How do I deal with it... one day at a time.
I found out in November than I had had it for about 18 months... that means I had it in China, just not as in your face... that explains the way that a lot of days I hurt really bad and I really shouldn't have.
Germany in December... I had my diagnosis, I was on prednisone but not methotrexate so I was bringing down the inflamation but not pushing it back to where it belongs.
Now... I'm off the steroids and on the chemo therapy drugs (joy... I "get" to take them on the plane trip out... ). I will feel crappy on the plane, no doubt...
My tips... be realistic with yourself... you know how you feel... (rather... he knows how he feels). My best advice to you... believe him and understand that he is going to be a crabby SOB some times and there isn't anything you can do to fix it. My family is STARTING to understand this but it is hard to take sometimes...
If he needs to lean on a cane... he needs a cane. If he needs to take aleve (I LOVE aleve) he needs to suck it up and understand that he needs to rely on meds.
Take more than one pair of shoes. Don't care what they look like, as long as they are comfortable. I have fallen in love with my Nikes... they are boxy across the toes which means that when my feet get puffy they are roomy enough... my Tevas are similar... I can just unzip the Velcro on them and loosen them until they don't hurt any more. there comes a point (and I am SO not the one to preach this... because I wear a Figment hat to Disney World ALL THE TIME... I could be on What not to wear on a good day...) fashion needs to take a back seat to being comfortable.
One that guys don't seem to have trouble with as much as i do... travel light so you don't tax yourself carrying stuff... I bought a nook (1 book weighs what 100 books weighs... and ti weighs less than a good hefty paper back... and you can buy a lot of the travel books in epub format and those are WAY heavy in analog format) and a netbook. The one thing (and anyone who has traveled with us can attest to) that I haven't cut back on is my DSLR camera... I'm going to do these trips once and I'm not missing a single picture... I can always delete garbage when I get home, I can never go back and capture it again... I am learning to travel very minimally and save my resources for what I want to have my resources wasted on...
Does it sound like I'm preaching? I'm really not... I'm just in the middle of learning these lessons myself... these and how to travel with a beautiful little epileptic... so I tend to ramble...

I will probably have totally more lessons learned in a couple weeks...


If you have any questions... don't hesitate to ask. You guys have to be so in the freaking out phase right now... don't do nearly as much research as I did on the internet... there is stuff out there that can scare the crap out of you. Find a good doctor that you like and trust (is he dealing with a rheumatologist... )
OH... and... there are a lot of good blogs out there (cough cough.... yeah, i have one too) that you-all can read through... it is neat what a family RA and RA like conditions really has... there are some great people who can be an awesome support system for him AND for you.
