it was still very, very sticky and was putting up a fight about the nurse trying to separate it from Becca's skin. Once the dressing was finally off it was just a matter of pulling out the line, Becca didn't even feel it.
We are still in discussion with the 'Powers That Be' about what "WE" consider adequate nutrition and what "THEY" consider adequate nutrition. Becca is still on 50% of her daily nutrition via formula feed, she is now eating by mouth what we consider around half of what she would have eaten at home before all of this happened. The Doctors are saying that what she is eating by mouth is not even a quarter of what she needs. So, we are at an impasse, because Becca is unable to eat more by mouth because the formula feed is keeping her full. Hopefully we will see the dietician sometime this weekend to work something out that doesn't seem impossible to accomplish. At this rate she will be on the formula feeds forever.
NOW TODAY!
Today was a slow start for Bic. At 8am, she still wanted a bit of time to come round. It wasn't long before the nurse came in to bombard her with her meds. The large volume made her feel quite ill. Bic requested some anti nausea medicine to counter the feeling, but fortunately it went away quickly and by the time it was ready, she didn't need any.
Before her first therapy of the morning, she wanted to go to the bathroom. She walked there with the help of her walker, then for the first time, she made her own way back to bed without any assistance.
For OT at 8.30, Bic got herself dressed then sat on the side of the bed for a game of Uno.
Next therapy was PT and Bic was invited to walk to her wheelchair parked just outside her room. Then she walked 53 feet down the hallway with her walker before stopping and having a rest in her chair. She then did another walk of 72 feet.
For TR at 11 am, Bic went into the recreation room for a game on the Wii. Bic had her favorite game of Rabid Rabbits and she stood to play a music mini game. It involved a lot of arm movements in time to the music. By the end of it, she was quite tired and ready for a sit down.
At lunch time, Bic was invited to go down to the cafeteria with David and Mandy. That was the first time she had eaten outside her room! On the way there, we stopped off at the gift shop to have her balloons re-inflated with helium. She also wanted a stuffed toy and it is the weekend!
We returned to the room to get Bic unhooked from her feed tube so that we could go out. Our trip took us over to the Ronald McDonald House to see where we had been spending our nights for the last 11 weeks. We sat outside on the patio eating ice cream in the hot sun (and high wind). Bic didn't want to go back to the hospital, so we took a detour and walked around Livingston park.
Between going to the cafeteria and Ronald McDonald House, Bic was out of her room for over four hours (12.15 to 4.30), which was really nice. Once back in the room, Bic was happy to lay on her bed and rest.
This evening was the rehab prom. It began at 7pm. Parents were told that they were not invited! We got Bic ready in her "Drizella" dress and took her down to the prom in her wheelchair. David and Mandy went out to try to find a nice place to eat at, but failed miserably ending up at a McDonald's! We did eat in though. Columbus is the most awful place in the world to find restaurants - even with a GPS.
When we got back two hours later, Bic was still not back in her room. The nurse had apparently been down to see if she wanted to come back, but she didn't want to leave. We went to see how she was doing and could see her through the door with a big smile on her face. We left Bic in the dance hall until she was ready to come out (which was right at the very end), then brought her back to her room. She had a big surprise for us - she had been made prom queen and was wearing a lovely crown! Bic was so happy.
It was nearly 10pm by the time she got back to her room and all she wanted to do get into bed and go to sleep!
Sorry about yesterdays lapse in not writing our daily update, Becca was out of her room so much yesterday that there wasn't time to do it and in the evening the time was taken up with Bath Duties.
Yesterday Becca's PICC line was finally taken out!!!! Becca's so happy about it! No more Lovonox shots in her poor bruised little belly, no more once a week painful dressing changes, no more chained to her IV pole 24 hours a day!!!
The procedure itself was a virtually painless one except for the dressing removal. Because the dressing was one that had only been put on two days previous it was still very, very sticky and was putting up a fight about the nurse trying to separate it from Becca's skin. Once the dressing was finally off it was just a matter of pulling out the line, Becca didn't even feel it.
We are still in discussion with the 'Powers That Be' about what "WE" consider adequate nutrition and what "THEY" consider adequate nutrition. Becca is still on 50% of her daily nutrition via formula feed, she is now eating by mouth what we consider around half of what she would have eaten at home before all of this happened. The Doctors are saying that what she is eating by mouth is not even a quarter of what she needs. So, we are at an impasse, because Becca is unable to eat more by mouth because the formula feed is keeping her full. Hopefully we will see the dietician sometime this weekend to work something out that doesn't seem impossible to accomplish. At this rate she will be on the formula feeds forever.
