Fibromyalgia Thread

[carrie6466]

Thanks, ladies. I was so feeling so overwhelmed when I wrote that. I've been getting all kinds of tests and am now just waiting for all the results. I have an appointment to go back at the end of the month. The surgeon's office told me today to make sure that I bring all the films, results and everything I got from all my tests with me to my appointment because they are going to most likely set a surgery date at that appointment. I have a ton of stuff because I had to switch surgeons mid-stream due to some issues with the one who did the first biopsy.

Hi guys! finally got up from the stuper I have been in this week. I HAVE BEEN SOOOOO TIRED Finally had the Dr appointment with my PC who kept pushing anxiety/depression last visit. Luckily he never put that in my chart and we had a long chat about how it never been an issue for me and how he is frustrated when he sees things like 48 days of migraine and cant help. It was a very good visit and for the most part I'm stable which is a bit of an oximoron for us isnt it? I might try anti convulsives for the migraines in June. Any luck with that here?




Carrie

I'M SOOOO SORRY!

My advise is unusual for us here. CRY yes...give yourself permission to be really sad you have earned it. Then pick yourself up and make a plan. Sometimes when I get a list in frount of me I can think better. I remember when DH1 got the 2nd diagnosis of cancer and we knew it was bad just what a kick in the gut it was. Cancer is a blinding diagnosis. it take awhile to soak it all in. Please keep us updated. Rember that while this is a big challenge there is alot that can be done today but it will take time.



l

Thank you so for the warm welcome

Carrie, I am so sorry. I can't imagine how difficult this is for you.

 

[TLSnell1981]

Hi everyone




Ladies, I've noticed an increase in symptoms in relation to my hormones, too. For years now I've thought that there MUST be a correlation, but nothing that I've read or heard has ever mentioned this. I think that WE probably know more than the doctors, at this point.

:

My symptoms definitely worsened, first with peri menopause and then menopause.. No doubt, there IS a connection.

We were out of the country last month and my symptoms were drastically reduced. I know, stress plays an important role, but I noticed a big difference with my diet too. Our food is so full of chemicals. I firmly believe, the toxins cause more fatigue and pain.

 

[TLSnell1981]

So now, in the New Year not only do I have fibro, I have been recently diagnosed with early stage breast cancer. I'm starting to get a bit discouraged. Not by the adhd son, not by the bad spine and sore shoulders, not with the daughter with autism. But this, this this is brining me to my knees. How much more I can handle remains to bee seen. All I do is sleep. Any advice?

Oh, my...

 

[RNMOM]

Wow, I really ought to visit here more often, I learn so much. I can't imagine how many of you manage with young families. Mine are grown but still at home. At least they are helpful, for the most part. I'm sorry to hear of your diagnosis Carrie.

I just wanted to comment about the menopause issue. I began "falling apart" to a major degree when I was through early menopause. About 50. I remember in my 20's I had been taking birth control pills and started having migraines. I stopped them and didn't go back on them. In my early 40's I tried taking premarin and provera for my menopause sx and had a migraine for nearly 3 months. It didn't respond to anything. I also had elevated blood pressure from the hormones and the headache persisted after I stopped them. Antidepressants helped my menopause sx very well instead. A chiropractor got rid of the headaches. I went to him after PT couldn't fix my messed up shoulder upper back pain. He did it in one visit but I returned for followup for a few months. Headache gone, pain gone.

I probably should consider chiropractic again to see if it could help.

BTW, all my allergy, skin irritations, sensitivities began when I had my kids. Prior to that I had no issues with my skin. I think hormones have played a big roll in my life and wellbeing.

I am still having fatigue and haven't had my folllow up blood tests yet for my low white blood cell count. I was off my methotrexate for 2 weeks and it was the worst pain/misery I can remember. All that discomfort just crashed on me and even moving my fingers was too much. I had my dose last week and tomorrow and have already had 75% improvement. Thank goodness.

 

[ashmarie06]

Hello ashmarie06! I am also on Flexeril I find that I only take it when I have a lot of "spine"and my ticking seems out of control. ( I have muscle spasm in my legs and face...well almost every where but they are the worst spots)

I do have migraines but ..most of the time I do not have pain I have other symptoms like flashing lights, vision issues, speech problems and confusion. I do get pain I can't really explain it.

My confusion though varies, its funny but not.. I have "normal" confusion now that I just have come to terms with. People say I have a look on my face that says "HUH?!" I just say its my thinking face. Then I have my migraine confusion and that looks more like y I hide from the world when I am like that. (Thankfully it doesnt happen that much.) Then have the I don't know what I am doing..how to use a key or putting things away.

I am on keppra for nocturnal seizures (sleep ones) and it does have the bonus of helping with migraines.

It is awesome to have people to talk to. I know I should take supplements but I dont know what lol.

Do you guys have food and other item sensitivities? I do! It seems like sometimes I know and then POOF!!!! something bothers me. I mostly have problems with food and smells. This "round" I am on right now (do you go between worse and betterish? I heard flare mentioned) I should have known was coming because I kept having issues with food.

Okay sorry to talk your ears off...Talk to you soon!!! Did I mention I am grateful!

Hi! I do have random smell aversions. But they do change! Right now it's vanilla anything. Buy between the lupus and the fibro I'm flaring. Which has a lot to do with it, I assume!

 

[ashmarie06]

Crazy question. Did any of you guys or do you ladies experience irregular periods? If so, is it related to your fibro?

