Lymph node....MONO?

Disneylover2, I have been going back and forth about what to say to you. I don't know how old you are, and I feel I should be talking to your mother instead. Is it hard? Like a peanut is under your skin? Or is it kind of soft? Like it might be fatty tissue. Regardless, please, please, please, go get this checked out. Keep going to doctors until you find one that will remove it. If your mom won't take you, tell her you want a doctor's appointment for your birthday, Christmas, or whatever other gift giving occassion may be coming up. That'll let her know how serious you are.

Hopefully, it will turn out to be nothing, and more than likely it is, but at least you won't have to worry about it anymore.

Well, it kinda semi. It's no like really hard like a paenut, but it's not that saoft. You can move it a bit. When you touch it you feel a firm mass. But reaaly, it's more hard than soft. Still there............
 
I felt my mouth hurting when I swallowed and guess what? I saw an infected tonsil! It's on the same side as my enalrged lymph node. The tonsil isn't with white dots, so that's good news. it's just bigger than normal and it hurts alot. angwill, how is your DS?
 
DS's bump is still there but we set up with the surgeon to get it taken out and biopsied on the 21st. My DS voiced that he would really like it removed because he is uncomfortable with it being there. I was talking to a friend who said he has had a swollen lymph node since he was a little boy and he is in his 40's now and has never worried about it. I forgot to ask if he ever even told the doctor about it or chose not to. Different strokes for different folks. Ironically, my DS has only had a flu for one day all winter so he has had no infections. Hope your sore throat gets better.
 


DS's bump is still there but we set up with the surgeon to get it taken out and biopsied on the 21st. My DS voiced that he would really like it removed because he is uncomfortable with it being there. I was talking to a friend who said he has had a swollen lymph node since he was a little boy and he is in his 40's now and has never worried about it. I forgot to ask if he ever even told the doctor about it or chose not to. Different strokes for different folks. Ironically, my DS has only had a flu for one day all winter so he has had no infections. Hope your sore throat gets better.

Thanks! Prayers for DS and you!:hug:
 
Going to doctor this week...hopefully. Sore troat isn't gone yet. It's been 13 days, maybe he can give me antibiotics or something.:) 3 days 'till angwil's DS biopsy..prayers everthing goes well!:hug:
 
I guess I should start off by mentioning I'm a Hodgkin's Lymphoma survivor....

If you have a bad feeling about the node, you should follow insist on a biopsy as it's the only way to definitely know if a node is cancerous or not. If it's nothing, you'll have peace of mind. If it's something, you catch it fairly early.

Most doctors presume because lymphoma is rare, it's not lymphoma.

Nodes enlarged do to lymphoma are NOT painful. Sometimes there are other symptoms, sometimes not. I had no symptoms other than the mass on my neck.

There are three types of biopsies.

Fine needle rarely get a good sample, so it can be a waste of time.

Core biopsy (what I was diagnosed from) can be done by some Ear, Nose and Throat doctors in the office. The numb the area so it's not painful.

Excisional biopsy is the removal of the entire node. Best 'sample', but has a slight chance of causing lymphedema.)

For more information on Lymphoma, Google lymphomainfo
 


I guess I should start off by mentioning I'm a Hodgkin's Lymphoma survivor....

If you have a bad feeling about the node, you should follow insist on a biopsy as it's the only way to definitely know if a node is cancerous or not. If it's nothing, you'll have peace of mind. If it's something, you catch it fairly early.

Most doctors presume because lymphoma is rare, it's not lymphoma.

Nodes enlarged do to lymphoma are NOT painful. Sometimes there are other symptoms, sometimes not. I had no symptoms other than the mass on my neck.

There are three types of biopsies.

Fine needle rarely get a good sample, so it can be a waste of time.

Core biopsy (what I was diagnosed from) can be done by some Ear, Nose and Throat doctors in the office. The numb the area so it's not painful.

Excisional biopsy is the removal of the entire node. Best 'sample', but has a slight chance of causing lymphedema.)

For more information on Lymphoma, Google lymphomainfo

Thanks on the information.