NOW TODAY!
Today was a slow start for Bic. At 8am, she still wanted a bit of time to come round. It wasn't long before the nurse came in to bombard her with her meds. The large volume made her feel quite ill. Bic requested some anti nausea medicine to counter the feeling, but fortunately it went away quickly and by the time it was ready, she didn't need any.
Before her first therapy of the morning, she wanted to go to the bathroom. She walked there with the help of her walker, then for the first time, she made her own way back to bed without any assistance.
For OT at 8.30, Bic got herself dressed then sat on the side of the bed for a game of Uno.
Next therapy was PT and Bic was invited to walk to her wheelchair parked just outside her room. Then she walked 53 feet down the hallway with her walker before stopping and having a rest in her chair. She then did another walk of 72 feet.
For TR at 11 am, Bic went into the recreation room for a game on the Wii. Bic had her favorite game of Rabid Rabbits and she stood to play a music mini game. It involved a lot of arm movements in time to the music. By the end of it, she was quite tired and ready for a sit down.
At lunch time, Bic was invited to go down to the cafeteria with David and Mandy. That was the first time she had eaten outside her room! On the way there, we stopped off at the gift shop to have her balloons re-inflated with helium. She also wanted a stuffed toy and it is the weekend!
We returned to the room to get Bic unhooked from her feed tube so that we could go out. Our trip took us over to the Ronald McDonald House to see where we had been spending our nights for the last 11 weeks. We sat outside on the patio eating ice cream in the hot sun (and high wind). Bic didn't want to go back to the hospital, so we took a detour and walked around Livingston park.
Between going to the cafeteria and Ronald McDonald House, Bic was out of her room for over four hours (12.15 to 4.30), which was really nice. Once back in the room, Bic was happy to lay on her bed and rest.
This evening was the rehab prom. It began at 7pm. Parents were told that they were not invited! We got Bic ready in her "Drizella" dress and took her down to the prom in her wheelchair. David and Mandy went out to try to find a nice place to eat at, but failed miserably ending up at a McDonald's! We did eat in though. Columbus is the most awful place in the world to find restaurants - even with a GPS.
When we got back two hours later, Bic was still not back in her room. The nurse had apparently been down to see if she wanted to come back, but she didn't want to leave. We went to see how she was doing and could see her through the door with a big smile on her face. We left Bic in the dance hall until she was ready to come out (which was right at the very end), then brought her back to her room. She had a big surprise for us - she had been made prom queen and was wearing a lovely crown! Bic was so happy.
It was nearly 10pm by the time she got back to her room and all she wanted to do get into bed and go to sleep!
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Day 79 - Catch 22 (April 26, 2009)
It has been going on for a few days - even weeks. The nutritionists have calculated an ideal calorie intake goal for Bic and are adamant that she achieves it. This has resulted in a situation where the doctors are maintaining high tube feed rates (formula) and complaining that Bic isn't eating enough. The trouble is that Bic isn't hungry because she is getting enough from her formula that she has almost no appetite at all. We are stuck in this catch twenty two. The doctors won't reduce the formula feed because they are afraid Bic will wither away and Bic won't eat because she is getting plenty from the feeds.
We have had the conversation with the doctors time and time again, but it always comes back "...the nutritionists say...". Mandy asked to have a consult with the nutritionist at the end of last week and one was supposedly going to see us yesterday. That never happened, probably because it was a Saturday.
We expect that we will be going home with a tube feed in place.
This morning, Bic managed a couple pieces of strawberry. She didn't really want them. Her formula intake at the moment is 50 ml/h night and day, except for occasions such as a bath or a special trip.
We seem to be having a lot of trouble connecting to the Internet today. The hospital wireless is on the blink!
Bic's lunch consisted of her now favorites - turkey sandwich, strawberries and a couple buckets of ice as she watched Drake and Josh on her laptop!
This afternoon, Bic had a walk down the hallway using her walker - 92 feet none stop! We are so proud of her. Afterward, she is quite out of breath, but not ill.
Having got the exercise out of the way we took a walk to the Neuro ward to say hi to the staff, then a trip downstairs into the lobby then outside for a walk round the park. The sun made things a bit too hot, so we came back into the hospital at the other end and walked back that way. The trouble was that it was cold in the hospital, so we went back out into the shade to get warm again! Never happy!
Could we miss out the gift shop? Of course not! There we were told that Bic had been paged to return to her room.
