Discussion in 'disABILITIES!' started by maroo, Mar 23, 2013.
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Best news I ever heard. Want more info check out our PTR
We leave this Sunday for my daughters maw trip. We will be flying. I have never flown before, let alone with 4 kids. Maw allowed and paid for 2 of my foster children to go along with us. Any advice on flying with kids would be much appreciated. Madison is 3 (wish child). She is fed by tube and can not take anything by mouth. She wont take a pacifier. I have heard that gum or eating will help the kids ears. How do I help her?
How exciting congrats
Momma 31 we leave Tuesday so we will be there the same time!
If your kids yawn really big it helps with their ears too. Hope helps?
Nicole, thanks for the suggestion! Actually a ver special person from this board mailed all 3 of my kids a package with patches I sewed on and stickers and a card from MM. Totally surprised my kids and I was so touched by their generosity! .
Soooo excited to go and have started packing. Jack is feeling better, had labs run Tuesday and just waiting for results to come back. My daughter is still tired, but on antibiotics for strep. Thank you to all praying for good health for us, I really appreciate it!
We live in MN and got hit by a snow storm today. Everyone is mad, except me. Lol! Just makes me excited for 80s on Tuesday.
Hi to everyone else!
Thanks, I don't think four adr's is enough really, but I don't wanna over plan.
Snow today, swimming pools Tuesday!
We have 4 ADRs - 2 character breakfasts that our MAW covers, Via Napoli (Totally for my benefit!) and Rainforest Cafe (my older daughter really wants to eat there). I have stared at the reservation screen lots, but a) I don't want to take away too much park time and b) there's always food at GKTW. I also don't know what Ja's stamina will be like, so I hesitated at dinner reservations.
It will work out to be amazing!
SO soon! Can't wait to hear all about it!
Don't get me started on weather. Another 4 - 6 inches expected this weekend. This is the stupidest spring ever!
Sorry I don't have time to read back. We leave in the morning. We'll be keeping all of you in our prayers, and I'm looking forward to reading about all of the trips that are coming up soon.
Hi everyone! My son was recently approved for a wish! He has a very rare chromosome disorder (first one to be diagnosed with his issue called 14q13.2 duplication) We are still waiting for our team to come to the house and ask my son for his wish, but we already know he wants to go to Disney World! Now what happens? They know all about his history and that he has two younger sisters (2 year old identical twins) who are also special needs and said that depending on what our team says because his sisters are disabled that we may be able to have "extra" people approved for our wish because we are a family of 6 with four kids 6 and under 3 being special needs and would obviously need extra help on our trip. We are in Tennessee so we know we are going to be flying and I've read up about MAW and Disney trips but I've noticed that a lot of the times it's only a few days at Disney and then other days at Seaworld or Universal.. Is there a way we can just do Disney? And after our team comes to ask my son his wish, what happens next?! He is a huge fan of Mickey Mouse, Toy Story and Cars so we would def want the wish to also incorporate one of the characters, but I'm not sure what happens after we meet with our team. Any answers and advise would be great! Thank you!
Hey all as a former wish family I wanted to stop in and share an exciting life change on my part. I have taken up running and in doing so will be supporting Give Kids The World in next January's Disney Half Marathon. I have committed to raising over $3000 for GKTW, One of the most amazing places on earth. So with that said and knowing I can't do it alone I wanted to share the info here and invite people to check it out.
We had an amazing trip, and were sad for it to end! Make a Wish and Disney Cruise Line are wonderful. We have memories to last a lifetime! I am slowly adding pictures to Carter's PTR!
If you are going to stay at Give Kids The World, thier package has 3-day park hopper for Disney World, 2- day tickets for Universal Studios, & 1-day for Sea World.
You can go to all of Disney's Parks if you want, Hollywood Studios is the one for Cars, they have a Meet & Greet with Mater & McQeen, ( they just make car noises, but you can have your picture taken with them & the kids love it) & it is also a good one for Toy Story, you can meet Buzz & Woody, see the Green Army Men & ride the Buzz Lightyear Ride. If you want to met Jessie, you will have to meet her & Woody at Magic Kingdom in Frontierland.
