IntoTheLight
Mouseketeer
- Joined
- Sep 2, 2013
- Messages
- 97
Hello board! I've been lurking for a month or so now, reading this forum like crazy, thank you so much for all the great threads!
We're going to WDW at the end of Sept, which should be according to my endless research, touring plans etc, be one of the best times for a special need kiddo and his insane family to tackle the mouse. We'll be staying in The Nemo suite at AoA for 7 wonderful nights.
I was hoping to post a little bit about what I have planned, hoping for anyone to chime in with little bits of advice I maybe haven't come across in other posts? This post will be SUPER long, so thanks to anyone who makes it through!
We have 3 kiddos. Our 4 year old is a complex little dude. He's non-verbal, super sensory seeker, he can walk but for short distance with assistance. I've made a harness system for him that works great in dining chairs and for brief walking and we'll be using that. In addition to his sensory disorders he has spinal tumors, sleep deprivation induced seizure disorder and congenital pain indifference (which we discovered when he tipped over a high chair, broke 2 ribs and laughed through it.) Unfortunately with the CIP and being non-verbal comes using physical ways to express himself. Head banging, hitting, biting himself, etc. However when his needs are met and we're on our A-Game (ok, B-Game too) things go pretty well.
My MIL finally convinced us that Disney World would be a good idea and that we had enough adults (4 vs 3) to handle it, so we started planning and the month is finally here!
So, we have a 3 hours flight (DS4's first) and then all the craziness of WDW and here's my plans so far!
Day 1: The Flight-
We have a prescription from his Ped that will hopefully mean sleep and peace, but experience says this will be a nightmare. I will have his carseat for restraint on the plane. He doesn't watch more than 15 seconds or so of a movie but we usually can distract him with rolling wheels and will have lots of cars. We have three seats for mom, dad and DS4.
Night 1: 'Ohana for dinner. Could anyone describe the seating situation there? What kind of chairs, are they booths? Do they have high chairs and do they seem like a toddler could fit? Do they allow handicapped strollers into the restaurant?
Day:2 HS and MK, we have the magic bands so we can only get FP at one park per day, so Hollywood Studios we will brave without at rope drop, take a 3 hour break mid day and return to MK for my DD's Cinderella dinner while the boys go to Liberty. For lunch we plan on Pizza Planet Arcade. We have FP+ for peterpan, splash mtn and big thunder.
Day 3: AK and HS, FP Rides are Muppets 3D, Star Tours and Tower of Terror. Our dinner is at Sci-Fi. Any Sci-fi tips? Same chair question as above. How long do meals usually take to come out here? For fantasmic DS4 would have to remain in his stroller restrained, do they allow that? We did pack him ear protection as well, and he will LOVE the light shows.
Day 4 & Day 5: Breaks from the parks, dinner at T-Rex. Has anyone done the pony rides with a SN kiddo? He does hippotherapy at home and loves horses, but his are trained to deal with his need to touch and pull. Would anyone recommend skipping this with the disney ponies? My daughter HAS to ride them so we will be going, just hoping DS4 can too.
Day 6: MK, we have FP+ for Enchanted Tales, Speedway and Space Mtn. Are there any MUST DO's for autism spectrum kids? Dinner is at Be Our Guest, same high chair question.
Day 7: Epcot, FP+ for Soarin, Test Track and Character spot. Dinner is at Coral Reef. DS4 is totally in love with fish tanks, this will be the one restaurant I don't worry about him making a scene. Is there any way to get a table that touches a tank? Do they allow that? DH really wants to try Tangierine Cafe for lunch, what do we think? Autism friendly or can you recommend a close by quick service?
One more question about AoA, how is the soundproofing between walls? Night time is a bit of a noisy routine for us, I'm worried about the neighbors complaining. Anyone ever hear rambunctious kids next door?
Any other tips and tricks? I'm hoping that by shipping all our needs ahead of time and meticulous touring plans I can make this enjoyable for everyone. Am I allowed to post our touring plans here? From what I've read the touring plan is the most essential piece to making this puzzle work. Thanks again!
