tiggerlover
Still waiting for "the talk"
- Joined
- Jan 29, 2000
- Messages
- 10,314
It has been a while since I posted an update on my niece's cancer so I thought I would today. For those who don't know the story, Allyson is my 11 year old niece and she was diagnosed this summer with a rare children's cancer called rhabdomyosarcoma and has been under going chemo treatments since August.
We are around the 8 week mark now and beginning the first week of November they are adding radiation to her regiment. They are taking away the triple dose of chemo every three weeks and only going with the double drug dose. The radiation will be every day, so my sister and niece will have to stay at the Ronald McDonald house in NYC all week and only travel home on weekends, this process will last for 6 weeks. At this point everyone is exhausted and anxious. The tumor on her face is no longer visible from the outside, but she can still feel it on the inside of the cheek. After consulting with the surgeon it has been determined this week that it is around a muscle in the face, so still no surgery possible. And I do not know anything further about the tumor surrounding her lymph node. Her hair is all gone now and they have ordered a wig, which she is excited about, up until this point she has been relying on scarves and hats so it will be nice once the wig is hers. She is also being distracted with art, she was selected to help paint a mural which she is very excited to be doing.
My other sister is organizing a blood and platelet drive as Allyson will need all she can get. So if anyone is in the NYC area and would like to donate blood or platelets on her behalf at Sloane Kettering please send me a PM.
I once again thank my DIS pals for their continued prayers and interest in Allyson, it really means a lot.
We are around the 8 week mark now and beginning the first week of November they are adding radiation to her regiment. They are taking away the triple dose of chemo every three weeks and only going with the double drug dose. The radiation will be every day, so my sister and niece will have to stay at the Ronald McDonald house in NYC all week and only travel home on weekends, this process will last for 6 weeks. At this point everyone is exhausted and anxious. The tumor on her face is no longer visible from the outside, but she can still feel it on the inside of the cheek. After consulting with the surgeon it has been determined this week that it is around a muscle in the face, so still no surgery possible. And I do not know anything further about the tumor surrounding her lymph node. Her hair is all gone now and they have ordered a wig, which she is excited about, up until this point she has been relying on scarves and hats so it will be nice once the wig is hers. She is also being distracted with art, she was selected to help paint a mural which she is very excited to be doing.
My other sister is organizing a blood and platelet drive as Allyson will need all she can get. So if anyone is in the NYC area and would like to donate blood or platelets on her behalf at Sloane Kettering please send me a PM.
I once again thank my DIS pals for their continued prayers and interest in Allyson, it really means a lot.