racinjunkie
Mouseketeer
- Joined
- Feb 26, 2005
- Messages
- 335
I'm just not sure what specifically to ask for on a GAC for my dd, I'm going to try to be brief about her issues but it's hard.
First she is in kidney failure and has high blood pressure. Her stamina is drastically limited by the kidney failure. She is also on medication that requires us to limit her time in the sun. I apologize for TMI coming up: she also has bowel and urinary incontinence problems. Finally she is prone to migraines.
If she doesn't get enough sleep or gets over exerted she gets very ill, she will have extreme bowel and urinary incontinence problems and will run a fever usually accompanied by a urinary infection which can be quite dangerous for a person in kidney failure. Often her kidney function will then decline, and we are trying to stave off kidney transplant as long as possible. Contrary to popular belief transplants aren't a miracle cure, there's nothing like that natural organ.
Almost unfortunately, if you met her you wouldn't see ANY of this, it's completely invisible, she looks like a normal 9 year old. We plan to have her in a wheel chair, and will keep our days short. We've cut out an entire major park and our skipping all the "minor" parks/attractions, this trip so that we can keep things slower because we had a bit of a disaster last trip. We didn't put her into a wheel chair until things went south.
We will use fast pass as much as possible, and there are some rides dd doesn't want to go on so the person waiting with her will keep her rested during that time. However, every ride doesn't have a fast pass. Is it ok to ask for an alternate queue, perhaps the handicapped entrance, for rides that don't have a FP? And considering you can only get a FP only so often what about the things you ride in between? I'll definitely ask for a shaded area to wait, and I don't want to seem like I'm asking to not wait at all, it's just that I'm imagining... fantasyland for example, if we obtain FP's for Winnie the Pooh, and then want to do something else while we wait for the FP time, can we ask to have the time on that other ride/attraction reduced if it's long?
I don't want to be rude, really I don't, but no one but us knows what can happen to dd because it doesn't happen then and there, it's later after things have accumulated. It would be great if we could even see it coming but we can't, the disastrous morning of our last trip was completely out of the blue. She had been fine the night before and was a mess the next day. Also, our days are already shortened by dd's medical procedures that take place every day, one takes an hour and is once a day, another is 4 times a day and takes about 15 minutes each time.
Obviously the best case scenario would be to go during a less crowded time but we don't favor pulling the kids out of school so we're left with summer.
Thanks in advance for anyone with any suggestions.
First she is in kidney failure and has high blood pressure. Her stamina is drastically limited by the kidney failure. She is also on medication that requires us to limit her time in the sun. I apologize for TMI coming up: she also has bowel and urinary incontinence problems. Finally she is prone to migraines.
If she doesn't get enough sleep or gets over exerted she gets very ill, she will have extreme bowel and urinary incontinence problems and will run a fever usually accompanied by a urinary infection which can be quite dangerous for a person in kidney failure. Often her kidney function will then decline, and we are trying to stave off kidney transplant as long as possible. Contrary to popular belief transplants aren't a miracle cure, there's nothing like that natural organ.
Almost unfortunately, if you met her you wouldn't see ANY of this, it's completely invisible, she looks like a normal 9 year old. We plan to have her in a wheel chair, and will keep our days short. We've cut out an entire major park and our skipping all the "minor" parks/attractions, this trip so that we can keep things slower because we had a bit of a disaster last trip. We didn't put her into a wheel chair until things went south.
We will use fast pass as much as possible, and there are some rides dd doesn't want to go on so the person waiting with her will keep her rested during that time. However, every ride doesn't have a fast pass. Is it ok to ask for an alternate queue, perhaps the handicapped entrance, for rides that don't have a FP? And considering you can only get a FP only so often what about the things you ride in between? I'll definitely ask for a shaded area to wait, and I don't want to seem like I'm asking to not wait at all, it's just that I'm imagining... fantasyland for example, if we obtain FP's for Winnie the Pooh, and then want to do something else while we wait for the FP time, can we ask to have the time on that other ride/attraction reduced if it's long?
I don't want to be rude, really I don't, but no one but us knows what can happen to dd because it doesn't happen then and there, it's later after things have accumulated. It would be great if we could even see it coming but we can't, the disastrous morning of our last trip was completely out of the blue. She had been fine the night before and was a mess the next day. Also, our days are already shortened by dd's medical procedures that take place every day, one takes an hour and is once a day, another is 4 times a day and takes about 15 minutes each time.
Obviously the best case scenario would be to go during a less crowded time but we don't favor pulling the kids out of school so we're left with summer.
Thanks in advance for anyone with any suggestions.