sasywtch
DIS Veteran
- Joined
- May 16, 2008
- Messages
- 2,522
I'm trying to grasp all the information and I do realize that the Dis is not replaced by doctor's diagnosis. For those who do not know, my 40+ year old daughter was paralyzed from the breast down in 2016. She was in a nursing home until I was able to buy a house that fit, have renovations done. This was June of 2020 (I think the stress has got to me. I'm sure it was 2020 covid lockdowns started in April when we bought the house and we finished reno's in June). Anyway, she has always had bedsores on her tush. About twice a year she is admitted to the hospital for an infection-twice for sepsis.
Fast forward to now: My daughter was admitted last week as her wounds were bleeding profusely. I thought they'd do the medicine and be out in a few days. However, they did a bone scan and found that the infection has gone into her hips and there was no way of stopping it going further. As a naive person, I assumed antibiotics helped with the infection but learning when it gets into your bones, it's a lot different. They called in pallative care and she is home now. The doctor who was rude matter of factly with her arms crossed told her she had days, weeks, months or a year to live. The most uncaring person I have ever met. If anyone ever wonders if I'm just a talker on here and not in person, I had a conversation with her outside in the hall. I told her she was inappropriate, her attitude stunk and if she ever had anything like that happen to her, I'd hope she had a more caring doctor than she had been to my daughter. After her visit to her PC doctor at UCDavis yesterday, I'm learning a little about bone infections. I'm still not exactly clear but she has her wound care nurse coming tomorrow so hoping to get more information from her. They wanted to take her off of blood thinners which would probably kill her in no time since she has clots in her legs and I understand the reasoning of the blood flow to the wounds but it's like making the decision we had to make for my mom. To do surgery for a feeding tube or let them starve. It's a terrible position to be in. Right now she is on her blood thinners and we are watching for blood flow. Anyway, I didn't know if anyone on here was proficient in bone infections or have any knowledge. I keep thinking it's like MRSA where you have to have surgery to remove the diseased area since they told us the only way to stop it would be to cut out most of her hip bones. We did go to the bank yesterday after the appointment since it was next door to get the paperwork to add her sister to her accounts. Life sucks sometimes.
Fast forward to now: My daughter was admitted last week as her wounds were bleeding profusely. I thought they'd do the medicine and be out in a few days. However, they did a bone scan and found that the infection has gone into her hips and there was no way of stopping it going further. As a naive person, I assumed antibiotics helped with the infection but learning when it gets into your bones, it's a lot different. They called in pallative care and she is home now. The doctor who was rude matter of factly with her arms crossed told her she had days, weeks, months or a year to live. The most uncaring person I have ever met. If anyone ever wonders if I'm just a talker on here and not in person, I had a conversation with her outside in the hall. I told her she was inappropriate, her attitude stunk and if she ever had anything like that happen to her, I'd hope she had a more caring doctor than she had been to my daughter. After her visit to her PC doctor at UCDavis yesterday, I'm learning a little about bone infections. I'm still not exactly clear but she has her wound care nurse coming tomorrow so hoping to get more information from her. They wanted to take her off of blood thinners which would probably kill her in no time since she has clots in her legs and I understand the reasoning of the blood flow to the wounds but it's like making the decision we had to make for my mom. To do surgery for a feeding tube or let them starve. It's a terrible position to be in. Right now she is on her blood thinners and we are watching for blood flow. Anyway, I didn't know if anyone on here was proficient in bone infections or have any knowledge. I keep thinking it's like MRSA where you have to have surgery to remove the diseased area since they told us the only way to stop it would be to cut out most of her hip bones. We did go to the bank yesterday after the appointment since it was next door to get the paperwork to add her sister to her accounts. Life sucks sometimes.
's As suggested above, second opinion. Maybe a third. And really terrible having to have had to deal with the doctor in the hospital. So uncalled for. Keeping you daughter, you and family in my prayers. 
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