Any tips for a wish trip NOT by Make A Wish?

I am sure we will have an awesome time. When my DS was originally granted the wish they said we would be staying at GKTW. I was worried about staying off resort and my coordinator told me that they had very positive feedback and they highly recommended it. I am glad we are having the opportunity to stay there. What an awesome place to be dedicated to chronically ill kids. Enjoy your September trip.
 
Thank you both! 5dwarves please keep updating me!! Kimba How neat!!! It would be really awesome if we see the dream team awarding someone and it's YOU!!! I'll be looking for posts!!! Yes I'm very thankfull for the DIS. I'm becoming addicted! My husband just got home from the hospital and the first thing I did after getting him settled was check my e-mail for posts from the DIS!! I am not an organized person, but I know I'll have to be so this trop we'lll be stressfree and all the tips are WONDERFULL!! Thanks to all and PLEASE keep them coming!!
 
One tip I can give you right now that I am currently working on myself, is to avoid the park that has EMH (extra magic hours). We bought the Unofficial Guide and the official guide and have been web surfing on various sites, and all but the official guide seem to indicate it is far too crowded during EMH and remains that way for a while. Even if you are staying at a WDW resort, it is suppossed to be very crowded then. I have a print out from this site that shows when all the parades are, all the fireworks shows are and which park has morning or evening extra magic hours. We are avoiding those, pre-planning for the parades, and and hopefully avoiding some early morning congestion.
 
Another tip for the parades..get to the handicapped seating early. It tends to fill up fast and there is only so much space. I also agree with avoiding the EMH parks. Tour Guide Mike is very helpful with planning your days in the park. Well worth the money. I get it every year we go.

If you have any questions about anything I'd be glad to try to help!

Kimba
 

We will be taking our DD 5 :princess: on her Wish Trip :wizard: in September also (17-23). Let us know when you get your dates. We are expecting to stay at GKTW but it is often full. Guests are then assigned to a Disney Resort Hotel. The nice thing about that is direct transportation to the resorts and admission to Extra Magic Hours. I have a slightly different suggestion on this from a Guide Book. They suggested going to the early admission park during Extra Magic Hours then moving to another park (park hopper pass) during the rest of the day. It gets you the best of both worlds.

The GKTW specifically mentions several wish granting organizations. When at the Magic Kingdom, be sure to make use of the Disney Wish Lounge on Main Street. It is a nice, cool, comfortable room with snacks and drinks for Wish families.

I have been doing TONS of research on Orlando Theme Parks and Wish Kid perks.

Bill and Lin
 
Our wish co. never mentioned GKTW. I found out about them from reading other peoples sites. All we know so far is that they would be booking our trip sometime from the mid to the end of july and we would be leaving on a Mon coming back on Sun. They couldn't start booking early enough for us to go in Aug so we we supposed to look at dates in Sep. We will be getting a park hopper pass for all parks including water parks for 6 days and possibly a day at Sea World. It doesn't sound like the trops through GKTW also our organization is not mentioned on the GKTW site. SoooooI don't know. I guess I'll find all that out whenever they get back to us. Brenda did say she would let GKTW know when I faxed her all our TRs and diet plans so I don't know:confused3 .
Bill and Lin- WOW your dd and my ds are the same age AND going on their wish trip in Sep. I will definatly let you know when we are going. Any sites, links, tips you've come across that you feel are helpfull PLEASE let me know.
Once again THANKS to all.:goodvibes Keep those tips a coming!!!!!:dance3:
 
Dear Bill_Lin

I can appreciate the "tons of research" statement. I don't think I put this much effort into picking out my college. I am sure that all the research and planning will pay off in the end. Enjoy your trip!
 
I just wanted to post about how amazing this board is. My dad has had a difficult 6 months...started dialysis, had heart surgery, found out he has kidney cancer, etc. It is amazing to know so many people go through this and still go on vacation. He is sorta depressed now, and cancelled their August trip because dialysis is still difficult for him. But I'm so glad to hear that it will get better, and hopefully he can go on a trip next year. I'm already writing down information so I remember. Also, thank you for the contact information about food...it is so difficult to find the low sodium, potassium, etc. diet and wonderful to hear that Disney is so accomodating.

