maroo
DIS Veteran
- Joined
- Aug 3, 2008
- Messages
- 8,036
My daughter has been selected to go on her wish trip in April. I'm new to this and am trying to find the places my friend and fellow wishtrippers, Sebastian, with his family (Amber) is telling me about. AM I THERE? Help ! THANKS.
Yes you are!!!
Welcome!!!!!!!!!!!
I can't wait to hear about all of your plans! You have a good friend, there, Amber!
Abbie has Spina Bifida that was repaired in utero at 21 weeks gestation. This was a proceedure to close the spine, but that couldn't change any damage thus far caused to the baby by the acidity of amniotic fluid. The thought of prenatal surgery was to prohibit the ongoing damage and any further loss of funtion or neurological involvement that could possibly happen during the duration of the pregnancy. We are very blessed to have BOTH of our children, and Abbie is doing very well. She's been through 7 surgeries from brain to feet in her 6 years and deals with AFO's, bilateral below the knee paralysis, and issues with bladder and bowel. She's sharp as a tack, and cute as a button... and quite blessed to have an amazing 10 year old sister to be her role model and confidant. Emma has done an amazing job of facing and accepting the challenges that are dealt to a sibling of a child with extra-ordinary needs.
We are very excited - but things are so hectic here with my school shedule that I'm not able very often to get onto the computer for "fun" things. Im sooooo NEW to this board posting thing that I'm going to need lots of hand holding and help as I figure this out. I only get to jump on occasionally, so I appreciate all your advice and guidance! 
