Anyone been around WDW with MS?

tdkstratus

Earning My Ears
Joined
Feb 22, 2010
Messages
12
Hi All

Just a quick question. My partner and I visited WDW back on 2005 and we loved it, so much in fact that we are planning on going back sometime in the future. However, I was diagnosed with MS last June. I was wondering if anyone who has MS has visited WDW recently and could tell me how it was for them. I'm a bit unsure with all the walking and the heat but am determined to go again while I'm still able to.

Any information/advice would be grately appreciated.

Terri
 
Hi. I was dx'ed with MS in November of 2007. I last went to WDW in the spring of 2007 which was before I had the actual dx but was already having walking and balance problems at that time. I rented an ECV (electric convenience vehicle) because I was having trouble walking long distances. It was a life saver. I now am using a walker mostly and a cane for really short bits. I have just started using an ECV that the grocery store provides to do my food shopping because I just do not have the stamina. I also I find I get over heated very, very easily. Last year I went to an outdoor baseball game in June and used a cooling vest.

I am returning to WDW this October which will be cooler weather than going in the summer months. I will again rent the ECV and am planning on wearing my cooling vest if necessary. Remember that if you are getting over heated, find a store or indoor show or go the the first aid station and get into the air conditioning.
 
My son in law has MS and has been to WDW 3 times with us.
He had very little problem, so I guess the answer to your question is that it will vary from person to person.

Just before our trip last March, he had an MS episode and was on IV steroids until the day before the trip. He did OK on the trip, but did push himself too hard one day, got dehydrated, barely made it back to our room and had a very scary night of quickly quivering leg muscles.
By the next morning, he was better. We held out the offer of an ECV, but he did not want to use one. He did pace himself and managed fine for the rest of the trip.
So, my piece of advice, as someone with a loved one with MS, is listen to your body and don't push too hard.

Besides the people who have already psoted, there are several other fairly frequent visitors to this board who also have MS.

So, anyway, welcome to disABILITIES:yay:
 
My DH has MS and we go about once a year or so.
He is doing very well.
He sometimes brings a cane and we go at his pace.

We are usally at rope drop then in the afternoon we have a long lunch and a nap back at the resort, then back to close the parks

He does not use a wheelchair or scooter, He said if he really needs one he will get one

Keep hydrated, go at your pace noone elses.

MS is a tricky disese as each person is effected diffrently, The Dr.s told us DH had the worst type of MS and would be in a WC within a year or two, well 10 years later he is not.

We try and enjoy everything we do, as you just don't know what tomorow will bring

We know we are lucky and blessed.

Have fun
 






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