Update:
I went to the doctor, and he did NOT want to biopsy it. He jst said that the node is still enlarged because there's a bacteria there and the node keeps it there so it won't go to the rest of my body. He said that the node will stay enlarged for the rest of my life.
 
Thanks on the information.

Update:
I went to the doctor, and he did NOT want to biopsy it. He jst said that the node is still enlarged because there's a bacteria there and the node keeps it there so it won't go to the rest of my body. He said that the node will stay enlarged for the rest of my life.

Nodes do swell when they are dealing with infections. When we get 'swollen glands', it's the nodes handling infection. And they usually go back to normal size when infection clears up. They don't usually 'last forever', and the definitely don't hold the bacteria there forever.

He claims it's bacteria. Did he say which type of bacterial infection? Did he put you on antibiotics? Unfortunately a lot of doctors blow it off as an infection, even though they can't find evidence of one, without checking for lymphoma.

Is it only one node? Is it on your neck right below the ears (where I'd get swollen glands as a kid) or someone where else?

Did he check your other nodes manually? The proper way to see if other nodes are involved is to have a CT scan. Some nodes are inside the body (chest, or stomach area) and can't be felt by examination.

Common areas where lymphoma appears is by the collar bone, under the arms and in the groin near where your leg is attached.

I hope the doctor can find and treat an infection. It just upsets me when they dismiss a swollen node with excuses, not diagnosis.

Can you imagine a woman telling her doctor she's got a lump in her breast, and being told it's probably a cyst and to do nothing? They do it to lymphoma patients all the time.

When I was first diagnosed I went through x-rays, a battery of blood tests for everything from mono to Cat scratch fever. I had high dose antibiotics that made me sick, but didn't shrink my nodes. The checked for oral, breast and lung cancer, figuring one might have metasticized to the nodes.

Finally I had a CT scan that showed not only were the nodes in my neck swollen, but also in my chest between my lungs. The biopsy was the last test, and proved it was lymphoma. It took over a month to rule out everything else, before they'd run the test to prove what it was.
 
Disneylover,
Good news with my DS his lymph node they removed was benign so nothing to worry about. I really wasn't worried but I think it made him feel better.

Angela
 
Nodes do swell when they are dealing with infections. When we get 'swollen glands', it's the nodes handling infection. And they usually go back to normal size when infection clears up. They don't usually 'last forever', and the definitely don't hold the bacteria there forever.

He claims it's bacteria. Did he say which type of bacterial infection? Did he put you on antibiotics? Unfortunately a lot of doctors blow it off as an infection, even though they can't find evidence of one, without checking for lymphoma.

Is it only one node? Is it on your neck right below the ears (where I'd get swollen glands as a kid) or someone where else?

Did he check your other nodes manually? The proper way to see if other nodes are involved is to have a CT scan. Some nodes are inside the body (chest, or stomach area) and can't be felt by examination.

Common areas where lymphoma appears is by the collar bone, under the arms and in the groin near where your leg is attached.

I hope the doctor can find and treat an infection. It just upsets me when they dismiss a swollen node with excuses, not diagnosis.

Can you imagine a woman telling her doctor she's got a lump in her breast, and being told it's probably a cyst and to do nothing? They do it to lymphoma patients all the time.

When I was first diagnosed I went through x-rays, a battery of blood tests for everything from mono to Cat scratch fever. I had high dose antibiotics that made me sick, but didn't shrink my nodes. The checked for oral, breast and lung cancer, figuring one might have metasticized to the nodes.

Finally I had a CT scan that showed not only were the nodes in my neck swollen, but also in my chest between my lungs. The biopsy was the last test, and proved it was lymphoma. It took over a month to rule out everything else, before they'd run the test to prove what it was.

My son had the same experience when he was 17. He had stage 4 Hodgkins but thank God is cancer free these 13 years! One of the 4 forms is common in adolescence.


