Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

Discussion in 'disABILITIES!' started by maroo, Sep 27, 2011.

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  1. kalimom6

    kalimom6 Mouseketeer

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    Don't feel guilty and enjoy. My daughter has a genetic syndrome that is way less intense than a ton of others that I have seen recieve a wish. But the things she has went through and the things to come...sigh. We were told she qualified when she was 3, she is now 5.5. One thing with our wish project is that they changed who qualifies for a wish through them. They now include kids with complex medical issues, kids that have spent many, many days in hospitals, not just life threatening (although Elsa's can very quickly be if not monitored). Just looking at her, you wouldn't know that she has anything "special:cool1:" about her. But when I tell people that have known her that she is getting a wish granted, they get tears in their eyes, knowing that she deserves it. But as it gets closer, I am starting to have second thoughts, like do we really deserve this?? Agh!
     
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  3. vegomatic

    vegomatic Earning My Ears

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    Thank you! The entire family is getting super excited! Like I said, I've decided to just be thankful and enjoy everything as much as possible.
     
  4. DelanaAndKyra

    DelanaAndKyra Mouseketeer

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    Kyras doctor called me this morning to go over all of the meds and travel safety. She was faxing forward the forms to Make-A-Wish this morning! Next step is receiving the final package from Make-A-Wish then boarding the plane! A week from today and all of the family will be here to get ready to go then next day were leaving bright and early! Im so excited!
     
  5. vegomatic

    vegomatic Earning My Ears

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    I think I know exactly how you feel. Liam has been in remission for almost a year now. His hair has grown back, he's healthy, strong and growing. He looks like a normal kid because he is a normal kid. Getting special treatment is going to feel weird, but we have decided to just accept it and be thankful.
     
  6. KaylaM

    KaylaM Mouseketeer

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    Congrats on your son's recovery! That is awesome, and you guys all deserve this trip 100%.

    I don't think we have had the experience others have had with "gifts" from Make-A-Wish, but this trip is going to be amazing. We leave this Sunday for Disney World, and are so excited.

    I look forward to hearing about your land and sea trip. You guys are going to have so much fun!! I wanted to do something like that, but our MAW chapter denied it. Then I presented the wish of a Disney Cruise, and that was denied, so now its Disney World staying at Give Kids the World - we have no complaints and are so grateful we do get to go.

    :cool1:
     
  7. angel's momma

    angel's momma DIS Veteran

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    :welcome: vegomatic :) So sorry Liam has been through so much. So glad that his treatment went much quicker than expected, and that he is doing so well. Loved his first wish - very adventurous. That's part of the purpose of the wish programs - to give them hope, and to help them get through everything they have to deal with. So wonderful that Children's Wish offers so many exciting programs for the wish kids. Looking forward to hearing all about the land/sea package - where are you staying? I hope you have a fantastic trip!




    Yay for having the wish granted! :cheer2: And for being able to change the dates :)

    So true. I know that we had no clue, until DD's diagnosis. Even people that seem to have a pretty good understanding of the illness/condition, usually have no idea just how much the family's entire way of living is permanently changed once a child is diagnosed.

    Aw, I feel for him. Hope it went well.

    :hug:

    Sorry your chapter wouldn't allow a cruise. :hug: I know it varies chapter to chapter, but it seems like a cruise is a pretty standard one. The papers our chapter sent with little pictures on them to help a child pick their wish shows a cruise ship, so we are hopeful that Angel will be able to have her first wish.
     
  8. Cassondra

    Cassondra Mouseketeer

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    Hi Allan. Yay for Liam! I'm so glad he is cancer free and no better way to celebrate that than with a wish trip. As a few others have already posted please don't feel guilty at all. Liam has been through more than most people will in their entire life. This is a time to celebrate! I was a little unsure when we were contacted by Make A Wish just because I too thought well my child is going to be ok now but it is really about the journey and being able to put a smile on their face. And I too know all too well about the 24hour hospital shifts...you and your wife deserve a break too. If you have time I would suggest reading some of the pre trip reports that the other wish families have created. Every child has their own story each of which is being celebrated by a wish organization. We will be doing our wish trip in Jan on the Disney Dream cruise. I hope you will share all about your trip Liam will have a blast!
     
  9. DelanaAndKyra

    DelanaAndKyra Mouseketeer

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    we leave 1 week from today! Any pointers on how to keep calm until next week?! I am so excited im thinking about it all day and dreaming about it all night lol Doing a bag check today to make a list for last minute items needed
     
  10. vegomatic

    vegomatic Earning My Ears

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    Thank you! Sorry you had so much trouble getting the wish you wanted, but I'm sure it will be great! We've never been before and this is our first "big ticket" family vacation. Hope you have a great time!
     