The best of luck on your trip! May the magic begin!
 
He has a manual chair. It has 2 big wheels in the front to allow him to (try to) push himself. It is very light. @ 15 - 20lbs. He started walking 10 months ago (he wears leg braces) but long distances wear him out fast, so we will be using the wheelchair. I will be pushing it. I am planning on taking some breaks where he can walk around for a little bit. He has good days and bad days muscle tone wise so I want to be prepared. He is my little thrill seeker. He loves roller coster rides, parades and fireworkd although he will hold his ears and cringe when they pop!!! But don't try to keep him from seeing them!! He loves Mickey and Pooh (of course). He is really into the Incredibles and Cars right now, He also likes the Play house Disney chaaracters. There just isn't much that he doesn't like.
My DH does walk and doesn't normally use an ecv, but long distances wear him out also and on Dialysis days he's pretty drained. They can both get out of their chairs for any or all the rides. He is into art (he likes to sketch) He knows he's not going to do TOT!! But other than that he's pretty open. Of course we don't even know every thing there is to do yet!! We're still looking and reading these boards to try to get an idea. Oh Yeah, My DS7 is into POC even though he's never watched it!!!!

We just got back from our Wish trip and I will hopefully get a TR specifically for Wish families in the next week. We had a truly magical time both at Disney and at Universal. Ds is 5 and into a lot of the things you mentioned for you ds. I cannot help much with wheelchairs as we don't use one but we did use a stroller as a wheelchair and that was a great experience. Here's some info that may help...

Mk has a Wish lounge (as previously mentioned) that is AWESOME! The guest service members are awesome! They will go out of their way to help in any way they can for you. It is by first aid, has bathrooms right there and it looks like a very comfortable living room with a TV (with Disney shows and movies showing). My kids napped in there in the afternoon. It was nice and quiet and cool and they gave us water and juice and gatorade. We were at MK on two days and spent several hours in there both days. I would highly recommend spending at least two days at MK. Oh and the lounge is centrally located so we could go back in between lands if we needed too.

MK- coasters, parades and fireworks.
Our kids were under 40 inches so we were "only" able to do the Barnstormer at MK (there is also one at Sea World and at Universal). Ds loved it. He rode it over and over and over again. We made him get off every two times as I think the cast members would have let him ride over and over again. We would get off (after two rides), do something else and then come back. They didn't mind and always had a big smile on their faces, ready to call him by name and accomodate in any way they could.
We saw both the 3pm and 9pm one day and the 3pm the next day. Both are awesome and worth seeing. Ds is into Peter Pan so he wore an overall set with PP on it (made by my MIL), his birthday button (got at Guest Services), his "1st Visit" button (also at guest services) his MAW button and his GKTW button. You would think he was a celebrity with all the attention he got. We showed up for the 3pm parade at 255pm and got front row seats at the handicap accessible area. Mickey is of course in the parade and there are Pooh characters (don't remember which as my kids aren't into Pooh). I would recommend going to youtube and looking for the parades and viewing them ahead of time to familiarize yourself with them. The evening parade is a completely different animal but just as wonderful to see but not as much interaction with the characters as they probably can't see much themselves.
I would recommend leaving right after the parade and trying to catch the ferry right at about 10pm (or a bit after) to watch the parade from the ferry. it was awesome to watch the parade without the noise! (Ds also has sound issues). It also wasn't very hard to get out of the park that way. If not, then just bring earplugs.

Incredibles, CARS and Playhouse characters are at Disney-MGM. Go to the steve Soares site before you leave and get the characters and showtimes to plan your day as there are several Meet and Greets. There is also a Playhouse Disney Meal there with Leo and June (from Little Einstens) and JoJo and Goliath (from JoJo's Circus) and it was worth going. If you don't get ressies, stop anyways as they may be able to squeeze you in anyway.

