Just an update to let you all know that it took about six weeks but we had a truly dedicated doctor and a great HR staffer at my work who have been dogging the insurance company for the past six weeks and we just found out today that they have finally approved payment on DD's medications for the next 6 months. We will have to fight them again, but it is a start. She has been responding very well to the last six weeks of what they had approved and I am becoming an expert in at-home injections. We will start the taper and swap out from the stop-gap drugs to the main drugs this weekend.
SO... while we are all celebrating THANKSgiving tomorrow I will be a little extra thankful for the great medical care and solid insurance coverage (even if we have to fight them) that is keeping my daughter with us this year! (Well, that and the fact we have a bit over three weeks on our next trip countdown.
)