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WWYD - Father with Azlheimers & Mother ill - Update 11/26

Was I wrong to expect a text from my family since my mom has been sick and I was worried?

  • No - I wouldn't be

    Votes: 7 14.9%
  • Yes of course

    Votes: 10 21.3%
  • Other - Explain in post

    Votes: 30 63.8%

  • Total voters
    47
  • Poll closed .
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.

The more information you add, the more it becomes obvious that your parents should not be living alone at home without full time assistance. PLEASE talk to your siblings about moving your parents into some sort of assisted care facility or having a full time live in aid. Sure, your parents might not like it, but it is for their safety.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.

Conveniently your mother's competence isn't compromised when she agrees with your actions.

Would hospice not have weaned him off the meds per doctor's instructions instead of cold turkey?
 
OP you never gave hospice the opportunity to evaluate your father's condition while taking this medication. Maybe they would have changed the dosage. My grandmother was on haldol, it was too much for her - she was sleeping all day and not eating much. Rather then cut it out altogether there was a call made to the appropriate person and the decision to alter the dose was made. How you don't see that as the correct path to follow I dont for the life of me understand.

How long has it been since your mother fell, are you beating a dead horse in pushing unnecessary medical testing? Maybe I am incorrect but didn't you say that your mother would need to be sedated for an MRI? If her doctor felt it were necessary I am sure at some point at a follow up visit that it would have come up.

To answer your question about whether or not you need to be kept abreast of the situation with your parents I have to say that just by reading what you have been posting I would leave you out of it if you were my sister. It seems like you are all having a rough time of it and I wouldn't want you adding to my already heightened stress level. If there were an immediate need to do so such as a grave injury or illness I would certainly clue you in. Based on what you have posted on here I can only imagine how conversations with your siblings go.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.
The fact that hospice later stopped all meds or whatever, is completely beside the point.

You stopped his med, on your own, without having the authority to do so, and you were then gloating in it.

It wasn't your place to do that in the manner you did it.

I also am unclear about whether your mother is competent or not, we've heard it here both ways. (Seemingly, when it suits you.)

Look, many, many families go through this type of thing. It may very well be that your mother and father are approaching the point where they cannot safely be alone. I don't know, I'm not there and only have what you say to go by. (And frankly, I don't find you to be a reliable "historian". If I really wanted to get to the heart of the matter, I would want to talk to your brother and sister and your parents as well, to do a full family assessment.)

Again, if you have concerns, and want to help, I think the best thing to do would be to talk to your sister, first. But I'm going to warn you, she's probably got little time and patience for irrelevant stuff from the past. You have to just focus on the concern you have for your parents' well-being. Can you do that? If you can, and stay focused, it might re-open the doors to your involvement with the situation. I think you've gotten a LOT of feedback here about your "tone" ("flit in", etc). You need to change it up. Go in with an attitude of caring and helpfulness, and you'll get farther than if you go in with one of criticism and sarcasm. If I were in your shoes I would most definitely be planning a trip to see them, sooner than later. To help. And I'd plan to put whatever anger I had (misplaced or not) about the situation aside so we could all focus on the task at hand. A situation likes this physically and emotionally exhausts everyone involved, especially when it's been going on for a long time already.
 


The fact that hospice later stopped all meds or whatever, is completely beside the point.

You stopped his med, on your own, without having the authority to do so, and you were then gloating in it.

It wasn't your place to do that in the manner you did it.

I also am unclear about whether your mother is competent or not, we've heard it here both ways. (Seemingly, when it suits you.)

Look, many, many families go through this type of thing. It may very well be that your mother and father are approaching the point where they cannot safely be alone. I don't know, I'm not there and only have what you say to go by. (And frankly, I don't find you to be a reliable "historian". If I really wanted to get to the heart of the matter, I would want to talk to your brother and sister and your parents as well, to do a full family assessment.)

