21 years ago today a baby boy died

[Dan Murphy]

Enjoy the trip, Liz. Continued good wishes and prayers for Laura and all of you guys.

 

[WebmasterMaryJo]

Update October 8th!
We're going to Florida! Laura's 24 hour monitor results were good and showed nothing unusual even though she had the chest pain three times while wearing it. They expected to get the lab results back today but they didn't come in so they told us to go to Florida and have fun and they'll call us while we're there with an update. Another great bit of news is she hasn't had the chest pain since Monday (and hopefully she's being honest about it - I think she is). Thank you for your prayers and helping us get through the latest challenge! I don't know if the chest pain is gone for good if they'll still do more extensive tests when we get home, we'll just have to see. Florida here we come!!!

I'm so happy for you!!!!

 

[mytwotinks]

I'm so glad that you guys get to go on your trip!

I have an 11 year old that has a lot of issues and I really struggle with getting her to tell me what is going on sometimes. She just doesn't want to be sick, so sometimes she doesn't tell me when she is starting to feel the pain.

I hope you guys have a wonderful worry free vacation!!!!

 

[TruBlu]

Update October 8th!
We're going to Florida! Laura's 24 hour monitor results were good and showed nothing unusual even though she had the chest pain three times while wearing it. They expected to get the lab results back today but they didn't come in so they told us to go to Florida and have fun and they'll call us while we're there with an update. Another great bit of news is she hasn't had the chest pain since Monday (and hopefully she's being honest about it - I think she is). Thank you for your prayers and helping us get through the latest challenge! I don't know if the chest pain is gone for good if they'll still do more extensive tests when we get home, we'll just have to see. Florida here we come!!!

HOORAY!!!!!

That is WONDERFUL news!!!!! Wouldn't it be great if those pains are just muscle pain?

I hope you all have a fantastic trip!

 

[Liz]

Oh Liz, I know how you feel. DS had a bone tumor when he was 4. We chose to wait until after vacation to have it removed. We didn't tell him, so I had to worry with a brave face. It is so hard, but as a parent you do what you have to do - no matter how hard that is. I cried in the shower MANY times.

I don't know who said this, but it helped me a lot at the time...
Worry is like rocking in a rocking chair. You do a lot of work, but get nowhere.

Worry is not going to change anything, except make you feel worse. Please, please try your best to not think about it until you get back.

Having been there myself, I know how hard that is. But please try.

PM me if you need to talk.

Oh how you do understand exactly what I've been going through! No matter how hard I tried to reason with myself that worrying wasn't doing any good I couldn't let it drop. That darn "worry" doesn't have a plane ticket and isn't invited to MNSSHP so he better stay out of sight!!!

Enjoy the trip, Liz. Continued good wishes and prayers for Laura and all of you guys.

Thanks Dan! Our WDW portion of the trip is only 3 nights this time but I didn't think we'd be back this year at all so I'm grateful, especially under the circumstances.

I'm so happy for you!!!!

Thanks Mary Jo!!! We're all so happy right now!!! The four of us are:

I'm so glad that you guys get to go on your trip!

I have an 11 year old that has a lot of issues and I really struggle with getting her to tell me what is going on sometimes. She just doesn't want to be sick, so sometimes she doesn't tell me when she is starting to feel the pain.

I hope you guys have a wonderful worry free vacation!!!!

I'm sorry for your darling daughter's health issues! Your girls are beautiful!

 

[Liz]

 

[crazyforgoofy]

I'm thrilled about your news.

 

[4nana]

October 24th
I wanted to share our happy news! We had a great trip to Florida! The weather was beautiful, nobody got sick, Laura did really well. The doctor's office called us in Florida and said the new blood test they did in place of biopsies indicated there was a 99% chance she wasn't have any rejection! Yesterday they did a lot more tests still trying to rule out her heart being the source of the chest pain (which unfortunately is still continuing). Every test they did yesterday was good! Pressures in the heart - fine! Coronary arteries - fine! Heart enzymes which had been rising dropped 100 points - GREAT NEWS! They attempted another biopsy and got some samples - no rejection! We had one scare which turned out to be nothing. The doctor said he was afraid he damaged a valve when trying to get biopsy pieces. They later confirmed the valve was not damaged.
After that scare we definitely will not be pushing our luck with biopsies any more. Just wanted to share our happy news! They want to do one more test (cardiac MRI) and if that's fine they said to not worry about the chest pain and whatever is causing it its not her heart.

Here are two pictures that I particularly like from our trip that I wanted to share! Thank you, dear friends, for all your love and support!

LOVE the cute photos and thx for your sharing your wonderful update ! So happy you and your family got to the world and had such a wonderful trip w/o a lot of stress and worry. Continued prayers for your sweet Laura's progression . Keep the faith ^i^

 

[rie'smom]

Great pictures and fabulous news!!!!!

 

[holycow]

I haven't been on in ages and I see your name tonight! Thank you for sharing your amazing story with us. I'm so glad your lovely DD is doing well! Yeah!

I am also so glad you had a great time in Fl! I miss it alot more than I
thought I would.

Take care!~

holycow
lisa

 

[FormrCastMbr]

Great news! I will continue to pray for Laura...so glad you had a nice trip!

 

[java]

wonderful news and I LOVE the Jafar picture.
Continued prayers for smooth sailing.

 

[akhenaten]

October 24th
I wanted to share our happy news! We had a great trip to Florida! The weather was beautiful, nobody got sick, Laura did really well. The doctor's office called us in Florida and said the new blood test they did in place of biopsies indicated there was a 99% chance she wasn't have any rejection! Yesterday they did a lot more tests still trying to rule out her heart being the source of the chest pain (which unfortunately is still continuing). Every test they did yesterday was good! Pressures in the heart - fine! Coronary arteries - fine! Heart enzymes which had been rising dropped 100 points - GREAT NEWS! They attempted another biopsy and got some samples - no rejection! We had one scare which turned out to be nothing. The doctor said he was afraid he damaged a valve when trying to get biopsy pieces. They later confirmed the valve was not damaged. After that scare we definitely will not be pushing our luck with biopsies any more. Just wanted to share our happy news! They want to do one more test (cardiac MRI) and if that's fine they said to not worry about the chest pain and whatever is causing it its not her heart.

]

so happy to hear that all news is looking good!!

 

[Dan Murphy]

Wonderful, Liz, and what neat pictures. Thanks so much for sharing. Continued good wishes and prayers for Laura, and all of you.

 

[xoprincessmomxo]

Great news, Liz! So glad that your trip was good and that everyone was well. Love the pictures! I haven't read all the posts so I'm sure someone else has asked this, but will there be a trip report?

 

[JB111107]

what a neat story. I raised money for a couple of kids needing organ transplants when I was a kid. I learned alot at a very young age about organ donation, and I've had my card since I was about 9 years old.

I'm so glad to hear you've had such success with your daughter's experience. I don't usually hear exceedingly good stories with heart transplants so I am highly encouraged by your daughter's story

After having just given birth to a very premature baby, and quite nearly losing him at the same time, I can only imagine how tough you have had it, from the very start. All my prayers are with your family and the family of that precious little boy's family for doing a heroic thing in the midst of their tragedy.

 

[ntsammy5]

Amazing, absolutely amazing!

 

[Kitty 34]

I enjoy reading such a happy update on Laura's health and great trip report, Liz.

I'm praying for many more happy updates and pics!!

 

[TruBlu]

Hi Liz!!!!!

I've been sick myself, and just read your wonderful news. Please give our girl a big celebration hug from me!!!!

CONGRATULATIONS!!!!!

 

[Liz]

*bump* with an update in OP!