Anyone else have a child with "tics?"

At the child study center, the Psychologist made the Asperger's diagnosis and the ped. neurologist made the ADD diagnosis. If you can find a place like that (one stop shopping), easier on you. Of course, they may just say, "He's perfectly normal. Stop listening to yahoos on message boards.";)

Part of a good workup is checking for everything. My son's workup lasted a whole day.
 
Part of a good workup is checking for everything. My son's workup lasted a whole day.

My son's did too. We left and bought lunch back to him.

By the way, the questionaire we parents had to fill out made us count our blessings. It went on for pages of does he do this, does he do that. The question I recall was "Does he smear feces on the wall?" Made me grateful for the tics!
 
My son's did too. We left and bought lunch back to him.

By the way, the questionaire we parents had to fill out made us count our blessings. It went on for pages of does he do this, does he do that. The question I recall was "Does he smear feces on the wall?" Made me grateful for the tics!

Isn't that that the truth! My son volunteered for a week at Children's Hospital camp for kids with TS and he came home so thankful that his tics and other issues are not nearly as severe as some kids. "There but for the grace of God go I" is my favorite saying.

One thing that's really neat about my son is that he's very open about his TS. His friends know about it, he explains it to people, isn't afraid to get up in front of people and talk, etc. He's an inspiration and made me stop feeling sorry for myself for having a kid with TS.
 

Just to let you know the process we went through to get my DS tourette's diagnosis. First, we saw a pediatric neurologist. She ordered an MRI and an EKG to rule out other problems. After that, she diagnosed the Tourette's. She doesn't recommend medication unless the tics are very bad or causing harm.

So far, we aren't treating. They do seem to be getting slightly worse, but still nothing we think needs medicating.
 
My 9yo son is the exact same way! Right now he is bobbing his head and making throat sounds. He doesn't even realize he is doing it. For him, I can usually figure out what is triggering them. His head bobbing started because his glasses were loose, so he would shake his head quickly to get them into position. Then he had a cold and started the throat sound. They usually go away in a couple of weeks and he won't do anything for a month or two. Then something else comes up. I asked his Dr about them and he said that if he isn't getting upset by them, not to do anything because he should grow out of it.
Melissa

My 9yo son has a tic where he shakes his head...it is the fourth tic he has had in the last 4 years. He went from rolling his eyes, to opening his mouth(like he was trying to pop his ears), to scrunching his nose, and now he shakes his head-that started at the beginning of the year. I took him to the ped and he said it will go away. None of the tics have overlapped-I did alot of research on the internet and found transient tic disorder, which I think describes my son. I've noticed the tics are brought on by stress/anxiety(ie the beginning of the school year) This head shaking/bobbing tic has lasted longer than any of them(the others lasted maybe 2-3 mo) but he doesn't do it all the time. DS doesn't notice, but he did tell his friends about it when he started school and they didn't care one way or the other. I told his teachers/coaches too just so they didn't think he wasn't paying attention.

I think, if you are concerned and have anxiety about it, then ease your mind and take him to a neurologist.
 
My son had a weird tic (he'd open his mouth as if to start to yawn and then shut it quickly) for about two weeks when he was around 10. It disappeared and no tics have shown up since.

It sounds like your son's tics are pretty severe. I would definitely have him seen by a neurologist.
 
Thanks for all the new replies. When someone said their DS opens his mouth like as if he's popping his ears - BINGO that's my DS's most common tic. Or when someone said he opens his mouth as if to yawn & then stops. That describes it to a "T!" I've never seen them overlap, and he has repeated the lip licking tic, the opening & closing mouth tic, and the hair pulling tic. The few vocal ones he's had, or ones involving his hands we've only seen as once & done tics. He's bright & has even been in the enrichment program at school, so no issues there. I am still awaiting a call back from his ped to see if she wants to see him, or send us right to a specialist. I'm just hesitant to add another specialist to our list. DS is the most "normal," healthy kid yet has an endocrinologist (he's very small for his age, that combined with the 3 broken arms in a short time period raised some red flags) and a ped cardiologist because he has Mitral Valve Prolapse. I guess better to be safe than sorry. My mom always says it's amazing we're all alive because as kids in the 70's no one ever saw a specialist or was diagnosed with anything, or took meds, and we all lived.

