Need Gluten Free Diet Help

Discussion in 'disABILITIES!' started by of2dbeach, Mar 21, 2013.

  1. Caropooh

    Caropooh POO, are you? POO POO, POO POO!

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    I'm really rather confused on why you say the only things you can't have are the Cheesie Fries. :confused3
    Here is the BF menu from Outback. The onlythings you can eat there are what's on this menu. As you can see, while the menu is extensive there are quite a few things that have to have substitutions made.
    My DD14 has been gluten-free for almost 3 years now due to being diagnosed with Celiac Disease. Even in those 3 years we have found more and more gluten free products in the stores and also restaurants having gluten free options. You do still need to be careful at restaurants though, we still get people (hostesses, servers, even managers) not knowing what gluten-free is.
    Whole Foods and Trader Joe's both have a printed list of what they carry that is GF. Ask at the customer service desk or a cashier for them. They are very helpful!
     
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  3. clm10308

    clm10308 DIS Veteran

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    I'm not GF, but I remembered this thread as I was walking through my grocery store today. I saw a rack of GF bread products in the fresh bakery section of the local Smith's(kroger's) store.
     
  4. redomni

    redomni Mouseketeer

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    For ideas on where to eat out try searching for the gluten free registry. from there you can search for anywhere in the country and it will tell you what restaurants in the area have gluten free selections.
     
  5. Sagginit

    Sagginit DIS Veteran

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    if you are going truly GF one thing no one has mentioned is the more hidden or secondary sources of gluten. you need to check your medications, lipsticks, and basically anything else you may eat. cross contamination is a huge one so make sure you understand that, believe it or not if you are really intolerant you can even get a reaction from kissing your husband after he eats gluten!

    next time you are at the food store check the health foods/oraganics sections. i bet ya you will find the bread frozen there. TJs and whole foods are the only stores i have ever seen it fresh in.

    also as far as restaurants a lot have GF now. for chains it includes outback, bonefish grill, carabas, pf changs, red robin, olive garden, and ruby tuesday. five guys and wendys are two good fast food places. are lots of other ones out there so check the websites of local chain restaurants you go to. some are so restricted i dont even bother (i can stay home for grilled chicken and steamed veggies lol).

    as for pizza bob's red mill makes a great mix.

    i haven't bought anything yet but i recently came across this website and you can cruise the GF section to get ideas of brands to buy. http://www.vitacost.com/gluten-free-products
     
  6. KristenFNJ

    KristenFNJ Mouseketeer

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    I second the suggestion to keep eating gluten for now and get a celiac test. There can be big differences between allergy/intolerance and celiac. While some who are negative for celiac suffer from equally debilitating deficiencies and have to be brutally vigilant about cross-contamination like celiacs do (I know there is at least one on this board who suffers like this), many times allergy or intolerance varies and can afford you to be a little more lenient. Examples are, you may be able to eat fries that were cooked in the same fryer as breaded chicken, where a celiac cannot. You may be able to share a jar of peanut butter or a stick of butter with your gluten-eating family, a celiac cannot. And if a celiac does get contaminated the autoimmune response is triggered, intestinal damage will occur even if you don't have severe symptoms (which most do get at the slightest cross-contamination), and every time the response is triggered the chance of stomach cancer increases.

    I'm not trying to scare you, really LOL. I just believe it's helpful for you to know what you're dealing with. If it's celiacs, you need to be vigilant. If it's not, you *might* not have to be so vigilant, depending on your own body. The "fad" of gluten free has helped us to get lots of new products on the market, which is great. But it has also given people the impression that you just have to give up bread and pasta to be gluten free-while that's true for many, it's not true for celiacs. So, people think they know what "gluten free" is, and they contaminate people who suffer with celiacs because they don't even know there's a difference!
     
  7. brighteyes

    brighteyes DIS Veteran

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    I have a friend who has a child with ASD and he is on a GF and casein free diet. She said it helps him. I believe he is not celiac but was on the advice of his pediatrician.

    I have had stomach issues for years and never thought a lot about it, putting it down to IBS. I have also suffered from acid reflux as well. Recently, I had an outbreak of hives *severe** to the point of it impacting my daily life. Also facial swelling, numbness. I am not celiac, but do have a sensitivity to gluten. However, I have found that dairy is a more troubling food for me as well as egg. Eliminated all these foods from my diet and finally after four months of hives, I am looking normal again. LOL

    I found gluten, wheat free to be way easier than going dairy free. Gluten free foods can be quite tasty and yes, cooking most things from scratch is the easiest. I was a huge fan of any and all wheat products so I thought that would be the hardest. It really was the easiest, as the pp has said. There is brown rice pasta which tastes great. I haven't found a good GF bread but haven't missed it. But I mourn my dairy loss every day. I live for cheese, yogurt, etc. Goat yogurt does not sound appealing enough to try. :scared:

    Just be sure to make sure you know all the different names for gluten and wheat.

