Well it seems like I can never get on my computer lately unless its to pay bills . Sorry its been so long since my last post my phone died giving me one less outlet to chat. Anyway new phone and completely insane schedule. Both my son and youngest daughter had birthdays in Oct. Then came the storm which we were so blessed to get 10 inches of rain but no loss of power YEA!. Did set me back two days to prep for a 10day outage that was forecast. I feel so bad for all those families near where I grew up. Basically I am all over the place. Had to go off diet due to kidney pain but am back on it and lost another 3 lbs. House is cleaner and more organized than ever and ready for my friend and her 4 yr old to stay while we go with dd8 to Disney: next week. However, I have stable days where whole chunks of day just feel like the bottom falls out in such a way it scares me. feels like I'm falling off a fibro cliff . I find a way to rest and it stops but I cant help feeling its an omen of a really bad episode like the one I had 4 yrs ago where I even had heart problems they cant explain. Mostly I ignore the symptoms til I cant . Well in less than two weeks I will be in wdw to watch dd dance in the parade. Would you believe they didn't have the steps ready for the little ones 8/9 til last week!!!! dd learning her steps well but omg this is quite the way to start her dance team experience at wdw and soooo little time to prepare. we are practicing every am for half hour or so and then again in afternoon. Cant say she isn't ambitious since this was what she asked to do Monday morning after her first real practice of her second routine. First routine is for the parade and they all do the same thing then they break off by age and do two specialized routines. I think the actual routine is supposed to be secret so I will keep my mouth shut for now please send out so pixie dust for my dh. His Lyme is not improving and they will not give him more antibiotics even though they said if he was symptomatic they would. He has symptoms(pain/fatigue/irritable) and 3x normal titer yet they halted treatment (?????). Now we are like a really old married couple fighting over nap times and how much pain we are in LOL. I really worry if this trip will be too much for him making my fibro worse to boot. Tomorrow he sees another Dr. hopefully he can get on a real course of antibiotics long enough to kick this. I don't think it would take long ( maybe 6 weeks) but it has to be consistent not 10 days on 4 days off 14 days on 30 days off 14 days on....duh they made him antibiotic resistant by giving the bug a chance to grow in between doses. They say he cant have more because he SHOULD feel better but if he had a ear infection and the blood work said he had an infection and he still had symptoms they might switch meds but not stop them! But with Lyme everything says infection and they say nope not possible (HUH????) . Hope all of you are doing a bit better. It seems like this has been a rough year for many of us here. I feel blessed to have had a productive year I can be thankful for. I just wish I could chat more with you all and talk a. bit more to family and friends on the phone. I seem to have gone months without talking to many people at all. Just no energy. It all went to my kids this year which isn't bad just a bit isolating. Wish us luck with DR . hopefully I will post around Thanksgiving. Sending pain free vibes and pixie dust to all!