..

[C.Ann]

.............

 

[Christine]

C. Ann,
I don't know a whole lot but have done a bit of reading.

There are a few kinds but I think the most common are acute and chronic myo-something or other. Sorry. I know one is better to have than the other and I don't think the kind you get as an adult is as treatable as the childhood leukemia.

 

[aprilgail2]

I don't know a whole lot but I know there is hope...my grandmother got leukemia at 65 years old..she died at 92! And she did NOT die from leukemia.

 

[dmslush]

C. Ann,

I know very little about it. My aunt actually passed away from luekemia about a year ago. I know that she had acute and was told that one is more difficult to treat than chronic (I hope I am remembering that correctly!). She did have a bone marrow transplant, and was doing good. But, all of a sudden, she started going downhill pretty fast.

 

[C.Ann]

.......

 

[Christine]

This is an adult male - early 30's.. Info is sketchy at this point, but I have a bad feeling about it..

Hmmm...I think even getting it in the early 30s is a "good" sign (if you can call it that). I think getting it in your 60s is another matter, entirely.

 

[aprilgail2]

C. Ann,

I know very little about it. My aunt actually passed away from luekemia about a year ago. I know that she had acute and was told that one is more difficult to treat than chronic (I hope I am remembering that correctly!). She did have a bone marrow transplant, and was doing good. But, all of a sudden, she started going downhill pretty fast.

In kids its ALL that is easier to treat than the chronic one....

 

[Serena]

C.ann, I know nothing about it, but this isn't your sil is it?

 

[Pop Daddy]

I had two older freinds (60,s) they both got acute Luekemia and neither one them lived 2weeks , so if this person has that you will know it real quick

 

[C.Ann]

--------------------------------

 

[Serena]

--------------------------------

No - it isn't.. But it's a sticky situation for me that has me rather upset.. Just not sure if I want to discuss it further here yet..

I'm glad it's not him, but sorry you are having to deal with it.

 

[arminnie]

I had a friend in college who had acute leukemia. She died in about 2 weeks. As Pop Daddy says - if it's acute you know it very quickly.

The husband of a good friend of mine got leukemia 20 years ago when he was almost 40. He had one of the early bone marrow transplants from his brother and has done great for 20 years. He had to go to Los Angeles for the transplant. It's been a total success.

Win Rockefeller, Lt. Governor of Arkansas, is going through a bone marrow transplant right now for something with a long name that they say can turn into leukemia. Win is 56, and I just had an update tonight - he is doing great. He is in Seattle - which is THE place to go for transplants. My friend who had it 20 years ago only went to L.A. instead of Seattle because it was easier for his wife and sons to fly there to visit.

I would also like to encourage anyone between the ages of 18 and 60 register at the National Marrow Donor Program http://www.marrow.org/. I helped organized a blood drive for typing with this organization a couple of months ago. My signature picture was taken there.

I met a couple of survivors at the Marrow Donor drive. They are just as healthy as can be now. Donors can come from all over the world. In the past a donor had to physically go to the place where the transplant was taking place, but now the marrow can be harvested at a hospital near the donor's home.

I am registered as are most of my friends. Yes, it can cause the donor some discomfort for a few days (kind of like a bad bruise I've been told by a donor), but I would feel so privileged and honored if I were able to save someone's life.

I had always thought that you had to be a close relative to be a donor, but that's not true. Win's donor is from Europe and they got a 10 out of 10 match - which is highly unusual. Usually they are happy for a 9 out of 10 match on the markers.

My cousin had lymphoma about 6 years ago. They took his own bone marrow, treated it and then put it back in. He was not in very good health as he'd had his first heart attack at 37 and had chonic heart problems, but he survived and is also doing well. He is in his mid-60s.

 

[skuttle]

My grandpa was diagnosed with luekemia a few years ago. He just had his 80th birthday and has been in remission for a while.

 

[C.Ann]

..

 

[tiggersmom2]

I had two older freinds (60,s) they both got acute Luekemia and neither one them lived 2weeks , so if this person has that you will know it real quick

Yes, acute Luekemia is always bad.

 

[C.Ann]

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[tiggersmom2]

---------------------

It's already been 2 to 3 weeks since the initial diagnosis, so can I assume that is good news and it's not likely to be the acute form?

Keep in mind I am just a RN (I am a dental hygienist too).....but the younger you are...the better. If it can be put in remission he will have a 65% chance of a "cure". I would definitely say it is promising that he has not gone straight down hill.

 

[shortbun]

My Dad and my cousin both had this initial diagnosis then their diagnosis evolved. Dad's became a myelomic type of blood cancer and now has been treated twice in ten years, both times with remission success. My cousin actually has CLL:Chronic Lymphocytic Leukemia and with a combination of treatments has had a pretty good recovery so far. I hope your situation changes as ours did and a better light gets cast quickly.

 

[chicagodisneyfan]

My best friend was diagnosed with ALL in June. She is 36. With her type of leukemia, she was given a 20% chance of living 5 years or more.

That is messed up!

 

[DMRick]

We had a young mom (36) with two young children at church pass away this summer after a very short bout with it.

She was doing so good, that they restarted her chemo (and her brother had just been tested and was a match for bone marrow!), and she died while having it. They had originally stopped the chemo, because she wasn't doing good on it. She went home, and although she lost lots of weight, she was doing ok, and was told she was in remission. After she passed, thoughts were made, that she may have been allergic to something in the chemo, since both bad times were while having chemo.

Another friend passed away 3 months after being dx'd several years ago. There is tons of info on the web about it..I was always looking it up this past summer, trying to find some hope.

Edited to add, that Crystal's leuk was not supposed to be the bad kind..in fact at first they thought it was lupus. But as she spiraled down, further testing did reveal the bad kind.