The THYROID Thread

[ElizK]

My prescription was changed to Levothyroxine 75mcg (it was 25mcg). How long should it take before I notice a difference? I feel like I'm wading in chest-high water. Every movement is that much effort.

 

[es45]

My prescription was changed to Levothyroxine 75mcg (it was 25mcg). How long should it take before I notice a difference? I feel like I'm wading in chest-high water. Every movement is that much effort.

It seems like everyone is different, but for me it was about 1.5-2 weeks before I noticed a difference.

Hope you feel better soon; I remember that feeling all too well....

 

[luvmarypoppins]

Just a little update. The endo called with my blood test results and Praise God she said everything is looking GREAT! She wants me to do the bone density test and I dont have to have another blood test till september and then I will see her..and today the stomach surgeon said my stomach is doing well, just scar tissue, so I am really being blessed.

 

[es45]

Just a little update. The endo called with my blood test results and Praise God she said everything is looking GREAT! She wants me to do the bone density test and I dont have to have another blood test till september and then I will see her..and today the stomach surgeon said my stomach is doing well, just scar tissue, so I am really being blessed.

That's fantastic news!

 

[minniebeth]

Just a little update. The endo called with my blood test results and Praise God she said everything is looking GREAT! She wants me to do the bone density test and I dont have to have another blood test till september and then I will see her..and today the stomach surgeon said my stomach is doing well, just scar tissue, so I am really being blessed.

So happy to see a wonderful update, luvmarypoppins!

 

[mrsklamc]

JennZ- I'm so sorry, I didn't see your post before. I go here:

www.spencerberryfarm.com

Luvmarypoppins- I'm so glad you got great results!

I also take synthroid and just see an endo. There is a nuclear medicine dr. at the facility where I do the radioactive iodine but you don't really interact with him much.

 

[lizbaby007]

Well I have finally started to see my Thyroid level become more normal I still occasionally have a tightness in my throat and can feel the nodules. My doctor said the last ultrasound was good and that the nodules haven't changed. I was wondering even if that is the case if I should have a biopsy done? My doc has never seemed concerned by them so I always figured I shouldn't either.

In other fabulous news I have finally started to shed some of the weight I gained when this whole thyroid fiasco started. About 10 months ago I started taken a liquid B Complex (with B-12) . Mainly because the box said promotes Energy Metabolism. I swear within the first week I felt better than I had in a long time. I felt more energy and more alert. I told my doc about it and she said it wouldn't hurt me and if it makes me feel good then great. I only take a 1/2 dropper full 3-4 times a week but have lost 30lbs (without even changing my diet)!!!! It truly has been a blessing having more energy back and being able to feel a little more like my old self.

 

[mrsklamc]

Ok so I forget if I've asked this before but has anyone been on cytomel for several weeks or has everyone done the thyrogen? Today was my last synthroid pill and I feel a little like I'm stepping off a cliff.

 

[polyforme]

O.K. so who has seen the thyroid thread on the cb about the sis and the healthy lifestyle, the pcp doing the care etc???

Hmm, I decided just to read right now and not comment.

So has anyone here changed their lifestyle. Honestly I havent. If I didnt have all the other physical stuff wrong with me I might have tried to exercise more, but now since the surgeon cut the nerve I cant use my L arm from the elbow up barely at all, so its probably less for sure.

I dont eat any differently either. Just the same as I always did. None of my drs. sugeon, endo etc. ever commented about lifestyle and diet etc. Have yours??

Also just curious as to who exactly "manages" your care and what that entails etc. For example I have a "team". Pretty nuch done with the surgeon part. Now I see the endo and rad. onc. about twice a year. The endo does the blood work quarterly and forwards it to the rad. onc. ONLY the rad. onc. decides when I am doing the diet, what type of scan I am having etc.

I guess I see that everyones case is different and everyone has different people managing their care etc. I guess I should be glad I have the 2 of them kind of tag teaming right now.

Do you feel comfortable/happy in how your care/case is managed?

