mommy2girlswv
Mouseketeer
- Joined
- Feb 28, 2011
Our family: Myself(April) stay at mom 25, my wonderful husband(Drew) 24, and our two daughters, January 3-wish child, Kaitlyn 8months old(10months time of trip)
The crazy last three years:
January was 8 lbs 3 oz when she was born. The hospital sent her home a few days after birth thinking she was fine.. At 5 days old, we took her to her pediatrician for a newborn check-up. After her exam, her Dr. told us she was going to schedule an appt to see the local cardiologist. Her Dr. told us that she scheduled an appt first thing the next morning (8 am) with the cardiologist. I was worried about what could be wrong with her . Our family told us that it was probably just a heart murmur and told us several names of people in the family that have had one. That helped relieve some of the worry. I told my husband to go ahead and work the day of the appt and that my grandma and mom would go with me. When we went to the appt the first thing they did was a ekg. After many tries with the EKG they told me that it wasn't working right. We went with the Dr. to do the Echo. I will never forget the faces the Dr. was making when she was looking at my daughters heart. I started to cry before she said a word, because I could tell the Dr. couldn't believe what she was looking at. She asked me if I had someone here with me I told her that my grandmother and mom were in the waiting room. She went and got them. When they returned she started to tell us a bunch of info that I don't remember, but the part that she showed us a picture of the heart. She said your daughter doesn't have this part, I don't think she has this part, and your daughter has the worst heart that I have ever saw. She told us that she made some phone calls and that WVU Ruby Memorial (the state children's hospital which was a 3 hour drive) is waiting for us. While we were waiting for the ambulance I called my husband to meet us at the hospital. When we got to Ruby Memorial they took us back to wait for the Drs. to come talk to us (worst wait ever). They came and got us and put us in a huge room with one box of tissues in the middle of the table. It is the most horrible feeling to know something is wrong with your kid and be sat at a table with a box of tissues in front of you. They told us our daughter had DORV, TGA, and VSD. To make a long story short.. She had the PA Band surgery at one week old, Glenn surgery at 5 months and the Fontan at 2yrs old. She now has a single ventricle. She had alot of Dr. appts and before the last surgery her o2 level was never higher than 72 and is now around 94. She was 22lbs for her last surgery and it's been little over a year now and she is 35lbs. Since the last surgery you can really tell it worked. She is still on meds and some days she still looks pale sometimes. To us we were young parents(21) and to go through this made us strong and better parents. It's not the easiest thing to do at any age.
How MAW comes in- Her Pediatrician told us about it and we didn't think she would be a MAW kid. We had to wait til' she turned 2 1/2 yrs old. After everything went through it was only a few weeks before we met with the volunteers. They came to the house in Oct to meet the family. She said disney because of playhouse disney. They asked January what her favorite color was and she told them "Black". We all looked at her.. I told her that her favorite color is not black..She said yeah, mommy this color. (At this time she was coloring for the volunteers.) and it was black. Her whole picture that she colored was black. The volunteers said that it was the first time a kid told them black. I have to tell you her favorite color now is purple, but for awhile it was black. We picked may because my husband just started his new job and by that time he will be able to take vacation time. In late Dec, we recieved a letter with our date (May 6th-May 12th).
UPDATE!!!!
I read a lot PTR and most of them gave info about each family member. I'm April stay at home wife/mom now. I was full time college student and work full time. I met my dh three months before we grad high school. We went to huge school and never met before. We went to our senior prom together. We both went different ways after high school(04). We got back together in 05' and was planning to get married after I grad college, but guess what January came first. January was born in 07'. I had all the plans to go back to school(only had one yr) and work. After she was born, I didn't care about anything but getting her better. I believe her being sick brought us closer together. We went to the court house the day January turn three months old to get married and had party year later. My dh is Andrew. He worked a job that he hated til' all January surgeries was finished because they would let him off anytime he wanted. He went to every appt and stay with her for all the hospital visits. After her last surgery, he started to look for a new job. He is now a cable guy. I think he enjoys it.. We always plan on having one more. We want them to be close in age because I have one sister and she is 11. We found out that we were having Kaitlyn on January 2nd birthday. The next day, she went home from just having her last surgery. We are family that enjoys getting at the house. Oh yea, January was the first granddaughter, great-granddaughter, and great-great granddaughter on both sides. I can say the family took one whole waiting room up and she is spoiled.
Links for PTR:
Pictures of the girls
Our flight schedule
Hollywood & Vine
I love Handy Manny(Pic)
Pictures
Dr. Gust
The Crystal Palace
Day at the Park(Pic)
Sister Love(Pic)
Disney Easter Baskets?