I gotta run but will check back with you later and let you know when my TR is up!
 
wendygrace-Thank you for the GREAT post. I can't wait to read your TR! I know the other wish families reading this thread probably can't wait to read it also!! I know we will be making use of the lounge! Sounds like ya'll had a great time and I will be waiting to read the details.!! Also could you let us know about your dining? Did you know in plenty of time to make ADRs or did ya'll just wing it? We won't know our dates for sure till the end of this month, so I'm worried about only having 4 weeks or so to make ADRs.
Thanks a lot!!! We'll be waiting on that link!:goodvibes
 
Kids are antsy so can't stay but did want to answer the dining question. We knew about 8 weeks out, tops. They then said they would set up the dining. By about four weeks out I started calling for CRT since we really wanted that for ds' birthday. They did set us up for PnD at HnV but on the "wrong" day (we weren't going to do DMGM until the next day). About two weeks out I set up the HNV lunch for the right day with no real problems. I called for CRT nearly daily for those weeks with no luck. We tried while we were there and they let us in. They said they were full but would accomodate us. Ds was placed on the ressie desk with his full regalia of pins (bday, GKTW, MAW and 1st Visit). We were asked to return at the start of lunch and walked right in (well, had to wait for pics with Cindy of course).
 
Thanks Wendy that makes me feel a little bit better. I also talked to one of the teachers from the school my kids go to (I've also subbed for her a few times) today and of course she was so excited for us, but come to find out both of her in-lawswork for DW. Let's all sing together now "It's a small world after all.....". Anyhow she said to let her know w/our dates cause one of them can sometimes help with the ADRs for character meals!!
By the way for all the rest of you out there if you haven't checked out wendy's TR yet go right now and click on the link in her siggie. You need to read this she is doing such a great job. You will enjoy this especially if you are a WISH family, but even if you'r not You will still want to read this!:coffee: What are you waiting on? Go! NOW!:)
 
Thanks Wendy that makes me feel a little bit better. I also talked to one of the teachers from the school my kids go to (I've also subbed for her a few times) today and of course she was so excited for us, but come to find out both of her in-lawswork for DW. Let's all sing together now "It's a small world after all.....". Anyhow she said to let her know w/our dates cause one of them can sometimes help with the ADRs for character meals!!
By the way for all the rest of you out there if you haven't checked out wendy's TR yet go right now and click on the link in her siggie. You need to read this she is doing such a great job. You will enjoy this especially if you are a WISH family, but even if you'r not You will still want to read this!:coffee: What are you waiting on? Go! NOW!:)

Awww! Thanks! I can't wait to read your trip report. You have quite a sense of humour!
 
We are still waiting on our dates, BUT>> I did want to mention to any other :wizard: WISH:wizard: families that might come across this thread, that there is a :wizard: WISH:wizard: lounge in Mk. I was so excited to learn that. wendygrace has more details in her TR (see...I told you to read her TR!!:coffee: ) I know we will make use of it.
 
We are still waiting on our dates, BUT>> I did want to mention to any other :wizard: WISH:wizard: families that might come across this thread, that there is a :wizard: WISH:wizard: lounge in Mk. I was so excited to learn that. wendygrace has more details in her TR (see...I told you to read her TR!!:coffee: ) I know we will make use of it.
I am going to put a link to her trip report thread in the disABILITIES FAQs thread (if that's OK with you wendygrace!)

More info about MAW trips was one of the things I wanted to add to it. If anyone knows about any other really good MAW trip reports, please let me know and I'll post links to a few of those too.
 
I think that that is a great idea SueM. However you might want to put a warning label by it.
Warning. This Trip report causes laughter, amazement and tears. Please keep the following items close by.
Pillow (to pop over your mouth so you don't wake the rest of the family up as you crazily hang on every word trying to get caught up at 2 a.m.
coffee(so you can blame that choked up sound and feeling on drinking your coffee too fast
And Klee-Nix Lots of Klee-nix. Not because this is sad but because it IS so AMAZING!
 
SueM, I'd be honored to have our crazy TR linked. I am writing it in the hopes of helping other families. And I'm more than happy to answer any questions. Wish trips seem to come in waves around here and TRs were hard to find with the state of the search the way it is.

LeeLee, thanks so much. You are so sweet. My dh is quite the writer in the entertainment biz and I am trying hard to make sure every Wish related thing that happened to us gets entered so that others can see what may or may not happen.

PS. I seem to have possibly figured out the front of the line - not front of the line issue we were discussing earlier.
 














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