Again, if you have concerns, and want to help, I think the best thing to do would be to talk to your sister, first. But I'm going to warn you, she's probably got little time and patience for irrelevant stuff from the past. You have to just focus on the concern you have for your parents' well-being. Can you do that? If you can, and stay focused, it might re-open the doors to your involvement with the situation. I think you've gotten a LOT of feedback here about your "tone" ("flit in", etc). You need to change it up. Go in with an attitude of caring and helpfulness, and you'll get farther than if you go in with one of criticism and sarcasm. If I were in your shoes I would most definitely be planning a trip to see them, sooner than later. To help. And I'd plan to put whatever anger I had (misplaced or not) about the situation aside so we could all focus on the task at hand. A situation likes this physically and emotionally exhausts everyone involved, especially when it's been going on for a long time already.

You hit on two of the things in particular that would cause me to make professional recommendations in favor of the other siblings if I were working this case. One, the flip flopping on mom's competency as to how competence or compromised competence aligns with OP's actions and opinions and two, the griping about petty historical issues that has no place in today's concerns points to self motivated interests, not parental concern.

Quite frankly if it came down to it in a battle for guardianship I might consider pulling in adult protective services to review medical neglect of a vulnerable adult in regards to the stopping of the medication without consulting healthcare providers. I'm by no means any kind of healthcare provider, however from what's been stated in this thread about the med involved I can easily see where these circumstances could have resulted in one of the tragic cases you hear about in the news where the father snapped and gravely injured the mother, or worse, and they both potentially remained injured and at risk in the home before being personally discovered or an alarm was raised when no one could reach them or had heard from them in some time.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

But it's not all. You don't take someone off a medication without talking about it with a medical professional. That was a reckless thing to do.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

Sure you are, that is what your thread is about. If you think these things need to be addressed, then you need to take care of it. If your sister is out of state, she isn't in any more of a position to handle this than you are.

So, if you feel there is an issue, either step up and take care of it or stop complaining about someone else not doing it.

Relocate there to take care of things or relocate them to where you live and take on the responsibilities.

I hope everything works out for your family. It is a difficult time without a doubt.
 
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I couldn't quite read the whole thing.

I was first disturbed by you taking your father off his meds. One of the things that often happens to Alzheimer's patients is their personalities change. He could very well have become beligerent and violent. My sweet calm MIL did. This is something that should have been discussed with a doctor.

As the sibling that lives far away and only comes to help occasionally, it must be very hard on you. What your siblings are seeing is a day to day change in your father and mother and it's very subtle. Coming in every few months, it must seem very dramatic to you. That's just how it is. Alzehiemers is a progressive disease that gets worse over time, no matter what is tried. And the main caregiver....your mom, is getting worn out. Her health has declined because his has.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.

OP- I am going to say this with as much kindness as I can muster.
You are not there.
You have not been consistent in terms of your mothers competency. She is. She is not. She is.
You do not see any issues with making changes to medications that have been prescribed.
YOU ARE NOT THERE>

So...considering that you feel that your parents are neglected, perhaps you need to bite the bullet and call protective services yourself. IF I was as sure as you seem t be that your parents health is at risk, and if I could not manage to get myself there to see what on Earth was going on, and I felt my siblings were not acting with their interests, this is what I would do. Let me warn you....it is not a pretty process. AN attorney may be appointed for your parents and I believe your parent's estate pays, although I am not sure. You may end up in probate court to have the Court appoint a guardian for you parents. We had to do this for my DH mother. It is a terrible position. DH was granted physical custody of his mother, but because his sister had been granted POA by Mom, that remained in effect even though the lawyer the Court appointed opposed that. DH made the decisions for his mother in regards to her health, Sis paid the bills.

Ask yourself, what is it that you want to achieve? If you are certain your parents need intervention, and you cannot do so, make the call.
If this is all a lot of blather that is festering between you and your siblings, kindly remove yourself from the picture and let them handle this. The bottom line is that you are in no position to see to any issue related to your parents health and safety or you would never have left when there were concerns. You clearly cannot manage this from afar, especially given your repeated complaints your sister is not there either.