A chest X ray showed the tumors around his heart and blood work at the oncologist/hemotologist confirmed it..Often a protracted case of mono is actually lymphoma, that happened to my 20 year old cousin. Not to scare you OP, but Hodgkins is very curable in the early stages. My son is lucky to be alive..Have it looked into more thoroughly! Good luck!
 
angwill I'm glad to hear your son's biopsy was negative! That is the news we all want to hear!

LakeAriel, that is fantastic that your son has been cancer free for 13 years!
 
I am a non-Hodgkins cancer survivor. I was diagnosed 20 years ago next month. I was 22 years old at the time. Like another poster, I was told the lump was no big deal. I had a bad feeling about it in my gut though, and went to 3 doctors before one would agree to refer me to a surgeon to remove it. My cancer was very aggressive, but it was contained. It went from about the size of a peanut to the size of a walnut in about 6 months. Even the fast growth wasn't enough to concern doctor #2.
 
Nodes do swell when they are dealing with infections. When we get 'swollen glands', it's the nodes handling infection. And they usually go back to normal size when infection clears up. They don't usually 'last forever', and the definitely don't hold the bacteria there forever.

He claims it's bacteria. Did he say which type of bacterial infection? Did he put you on antibiotics? Unfortunately a lot of doctors blow it off as an infection, even though they can't find evidence of one, without checking for lymphoma.

Is it only one node? Is it on your neck right below the ears (where I'd get swollen glands as a kid) or someone where else?

Did he check your other nodes manually? The proper way to see if other nodes are involved is to have a CT scan. Some nodes are inside the body (chest, or stomach area) and can't be felt by examination.

Common areas where lymphoma appears is by the collar bone, under the arms and in the groin near where your leg is attached.

I hope the doctor can find and treat an infection. It just upsets me when they dismiss a swollen node with excuses, not diagnosis.

Can you imagine a woman telling her doctor she's got a lump in her breast, and being told it's probably a cyst and to do nothing? They do it to lymphoma patients all the time.

When I was first diagnosed I went through x-rays, a battery of blood tests for everything from mono to Cat scratch fever. I had high dose antibiotics that made me sick, but didn't shrink my nodes. The checked for oral, breast and lung cancer, figuring one might have metasticized to the nodes.

Finally I had a CT scan that showed not only were the nodes in my neck swollen, but also in my chest between my lungs. The biopsy was the last test, and proved it was lymphoma. It took over a month to rule out everything else, before they'd run the test to prove what it was.

He did say something, but I can't remeber the name. I think it ended with reactive or something. Well, the first time I went in because of it, he did not. Thelast time I went, which was this time,
it was another doctor that saw me.

You asked me if it's only one node, well I think it's like three. One in my right side, a smaller one in my left that I didn't know it was swollen until my doctor told me, and ofcourse, after the one in my right, a very small one that shares swelling. And yes, the main one is on my neck, not right blow the ears, but a bit to the left- like below my jaw.

The new doctor I saw even made a joke about doing a biopsy that I did not like at all. The very first time, I went in he checked them manually, and then ordered me an x-ray. No other swollen nodes were found.

And as you know, they diagnosed me with mono. I've had frequent infections. Like one every two months. I had a cold in October, and cold in december, pneumonia in February and a mild cold in April.
But I don't think I visit him again until my yealry check uo since he told me why it was enlarged.

The first time it appeared enlarged, I feelt some discomfort when I swallowed for just a day. Then, no pain at all.

I think that if I would visit the doctor I saw at first, he would have had a different opinion.

But, I guess I can't do anything about it now. I mean, there's only like 5 percent that ( I, a 13 year old girl) the doctors were all wrong and it turns out that I have lymphoma or maybe chronic leukemia. The inly way the'd do a biopsy, is that would be rushed tot he ER with vomiting, and high fever, and so on...then they'd be convinced. These doctors in puerto rico won't do anything! It frustrates me somethimes.


Thanks for the reply.
 
Reactive means the nodes is 'reacting' to an infection. Normally when nodes are reacting to infection they are tender.

As soon as I have 10 posts, I can post you a link to the symptoms to keep an eye our for them.

Keep an eye on this nodes. Watch out for them growing larger or more popping up.