    Here is a book I found very useful as it has lists of foods to avoid and foods to question and is laid out according to the layout of a grocery store. It is also organized by allergy. It has useful info on testing, symptoms, safe foods, foods to avoid, and also has some recipes in the back.

    http://www.bookdepository.com/book/9780778804208?redirected=true&gclid=CKKSka-q4rYCFe1aMgodFVsA0A

    HTH :)
     
  8. Dancind

    Dancind Tinkerbell's Mom

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    I've been low carb for years and paleo for a year and a half. When we would go to WDW I allowed myself bread and dessert and would wind up terribly bloated and in pain, and my joints would hurt so bad I could barely walk. Yes, I finally got a clue and I stick to my normal diet on vacation now.

    My daughter has ASD, she's 22. I suspected my diet would help her, but she had to decide to do it. She finally did 18 months ago because she wanted to lose some weight. She quickly found that her regular stomach pains and migraines cleared up (and her skin), and her PMS improved. I think she realizes that it also helps her ASD traits (it really does), because she still tries to stick to it.

    I didn't think it was widely accepted as a treatment, but a recent GF magazine I bought had a supplement about ASD and the GF, casein free diet. For my daughter, sugar is a big one too. If she has too much sugar she gets depressed.

    It's so much easier now, and it does seem the GF products keep getting better. Too much so if keeping carbs and sugar low is a priority. We have a couple of bakeries around here that make GF goodies, one is more "natural" and so good. They even make blueberry oatmeal bars with organic blueberries and GF oats and just a bit of honey. Good thing they are not too close by. Whole Foods has a wonderful selection too, including a delicious looking prepared pizza crust that I haven't tried yet.

    Good luck, glad you're already feeling better.
     
  9. dawnball

    dawnball <font color=red>bouncie bouncie...<br><font color=

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    About a third of people who are gluten intolerant can't tolerate oats. They get the same sort of intestinal villi damage that they do from wheat, rye and barley. They have similar, but not identical proteins, so it's like treenuts/peanuts, I think.
     
  10. GayeofPA

    GayeofPA Hoping to Go

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  11. Alexander

    Alexander DIS Veteran

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    DS was diagnosed as a Celiac a little over four years ago. I have to say, it has gotten so much easier to eat, shop, cook GF than it was when he started. I agree with another poster.
    Udi's has the best bread products (bagels, bread, rolls,pizza crust).
    I have also ordered pizza crusts from http://www.stillridingpizza.com.
    I have an auto-fill order with Amazon for Pamela's Baking Mix that I use for pancakes, muffins, etc. http://www.amazon.com/gp/product/B000NMJWZO/ref=rcxsubs_mys2_product_title
    There are cereals in the grocery store that are naturally GF, Chex cereals, Fruity and Cocoa Pebbles, and Rice Krispies now has a GF version
    You have to learn to read labels. Fortunately wheat is one of the top 6 or 7 allergies and is listed either at the end or bolder so it is easier to find. You will want to avoid barley and rye also because they are also gluten containing grains.

    I agree with others that you should be tested. There is a difference between intolerance where it bothers you with cramping, bloating etc. and Celiac disease where the gluten is destroying the villi in your small intestine. There are so many people who think intolerance, allergy and Celiac are the same thing. Celiac is an auto-immune disorder in which the immune system attacks the gluten and in doing so, damages the villi.
     
  12. disfan07

    disfan07 DIS Veteran

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    Peanuts are actually not nuts...they are legumes...so a cross reaction between peanuts and soy is actually more likely than between peanuts and tree nuts. When I was just allergic to peanuts, my allergists never recommended me to avoid tree nuts...she said its a common misconception that if you are allergic to peanuts you have to avoid tree nuts and vise versa....I ate tree nuts for about 18 years after my peanut allergy diagnosis before developing a tree nut allergy. There is about a 25% rate in children of concurrent allergies between the two but there are no cross-reactant proteins ( or even similar proteins)between tree nuts and peanuts. They are just both considered to be "highly reactive" allergens.

    I was told that Cross reactions between wheat and oats is fairly common in both allergies and celiac because they share a common protein (not gluten....a different protein...forgot which one it is). So for wheat allergies, it's not necessarily the gluten that causes the allergy, it is the other protein and with celiac patients, they can also be sensitive to the ther protein in both oats and wheat (at least thats what both my GI and allergist have told me)
     

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