I can assure you that on the DIS there are very few threads in which every poster is in agreement, but you managed to create one. We all cannot be wrong.
 
[snip]
My sister is a kleptomaniac who takes after my great-aunt. She used to steal things from my mother's house when my mom was a young woman taking care of her invalid mother (Parkinson's plus being profound deaf). My brother was spoiled and eventually became the perfect son. Me, I was the one who was pushed and pushed because I was the smart one. I had no trouble in anything.

The problem is that I do realize that my mother's competence might be compromised. And my sister would use this to her every advantage. At least she dies not have the POA. But I wouldn't put it past her to get him to do something for her.

Ugh...OP, really? Sister is a klepto, brother is spoiled (but perceived to be perfect), you are the smart one who had no trouble with anything. I can't help thinking your siblings are aware that this is exactly what you think of them, and they just don't want to deal with you.

However, the most important issue is that your parents don't seem to be getting the day-to-day care they need. That needs to be addressed first and foremost.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.

My father died 2 weeks ago from pancreatic cancer. My family was lucky that my BIL is a Doctor and specialized in the liver and pancreas. He made sure that everyone knew what was going on and when a home hospice team was needed. The only thing I really needed an answer to was when they did some chemotherapy. The chemo was to ameliorate the symptoms not for a cure. The thing is, I didn't have the knowledge of what was going on day to day, and I knew that my BIL was doing what he could. Maybe you should step back a bit and think about your relationship with your siblings, acknowledge what you feel about them and then have a three way call to decide together what you should do to keep your parents safe and well, also make a plan how to keep everyone up to speed. Instead of feeling guilty that you live where you do, accept it and realize that you are going to find out things after the fact. If your parents have a doctor and are being treated by that Doctor, maybe when the doctor is giving the treatment advice you can be part of it by phone. Loads of phones today have a speaker function.
 
The only one who knew that I took my dad off the med without the doctors approval is my mom and she agreed with it. When she saw the difference it made in him she was happy to see the change. Even if I hadn't taken him off, hospice would have as soon as they came in, as they did with all his other meds, so that point is really no longer an issue. He would have been off later rather than sooner that's all.

I am not second guessing what they are doing, I just want them to address issues that I know need to be addressed. The numbness in my mom's leg, get falls and possible blood pooling in her brain.

I am mad because I was there and was watching my mom worry herself to death about me leaving and my brother saw it and didn't say, "Let's call hospice and see if we can get them in before you leave".

I talked to her yesterday and she said she dozed off in her chair. Then someone came in and said "did you know dad was in the back yard? " (fenced and locked) okay they are there and she took a brief nap and they are asking her. Why weren't they watching him? Where were they? All the doors are locked except the backyard door during the day. She doesn't mind him going in the yard. When she goes for a regular nap, she makes sure all doors are locked, including the backyard door. She hasn't been as strict about it while someone is there.

I want to be sure she is getting any issues taken care of. So I have asked to be kept in the loop on those issues. But neither of my sibs think that these are issues that need to be handled. They might but they have never said that they will look into it or since she already had one referral, made sure she had followed up on that.

I live in FL, my sister in NC. The only one in CA is my brother. But even he is not there full time. If my DH and I could have moved out to CA when he retired we would have. We really wanted to, but he could not find a job out there. We even tried to find something in AZ, but nothing.

My DH is beating himself up for not moving out there. We searched for jobs constantly, but could not find anything in his field.

Since I am part of the family, I should be included in what is going on. I am not saying everything that they do every day. But if they are going to be out of the house for more than a day, then to let me know so I won't worry. If this last thing had been longer than a day, would they have let me know? Knowing them, probably not.




The best thing you can do for your parents is fly to your sister's house and find that bowl!!!
 