 

[tiggspring]

Crazy question. Did any of you guys or do you ladies experience irregular periods? If so, is it related to your fibro?

The only thing that ever worked right since Fibro was my cycles. Never had pms, no issues with pregnancy except severe morning sickness every couple hrs. Now in perimenopause definitely different. 2 weeks before fibro goes a bit crazy, constipated until the end and I am tired!!! Most symptoms last about week. I was always exactly same time 28 days now off by 2 or so here and there and shorter but thats just perimenopause. I call the pms fibro pms because it just creates a flare of usual fibro symptoms.

 

[tiggspring]

On day 8 of constant migraine/aura symptoms..Gotten really brutal past two days . Hope all of you are having better time. Carrie your in my thoughts (((HUGS)))

 

[TLSnell1981]

On day 8 of constant migraine/aura symptoms..Gotten really brutal past two days . Hope all of you are having better time. Carrie your in my thoughts (((HUGS)))

 

[lilpig]

On day 8 of constant migraine/aura symptoms..Gotten really brutal past two days . Hope all of you are having better time. Carrie your in my thoughts (((HUGS)))

 

[mommasita]

On day 8 of constant migraine/aura symptoms..Gotten really brutal past two days . Hope all of you are having better time. Carrie your in my thoughts (((HUGS)))

Ugh. I hope you are feeling better.

 

[mommasita]

Crazy question. Did any of you guys or do you ladies experience irregular periods? If so, is it related to your fibro?

I also have had them, and have no clue if it is related.

Two weeks ago, I needed some blood I had lost so much.

Am awaiting a call, I have given in and am going to have everything out..

 

[mommasita]

So now, in the New Year not only do I have fibro, I have been recently diagnosed with early stage breast cancer. I'm starting to get a bit discouraged. Not by the adhd son, not by the bad spine and sore shoulders, not with the daughter with autism. But this, this this is brining me to my knees. How much more I can handle remains to bee seen. All I do is sleep. Any advice?

I am sorry you have this on top of everything else.

You are in my thoughts and prayers.

 

[ashmarie06]

I also have had them, and have no clue if it is related.

Two weeks ago, I needed some blood I had lost so much.

Am awaiting a call, I have given in and am going to have everything out..

Feel better! Mine have just disappeared. :/

 

[mommasita]

Feel better! Mine have just disappeared. :/

Thanks. That is great~

Right now it is absent, and every month I pray it is THE END

 

[tiggspring]

Well I thought today might be the first migraine free day then bent over to pick up some clothes and WAM!! Now back on migraine train day 12 . Hope you are all feeling better and getting good news.


Pain free vibes and pixie dust to all.

 

[mommasita]

I feel for you Tigg..

anything stronger you could possible get for relief?

 

[tiggspring]

I feel for you Tigg..

anything stronger you could possible get for relief?

Thanks for the support guys . My Dr and I were just talking about starting anti seizure meds for migraines this June. Need to wait til kids are out of school and do not need to be up everyday. (Thank god my kids are old enough to fend for themselves now) I tend to react badly to meds. Last med I took for migraines was a calcium channel blocker. I took half dose prescribed and blood pressure dropped so low prescribing Dr said I could have died if taken full dose (YIKES!). That was when I stopped treatment and decided natural was the way to go. Last new med in general was vioxx which made me crazy angry after taking for just a few times. I had never had an issue with pain meds so I thought it might not work but I wouldn't react.

My dh sees a FMS specialist we found while searching for lyme dr. She used to work at chronic fatigue clinic and uses their protocall. Problem is its expensive. More than $300 first visit and second visit and 125 for iv therapy. We might get reimbursed by insurance for some but not counting on it. She was recommended by student of dh who has FMS and got much better. Dh wants both of us to go but we can barely afford one. If it wasnt for student loans he wouldn't be going as we are looking at close to 1000 in the next few months. But he HAS to get better. We lose everything if he crashes like me . The fact is is I had lyme 20yrs ago the damage is done. Neurologically I'm toast. He can get better. No migraines, no real neurological issues and no PMS lol .

Well gotta go had a rough start this am. Woke up crying my head hurt so bad. DH offered to stay home but what can he do? Besides if I'm in for a 48 day run like in july/aug he cant stay home all that time. I find I have trouble contolling them after 7days...just want them to stop!!!! So tired of pain. Took lg does of excedrine. This am after stopping two days to be sure I wasnt on med rebound...Def not med rebound just crazy migraine run. Maybe when My cycle starts in a few days this will stop. One can hope!

Sorry for the long vent.

Sending pain free vibes and pixie dust to all.

 

[tiggspring]

Correction. DH sees dr tomorrow for first visit. LOTS OF PIXIE DUST PLEASE!

 

[mommasita]

Tried to find the pixie dust symbol, but can't. Rest assured it is sent to you and yours.

Ugg, on all the rest. I tried some anti seizure meds, hopefully it works better for you than me.

I cried ALLL day. The worst pain of my life combined with -43 weather, makes a body much worse. I faxed a paper to my dr for an imm appointment. THrowing in the white flag. I am done. Going to see about permanent disability, I just can't do it.

Tomorrow I see the psych before physio, and I am going to tell them I can't do the physio. I just can't. I am 0/10, so you can't take energy you dont have. Last weeks session left me with a 3 hour nap, and 2 days in bed. Now it feels like my legs are tree trunks. I know this is repetitive, but I just can't fathom keeping it going. I am the one who wanted to try, but I am fried.

Well, that was a long vent.. Thanks for reading if you did.

Gentle hugs to all.