Rough Draft
Dream about WDW
See you next year
Sea World
Question about the trip:
Kilimanjaro Safaris at AK
Must Do List
Travel w/10month old
Umbrella Stroller
Mother's Day 2011
Food at WDW
Big Gives
It's from Minnie Mouse
Girls loves purses
I Spy the letter J
You have a friend in me
Love in the air
Taking Rocket all the way to H&V
Airplane bags
Mommy, HATS
Daddy I think it for you
The crazy last three years:
January was 8 lbs 3 oz when she was born. The hospital sent her home a few days after birth thinking she was fine.. At 5 days old, we took her to her pediatrician for a newborn check-up. After her exam, her Dr. told us she was going to schedule an appt to see the local cardiologist. Her Dr. told us that she scheduled an appt first thing the next morning (8 am) with the cardiologist. I was worried about what could be wrong with her . Our family told us that it was probably just a heart murmur and told us several names of people in the family that have had one. That helped relieve some of the worry. I told my husband to go ahead and work the day of the appt and that my grandma and mom would go with me. When we went to the appt the first thing they did was a ekg. After many tries with the EKG they told me that it wasn't working right. We went with the Dr. to do the Echo. I will never forget the faces the Dr. was making when she was looking at my daughters heart. I started to cry before she said a word, because I could tell the Dr. couldn't believe what she was looking at. She asked me if I had someone here with me I told her that my grandmother and mom were in the waiting room. She went and got them. When they returned she started to tell us a bunch of info that I don't remember, but the part that she showed us a picture of the heart. She said your daughter doesn't have this part, I don't think she has this part, and your daughter has the worst heart that I have ever saw. She told us that she made some phone calls and that WVU Ruby Memorial (the state children's hospital which was a 3 hour drive) is waiting for us. While we were waiting for the ambulance I called my husband to meet us at the hospital. When we got to Ruby Memorial they took us back to wait for the Drs. to come talk to us (worst wait ever). They came and got us and put us in a huge room with one box of tissues in the middle of the table. It is the most horrible feeling to know something is wrong with your kid and be sat at a table with a box of tissues in front of you. They told us our daughter had DORV, TGA, and VSD. To make a long story short.. She had the PA Band surgery at one week old, Glenn surgery at 5 months and the Fontan at 2yrs old. She now has a single ventricle. She had alot of Dr. appts and before the last surgery her o2 level was never higher than 72 and is now around 94. She was 22lbs for her last surgery and it's been little over a year now and she is 35lbs. Since the last surgery you can really tell it worked. She is still on meds and some days she still looks pale sometimes. To us we were young parents(21) and to go through this made us strong and better parents. It's not the easiest thing to do at any age.
How MAW comes in- Her Pediatrician told us about it and we didn't think she would be a MAW kid. We had to wait til' she turned 2 1/2 yrs old. After everything went through it was only a few weeks before we met with the volunteers. They came to the house in Oct to meet the family. She said disney because of playhouse disney. They asked January what her favorite color was and she told them "Black". We all looked at her.. I told her that her favorite color is not black..She said yeah, mommy this color. (At this time she was coloring for the volunteers.) and it was black. Her whole picture that she colored was black. The volunteers said that it was the first time a kid told them black. I have to tell you her favorite color now is purple, but for awhile it was black. We picked may because my husband just started his new job and by that time he will be able to take vacation time. In late Dec, we recieved a letter with our date (May 6th-May 12th).
UPDATE!!!!
I read a lot PTR and most of them gave info about each family member. I'm April stay at home wife/mom now. I was full time college student and work full time. I met my dh three months before we grad high school. We went to huge school and never met before. We went to our senior prom together. We both went different ways after high school(04). We got back together in 05' and was planning to get married after I grad college, but guess what January came first. January was born in 07'. I had all the plans to go back to school(only had one yr) and work. After she was born, I didn't care about anything but getting her better. I believe her being sick brought us closer together. We went to the court house the day January turn three months old to get married and had party year later. My dh is Andrew. He worked a job that he hated til' all January surgeries was finished because they would let him off anytime he wanted. He went to every appt and stay with her for all the hospital visits. After her last surgery, he started to look for a new job. He is now a cable guy. I think he enjoys it.. We always plan on having one more. We want them to be close in age because I have one sister and she is 11. We found out that we were having Kaitlyn on January 2nd birthday. The next day, she went home from just having her last surgery. We are family that enjoys getting at the house. Oh yea, January was the first granddaughter, great-granddaughter, and great-great granddaughter on both sides. I can say the family took one whole waiting room up and she is spoiled.
Links for PTR:
Pictures of the girls
Our flight schedule
Hollywood & Vine
I love Handy Manny(Pic)
Pictures
Dr. Gust
The Crystal Palace
Day at the Park(Pic)
Sister Love(Pic)
Disney Easter Baskets?
Rough Draft
Dream about WDW
See you next year
Sea World
Question about the trip:
Kilimanjaro Safaris at AK
Must Do List
Travel w/10month old
Umbrella Stroller
Mother's Day 2011
Food at WDW
Big Gives
It's from Minnie Mouse
Girls loves purses
I Spy the letter J
You have a friend in me
Love in the air
Taking Rocket all the way to H&V
Airplane bags
Mommy, HATS
Daddy I think it for you
April 
Looking forward to learning more about your sweet family! 
