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[Pembo]

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[Pin Wizard]

 

[sorcerormickey]

 

[wishuponastarforever]

I'm sorry you are going through so much. The Dis is a good place to vent your feelings. We care and it is good for you to face how you are feeling. Owning your hurt and negative feelings is part of the healing process and I'm glad we are here for you.

I will refrain from telling you how you will recover and this will be part of your past - Even though that is the truth.!!!!!!!!

I am just glad you have us to vent whatever feeling you are experiencing - the good and the bad.

 

[Pam]

Awwww..... Pembo.

I'm so sorry. I guess we were all so relieved that you came through the surgery and are now home that we just think that you are, "Ok."

But we tend to lose sight of what you have had to endure, the surgery, the pain, the after-effects.

Is there any timeframe of when the facial paralysis will leave? Do they have you doing any kind of rehab? Have you talked with your doctor?

You might not be "okay" just yet - but I for one am soooo happy that you are able to post and talk with all of us. You are one of my favorite posters on this board, even if I don't reply to a lot of your posts - I almost always read what you have to say. You have given me many smiles over the years.

I will continue to pray for you.

 

[winniedapooh]

Pixie dust kind thoughts and hugs .

 

[Planogirl]

I'm so sorry. Like others have said, the relief makes us forget how difficult the aftermath is. Thanks for sharing with us and please continue to do so.

 

[Pembo]

Thanks Pam! You said so many nice things!

Yes I do go to rehab twice a week, both PT and OT. I told the girls in PT that I went to regain the weight I lost in muscle not fat. LOL!!! As for the facial stuff, one dr told me that the nerve heals 1 mm per day and it is a VERY long nerve. I go to the dr tomorrow so I definitely will be asking. I have read that for some patients it could take up to a year! UGH!

 

[Pooh67_68]

All I can do is keep giving

 

[Antonia]

If it makes you feel better, I had no trouble reading your typing - your b's don't look like p's here. Hahaha So forget the phone and type away! That's one great thing about the computer.

It can be so frustrating trying to recover - it's never as fast as you'd like it to be. I'm a nurse and a very positive person - sometimes my patients hate it. I do try to remind them to focus on the accomplishments they've made and not on all the things they wish would hurry and get better. I know that's hard to do, but sometimes that's all you can do. I wish you a speedy recovery - you'll get there!!!

 

[huey duey & luey]

sending hugs to you and prayers that you will feel "okay" very soon.
Tara

 

[Cinderellafifi]

Hope you get to "OK" very soon!!

 

[FroggyinArk]

Pembo, I fully understand what you are saying. After nine months I am still in reconstruction mode, tryiung to rebuild my face. I get the so glad you are ok regularly as well. I agree I am not ok either. I am gettting to it slowly but surely and I know that i may never have a normal looking face again. I hate that everyone stares so much, but i am getting used to it. You would think people never saw a one eyed guy with a knot the size of a bar of soap on his forehead before..lol.. Please know that you are still in myprayers, and that you are not alone. I am posting a link to my imagestation pic that i took afew min ago so i couldshow ya, i would post it here but wouldrather you look at it in your own time
http://www.imagestation.com/mypictu...bb66977412fee28/f7fb7513.jpg&caption=s4200055

 

[Dan Murphy]

I hear you, Barb, we hear you, loud and clear. 's So often, once the big part is over, most often a surgery, it seems like clear sailing. So often the recovery takes time, aches and pain, discomforts along the way. Anytime you feel like venting, in need of a hug, say a few words, (or a lot, and not that this is a lot, LOL), just please do. If you ever want to try out those p's and b's on someone, give me a call (I think you have my number, if not, ask)

I know a bit how you are feeling, Marie is a bit in the 'dumps' too, 2 weeks or more after her surgery, still hurting quite a bit. And most think it is over and done. You had 16 hours of surgery, Barb, and you have cause to feel as you do. But always feel as though you can reach out to those here in your DIS family, along with Mark and the kids at home. 's

Dan

 

[dizneenut]

Oh, Barb, I'm sorry. More coming your way.

 

[Lewski709]

Pembo,
Many people just don't know what to say. I am sure the thoughts are in the right place, but having not been there.....it's really tough. Hang in there.

 

[lizdotcom99]

I also had major surgery on my ankle for the 8th time May 14!! I had hoped that by now Iwould be walking.....not a chance!!! My toes are numb, can't feel the side of my foot and then there is this wound that just won't heal. Until the wound heals I am not able to walk and have to use crutches. I have been on them since surgery....and looks like it will be a while before I am walking again!!! I too go to therapy 3 times a week, but I look at it as my social time!!! Unfortunately, I am tired of depending on people for everything. I am not abole to drive myself anywhere , unless it is medically related, can't really go anywhere that requires walking...which is everywhere and simple taks that once were so easy are incredibly frustrating!

I hope it helps you to know that someone here is sharing your frustration. If I have to look at these four walls much longer, I may just loose it!!!

I have lots of extra crayons and coloring books that I could share with you! There are some VERY nice people on these boards who have helped in keeping my sanity!!!

When you get frustrated and need a friend , feel free to PM me....and if you need osme coloring materials....send an address and I will make sure you have plenty of supplies!!

Hope that you are feeling better!! Hugs to you...from a gimp who knows how you feel in so many ways!!

Liz

 

[Pop Daddy]

you get free "long post" while your sick and depressed, I didnt realize you how much your having to go thru

 

[Poohbear123]

Remember, you will NOT heal as quickly as you should if you are under stress ABOUT healing....hope this makes sense. It has been 4.5 months since my surgery, even thought I did NOT have the type of Surgery you had, I am still NOT the same.... Hugs and Prayers, Faith.

 

[rcyannacci]

Pembo,

I'm new to the CB, so I'm not sure what your surgery was for, but here's another message of support.

I had surgery on my face last Feb. to remove a tumor, and then spent 7 weeks in radiation therapy. I also still have trouble talking on the phone and still get self-conscious about the way my face looks, so I get your frustration.

I'm not sure what to tell you about other people's reactions. It's hard not to get mad at people when they act all cheery like everything's better when its not. I know they think they are trying to raise your spirits, but it feels so insensitive. My only advice to you is to say what you feel as much as you can. When I felt bad from radiation, my friends heard about it, even if I knew it made some of them uncomfortable. But, once I brought it up, some of them surprised me. I'll always be grateful to those friends who spoke to me with candor and acknowledged the pain I was going through.

On the up side, you are going to come out of this horrible experience a more intuitive, intelligent and insightful person. My very best wishes to you and your recovery.