I did get another email from one of his other teachers today - she claims she has been watching him for 40 min. (I emailed his main teacher this morning) & swears he has not tic-ed once, other than some repetitive blinking when he's working. ??? Can kids supress the tics in certain situations? He tics at least once a minute at home, and I saw him doing it in front of adults & other kids last night too, about once a minute. Now I'm curious if he really can control this, or if he's actually more relaxed in class than at home?
 
My DS9 has been showing signs of a tic when he's stressed out or worried. When I first noticed it I thought he was just jamming out to the song in the car but then I've noticed it on the ball field and other places. Since I've started seeing it I've been careful to note the emotional situations that might be surrounding him at the moment. If they get worse or he does it more often than I'll address until then I'm trying to teach him how to deal with stress.
 
I never knew DS' lip-licking was a tic. I just thought he had dry lips. I know there were times when I was a kid I licked my lips too much and got that 'clown mouth' though nothing like ds gets. He hasn't done it in a very long time. It comes and goes. I didn't know it was a symptom of Aspergers either, but EVERYTHING he does is a symptom of Aspergers (no, he doesn't have it) so I guess I'm not surprised.:)
 
I would get a second opinion, too. My friend's son gets "stuck on a tic" for a few weeks. He has Asperger's.
 
TaraPA you asked if your son was more relaxed at school because he can go long periods without tics at school, but they are more frequent at home. The answer is probably no. People with TS can sometimes suppress tics for a limited amount of time. The truth is your son is probably more relaxed at home and feels more comfortable ticcing there. This is very common.
 
TaraPA you asked if your son was more relaxed at school because he can go long periods without tics at school, but they are more frequent at home. The answer is probably no. People with TS can sometimes suppress tics for a limited amount of time. The truth is your son is probably more relaxed at home and feels more comfortable ticcing there. This is very common.

Aha, I didn't see it that way, but that makes sense. He gets off the bus & I swear his face is scrunched up ready to spasm he's tic-ing so much!
 
TaraPA you asked if your son was more relaxed at school because he can go long periods without tics at school, but they are more frequent at home. The answer is probably no. People with TS can sometimes suppress tics for a limited amount of time. The truth is your son is probably more relaxed at home and feels more comfortable ticcing there. This is very common.

Totally right. DS is able to hold it together and tics when he's safe at home.
 
My nephew had a throat clearing tic for a while, but I think he's over it now.

But his mother is a nut, so I am not surprised he's got a tic.

Which is not to say that every kid who has a tic has a nutty mother, but in this kid's case, I think his tic-ing was a direct result of his mother's influence.
 
My DS9 tics. They are the same tics. It happens at the beginning of the school year and again at the end. It seems to coinside with his allergies worsening at those times of the year. He opens his eyes wide and sometimes he looks sharply to one side (right side I think). He's not doing it now. Middle of the school year and doesn't do in the Summer.

We did take him to see a ped neurologist when he was 7. The dr said it wasn't severe and that DS would out grow it.

So we just ignore it. We do tell his teacher every year and so far no one has made any negative comments and the kids in his classes don't seem to care.
 
My DS11, diagnosed with Asperger's, has always had tics that come and go. He usually gets a new one every year, and they last for a few weeks or more. Some have been more disturbing than others. (When he was 4, it was grabbing his privates!) It has been everything from blinking to the point where school sent him for another eye exam, to reaching down his throat, to a throat noise. Most recently, it's head shaking.

His psychiatrist described it like a reflex; something you can't control. My son does it even when it is extremely detrimental socially to do it, and so it is an uncontrollable tic. If your son can go long periods of time without, I'd say it's more of an environmentally related, exploratory, transient tic. Doesn't sound like it's related to any other diagnosis.

But of course I am just a forum yahoo, and it would be a professional's job to give you real advice! :) I am glad you started this thread though. It's nice to hear of others out there with the same experiences.
 
:sad2: :rolleyes: :rotfl: :confused3 :upsidedow :snooty:

Well, that would sure as heck explain my son's - then. :dance3:

Oh, I thought she WAS talking about you :lmao: :rotfl2: :rotfl: --sorry couldn't resist.

BTW--DD used to pull out her hair as well but the football sized hairball she had removed from her stomach pretty much cured her of that.
 