Back on the ward, Bic was late for some meds, so we had her topped up and then she did a repeat walk of 92 feet. That ended the exercise for the day.
It has been going on for a few days - even weeks. The nutritionists have calculated an ideal calorie intake goal for Bic and are adamant that she achieves it. This has resulted in a situation where the doctors are maintaining high tube feed rates (formula) and complaining that Bic isn't eating enough. The trouble is that Bic isn't hungry because she is getting enough from her formula that she has almost no appetite at all. We are stuck in this catch twenty two. The doctors won't reduce the formula feed because they are afraid Bic will wither away and Bic won't eat because she is getting plenty from the feeds.
We have had the conversation with the doctors time and time again, but it always comes back "...the nutritionists say...". Mandy asked to have a consult with the nutritionist at the end of last week and one was supposedly going to see us yesterday. That never happened, probably because it was a Saturday.
We expect that we will be going home with a tube feed in place.
This morning, Bic managed a couple pieces of strawberry. She didn't really want them. Her formula intake at the moment is 50 ml/h night and day, except for occasions such as a bath or a special trip.
We seem to be having a lot of trouble connecting to the Internet today. The hospital wireless is on the blink!
Bic's lunch consisted of her now favorites - turkey sandwich, strawberries and a couple buckets of ice as she watched Drake and Josh on her laptop!
This afternoon, Bic had a walk down the hallway using her walker - 92 feet none stop! We are so proud of her. Afterward, she is quite out of breath, but not ill.
Having got the exercise out of the way we took a walk to the Neuro ward to say hi to the staff, then a trip downstairs into the lobby then outside for a walk round the park. The sun made things a bit too hot, so we came back into the hospital at the other end and walked back that way. The trouble was that it was cold in the hospital, so we went back out into the shade to get warm again! Never happy!
Could we miss out the gift shop? Of course not! There we were told that Bic had been paged to return to her room.
Back on the ward, Bic was late for some meds, so we had her topped up and then she did a repeat walk of 92 feet. That ended the exercise for the day.
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Day 80 - Busy (April 27, 2009)
Today started off quite busy. Becca had to have bloods drawn this morning but she also had to have an MRI today with some contrast so they decided to put an IV in for the dual purpose of drawing the bloods and giving a site for the contrast to be put in when she went for the MRI. On top of all this her NG tube had blocked up yet again. They still hadn't managed to get it unblocked when she went for an ophthalmology appointment at 10am so it was left capped and Becca was free of tube feeding for a little while.
We went down to outpatient ophthalmology for an eye test at around 10am, it is found that although her eyes are still not converging properly they are a lot better than they were. She has to do some eye exercises once per day and come back for a follow up appointment in 3 months when they expect her to have gotten even better. They took photo's of her optic nerves whilst we were there, apparently the backs of her eyes are pretty congested with blood and the veins coming off the optic nerves are "tortuous" (very thick and not as straight as they should be) We have known this since at least December but they wanted photos to have a baseline so that they could see at any future appointments if this condition had gotten better or worse.
Got back on ward just in time to be taken straight back downstairs again for her MRI of the brain. This was a follow up to make sure that nothing had changed for the worse and to see if the abscess remnant was still shrinking.
We were back upstairs at 12:45pm in time for lunch and to speak with the long awaited Nutritionist. After going round and round in circles we finally came to an agreement that Becca could be left off her tube feeding for 8 hours a day. There will also be some printed material given to actually specify what Becca needs to eat each day to fulfill her nutritional needs. The doctors expect Becca to be on tube feeding for at least a month of so whilst her body is still healing from the ordeal it has just been through. If Becca maintains her weight it shouldn't be long before she is just on tube feeding throughout the night and free during the daytime hours.
Whilst I was talking with the Docs and the nutritionist the nurses pulled out Becca's blocked up tube so until around six this evening she is tube free, at six they will place another one. The clinic coordinator is trying to arrange "In Home Care Nursing" on an as needed basis for feeding tube care at home. We can do most of it but Becca will not let us pull blocked ones out or place new ones in.
Because the tube has been blocked all morning Becca has had to take her medicine by mouth. Up to now it has gone in the tube. The main reason the tubes are getting blocked is because of the medicine and its stickiness. Hopefully from today onwards she will continue to take her medicine by mouth, she knows it is in her best interests and as she hates having tubes replaced so much we think she will keep the feeding tube stickiness free from now on.
