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Going back to the other "World" GKTW 3 Big Gives 5/14

Discussion in 'Pre-Trip Reports and Plans' started by tinytreasures, Dec 12, 2010.

  1. tinytreasures

    tinytreasures DIS Veteran

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    Our daughter Avy is being granted her wish!!!! She wants to ride the tea cups with the Princesses :cheer2:

    Our Family has been BLESSED with another Make a Wish trip.
    A little about our family
    I am Kathleen. I'm the lucky mom of 50 children so far that have walked through our doors as foster children. I spend my days hopping from dr appointment, to therapist appointment, to dr appointment. I took up Knitting so I had something to do at the clinics :lmao:
    DH is Loren. He is the greatest man in the world. He doesn't flinch a eye when he walks in the door and there are 5 more kids here then, when he left for work :laughing: He works full time and can change a cloth diaper faster then I can.
    Jason will be 13 in a 10 day he was our first wish child. His wish was to go to Disney World. He has Autism (new dx since his wish trip) Primary immune deficiency, a heart condition, lung condition, and Holt Oram syndrome.
    Avy "new wish child" She will be 11 in Jan.
    Christian is 9. He has FAS and ADHD
    Hayden is 6. He has arthritis.
    Ella is 4. She is Hearing impaired.
    C (Baby Bear) is 5 months and the sweetest foster baby in the whole world.

    Avy loves purple ;)
    Avy was born 18 weeks early at 22 weeks. She is our miracle baby. I will not go into her birth story because I was not there during that time in her life. I will never forget the day she was born and I prayed everyday for the Preemie in the hospital. Never thinking she would one day become my daughter. pixiedust:
    Avy came to us Halloween Weekend. She was a sad little thing and we had to rush her to childrens hospital a hour away, because she didn't have any feeding tube supplies and our local dr said there was no way she was treating her. Funny how fast Childrens ER took us back. She weighted in at 9lbs 9oz fully clothed at nine months old. I had never done a feeding tube so the Er Dr was going to put her in the hospital she looked just awful, her feeding tube was all infected and stunk so bad. The head dr came in and took one look at Jason who was 22 months old and had a IV bag in a little back pack, getting IV Abx and said teach her to feed her and send her home, if she can handle a PICC line on a toddler she can do a feeding tube :thumbsup2
    We are so lucky we went up there that day they had all her discharge paperwork so we where able to find all the things wrong with her and a list of her doctors. We got home with her about midnight and Jason had therapy the next morning at 8 am. The Therapist took one look at her and started therapy on her instead.
    Avy has CP and wears a AFO on one leg and a UBC on the other foot.
    She is blind in her right eye and has to wears a fake eye on that side. We found out this week that she is going blind in her good eye. It is already legally blind but it is getting worse and she may loss all vision. The dr didn't tell us how long she has but he did say he is so glad he signed her MAW papers for her to go.
    She was on a feeding tube till she was 5. They did a huge surgery on her, by filling the back of her throat with cement (the kind they put in peoples backs) and it worked so she was able to have liquids for her 6th birthday. She loved her ice cream, she had never had before.
    She is very speech delayed. There is a misfire between her brain finding the word and getting it to her mouth. If we get I want Cereal or I have to go to the bathroom out of her mouth that is a good speech day. She has started writing notes to her teacher to ask for things which is a huge step.
    She had the worse grade brain bleed at birth you can have, they said her brain acts like she had a major stroke now.
    Avy has come so far we were told "she would never walk/talk amount to anything and we shouldn't adopt because she is awful cute now but she won't be so cute when she is 15 and you are still changing her diapers in her wheelchair" Yes those are the exact words the dr told me :mad:
    We are so glad we didn't listen to that dr and that she didn't either. This little girl is so special she has a reason for being here, even if it is just to let people know what a "real miracle" looks like :flower3:
     
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  3. maroo

    maroo DIS Veteran

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    YEAH!!! You started!! :)

    You are an amazing woman! Thank you for taking in these kids that would not have a home without you. :hug::hug::hug::hug::hug:

    And that comment above makes me want to be sick. Even at 15 - she would still be your child and it would not matter if you were still changing her diapers in a wheelchair. Trust me. :headache::headache::headache:
     
  4. maroo

    maroo DIS Veteran

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    Dates....

    Star Wars Weekends would definitely be warm enough to swim.
    May 20th is the first SWW - which will probably be busy with the "real" fanatics out there...but maybe if you picked May 21st to fly out and you could do May 22 at DHS and it would not be so crazy crowded??

    That second weekend is also Memorial Day weekend...so I would think that weekend would be busy too...

    And the later weekends fall into hotter summer times...

    So I am guessing...if you want to hit SWW, then May 20th time frame would be best...

    Make sure you don't leave on a Friday if you want to make sure and catch the GKTW Christmas Party.

    Mid May is definitely a slower time at Disney to go...sounds awesome!
     
