Ace, Me, & the Guy with CP *An update on Bill Pg. 70*

[Hedy]

I'm so sorry to hear that-my thoughts are with the two of you.

 

[LeeLee2U]

Well, I know I made another announcement recently, a happy one about us going to WDW in June to celebrate Bill's birthday and go to Star Wars Weekend. Sometimes things in life makes your plans change.

Bill has been having 100's of muscle spasms a day in his right ankle causing chronic pain . Lately it has become almost unbearable. He took a day off last week from his internship so I could take him to an orthopedic surgeon.

Bill has had many surgeries in the past, most of these were tendon releases to stop the constricture of the muscles. No amount of physical therapy and stretching will help this condition with him. The surgeon suggested cutting the outside tendon and possibly reattaching it to support his ankle. He will know more when he is working on the ankle. If they just do the release, he will be sore for about a week, but then ok. If he does the reattachment, there will be a cast for at least 6 weeks.

The surgeon wanted to do the procedure in March, Bill asked if he could wait until after school was out, sometime in the middle of June. He wants to get his internship done and said "I don't want to spend another birthday having surgery" . I told him I would support him no matter what he decided.

This past week the pain is getting worse. This man has a very high pain threshold. If he is saying it is hurting, the pain has to be very bad . We talked about things and we made the decision to cancel the June Disney trip, get the surgery done either right out of classes, sometime in the middle of May or right after his birthday. He is worried that the surgeon will probably do the reattachment and wants to make sure the cast is off before classes start back up for the fall semester.

So we are going to add a little to the November trip and possibly put ESPN weekend 2009 into the mix, before the cruise in Dec. 2009 . Bill is a little sad, but we both know it is for the best.

Thank you everyone for continuing to read our trip report.

to you and Bill. Yes I believe our guys are superheros when it comes to pain. Braeton can be smiling at me but if he says he hurts I have learned (the hard way ) that he HURTS!!! Does Bill take Botox shots for his spasms? Braeton gets Botox and it really helps the tight muscles. So far we have been able to stay away from surgery. Now once he gets older it's very likely he will have to have the surgeries, but unlike oral meds, Botox only works where it is injected so B's Dr can pinpoint those really tight spastic muscles and it helps a lot. 1 time he did get a little too much but all it did was make it a little floppy for a while. Botox is not a lasting drug so the side affects aren't permanent, but while it is relaxing B's tight muscles it's making the loose muscles in his legs work a little harder and it all evens up.
Just wondering.
Please tell Bill we will be keeping him in our prayers. I know that no mater how many times you have to face something like this it's still tough when you have to do it again.
Sorry if I seem a little melancholy. We got another call this morning for a possible transplant for DH. Just got the news its not a match. This was on top of getting his Drs report form Dialysis yesterday and he's not doing too good. Oh Well God IS in control and we will be o.k.


This will just make you anxious to get back to the World that much more!!!!

 

[jordanyosh]

I hope the surgery is successful..

 

[ChelleinNC]

Still reading Sorry to hear of the need for surgery Sending best wishes and waiting for the next update

 

[SwansLoveDisney]

Poor Bill! It sounds like he is in so much pain.

Such a bummer that you have to cancel your trip, but I can't imagine how much stress it would be to have the surgery mid-semester.

The pain tolerance of people with disabilities never ceases to amaze me. Makes me feel like a complete wimp!

 

[KimmyDisneyNerd]

Aw sorry to hear about Bill and the canceling of the trip . I'm sure it is for the best though. I hope everything will go well for him and he can be back at em for the November trip.

 

[mkluvsmickey]

So sorry to hear that Bill is in so much pain. Hopefully the surgery will be successful and bring him much relief. Sorry you had to cancel your trip but sounds like it is the best decision for you guys.

 

[MagiKitty]

Oh no! I feel like such a jinx! I just finished congratulating you both on your plans and now I read that Bill is in pain AND has to have surgery. But the most important thing is Bill's health and comfort. And imagine how much more enjoyable your next trip will be once he feels so much better! Biggest hugs to both of you and for your November trip. That just means so much more planning time!

 

[TinkAsh2001]

I hope everything gets better for Bill and I hope for a speedy recovery for him!

 

[team weasel]

Give Bill lots of for us!

I know it's hard to see now, but maybe time will tell that this happened for the best. Maybe something will happen on your November trip that will be so memorable that you will forget you were ever supposed to go in June.

 

[Pakey]

Sorry to hear this news. I hope Bill gets rid of the pain soon. Last year, we had to cancel our WDW trip because of my chemotherapy. It seemed awful at the time but the trip we just took two weeks ago was the best ever. It seemed that knowing what we had to give up last year made us appreciate this one more than ever. I hope the same will happen for you and Bill.

And it's amazing that he's willing to hold off until June to finish his internship. That's dedication.

 

[GeminiAngel]

Very sorry to hear about you're pain Bill. Have you tried acupuncture? Can you? Many have benefit from it. Just until you have your surgery.

 

[Shmu]

As hard of a decision as that must of been for the both of you, I think you made a wise one. I'll be praying all goes well.

 

[Poohtigeey]

Sorry for that tough decision. It's for the best I'm sure. I've read reports of people having different pains and its just not fun. You'll have a much better time pain free! At least you have a trip to look forward to. I'm excited for you!

