New to this so please be gentle.
On January 1, 2009 we are heading out on a wish trip thru Starlight Starbright Foundation. We will return January 7th.
The cast
mom- Staci 34 Lover of all things Disney. First trip was for my honeymoon in 2000. Just had back surgery so lots of time on my hands
dad- Jim 37 Lover of all things Star Wars and handles my Disney obsession well. Has major back issues and will have surgery beginning of December for pain stimulator to hopefully make life bearable.
dd1- Miranda 14 loving big sister, trying child , high honors student, marching band member, volunteers lots of time to charities
ds- Dustin 11 great big brother to Morgan, full time pest to Miranda, also high honors student in GT classes. forever watchful of his little sister
dd2 Wish Child- Morgan 4 (will be 5 when we go) what can I say about Morgan---
Morgan was born Dec 2003 full term via scheduled c-section. After not holding her temp they starting doing testing on her. Come to find out she has DiGeorge Syndrome (also known as 22q11 deletion) She spent 9 days in the hospital (5 in NICU) before getting to come home on Christmas Eve
The last (almost) 5 years have been a roller coaster.
She suffers from right hemi palagia- wears an afo, polymicrogyria, epilepsy, anemia, hyperthyroidism, and is mostly non verbal.
Morgan is also one of the Ambassadors for Easter Seals CT.
Her neurologist suggested a wish for her and while we originally wanted an outdoor playscape her love for Little Einsteins won out.
We have been to Disney before and when she got out of her seat at the Playhouse Disney Tour to sing and dance it brought tears to my eyes. My only goal of this trip is to eat at Hollywood & Vine to visit with her favorite friends. She does like the princesses also and Star Wars (we are members of the 501st) and can't wait for her to actually experience Star Tours.
Don't know what else to say right now. How'd I do?
On January 1, 2009 we are heading out on a wish trip thru Starlight Starbright Foundation. We will return January 7th.
The cast
mom- Staci 34 Lover of all things Disney. First trip was for my honeymoon in 2000. Just had back surgery so lots of time on my hands
dad- Jim 37 Lover of all things Star Wars and handles my Disney obsession well. Has major back issues and will have surgery beginning of December for pain stimulator to hopefully make life bearable.
dd1- Miranda 14 loving big sister, trying child , high honors student, marching band member, volunteers lots of time to charities
ds- Dustin 11 great big brother to Morgan, full time pest to Miranda, also high honors student in GT classes. forever watchful of his little sister
dd2 Wish Child- Morgan 4 (will be 5 when we go) what can I say about Morgan---
Morgan was born Dec 2003 full term via scheduled c-section. After not holding her temp they starting doing testing on her. Come to find out she has DiGeorge Syndrome (also known as 22q11 deletion) She spent 9 days in the hospital (5 in NICU) before getting to come home on Christmas Eve
The last (almost) 5 years have been a roller coaster.
She suffers from right hemi palagia- wears an afo, polymicrogyria, epilepsy, anemia, hyperthyroidism, and is mostly non verbal.
Morgan is also one of the Ambassadors for Easter Seals CT.
Her neurologist suggested a wish for her and while we originally wanted an outdoor playscape her love for Little Einsteins won out.
We have been to Disney before and when she got out of her seat at the Playhouse Disney Tour to sing and dance it brought tears to my eyes. My only goal of this trip is to eat at Hollywood & Vine to visit with her favorite friends. She does like the princesses also and Star Wars (we are members of the 501st) and can't wait for her to actually experience Star Tours.
Don't know what else to say right now. How'd I do?