  11. vegomatic

    vegomatic Earning My Ears

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    Thank you! We were prepared for a much rougher road, but he was pretty strong. His oncologist said that it was the strangest case of Burkitt's he'd seen. Normally, it's so agressive that the tumours can double in size every 18 hours. His popped up and stayed the same. His doctor said it looked like his body was fighting it off and keeping it under control somehow.

    We are staying at Animal Kingdom Lodge for the first four nights, then Disney Dream for the cruise.

    Thanks again!
     
  12. vegomatic

    vegomatic Earning My Ears

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    Thanks!

    I am now pretty much past being guilty. My wife on the other hand... :) I have progressed to the "overwhelmed" stage. I've read through a lot of the pre (and post) trip reports. Nice to read stories by people who have gone through things like we did and read about the great times their kids had.

    Have fun on your cruise!
     
  13. KaylaM

    KaylaM Mouseketeer

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    You just do.. :) I made list making sure I had everything on them.. I started to get a few things ready here and there throughout the week. Start thinking of autograph books, and maybe make one, or shop for one for your kids to use. Start laying some clothes out.. I hear ya.. I just went through that and the past two-three weeks, I have been so excited. I can't wait, but then again I can because I don't want it to end. :) This past week, I had to deal alot with medical issues and news that was difficult to handle, so that kept me busy, but it made me look forward to this trip even more! You just want time to go by so fast like I do today because we leave bright and early in the morning. Go over schedules, see what all there is to do there. Your going at a good time when a lot of things are just starting (Mickeys Jingle Jungle Parade) will start the week you are there. I don't know how many times I searched the internet making sure I knew what all was happening and what we would like to do. :) That helps time go by. Have you thought about shirts? Matching shirts? I just found some for my daughter and I to wear tomorrow that has mickey on them. I also decided to try to make a shirt for her the other day to wear one day this week. You can try that. These things can be done inexpensively. Think about what your going to do with photos - scrapbook (you can start designing pages). Go here to get ideas on how to get free scrapbooking ideas/supplies: http://goflorida.about.com/od/whatyouneedtoknow/a/wdw_free_scrapbooking_supplies.htm. It list things to use that I never would of even thought of. Just do whatever you can to keep going.. :):) Good luck and have a GREAT trip!
    :yay:
     
  14. KaylaM

    KaylaM Mouseketeer

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    Thank you

    I believe in that everything happens for a reason and this is the trip that was meant to be. I am so excited and can't wait and think this was a great choice! Glad it was suggested!

    HAVE FUN!!!
     
  15. angel's momma

    angel's momma DIS Veteran

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    I don't think it's possible ;)

    Always happy to read the stories where things go "well", all things considered. :hug:

    AKL is spectacular. Never stayed there, but always went over to visit. The food court there used to have fried shrimp, and we did Boma a few times when we had free dining. Angel loves giraffes, so if our chapter won't allow the cruise, AKL is next on her list.
     
  16. Emmaswishtrip

    Emmaswishtrip Earning My Ears

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    Does anyone know how we get our PhotoPass CD? We just got home yesterday and I can't figure out if one will just come in the mail or what I have to do? Please help! Also for any families going soon, have an AMAZING time!! Spend time at GKTW!!
     
  17. vegomatic

    vegomatic Earning My Ears

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    Just for fun, here is a picture of Liam.

    [​IMG]
     
  18. KaylaM

    KaylaM Mouseketeer

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    Hi Liam.. You are a handsome young boy.. Have a wonderful wish trip!!
     
  19. KaylaM

    KaylaM Mouseketeer

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    I am packing as we leave really early tomorrow morning and I was told I am limited to one carry on and one checked per person. So, we have that, but I also have her lunch box with her feedings in it and her small bag with just her medications and her small nebulizer bag. I am hoping I can get these onboard as well. We have say some room (say for two adult sweatshirts) in our checked bags and returning home, one of the bags will have say an additional amount of room equaling another adults sweatshirt, so on the way home we will have enough room for an adult xl thick sweatshirts. I am using those as examples because the note I have from GKTW states to bring an extra bag for the goodies you receive to bring home. Do you think the space I will have coming home will be enough, or do i need to pack a small bag to bring stuff back?

    I sure hope that makes sense.
     
  20. KaylaM

    KaylaM Mouseketeer

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    Sure hope you guys had a wonderful time!!!

    I read somewhere that you go online and order it. Hopefully someone can confirm this so I will know upon returning home.
     
  21. DelanaAndKyra

    DelanaAndKyra Mouseketeer

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    you could either pack a foldable duffle bag in the bottom of the suit case or there are also gktw duffle bags for sale in there gift shop portion of the website so im assuming they have them there. You should call the airline and double check the best way for the meds as every airline is different
     
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