At the village, they have Meet & Greet with Mickey & Minnie, also a few other characters on certain days, twice a week. Universal also sends a Character twice a week, but you will not know who it is until the Meet & Greet time.
Our family used the Disney tickets, Sea World & Gatorland tickets. We did not go to Universal Studios.
You will have to talk to your MAW Volunteer about just going to Disney World, I do not know if you can get additional tickets added or if you would have to pay out of pocket for them. Our DD's wish was to go to Disney World also, & we were lucky & got to stay at Give Kids The World Village, we had a wonderful time.
Just enjoy everything, we spent alot of time at the village, lots of Angels there.
Hi everyone! I am bursting with excitement!! Limo picks us up at 5:30 a.m Tuesday morning! My kids are so excited, awesome to see. Thank you everyone for your prayers for health, jack has bounced back and my daughter is feeling better with strep. We all got checked yesterday, quick one was negative but they are culturing it too. Please continue to pray we are healthy on our trip. Thank you! I am having a hard time not over packing! Lol! They told us to bring an empty suitcase too.....just hard as I never know what we might need.
Thank you everyone for your excitement, tips and help planning. I can't believe we leave so soon!, HOORAY!
Wow! Just amazing! I'm a former wish teen( Had my trip in Aug 2011). It was magical and unforgettable. My wish was granted at just the right moment! A year later( fall 2012) , I fell ill and had a pacemaker implanted. I had unusual complications and ended up having 4 pacemaker surgeries between Nov. and Dec. 2012. I was thinking soo much about Disney while I was in hospital. I felt calm and at peace. One of the OR nurses told my mom that that this wasn't sad because I was in the OR twice in a week, but because every time I came, I was smiling and laughing about how I was looking forward ot my next Disney trip and what rides I would ride. I just didn't understand why they expected me to be sad.
After the final PM surgery, I felt like i needed to do something else. I took up running( with my Doc's permission of course). I'm running 5k's now towards local hospitals. I feel sooo happy when I'm running and free. It's helped me concentrate on the most important things in life and has actually helped stay focused in school! Yes, I still have to deal with medical occurrences and emergencies, but I know everything will be fine.
I'm going to Disneyland next Month and will be celebrating my 18th birthday at the parks and my high school graduation! I am very excited!
Anyway, I really want to run in a Disney half-marathon next year- so thank you for giving this info out!
Holy cow! I had NO idea there was a new thread! I was wonderig why no one was posting on the old one...
We leave for disney in 5 days!!!! SOOO EXCITED!!!
We got our flight times. We will be landing in Orlando at 4:45 on May 31st. SOOOOOO, excited!!!!! We will be leaving in 46 days, but who's counting? Prescott has been feeling good lately. I feel like I need to lock him in a bubble for the next month and a half because I don't want him to get sick before we go. We have a busy next month, so I know the time will fly by. I'm packing slowly and looking on pinterest for great ideas that we HAVE to have before we leave. My kids and I have searched youtube and watched Disney videos and GKTW videos lots. Prescott is so cute! We talk about riding the airplane. (Now you have to understand that he can't talk, but does have a few words). When we ask who he is going to ride the airplane with, he responds with his one syllable "name" for all of his family (there are 6 of us). It melts my heart. Yep! Getting excited. I'm excited to hear of all of the wish trippers as they prepare to go and then their stories when they return. So, be sure to come back and tell us all your memories! Have fun everyone!
Thank you everyone for the warm welcomes I haven't been on in a about a week because we haven't had interent service very much. We live in Sioux Falls, SD where we received a massive ice storm that has totally devasted the area...so so so many trees that broke and at one point over 35,000 without power from all the down lines! But we live in a great community where everyone comes together and helps clean up!
Happy and Safe travels to all the families that are on their trip or are leaving soon!!! HOW EXCITING!!!!!!!!
Prayers for good health. You could pack a duffle bag, the kids get all kinds of things, something everyday!!
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