I'm going to do something I never do and comment before reading the whole thread, because I don't need to. OP, I'm familiar enough with your posting history, going back to your previous username, to tell you what the problem is: It's you. You're like a dog with a bone -- you will not let go. You involve yourself in ways you're not wanted, you obsess over things that don't matter, and you push people to their breaking points. You thrive on drama, you ramble, you're repetitive, you get hung up on insignificant details, you say things that are nonsensical, and you think everyone is against you. You perceive yourself as a perpetual victim, always wronged by others, even when the court-ordered restraining order for stalking is against you. o_O Just reading your posts are exhausting, I can only imagine that your siblings must feel that managing you is a job in and of itself. They've got enough on their plates without you adding to the stress.

I'm not saying these things to be mean, I'm saying them because I really think you need someone to shake you by the shoulders and tell you to get it together. You need to back off. You're not only destroying relationships, you take it to such an extreme that you actually scare people. Your friend feared for her physical safety, and now you're taking it upon yourself to change your father's medications. Perhaps you are a danger.

Not that you're going to take my advice, but here it is: Leave the care and decision-making to your siblings. Thank them often and sincerely for everything they're doing. Speak to your parents when you can and tell them you love them. Save your concerns, complaints, and venting for your counseling sessions. Focus on making yourself well. :hug:
 
She has visited my mom no more than I have in the last two years.

Really? Because that is not what you said initially:

My mom has paid for my sisters flights to see her. She had done the same with me, but I do not feel it is right for her to be paying all the time, so I don't go out as often. My sister takes advantage of this when ever she can, even though her husband makes 6 figures a year not including his military retirement and va disability.
 
My father died 2 weeks ago from pancreatic cancer. My family was lucky that my BIL is a Doctor and specialized in the liver and pancreas. He made sure that everyone knew what was going on and when a home hospice team was needed. The only thing I really needed an answer to was when they did some chemotherapy. The chemo was to ameliorate the symptoms not for a cure. The thing is, I didn't have the knowledge of what was going on day to day, and I knew that my BIL was doing what he could. Maybe you should step back a bit and think about your relationship with your siblings, acknowledge what you feel about them and then have a three way call to decide together what you should do to keep your parents safe and well, also make a plan how to keep everyone up to speed. Instead of feeling guilty that you live where you do, accept it and realize that you are going to find out things after the fact. If your parents have a doctor and are being treated by that Doctor, maybe when the doctor is giving the treatment advice you can be part of it by phone. Loads of phones today have a speaker function.

I'm very sorry for your loss. Sending you hugs and peace through the Internet.
 
I can not add anything that hasn't already been said. I can tell you that I agree with everyone's advice.

What I can say, I would be on a plane and seeing my parents, talking to my siblings, talking to doctors. A family meeting is in order and if everyone can not be on the same page, at least be in agreement as to who will head up the care. One person to be the liaison with the doctors/hospice. I am blessed that my parents moved to be near us, after they retired. My mom was sick for 9 years with my dad being primary caregiver. He even handled her peritoneal dialysis. I was there when I could be, I supported his decisions and did all that I could. If I did not live nearby, I'd be there when could. However, I would be there to have a family meeting and try and make it work between all family members involved, as well as the professionals involved.

I will be honest, there were times (not many, but some) that I didn't agree with my dad with some of his decisions. However, I knew he was the one to make the call and none of it was something that was detrimental to moms health. My point is, sometimes I had to suck it up and let dad make the decision, the call. I may speak to him and tell him what I thought, but I knew was his decision. What I mean is as hard as it was for me losing my mom, they were partners in life for 59 years and he was losing his best friend, lover and his heart.

Remember that your parents seem to be at the end of their lives. Once they pass, you wil have to live with yourself and the decisions/choices you are making now. Please listen to the advice given here and do something to help the situation, rather than causing so much animosity with your family.

I will also add that I am my dads POA & health proxy. This is nothing to take lightly and I dread the days I will be dealing with it. I can't imagine what your siblings are going through.
 
OP you never gave hospice the opportunity to evaluate your father's condition while taking this medication. Maybe they would have changed the dosage. My grandmother was on haldol, it was too much for her - she was sleeping all day and not eating much. Rather then cut it out altogether there was a call made to the appropriate person and the decision to alter the dose was made. How you don't see that as the correct path to follow I dont for the life of me understand.