We're going to WDW at the end of Sept, which should be according to my endless research, touring plans etc, be one of the best times for a special need kiddo and his insane family to tackle the mouse. We'll be staying in The Nemo suite at AoA for 7 wonderful nights.
I was hoping to post a little bit about what I have planned, hoping for anyone to chime in with little bits of advice I maybe haven't come across in other posts? This post will be SUPER long, so thanks to anyone who makes it through!
We have 3 kiddos. Our 4 year old is a complex little dude. He's non-verbal, super sensory seeker, he can walk but for short distance with assistance. I've made a harness system for him that works great in dining chairs and for brief walking and we'll be using that. In addition to his sensory disorders he has spinal tumors, sleep deprivation induced seizure disorder and congenital pain indifference (which we discovered when he tipped over a high chair, broke 2 ribs and laughed through it.) Unfortunately with the CIP and being non-verbal comes using physical ways to express himself. Head banging, hitting, biting himself, etc. However when his needs are met and we're on our A-Game (ok, B-Game too) things go pretty well.

My MIL finally convinced us that Disney World would be a good idea and that we had enough adults (4 vs 3) to handle it, so we started planning and the month is finally here!
So, we have a 3 hours flight (DS4's first) and then all the craziness of WDW and here's my plans so far!
Day 1: The Flight-
We have a prescription from his Ped that will hopefully mean sleep and peace, but experience says this will be a nightmare. I will have his carseat for restraint on the plane. He doesn't watch more than 15 seconds or so of a movie but we usually can distract him with rolling wheels and will have lots of cars. We have three seats for mom, dad and DS4.
Night 1: 'Ohana for dinner. Could anyone describe the seating situation there? What kind of chairs, are they booths? Do they have high chairs and do they seem like a toddler could fit? Do they allow handicapped strollers into the restaurant?
Day:2 HS and MK, we have the magic bands so we can only get FP at one park per day, so Hollywood Studios we will brave without at rope drop, take a 3 hour break mid day and return to MK for my DD's Cinderella dinner while the boys go to Liberty. For lunch we plan on Pizza Planet Arcade. We have FP+ for peterpan, splash mtn and big thunder.
Day 3: AK and HS, FP Rides are Muppets 3D, Star Tours and Tower of Terror. Our dinner is at Sci-Fi. Any Sci-fi tips? Same chair question as above. How long do meals usually take to come out here? For fantasmic DS4 would have to remain in his stroller restrained, do they allow that? We did pack him ear protection as well, and he will LOVE the light shows.
Day 4 & Day 5: Breaks from the parks, dinner at T-Rex. Has anyone done the pony rides with a SN kiddo? He does hippotherapy at home and loves horses, but his are trained to deal with his need to touch and pull. Would anyone recommend skipping this with the disney ponies? My daughter HAS to ride them so we will be going, just hoping DS4 can too.
Day 6: MK, we have FP+ for Enchanted Tales, Speedway and Space Mtn. Are there any MUST DO's for autism spectrum kids? Dinner is at Be Our Guest, same high chair question.
Day 7: Epcot, FP+ for Soarin, Test Track and Character spot. Dinner is at Coral Reef. DS4 is totally in love with fish tanks, this will be the one restaurant I don't worry about him making a scene. Is there any way to get a table that touches a tank? Do they allow that? DH really wants to try Tangierine Cafe for lunch, what do we think? Autism friendly or can you recommend a close by quick service?
One more question about AoA, how is the soundproofing between walls? Night time is a bit of a noisy routine for us, I'm worried about the neighbors complaining. Anyone ever hear rambunctious kids next door?
Any other tips and tricks? I'm hoping that by shipping all our needs ahead of time and meticulous touring plans I can make this enjoyable for everyone. Am I allowed to post our touring plans here? From what I've read the touring plan is the most essential piece to making this puzzle work. Thanks again!