I wanted to pop in real quick, just to remind that a tic *can* be just that...a tic. Not Asbergers - not Tourettes - a tic.

2 things I want to post:

ASBERGERS SYMPTOMS:

(they dont mention tics....but Ill get to that later)

Asperger's Syndrome - Symptoms
Although there are many possible symptoms of Asperger’s syndrome, the main symptom is severe trouble with social situations. Your child may have mild to severe symptoms or have a few or many of these symptoms. Because of the wide variety of symptoms, no two children with Asperger's are alike.

Symptoms during childhood

Parents often first notice the symptoms of Asperger's syndrome when their child starts preschool and begins to interact with other children. Children with Asperger's syndrome may:

Not pick up on social cues and lack inborn social skills, such as being able to read others' body language, start or maintain a conversation, and take turns talking.
Dislike any changes in routines.
Appear to lack empathy.
Be unable to recognize subtle differences in speech tone, pitch, and accent that alter the meaning of others’ speech. Thus, your child may not understand a joke or may take a sarcastic comment literally. Likewise, his or her speech may be flat and difficult to understand because it lacks tone, pitch, and accent.
Have a formal style of speaking that is advanced for his or her age. For example, the child may use the term "beckon" instead of "call," or "return" instead of "come back."
Avoid eye contact.
Have unusual facial expressions or postures.
Be preoccupied with only one or few interests, which he or she may be very knowledgeable about. Many children with Asperger's syndrome are overly interested in parts of a whole or in unusual activities, such as doing intricate jigsaw puzzles, designing houses, drawing highly detailed scenes, or astronomy.2
Talk a lot, usually about a favorite subject. One-sided conversations are common. Internal thoughts are often verbalized.
Have delayed motor development. Your child may be late in learning to use a fork or spoon, ride a bike, or catch a ball. He or she may have an awkward walk. Handwriting is often poor.
Have heightened sensitivity and become overstimulated by loud noises, lights, or strong tastes or textures. For more information about these symptoms, see sensory integration dysfunction.

AND Tourettes symptoms - which mention...well see my bolded:

What are Tourette Syndrome tics?
Tics are rapid movements or sounds that are repeated over and over for no reason. (Tic List Below) Tics are brief, intermittent, repetitive, nonrhythmic, unpredictable, purposeless, stereotyped movements (motor tics) or sounds (phonic or vocal tics). Although Tourette Syndorme tics are often described as "rapid" or "sudden," not all are; some tics are "held" or "tonic" movements involving freezing in a position for a few seconds. A person with a tic can't control the movement or sounds.

Tourette Syndrome tics are associated with an urge, and efforts to suppress the tics results in psychic tension and anxiety. Subsequent "release" of the movements or sounds results in relief. Although tics are involuntary, the urge sometimes can be suppressed for short periods with voluntary effort. A burst of tics often follows attempts of suppression, to relieve a buildup of the inner sensation.

Tourette tics are also often worse when a person feels stressed, tired or anxious. Other various factors that can increase tics are some medicines, heat, and food & environmental allergies.

Simple tics are usually the first manifestation of Tourette syndrome. Unlike the common childhood tics that usually vanish within a year, the tics of Tourette Syndrome last and last.

The reason for having Tourette Syndorme tics for at least 12 months is specified in a diagnosis is because transient tics – a brief period or one-off episode of tics – are really common in children (occurring in around ten per cent of children) and these cases clear up and get better in relatively short time.

Tourette tics usually begin between the ages of 5 to 7, and peak around age 10. During the course of adolescence and by age 18 they might begin to diminish. Some patients, however, will have their tics for life and in other cases (<10%), the Tourette Syndrome tic symptoms can become even more severe in adulthood.

The Tourette tics are involuntary. A variety of sensory and mental states, including urges and a build up of tension, precede the tics and subside after the tics occur. A child (or adult) might be able to suppress them for a short while, but they may come back with a vengeance.

It is not unusual for patients to "lose" their tics as they enter a doctor's office. Parents may plead with a child to "show the doctor what you do at home," only to be told that the youngster "just doesn't feel like doing them" or "can't do them" on command. Adults will say "I only wish you could see me outside the office," and family members will heartily agree. This phenomenon of a doctor's office “scaring” off the tics can be very frustrating and really intensify the stress of getting a diagnosis and treatment for a Tourette patient.