It's not just doctors in PR that refuse to test for lymphoma. I know a lot of adults in various countries that have done the same thing. The person knew something was wrong and refused to give up until they got a diagnosis, and they turned out to be right.
 
I know you are young and I do not want to scare you.....but I am surprised that any doctor in this day would make a joke about doing a biopsy to rule out somethat that could be dangerous... It actually makes me a bit upset.

My daughter had a lump in her neck in her lymph nodes... we went to the family doctor, he thought it was cat scratch fever or it could be mono... it was still there weeks later, we go back. Again, he feels it is nothing. We then take her to Ear, throat and nose specialist, actually the doctor who took out her tonsils when she was young.. He was concerned enough to remove it and send it for a biopsy.. We waited and waited, no results... I think they were testing and retesting to make sure. He called and asked if we were coming with our daughter for the appointment and my husband and I were. He said it was something that needed to be discussed with the whole family.

Anyway, she ended up having papillary carcinoma of the thyroid... no one ever palpitated her thyroid, had they done that they would have felt an enlarged node there. It had metasasized to her lymph nodes and she had surgery to remove it....her thyroid and treatment after.

I tell you this not to scare you, I never accept, I always push for a conclusion, maybe because I have seen so much sickness that I am always ruling the bad things out... Good luck...
 
Anyone who's taken the 'cancer journey', knows how misleading the numbers can be.

While the chance of a person getting lymphoma (or a leukemia) might be low, as an individual your chance of being right is 50/50. Either it's just from an infection, or it's cancer.

Here is a good page on reactive nodes.

http://www.med.umich.edu/1libr/pa/pa_swolymph_hhg.htm

Since we can't see what you consider and enlarged node, you have to be your own eyes and ears. And your advocate. Play the cute kid card if you have to.

Here's a abstract on a study done on kids seen by a clinic.

http://cpj.sagepub.com/cgi/content/abstract/45/6/544

Over a 3-year period, 126 patients were referred to the clinic for lymphadenopathy. (swollen nodes) 23 of them had malignant diseases.

20% of the kids who's symptoms were suspicious, actually had some kind of cancer that either began or spread to the nodes.
 
I wanted to share something with you. I did not read through the entire trail so you may be all better now.

I am a 34 year old female who has been happily married to the same man for the last 14 years. He is the only man I kiss. :)

I have had Mono for the last year and half. Yes, that is correct. 1.5 years. I have recently learned that I have thyroid disease and a metabolic disorder we as well.

How did I get the Mono you might ask? From my sister. We do not kiss. LOL! I had a starbucks coffee, she wanted to taste it, I let her and the next thing I know, 4 weeks later I have mono. She had no idea she had mono.

A doctor can only determine if you have mono by doing a monospot test and doing a little bloodwork.

Though mono is called a "kissing" disease, it is easily contracted in the air and is VERY contagious. I am glad that my husband and kid did not catch it from me.

The reason I have not been able to get rid of the mono is because I was not aware of the Thyroid Disease and Metabolic disorder I have. When my doctor started realizing I could not get rid of the mono, she then did tests which indicated my immune system was shot. Those tests then lead me to an Endocronologist, who did further tests by taking blood and sending me for a sonogram which indicated the Thyroid and metabolism issues.

During all of this, I was getting a recurring fever blisters in the same spot on my lip all of the time and my lymph nodes under my chin and in my arm pit were always swollen.

I am on the mend now and the mono has just about left me (finally). One of the things my doctor told me to take that really started helping was Lysine. Lysine is good for the immune system. When you have mono, the immune system is really low and you are suseptible to everything. That means that if the mono is still strong, you can catch colds and infections very easy. That also means that if you are tired and not getting enough rest or you feel puny, you can get reactived mono very easily. Once you get the mono virus, it lives in your body for the rest of your life. :(

So, if you have mono and your nodes are swollen, that could be a sign that something else is wrong or you might just have mono. Either way, I would certainly ask for additional testing. I learned from the sonogram and tests that I had done that I have had Thyroid disease for a year or so and it was only detected in March this year.
 

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