Thanks for all the kind words, stories, and prayers.
Katie, I'm lucky you're here. You sure have a lot of great info!
Here's how this all started.... went in Dec. 16th for stge 2 of my DIEP reconstruction and port removal as this was the END of this long cancer journey! not! The reconstruction was perfect. No problems.
Got home, ran high fevers, had breathing trouble, (even though I had been breathing into that blue coily thing) coughing,etc. and was told to go in to see a pulmonologist (who happens to be our good friend) to rule out pneumonia. Got the basic chest x ray and Wayne found a "troublesome" area and ordered a CT scan right away. Got the CT scan that confirmed a 2cm lump.nodule in my lung. I don't even remember which one.
Katie, my breast cancer was Stage 3 due to size and agressiveness of tumor. No nodes postive. Had total mastectomy, dose dense 6 months bi-weekly chemo, and 6 weeks daily radiation. I go every 6 months now for check ups. Can't take tamoxfen or those things because I was the 'wrong" way... ER.PR neg. I think. Nothing has ever been seen on my lungs before. I found the breast tumor myself.
No smoking, never around the slightest bit of smoke my whole life.
After we got the lung diagosis, something went whacko with my back (I had thought it was the hospital bed), so I ended up at a spine speciliast and they were sure I had crushed vertebrae that "appeared" for some unknown reason right after the surgery. (myself, I was picturing some kind of episode of ER when they dropped the heart on the floor....maybe they "dropped" me somehow!! LOL!) So I went through a complete bone scan, another CT scan, and 2 MRI's. Mind you this is AFTER I had my port taken out that I'd had for 2 YEARS since I thought Dec. 16th was the end!!! ARGH! Fidning veins was impossible and truly excruciating. They finally had to go to my foot one time and had to try so many times the other times. I cried and cried.
The back thing was reviewed by several specialists who were confounded. It seemed to "just" be a case of extreme inflammation in the lumbar reason. So I was put on a Medrol dose pack, (strong steroid, similar but worse then prednisone) which does WORK, but for me, personally, is like absolute poison. Got through one pack and was fine for a day when it came back. Despite morphone and valium, no pain relief and had to do another Medrol dose pack immediately aferwards. It was hell.
So now I finally was able to go back to school this week ( missed 3 weeks!!!) and I'm doing pretty rough. Not sleeping well. Not with it at school and I'm an organized freak and alll my school stuff's all over the place.
So there's the story that I'm sure no one's read to the end! LOL! I'll keep you up to date.
Beth