Update on Allyson's cancer

tiggerlover

Still waiting for "the talk"
Joined
Jan 29, 2000
Messages
10,314
It has been a while since I posted an update on my niece's cancer so I thought I would today. For those who don't know the story, Allyson is my 11 year old niece and she was diagnosed this summer with a rare children's cancer called rhabdomyosarcoma and has been under going chemo treatments since August.

We are around the 8 week mark now and beginning the first week of November they are adding radiation to her regiment. They are taking away the triple dose of chemo every three weeks and only going with the double drug dose. The radiation will be every day, so my sister and niece will have to stay at the Ronald McDonald house in NYC all week and only travel home on weekends, this process will last for 6 weeks. At this point everyone is exhausted and anxious. The tumor on her face is no longer visible from the outside, but she can still feel it on the inside of the cheek. After consulting with the surgeon it has been determined this week that it is around a muscle in the face, so still no surgery possible. And I do not know anything further about the tumor surrounding her lymph node. Her hair is all gone now and they have ordered a wig, which she is excited about, up until this point she has been relying on scarves and hats so it will be nice once the wig is hers. She is also being distracted with art, she was selected to help paint a mural which she is very excited to be doing.

My other sister is organizing a blood and platelet drive as Allyson will need all she can get. So if anyone is in the NYC area and would like to donate blood or platelets on her behalf at Sloane Kettering please send me a PM.

I once again thank my DIS pals for their continued prayers and interest in Allyson, it really means a lot.
 
Saying lots of prayers for Allyson! What a strong little girl!
 
My continued thoughts and prayers for her. And {{{hugs}}} for you.
 

next report I want to here there doing surgery
 
Thanks for the update. She is in my thoughts and prayers. May they chemo & radiation do the job they are meant to do.

You might check with your sister and ask if the Blood Centers anywhere would take donations. Often you can designate the donation where ever you are.
 
Please know that your niece is in my prayers.
 
Hoping things continue to go well for Allyson, TL. Good to hear she is upbeat in her attitudes, so important in the overall recovery process. She and her family remain in my prayers. Again, thanks.
 
Thank you so much for the update. I will continue to keep her in my thoughts and prayers.
Lisa
 
Thanks for the update Debbi, she has always been in my prayers and will continue to be until she's cancer free. She's a trooper and she will beat this thing! {{{{{{{hugs}}}}}}}}
 
All my best for Allyson and your family.



Tamie
 
Hugs and prayers to your whole family. What a trooper Allyson is. A good attitude is so important with this disease.
 
My heart goes out to your family Debbi. I hope your niece beats this ugly illness. I'm sure they're all very exhausted. Cancer takes a lot out of your soul. Best wishes to your dear niece.
 
I will be praying for Allyson and her family. Allyson is a real trooper and I know she can beat this. {{{HUGS}}}
 
It is so upsetting to hear about cancer and children. Hugs and prayers for Allyson, you, and the entire family.

Melinda
 
Thank you all so very much.

Originally posted by janette
You might check with your sister and ask if the Blood Centers anywhere would take donations. Often you can designate the donation where ever you are.

We have already looked into this and the only place that will accept on her behalf is Sloane Kettering. They will however take any blood type, even if it isn't compatible and give Allyson a credit.

You guess are awesome.
 
A huge burden for such a young girl. I pray that the chemo and radiation irradicate all vestiges of this cancer.

Thanks for the update about Allyson.
 

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