At around 6.30pm the nurses came in to place Becca's new NG tube. Although she wasn't happy about it in the slightest she agreed to have the tube placed in the left nostril versus the right where it has been for the past 6 or 7 weeks. The the reasoning for shift of nostrils was twofold, one because you are supposed to swap and change to alleviate soreness having it in the same site and two because it means when we go home the pole holding the formula will be on the right side of the bed in conjunction with the side of the face the tube comes out.
The tube was placed and Becca hasn't cracked a smile since. She claims that it is really hurting her nose and throat. The nurses think that it may just be a little bit of irritation and want to know from Becca what it feels like in the morning after giving it time to settle in.
Becca took the second lot of meds this evening by mouth. This was a disaster as she drank them down and they came straight back up again. The nurses waited half an hour to give her belly time to settle and administered them via the feeding tube. We didn't want any more sticky meds going down the tube, but obviously she has to get the meds somehow and for now the tube is the only way. We are trying to find out alternative ways of giving them, but both ways we have tried to date have resulting in them coming back up.
We leave tonight in the hopes that our Sunny little smiling girl will be back to greet us in the morning.
Today started off quite busy. Becca had to have bloods drawn this morning but she also had to have an MRI today with some contrast so they decided to put an IV in for the dual purpose of drawing the bloods and giving a site for the contrast to be put in when she went for the MRI. On top of all this her NG tube had blocked up yet again. They still hadn't managed to get it unblocked when she went for an ophthalmology appointment at 10am so it was left capped and Becca was free of tube feeding for a little while.
We went down to outpatient ophthalmology for an eye test at around 10am, it is found that although her eyes are still not converging properly they are a lot better than they were. She has to do some eye exercises once per day and come back for a follow up appointment in 3 months when they expect her to have gotten even better. They took photo's of her optic nerves whilst we were there, apparently the backs of her eyes are pretty congested with blood and the veins coming off the optic nerves are "tortuous" (very thick and not as straight as they should be) We have known this since at least December but they wanted photos to have a baseline so that they could see at any future appointments if this condition had gotten better or worse.
Got back on ward just in time to be taken straight back downstairs again for her MRI of the brain. This was a follow up to make sure that nothing had changed for the worse and to see if the abscess remnant was still shrinking.
We were back upstairs at 12:45pm in time for lunch and to speak with the long awaited Nutritionist. After going round and round in circles we finally came to an agreement that Becca could be left off her tube feeding for 8 hours a day. There will also be some printed material given to actually specify what Becca needs to eat each day to fulfill her nutritional needs. The doctors expect Becca to be on tube feeding for at least a month of so whilst her body is still healing from the ordeal it has just been through. If Becca maintains her weight it shouldn't be long before she is just on tube feeding throughout the night and free during the daytime hours.
Whilst I was talking with the Docs and the nutritionist the nurses pulled out Becca's blocked up tube so until around six this evening she is tube free, at six they will place another one. The clinic coordinator is trying to arrange "In Home Care Nursing" on an as needed basis for feeding tube care at home. We can do most of it but Becca will not let us pull blocked ones out or place new ones in.
Because the tube has been blocked all morning Becca has had to take her medicine by mouth. Up to now it has gone in the tube. The main reason the tubes are getting blocked is because of the medicine and its stickiness. Hopefully from today onwards she will continue to take her medicine by mouth, she knows it is in her best interests and as she hates having tubes replaced so much we think she will keep the feeding tube stickiness free from now on.
At around 6.30pm the nurses came in to place Becca's new NG tube. Although she wasn't happy about it in the slightest she agreed to have the tube placed in the left nostril versus the right where it has been for the past 6 or 7 weeks. The the reasoning for shift of nostrils was twofold, one because you are supposed to swap and change to alleviate soreness having it in the same site and two because it means when we go home the pole holding the formula will be on the right side of the bed in conjunction with the side of the face the tube comes out.
The tube was placed and Becca hasn't cracked a smile since. She claims that it is really hurting her nose and throat. The nurses think that it may just be a little bit of irritation and want to know from Becca what it feels like in the morning after giving it time to settle in.
Becca took the second lot of meds this evening by mouth. This was a disaster as she drank them down and they came straight back up again. The nurses waited half an hour to give her belly time to settle and administered them via the feeding tube. We didn't want any more sticky meds going down the tube, but obviously she has to get the meds somehow and for now the tube is the only way. We are trying to find out alternative ways of giving them, but both ways we have tried to date have resulting in them coming back up.
