What should I ask her?

disney's daughter

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Apr 2, 2003
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I am a 60 year old grandmother who loves and has traveled to Disney World many times. My cousin and her whole family( from KY and I live in Michigan) are coming to Disney in January. I told her I would try to join them..(along with my grandchildren) One of her grandchildren (a grandson) is autistic. So...I have been starting to read the threads which might help me..."help them".....I see there are different degrees of it and I have no idea where her grandson fits...That is a question I will ask...I also saw where loud noises could be a problem and where ear plugs are a big help....I know which rides and attractions have the louder noises....and could give them that information....There would be a lot of family members to help.....If the grandson (6 years old) isn't normally in a wheel chair....would he need one while at Disney?

I guess...to start...I need to know what questions to ask her...so that I can gather information from you...(and ask more questions) So, when problems arise, we would know more as to handle it...or avoid situations at Disney World....
 
I have no experience, so no help. I just wanted to comment on what a doll you are to care enough to want to help! Have a marvelous trip!
 
The thing about autism is that it's not about degrees, it's about the child's particular issues. Each autistic child has his/her own unique set of issues. Each issue is likely something shared by other autistic kids but the issues all together combine to make a unique child. Your cousin needs to really think about her child's particular issues. Is he a sensory seeker or a sensory avoider or a combination of both? Is there a particular sensory input type or particlar sense that is significantly more sensitive than others? What are his common meltdown triggers? Is he likely to run? Does he have any gross motor skill or fine motor skill issues? How is he with costumed characters? Does he crave his routine? Does he need to be prepped in any way for the trip? And so on and so on.... It really does come down to his mother understanding his needs. Whatever his needs are at home, those need to be doubly taken into consideration any time they go somewhere he's not used to and yes that includes the happiest place on earth.

The Passporter book Open Mouse is an extremely helpful book. I read it before our frist WDW trip with our autistic daughter. The advice in there was unbelievably helpful (we also needed the sections on food allergies but the sections on autism were just as helpful).

Unless he has some kind of mobility or trunk strength problem, I don't see why he'd need a wheelchair. Something that some parents of autistic children do find though is that a stroller is extremely helpful even beyond the age where kids typically use strollers. The stroller not only helps with fatigue (something that can definitely lead to a meltdown) but also it provides a safe place for the child to get a sensory break from all of the stimulation around the parks. If they no longer have a stroller or don't want to lug it on an airplane, they can always rent from a company like Orlando Stroller Rentals. Some parents find that they need the stroller right in the lines either to keep their child from running off and others find that they need the stroller right in the lines to help force a perimeter around their child or to give that extra sensory break even in lines. We've never found a need for this but many parents do. Again, you really need to know the specific child's needs.

His mother will need to be able to explain her child's issues to the CM at Guest Relations in order for the CM to provide the appropriate accomodations.

For us, I've found that one of the best tools we have in addition to sticking as close to our at home schedule as possible (getting up, eating, going to bed type things) is a really good touring plan. Planning using TourGuide Mike has made a HUGE difference for us. The accomodations that are given typically are only provided for the person with the disability and up to 5 other guests. With a larger group like yours, you'll really want a good touring plan to make this work really well. The touring plan will also help you to be in non crowded areas of the parks between the rides. There are no accomodations that Disney can provide for these areas (though a stroller might be a big help for these areas).

If you have any specific questions, please feel free to ask.
 
Clanmuccolach

Has many great points. I would look into having them rent a Special Needs stroller, if for containment if nothing else. DS has gone to Disney 3 times. We tour according to his needs and go from there but he has to go along with what others want too. (It is not always his choice, darn life skills to use . :) )

DS is verbal but we always have picture schedules available. We do social stories as well.

You will be looked on very favorably to even offer.

I would book it as a Grand Gathering so your rooms are linked and you can get the opportunity to do one of the options.

DS loves the costumed characters.
 

I am also going to agree with the stroller. We also found (somewhat be accident) how useful the pin collecting lanyards are. When she was in the stroller with the back slightly reclined and the lanyard with about 10 pins on it around her neck and across her chest it provided a wonderful weight across her trunk.
The lanyard was also wonderful because it encourage social interaction when trading pins and a reward system. We also used small earplugs on a string for the loud rides (I have extra if you would like me to mail you some.) Sunglasses where also used daily. She liked to hold the park maps in one hand even while on rides.

Have a great trip!
 
Wow! I am so thankfrul to you all! I am printing everything out...and get into contact with my cousin with all the questions and info...then I am sure I will have more questions....I am excited to at least know we can be somewhat prepared....I really want them all, including the grandson, to have a great time. I really appreciate the help!:cheer2:
 














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