 

[scottny]

sorry to hear that the trip is canceled but I do hope it helps with the pain.

 

[askelton]

to you and Bill! I hope this surgery takes care of his pain.

 

[mrsksomeday]

I wanted to just say how wonderful the people on this board are. Your warm wishes, hugs, and wonderful thoughts really touched us.

I'm so sorry to hear that-my thoughts are with the two of you.

Hedy, thank you so much .

Please tell Bill we will be keeping him in our prayers. I know that no mater how many times you have to face something like this it's still tough when you have to do it again.
Sorry if I seem a little melancholy. We got another call this morning for a possible transplant for DH. Just got the news its not a match. This was on top of getting his Drs report form Dialysis yesterday and he's not doing too good. Oh Well God IS in control and we will be o.k.

This will just make you anxious to get back to the World that much more!!!!

Hi LeeLee , I am so sorry to hear about the Drs. report. You all are in our thoughts and prayers. Bill doesn't want to go the botox route. He knows from previous surgeries that the tendon releases are effective in relieving his pain long term. He is so strong and brave. I can't wait until the surgery is over.

I hope the surgery is successful..

Thanks Jordan, it will be successful!! We have to stay positive.

Still reading Sorry to hear of the need for surgery Sending best wishes and waiting for the next update

Thanks Chelle for continuing to read and sending your wishes. I will be doing an update tonight or tomorrow.

Poor Bill! It sounds like he is in so much pain.

Such a bummer that you have to cancel your trip, but I can't imagine how much stress it would be to have the surgery mid-semester.

The pain tolerance of people with disabilities never ceases to amaze me. Makes me feel like a complete wimp!

Hi Swans!! Bill is in a huge amount of pain, it was so bad last night I asked him if he was sure we should wait until May or June and he said it would be ok. His focus is to get this internship completed. You are so right about the pain tolerance, I feel bad for complaining about anything .

Aw sorry to hear about Bill and the canceling of the trip . I'm sure it is for the best though. I hope everything will go well for him and he can be back at em for the November trip.

Hi Kimmy!! You are right, it is for the best. Now we are trying to decide how many days in November? Right now we are thinking 13 or 14 , not sure yet.

So sorry to hear that Bill is in so much pain. Hopefully the surgery will be successful and bring him much relief. Sorry you had to cancel your trip but sounds like it is the best decision for you guys.

Hi Michelle, I am praying the surgery gives him a lot of relief. It was the best decision and it just means more time for us in November .

Oh no! I feel like such a jinx! I just finished congratulating you both on your plans and now I read that Bill is in pain AND has to have surgery. But the most important thing is Bill's health and comfort. And imagine how much more enjoyable your next trip will be once he feels so much better! Biggest hugs to both of you and for your November trip. That just means so much more planning time!

Hi MagiKitty, you are NOT a jinx, lol. I was in the process of writing up that post when you posted. Big hugs back to you. You are right, it does mean more planning time and I am already working on things, LOL.

I hope everything gets better for Bill and I hope for a speedy recovery for him!

Hi Ashley, I hope he has a speedy recovery as well. When he had the surgery to put the rod in his back he said he was in constant pain before the procedure. After he woke up when the surgery was over he had one shot of moriphine and then no pain meds after that, he said the pain was gone.

Give Bill lots of for us!

I know it's hard to see now, but maybe time will tell that this happened for the best. Maybe something will happen on your November trip that will be so memorable that you will forget you were ever supposed to go in June.

Hi team weasel, I gave him many hugs from all of you. You have a great way to look at it, thank you. Bill liked what you said too about maybe something being so memorable!! That is a great outlook!!

 

[mrsksomeday]

Sorry to hear this news. I hope Bill gets rid of the pain soon. Last year, we had to cancel our WDW trip because of my chemotherapy. It seemed awful at the time but the trip we just took two weeks ago was the best ever. It seemed that knowing what we had to give up last year made us appreciate this one more than ever. I hope the same will happen for you and Bill.

And it's amazing that he's willing to hold off until June to finish his internship. That's dedication.

Pakey, I hope all went well with your chemo. I am so glad you had a great trip!! He is very dedicated and wonderful .

Very sorry to hear about you're pain Bill. Have you tried acupuncture? Can you? Many have benefit from it. Just until you have your surgery.

Hi Gemini, Bill has never had acupuncture, that is a thought . Thanks for posting.

As hard of a decision as that must of been for the both of you, I think you made a wise one. I'll be praying all goes well.

Shmu, thank you. Everyone here is so wonderful. It was the best decision to make.

Sorry for that tough decision. It's for the best I'm sure. I've read reports of people having different pains and its just not fun. You'll have a much better time pain free! At least you have a trip to look forward to. I'm excited for you!

Hi Monica! He will never be pain free, but this will help him tremendously.

sorry to hear that the trip is canceled but I do hope it helps with the pain.

Thank you Scott.

to you and Bill! I hope this surgery takes care of his pain.

askelton, back to you. I hope the surgery does too.

 

[retiredkid]

and you know, when this is over, the trip will be just that much sweeter..

prayers and pixie dust for both you and Bill.

 

[DisMomAmy]

My thoughts are with both of you!