We leave tonight in the hopes that our Sunny little smiling girl will be back to greet us in the morning.
llurgy
DIS Veteran
- Joined
- Oct 2, 2008
- Messages
- 585
Day 81 - Mad-House (April 28, 2009)
Today has been spent doing various consults with Doctors and Coordinators ready for discharge tomorrow.
A lot of discussion has taken place regarding the medicines that Becca is now on and the various forms they come in. Becca is on:
Prevacid - Once a day. this one is easy, it comes in a dissolvable tablet that melts in the mouth. She only has to take it once a day to prevent ulcers whilst she is on the tube feeding.
Actigall - Three times a day. This is a thick sticky liquid that tastes nasty and Becca cannot take it by mouth. The hospital here only has it in liquid form so it is still gunking up the tube until we go home and get a script for tablet form. This medicine is to treat the sludge (a precursor to stones)in her Gall Bladder.
Clyndomyacine - Three times a day. Terrible, foul tasting stuff which again, until today has been going down the tube. Becca actually managed to take 2 small capsules by mouth today which is a huge relief as yesterday when she tried to take the liquid form it came straight back up again. This is the antibiotic that she has to take for a year at the minimum, perhaps even for life.
Zofran - As needed. Medicine to treat nausea and to use when traveling. Made in a mouth soluble form.
So it took all day to sort her medicines out and the forms in which she could take them. We also had to work out what was going to happen with the tube feeds. We both refuse to have anything to do with placing or removing the feeding tubes. Becca gets into a panic when anything happens with her tube and for us to try and do it would just traumatize her further. An RN will be available as needed for when we are at home if anything goes wrong with it, so all we have to bother about is checking placement, flushing the tube and turning feeds on and off. For the present the food will be turned on at 6pm and turned off at 10am, which gives Becca some free time to try and eat and for the most part be independent of the pump and tube leash.
Follow-up appointments with Neuro-Surgery, Infectious Diseases, Nutrition, Re-Rehabilitation and Ophthalmology have all been made today. The clinical coordinator here is a marvel and tried to get as many appointments together as possible.
We went down to radiology today to get copies of the studies she has had whilst here this last 80 days, all the MRI's, CT scans, Ultrasounds and X-Rays amount to 32 studies! We keep waiting for her to start glowing and lighting up in the dark.
The MRI she had done yesterday shows a marked improvement in the size of the abscess/abscess cavity, from 4.6cm before surgery it now measures less than 1cm.
In-between all the doctors consults Becca has still managed to do some therapies today. She did arm and leg stretches, walk around 50-60 feet with only contact guard, no walker, no holding hands. She played on the Wii, played a new game with dice called Farkle. It is weird because whilst she cant wait to get home she is getting upset at having to keep saying goodbye to her nurses that wont be on duty again before we leave. She is also dreading saying goodbye to all of her therapists and other nurses tomorrow.
David just pushed the Actigall through Becca's feeding tube for the second time today. Becca just said that he did an excellent job and he gets an A+ and a kiss. Becca again managed to take her Antibiotic capsules by mouth.
Time for us to go now ready for our big day tomorrow. We cant wait to get home.
We especially want to give a big thanks to our neighbors and adopted family over here. For the past 12 weeks Dollie has been religiously going up to our house every single day to feed our cats and fish and keep our house in order for us. Without this help we would have been stuck up the creek without a paddle, probably no boat either! Thank you both Dollie and Jake!!!!!!
Until tomorrow!
Today has been spent doing various consults with Doctors and Coordinators ready for discharge tomorrow.
A lot of discussion has taken place regarding the medicines that Becca is now on and the various forms they come in. Becca is on:
Prevacid - Once a day. this one is easy, it comes in a dissolvable tablet that melts in the mouth. She only has to take it once a day to prevent ulcers whilst she is on the tube feeding.
Actigall - Three times a day. This is a thick sticky liquid that tastes nasty and Becca cannot take it by mouth. The hospital here only has it in liquid form so it is still gunking up the tube until we go home and get a script for tablet form. This medicine is to treat the sludge (a precursor to stones)in her Gall Bladder.
Clyndomyacine - Three times a day. Terrible, foul tasting stuff which again, until today has been going down the tube. Becca actually managed to take 2 small capsules by mouth today which is a huge relief as yesterday when she tried to take the liquid form it came straight back up again. This is the antibiotic that she has to take for a year at the minimum, perhaps even for life.
Zofran - As needed. Medicine to treat nausea and to use when traveling. Made in a mouth soluble form.
