Awww I"m sorry I just saw your orders now!!! Dinner that evening wasn't great and I think my time was better spent here on the boards!!!
I hope you hear something this week!
Thehas started here
Hayden told me there was someone at the door so I opened it and found a balloon and stuff in the door from Avy's Wish Granters. How sweet is that
She really wanted the zebra but I am worried she will hate them in a few yrs so purple it is. The only bummer part is they are still refusing to pay for the FM system (extra add-ons that snap onto the aid so the teacher can talk into a micro phone and it goes right into her ears) because that is $2,550 extra. We are still going to fight to get that added so if anyone wants to send good wishes we will take them 
for her vision issues - is it expected that her vision will get gradually worse? Or could it just be that her prescription needs adjusting? Happy she got some pixie dust delivered! 
...Glad they are FINALLY giving her what she deserves and you pay for! Will she need the FM system at school? Just a thought, David's school had to provide his while he was in class, because we wrote it into his IEP...she wouldn't have it at home; however, maybe if she ever needed to borrow it...(we did that once. We had an amazing EC teacher...to bad she left, that is a HUGE reason why he is now homeschooled, another story for another time). I do realize she is only four, so that might not even be a point to consider...I am so sorry to hear of Avy's vision. 
Dust coming your way!Yay for the hearing aids
About the FM system, have you discussed it with your school system? I know they are all different, but in the one I work for, if a student has a hearing impairment (and I think wearing 2 hearing aids would qualify her for that), they have an FM system that the teacher can wear. Also, many of our new bldgs have them built in so teachers wear them whether they have a hearing impaired student or not. I'm guessing you've probably done it all, but I just had to offer that bit of advice
jinx...you owe me a coke!
Your family is so blessed as are any other children you foster! Can't wait to continue following Avy's journey to GKTW!! We were just there and my kids loved it as well!! Our little guy says he wants his wish to be for GKTW too!!(he doesn't qualify for a wishI am so sorry for Avy and for you. David was losing his eyesight due to his pseudotumor cerebrii..they tried to tell me he was putting on, he just wanted glasses.Now now girls no fighting on Avy's thread
I will give you both Cokes if we ever get Avy to GKTW
But Mooooommmmmm, we AREN'T fighting, just teasing...)
Ella does have the FM system at preschool but we are not allowed to bring it home. She needs it at the YMCA for Gym and Swim. Poor kid just stands there and looks at all the other kids trying to figure out what they want her to do. She can lip read pretty well for a 4 yr old as long as she has some idea what you are going to say. In the Gym she can't hear at all and has no clue what they are going to play each day so she is so lost
Plus she has sunday school and other things we really need the FM for outside of school.
God Bless Ella, she DESERVES to hear in ALL situations, it just makes me so upset for her. I have to fight for EVERYTHING for my children as well. It isn't that you mind working hard to get them what they need, it is EXHAUSTING when everything is this way, I DO understand! Money doesn't make you happy...unless that money could be used to improve the quality of your child's life...Praying SOMETHING happens to ensure Ella can just be a child and hear!
For Avy we really don't know how long she will have her vision. There is nothing they can do for her. It is like she is looking through a paper towel tube that is closing down tighter and tighter. I feel so helpless
They had to eat crow when his Neurologist ordered an LP, which showed his opening pressures triple what they should have been. He is in a holding/stable pattern with his eyes at the moment. I do know the fear (his and mine) when he was unable to see anything but shapes. for Avy and prayers that SOMETHING will help. I believe in miracles! 
Just joining in. I have missed so many threads and can't figure out why!!
Hope you guys get there soon and she can enjoy the sights some!
I am so sorry for Avy and for you. David was losing his eyesight due to his pseudotumor cerebrii..they tried to tell me he was putting on, he just wanted glasses.
I will give YOU one!Note to self I owe Judy one diet coke
I will give YOU one!
I wish we could share it at Disney World!
The
Hayden told me there was someone at the door so I opened it and found a balloon and stuff in the door from Avy's Wish Granters. How sweet is that
So so exciting!! 
Thanks for the kind words Judy
Finally some great news for Ella
We have been fighting with insurance to get her new hearing aids and after 15 months they finally agreed to pay for them. She is getting purple see thru ones
No word about Avy's wish
Now now girls no fighting on Avy's thread
I will give you both Cokes if we ever get Avy to GKTW
For Avy we really don't know how long she will have her vision. There is nothing they can do for her. It is like she is looking through a paper towel tube that is closing down tighter and tighter. I feel so helpless
Lots of Mountain Dew! Some of my children love that drink...I used to work with a lady who drank TWO LITERS every single day!
Hope you're having a good week 
