disneymomma01
Mouseketeer
- Joined
- Aug 12, 2008
- Messages
- 179
Hi everyone!! We will start this PTR off with a little info about my wonderful family!! My name is Carrie & my husband's name is Chris...I am a homeschooling mommy to very cute & adorable Katelyn & trying to get a photography business up & running. My husband works in security for a local medical school, but is a very successful magician for kids & family events Katelyn made her grand appearance into this world 10 years ago with pomp & circumstance. I had a normal pregnancy and what appeared to be a healthy baby girl. So when she was born with a weird jelly sac on her back, we weren't alarmed. Even the OB wsn't alarmed. It was when the pediatrician came in that the world stopped.
We were told that Katelyn had a birth defect called Spina Bifida. Basically that means that a portion of her spinal cord grew outside & was covered by a thin jelly sac. We were told that she would never walk, and that she would always have issues with bathroom stuff. As new parents, my husband & I were devistated. How could this be? Katelyn was transferred to a nearby children's hospital, where she underwent surgery to repair the lesion. A few weeks later she was readmitted to place a shunt to drain off excess fluid & keep the pressure off of her developing brain. She has also had surgeries on her hips & on her ankle.
But let me tell you about her. Katelyn is a joy to everyone she meets. She plays tennis, she rides horses, & she walks...yes...she walks. She uses fore arm crutches & KAFO's (log leggedd braces to give her more support) but she has taken it upon herself to prove those doctors wrong.
She is very funny...always ready with a joke to make us laugh. And is so caring & loving & gentle. We are so proud of her.
We just found out last week that her dream to go to WDW was granted by the Dream Factory. We are so excited. We don't have a definate date yet, but we are shooting for the 1st week in October. Katelyn is on medication that doesn't agree with heat, so summer trips are out for us. We are very anxious to get our trip planned so we can discover all of the magic that Disney & GTKTW has to offer us!!
Thanks for reading about my little family. We are a little family ready for some BIG fun in Disney!!
We were told that Katelyn had a birth defect called Spina Bifida. Basically that means that a portion of her spinal cord grew outside & was covered by a thin jelly sac. We were told that she would never walk, and that she would always have issues with bathroom stuff. As new parents, my husband & I were devistated. How could this be? Katelyn was transferred to a nearby children's hospital, where she underwent surgery to repair the lesion. A few weeks later she was readmitted to place a shunt to drain off excess fluid & keep the pressure off of her developing brain. She has also had surgeries on her hips & on her ankle.
But let me tell you about her. Katelyn is a joy to everyone she meets. She plays tennis, she rides horses, & she walks...yes...she walks. She uses fore arm crutches & KAFO's (log leggedd braces to give her more support) but she has taken it upon herself to prove those doctors wrong.

We just found out last week that her dream to go to WDW was granted by the Dream Factory. We are so excited. We don't have a definate date yet, but we are shooting for the 1st week in October. Katelyn is on medication that doesn't agree with heat, so summer trips are out for us. We are very anxious to get our trip planned so we can discover all of the magic that Disney & GTKTW has to offer us!!
Thanks for reading about my little family. We are a little family ready for some BIG fun in Disney!!