  5. Mom2mitokids

    Mom2mitokids DIS Veteran

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    Hi there and welcome back. I agree with Mary...you are one special mommy. This is our second MAW trip too. You don't come along seeing other family that is going on a second wish trip much...which is great. I hope you get dates soon. Can't wait to hear more about your special family.
     
  6. billwendy

    billwendy DIS Veteran

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    Hi!!! Your kids sound AWESOME!!! AS are you and your DH!!!

    Last year we were on a MAW trip with my nephew in April and honestly it was HOT already. Im a little worried that if she is sensitive, she will get really worn out. Daniel (my nephew) was a month post his last chemo and it wiped him out so badly (even though we use a wheelchair) that he became exhausted and felt very ill by Thursday, spending the rest of his trip in the cottage - which was such a bummer that he missed so much of what he was looking forward to. :confused3

    Does your daughter use a wheelchair? That might help protect her a bit from the people around her????

    Cant wait to see your family pictures!!

    Wendy:goodvibes
     
  7. tinytreasures

    tinytreasures DIS Veteran

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    She does use a wheelchair
    Dates are going to be hard because Easter is so late this yr. I am worried about the heat. When it is hot here we dump a lot of water on her. On Jason's trip the pool was closed at GKTW so I really want the kids to be able to play in the pool.
    here is her wish
    [​IMG]
    Avy at birth, she was 1lb 3oz, 6 and 3/4 inches long
    [​IMG]
    here is a family photo
    I am not allowed to show my foster childrens faces ;)
    [​IMG]
     
  8. kailatilear

    kailatilear Mouseketeer

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    You and your husband are angels sent from above. I am so happy your baby is getting her wish, she trully deserves it, as do you and your family.
     
  9. brookerene

    brookerene DIS Veteran

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    Wow I admire you and your husband's dedication....I wish more people were able to open their homes the way you have....I'm glad you get to go back to DW! I look forward to reading more.... God Bless!
     
  10. my2girlsrock

    my2girlsrock Mouseketeer

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    So happy that your little one is getting her wish!!!! :)
     
  11. xanphylus

    xanphylus DIS Veteran

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    Can't wait to read another great PTR by you!! You are one of the "bestest" mommies out there- You do what I wish we could do- adopt kids that need help. I hope to do this one day. Still gotta convince that DH of mine though!
     
  12. hollie1974

    hollie1974 Mouseketeer

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    Yay for wishes!

    And Yay for you and your husband giving a loving home to kids who need and want them so bad. :hug:
     
  13. tinytreasures

    tinytreasures DIS Veteran

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    No word for the wish granters. I hope they can come during the school break.

    We are planning to rent points and stay 2 extra days at AKL and will need some help figuring out how that works?
    I hope we can get the 2 bedroom we want :rolleyes1
     
  14. jj0plin

    jj0plin Mouseketeer

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    I can't wait to hear more :) Hope you hear back from MAW soon!
     
  15. HeatherSP

    HeatherSP Mouseketeer

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    Hi
    It is always great to meet other foster/adopt mamas. You are amazing! Your children are adorable and so lucky to have you. I am floored that a doctor would tell you not to adopt. I can't wait to find out more about your family.
     
  16. arielrebornxoxo

    arielrebornxoxo Earning My Ears

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    Awwww it sounds like you have a wonderful family :cloud9:
     
  17. tinytreasures

    tinytreasures DIS Veteran

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    My poor kids were so spoiled on Jason's wish trip. We had to stand in line for 2 1/2 hours to get pictures with Santa, I thought they were going to die :lmao:
    Jason kept whining his leg was asleep. Christian whined he needed to sit but refused to sit on the ground. Avy, Hayden and Ella did great and baby bear fell asleep about 5 mins before we got up to the big guy. Poor baby woke up in Santa's arms good thing he didn't :scared1:
     
  18. tinytreasures

    tinytreasures DIS Veteran

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    finally a update!!!!!!!
    The phone just rang from Mayo clinic which scared me to death because my sister and brother just left here and my first thought was a car accident :rolleyes1

    It was the wish granters she said they got our paperwork the day before Christmas and figured they would call today :cool1:
    They are (she said they, sounded like there are 3 people) calling tomorrow to go over the pre-interview stuff.
    I hope they can come before the kids go back to school.
    Avy is going to be so excited!!!!
    When I told the granter her wish was the ride the tea cups and go back to GKTW. The Granter said that sounds great to her. That they had seen what Avy had written already and is was so cute. :lovestruc
     
  19. hollie1974

    hollie1974 Mouseketeer

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    I think when you have a child that has health issues your mind always jumps to worse case possible in everything! I know mine does. :hug:

    Yay for hearing from the wish granters! Hope they come soon and you get the dates you want! :dance3:
     
  20. Kronk's girl

    Kronk's girl Mouseketeer

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    Your story is so amazing! Avy is so lucky to have you! I can't wait to hear more details of the trip as the planning begins :wizard:
     
  21. tinytreasures

    tinytreasures DIS Veteran

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    I know your heart stops when you see the clinic # come up.

    Thanks for stopping by
    We are so lucky we are her parents she is a special little girl :love:
     

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