So it took all day to sort her medicines out and the forms in which she could take them. We also had to work out what was going to happen with the tube feeds. We both refuse to have anything to do with placing or removing the feeding tubes. Becca gets into a panic when anything happens with her tube and for us to try and do it would just traumatize her further. An RN will be available as needed for when we are at home if anything goes wrong with it, so all we have to bother about is checking placement, flushing the tube and turning feeds on and off. For the present the food will be turned on at 6pm and turned off at 10am, which gives Becca some free time to try and eat and for the most part be independent of the pump and tube leash.
Follow-up appointments with Neuro-Surgery, Infectious Diseases, Nutrition, Re-Rehabilitation and Ophthalmology have all been made today. The clinical coordinator here is a marvel and tried to get as many appointments together as possible.
We went down to radiology today to get copies of the studies she has had whilst here this last 80 days, all the MRI's, CT scans, Ultrasounds and X-Rays amount to 32 studies! We keep waiting for her to start glowing and lighting up in the dark.
The MRI she had done yesterday shows a marked improvement in the size of the abscess/abscess cavity, from 4.6cm before surgery it now measures less than 1cm.
In-between all the doctors consults Becca has still managed to do some therapies today. She did arm and leg stretches, walk around 50-60 feet with only contact guard, no walker, no holding hands. She played on the Wii, played a new game with dice called Farkle. It is weird because whilst she cant wait to get home she is getting upset at having to keep saying goodbye to her nurses that wont be on duty again before we leave. She is also dreading saying goodbye to all of her therapists and other nurses tomorrow.
David just pushed the Actigall through Becca's feeding tube for the second time today. Becca just said that he did an excellent job and he gets an A+ and a kiss. Becca again managed to take her Antibiotic capsules by mouth.
Time for us to go now ready for our big day tomorrow. We cant wait to get home.
We especially want to give a big thanks to our neighbors and adopted family over here. For the past 12 weeks Dollie has been religiously going up to our house every single day to feed our cats and fish and keep our house in order for us. Without this help we would have been stuck up the creek without a paddle, probably no boat either! Thank you both Dollie and Jake!!!!!!
Until tomorrow!
Oh, what fantastic news! 
I am so happy for you...well, I will be happy for you all once I hear you are actually home!!!
We know all about the bittersweetness of discharge after a long stay. So anxious to be out of there, and yet, so difficult to say goodbye to those who have become your friends and family. And it's tough to switch gears from hospital life to home life. I tend to go through a bit of post hospital depression as we all try to settle in to home life again.. As wierd as it sounds, it's an adjustment being home after the intensity of hospital life. Praying that tomorrow goes as smoothly as it can.
I am so happy for you...well, I will be happy for you all once I hear you are actually home!!! We know all about the bittersweetness of discharge after a long stay. So anxious to be out of there, and yet, so difficult to say goodbye to those who have become your friends and family. And it's tough to switch gears from hospital life to home life. I tend to go through a bit of post hospital depression as we all try to settle in to home life again.. As wierd as it sounds, it's an adjustment being home after the intensity of hospital life. Praying that tomorrow goes as smoothly as it can.
TwistofLemon
<font color=green>I laugh til I can't breath<br><f
- Joined
- Dec 8, 2006
- Messages
- 524
!!!!!YAY BECCA!!!!!
!!!!!That's just wonderful news!!!!
!!!!!That's just wonderful news!!!!
Applemomma
DIS Veteran
- Joined
- Dec 3, 2006
- Messages
- 1,687
It's Going Home Day! 
It's Going Home Day!! It's Going Home Day !!!
It's Going Home Day!! It's Going Home Day !!!
dukebluebell
Earning My Ears
- Joined
- Dec 14, 2008
- Messages
- 16
I found y'all's pre-trip report through the Wish boards and have read your whole story these past few days...I will keep you all in my prayers, and
HAPPY GOING HOME DAY!!!!!!!
HAPPY GOING HOME DAY!!!!!!!
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Walt Disney Imagineering Shares First Look at Test Track's New Marquee
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New Churro Shake Topped with "Disney Snacks" Available at EPCOT
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Stay Near Disneyland at the Best Western Plus Pavilions
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New Limited-Time Rex Photo Op: Pixar Pier, Disney California Adventure
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Surprising Things You Can Do at Disney World at Aren't Rides
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Cool Kid Summer Fun at Art of Animation in Walt Disney World
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Universal Orlando Resort Celebrates Pride Month with New Treats & Merch
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