Suppressing Tourette tics on the other hand is an effort similar to that of holding back a sneeze. Eventually tension mounts to the point where the tic escapes. Tics can also worsen in stressful situations; however they improve when the person is relaxed or absorbed in an activity. In most cases tics decrease markedly during sleep, however there are cases where the tics cause signigicant sleeping problems which can further exacerbate the Tourette symptoms.


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Why can't you stop the tic?

Try not to blink...

this wil help you understand how hard it is to stop a Tourette tic.


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Two categories of Tourette Syndrome Tics: Simple and Complex.

Simple tics are sudden, brief movements that involve a limited number of muscle groups. They occur in a single or isolated fashion and are often repetitive.

Simple vocal tics are elementary, meaningless noises and sounds i.e. grunting, sniffing, clearing the throat, squeaking.

Simple motor tics are focal movements involving one group of muscles, i.e. eye blinking, tongue protrusion, facial grimacing, shoulder shrug, or head turning.

Complex tics are distinct, coordinated patterns of successive movements involving several muscle groups.

Complex vocal tics include meaningful syllables, words, or phrases i.e. coprolalia, echolalia, palilalia.

Complex motor tics are coordinated or sequential patterns of movement that resemble normal motor tasks or gestures i.e. jumping, smelling objects, touching the nose, touching other people, or self-harming behaviors.

The vocal tic symptoms may interfere with the smooth flow of speech and resemble a stammer, stutter or other speech irregularity. Often, but not always, vocal symptoms occur at points of linguistic transition, such as at the beginning of a sentence where there may be speech blocking at the initiation of speech or at phrase transitions. Patients suddenly may alter speech volume, slur a phrase, emphasize a word or assume an accent.

The motor tic symptoms can occur in sync with, or independent of vocal tics. If the motor tics are mild to moderate, sometimes they can be disguised as other normal motor functions of the body by the Touretter. i.e. they may take a tic that causes them to move their hand in front of their face and blend it with adjusting their glasses, earring, fixing hair or scratching an itch.

Sensory tics refer to uncomfortable sensations, such as pressure, tickle, cold, warmth, or paresthesias that are localized to certain body parts and that are relieved by the performance of an intentional act in the affected area. Rarely, motor tics may be provoked by a mental projection of sensory impressions to other persons or objects and are relieved by touching or scratching that person or object. These are known as phantom tics.

Obsessive-compulsive symptoms and tics can share certain features and possible brain locations. It's not always possible to distinguish a complex tic from a compulsion. A compulsion, by definition, requires the involvement of thoughts (which you may not be able to elicit from a child), whereas tics don't. You can have both.

Therefore, at some point in the continuum of complex motor tics, the term "compulsion" seems appropriate for capturing the organized, ritualistic character of the actions. The need to do and then redo or undo the same action a certain number of times (e.g., to stretch out an arm ten times before writing, to "even up," or to stand up and push a chair into "just the right position") is compulsive in quality and accompanied by considerable internal discomfort. Complex motor tics may greatly impair school work, e.g., when a child must stab at a workbook with a pencil or must go over the same letter so many times that the paper is worn thin. The distinction between complex tics and compulsions may be a difficult one for the physician to make and some "complex tics" may be alleviated by medications used for obsessive-compulsive disorder.

Impulsive symtoms and tics in Tourette Syndrome have resulted in a reference to Tourette's being described as an "impulsive disorder". i.e. Echolalia (the urge to repeat other's words), Echopraxia (the urge to mimic other's actions), Pallilalia (the urge to repeat your own words or thoughts)

Many Touretter’s describe a strong urging-impulse to perform an action or sound prior to many of their tics. They fell as if they are constantly being overcome by various strange impulses, while at the same time feeling an inability to suppress the impulse. The more time and effort spent trying to control the impulse the stronger the urge becomes. Finally when overwhelmed by the impulse the action is accomplished in the Touretter with out their approved consent of the action.


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Treating the Tourette Syndrome Tics

Tourette Syndrome Tics only require treatment when they interfere with the functioning of the patient. Mild tics do not usually require medication for treatment. Intervention in mild tics if needed may only require some basic understanding. Moderate and Severe tics are more likely to be treated with medication if needed and also be supported by better education of patients, school personnel and parents, and initiation of supportive counseling and/or behavior therapy.
 












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