How long has it been since your mother fell, are you beating a dead horse in pushing unnecessary medical testing? Maybe I am incorrect but didn't you say that your mother would need to be sedated for an MRI? If her doctor felt it were necessary I am sure at some point at a follow up visit that it would have come up.

To answer your question about whether or not you need to be kept abreast of the situation with your parents I have to say that just by reading what you have been posting I would leave you out of it if you were my sister. It seems like you are all having a rough time of it and I wouldn't want you adding to my already heightened stress level. If there were an immediate need to do so such as a grave injury or illness I would certainly clue you in. Based on what you have posted on here I can only imagine how conversations with your siblings go.

Conveniently your mother's competence isn't compromised when she agrees with your actions.

Would hospice not have weaned him off the meds per doctor's instructions instead of cold turkey?

1. I didn't get a chance to give hospice the opportunity to evaluate my dad's condition while on the medication. I didn't know about hospice being called in the first place. I found out about hospice after my sister called them at the end of July. I was there in June. Neither my brother or sister let me know that hospice had been called in January. This is what I keep saying. I could have contacted hospice before I left in June instead waiting a month to contact them. They could have been in and helping out and giving my parents the care they needed prior to me leaving. As I said, my brother saw just how my mom was, how she was making herself sick with worry and he never said anything to me. He knew about hospice but let her continue to make herself sick instead of contacting them himself or having me contact them.

2. Hospice did not wean him off of any of his meds at all. They stopped everything cold turkey. According to my sister, they came in and said that he no longer needed anything.

3. After getting on the olanzaprine, my dad was found wandering the streets in the middle of the night in just his underwear twice. When he retired, his routine was to go golfing in the morning and come home for lunch. After lunch he would go for a 5 mile walk and then come home and take a nap in his chair. When he got to where he could not golf anymore, mom stopped the walk because she felt he might not find his way home. The places that he was found was on the route that he would walk everyday. He was over 2 miles from home at 3 in the morning. Before that, he never left the house at night. My mom never said that he was violent. She said he was using inappropriate language. For all anyone knew, he could have been thinking he was back at his home in PA or at one of his military assignments overseas in his mind. We don't know how he acted while overseas in Vietnam or in Turkey while on assignment by himself.

My mother has had about 6 falls over a period of 2 years. She was wearing shoes that looked like this:
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Unfortunately because of the type of sole they had, she kept catching her foot on the ground. It didn't matter what type of surface, she would catch the toe of her shoe and stumble. She liked them because she could get them on easy and could wear them around the house and be comfortable. When she started getting physical therapy for her sciatica, they told her those were causing her to trip. That they were just a little too big because they were a combination size 9/10 instead of a just a 9 or a 10. As far as I know she has only told her doctor about them when she goes for a normal appointment but has never had anything else done.

As far as the "smart one, perfect one, klepto" thing, my mother has always said that my brother is perfect. It started with my sister saying something to her about her thinking he is perfect and my mom agreed. My mother is the one who said that my sister is the klepto and she said that she takes after her (my mother's) aunt. She had an aunt that used to take things from her house growing up. When I was growing up, my mother constantly told me how I was the one with the brain and never had trouble learning while my sister and brother struggled through school.

I have been out 3 times since 2014, not counting the last visit. My mom paid for the flights because she wanted me out there in 2014 while my sister was there and then wanted my dad to see his great-granddaughter in 2015 and when we ended up with unforeseen expenses and my DH & I were not going to be able to come for Christmas in 2015, she paid our flights as well as my DD & GDD's. She was already paying for them because she knew my DD could not afford it. When my brother contacted me, I was going to use my miles to book the flight, but my brother paid instead. I used my miles to come home on. My sister was there in 2014 with me, then again later in the year and then in February 2015. She is there now. Same number of visits, same length of time for each.

My mom will not move into an assisted living facility. I wish she would but she has made the decision not to and I will back her.
 

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