HeatherSue
Join Date: March 2004
- Joined
- Sep 20, 2007
Great pictures!! The kids look so cute with their postcards! Wow, I can't wait to hear how your sewing adventure goes! Make sure you post pics!
If you could not tell by the username I am Karlyns mom. As me and Bigdisgrandma were talking about about the DISboards we realized we had not posted anything on how we came to this wonderful world of Disney. So here is an abreviated story: Sorry in advance to anyone who cries
Our 7 year old daughter Karlyn was born with several very severe cardiac defects, due to a chromasome defect called Deletion 22Q or Digeorge Syndrome. The most sever being Pulmonary Artesia. To explain it in layman's terms she was born with no pulmonary arteries to feed blood to her lungs. She has several small vessel branches that supply the blood . The small vessels have never been sufficient to carry all of the blood and oxygen to the rest of her tiny body. She had her first open heart when she was only 4 1/2 months old where she suffered a major brain stroke. The stroke caused both major speech, and motor skill delay. Over the last seven years she has had 1 more open heart surgery and 8 minor heart surgeries. We have also endured countless hospital stays for respiratory distress. She has become very accustomed to having lots of trips to Primary Children's Hospital or as our other kids call it "Karlyn's Hospital". As Karlyn's little pulmonary vessels have struggled to provide the blood to the tiny blood vessels in her lungs her heart has become enlarged and the small vessels in her right lung have started to die. Leaving her with only 1/3rd of her right lung function. As her parents we have searched for every possible fix to her medical condition. We were told at her birth that she would never be a canidate for transplant due to the severity of her multiple medical conditions. We also knew eventually we would get the news that they had run out of things to do for her. Even though we knew the day would come as a parent nothing can prepare you to hear those words. We are very grateful to know that we still have time no matter how long it may be to make family memories with Karlyn and our other two children. The phrase "You should always live every day as if it were your last" has become more than just a saying to our friends and family.
We as a family are so greatful to have you in the process to help make our memories so grand. (and to feed our need for all things Disney!)
TWO DOWN, 8 TO GO!
Last night, Lindsey and I cut out 2 shirts and tonight, I got Brody's done (except for those buttons and buttonholes!) Mike says I will be sewing buttons onto shirts when we are flying to Florida My response was that I wouldn't be but Lindsey and Mandy might be.
I have a question for all the disboutiquers. Should I make the ladies and girls dresses or skirts with this fabric instead of shirts? I am debating. I think I would prefer a shift type of dress with a light t-shirt underneath--I don't do sleeveless.(I have Grandma arms ) Mandy thinks she might want a similar style dress and I know the little girls would love dresses but Lindsey can't make up her mind. She, of course, is the skinny one and would look great in anything. Let me know what you think.
I guess I better clean up my kitchen and put away the sewing stuff for the night. I have to work tomorrow but then I get Thursday-Sunday to stay at home because Thursday is a state holiday and Friday is my regular day off.
Denise
TWO DOWN, 8 TO GO!
Last night, Lindsey and I cut out 2 shirts and tonight, I got Brody's done (except for those buttons and buttonholes!) Mike says I will be sewing buttons onto shirts when we are flying to Florida My response was that I wouldn't be but Lindsey and Mandy might be.
I have a question for all the disboutiquers. Should I make the ladies and girls dresses or skirts with this fabric instead of shirts? I am debating. I think I would prefer a shift type of dress with a light t-shirt underneath--I don't do sleeveless.(I have Grandma arms ) Mandy thinks she might want a similar style dress and I know the little girls would love dresses but Lindsey can't make up her mind. She, of course, is the skinny one and would look great in anything. Let me know what you think.
I guess I better clean up my kitchen and put away the sewing stuff for the night. I have to work tomorrow but then I get Thursday-Sunday to stay at home because Thursday is a state holiday and Friday is my regular day off.
Denise
I like both the skirt and shirt ideas. So you could please me either way!! Another idea on the shirt, would be to use the snaps, instead of buttons and button holes. I they comewith a little tool, and you just need a hammer. Measure twice, hammer once.
Thanks to you wonderful disboutiquers for the suggestions. I love the skirt idea. And of course the dresses for the girls would be perfect. I so wish I could check out your thread! I used to sew all the time, you tend to do that when your kids are little and you have no money. ( I was probably the original disboutiquer because I made my 3 little children matching outfits for a trip to Disneyland in 1978.) For a while I even sewed costumes for a costume shop. I made my own wedding dress and wedding dresses for 2 of my daughters and my niece's as well. However, when my kids were all in school and I went back to school, I got out of the habit and now I am ready to dive back in.
I'll let you all know what the final decision--shirts vs skirts--turns out to be.
Only 3 more hours to work this week! Then the real work begins.
Denise
You should all see the things she has sewn. I saw one of the wedding dresses and it was gorgeous. I have seen pictures of one of the other dresses. I have also seen the many blankets, stockings, and some costumes. Denise you are amazing! I can't wait to see the shirts, skirts, dresses or whatever you come up with. They will be fabulous.
Lindsey I am so glad you have joined the Disboards and thanks for sharing your story. I know all that you have been through and you are an amazing family. You are always in my thoughts and prayers. I really miss hearing all about your family on a daily basis but at least I get weekly updates and I can keep up with the Wish Trip plans here on the boards. I look forward to more!
I am sure there a plenty of you out there that know what this feels like to sew til you drop. I went to the fabric store to get buttons for the hawaiian shirts and walked out with 4 yards of Mickey fabric and no buttons. 10 shirts is just not enough of a project. I needed to add a sundress for each of the girls. One of these days I will get brave enough to sew a "twirly" skirt. I am not sure it will ever be Bisboutique worth but we will give it a try. Thanks for all of the sewing inspiration.
The invitations are ready to go into the mail, and the I have cut things out. Gabby decided that she did not want a dress she wanted a shirt and a skirt but when we when to go and get the pattern she decided that a shirt and shorts was what she wanted.It's ok, I got the buttons and they were on sale! Have you cut out the dresses yet? I know you have been busy with the invitations for the Wish Party!
Mom!