Hi everyone-first time to this thread. I was diagnosed with graves disease about 9 years ago and have been on various medications ever since until my change in lifestyle. I weighed 170 and decided to try the zone diet- It isn't really a diet but more like knowing the right foods to eat in the right portions etc.
My husband helped a lot because he owns a crossfit gym and was very knowledgeable when it came to eating right.
I also got up at 5:30am and did a half hour of exercise-again with my husbands help. Several months later and 50lbs lighter I was off meds for the first time in 9 years and it has been 3 years and still no meds.
My endo as well never said anything about diet and exercise but I am now a firm believer in taking care of your body and you will be rewarded. Once I was through making excuses not to exercise and eat right my life changed for the good in so many ways!!!! Hopes this helps

 

[Christine]

Ok so I forget if I've asked this before but has anyone been on cytomel for several weeks or has everyone done the thyrogen? Today was my last synthroid pill and I feel a little like I'm stepping off a cliff.

I used Cytomel the last time I did a withdraw scan. It's pretty good stuff. I don't know what the directions are for you to take it. Many doctors just prescribe one tablet a day. This stuff is very short acting. You may want to cut your tablet into thirds and space it out over the day so you feel more "even."

 

[mrsklamc]

I used Cytomel the last time I did a withdraw scan. It's pretty good stuff. I don't know what the directions are for you to take it. Many doctors just prescribe one tablet a day. This stuff is very short acting. You may want to cut your tablet into thirds and space it out over the day so you feel more "even."

My dr prescribed 2 a day... Do you think I should still cut them up?

 

[es45]

Well I have finally started to see my Thyroid level become more normal I still occasionally have a tightness in my throat and can feel the nodules. My doctor said the last ultrasound was good and that the nodules haven't changed. I was wondering even if that is the case if I should have a biopsy done? My doc has never seemed concerned by them so I always figured I shouldn't either.

Great news about your levels! If you continue to be uncomfortable about the nodules, you could always request a biopsy.

In other fabulous news I have finally started to shed some of the weight I gained when this whole thyroid fiasco started. About 10 months ago I started taken a liquid B Complex (with B-12) . Mainly because the box said promotes Energy Metabolism. I swear within the first week I felt better than I had in a long time. I felt more energy and more alert. I told my doc about it and she said it wouldn't hurt me and if it makes me feel good then great. I only take a 1/2 dropper full 3-4 times a week but have lost 30lbs (without even changing my diet)!!!! It truly has been a blessing having more energy back and being able to feel a little more like my old self.

I regularly take B-12 too when the fatigue sets in for long periods. It really helps me get through it. Wow! 30 pounds; that's fantastic!

 

[es45]

My dr prescribed 2 a day... Do you think I should still cut them up?

When I was prescribed Cytomel, I took one in the morning and then one at 3 PM. You could always try Christine's suggestion about cutting them up, perhaps cutting them in half and taking it 4x daily, if your symptoms worsen.

 

[Christine]

My dr prescribed 2 a day... Do you think I should still cut them up?

See how you do on two a day. If you feel too "up and down", I would cut them and space them out over the day with the last one being at about 6-7PM depending on what time you go to bed.

 

[Christine]

When I was prescribed Cytomel, I took one in the morning and then one at 3 PM. You could always try Christine's suggestion about cutting them up, perhaps cutting them in half and taking it 4x daily, if your symptoms worsen.

I took one in the morning, one at lunch, and one at about 3PM. These were 5 mg tablets spaced out. I do go to bed very early so 3PM was good for me but if you stay up until 11:00 p.m. or so, you might need a later dose.

 

[mrsklamc]

I was wrong, I DON'T have to come off my meds, they give the thyrogen shots! I'm pretty sure that's good news

I was just thinking about you and wondering how you are doing?

 

[mcissel03]

I just happen to come across this and I am glad I did. I go tomorrow for a thyroid ultrasound. They fear I may have thryoid cancer I have battled cancer four times before and now this just blows.

Does the ultrasound hurt? Is it a lot of pressure on your throat/neck?

 

[mrsklamc]

I just happen to come across this and I am glad I did. I go tomorrow for a thyroid ultrasound. They fear I may have thryoid cancer I have battled cancer four times before and now this just blows.

Does the ultrasound hurt? Is it a lot of pressure on your throat/neck?

No, it didn't hurt at all. Started to seem like it was taking forever after awhile, but no pain.

 

[es45]

I just happen to come across this and I am glad I did. I go tomorrow for a thyroid ultrasound. They fear I may have thryoid cancer I have battled cancer four times before and now this just blows.

Does the ultrasound hurt? Is it a lot of pressure on your throat/neck?

The ultrasounds are painless and the pressure is not intense. Good luck with your test tomorrow.

 

[MariDisney]

I just happen to come across this and I am glad I did. I go tomorrow for a thyroid ultrasound. They fear I may have thryoid cancer I have battled cancer four times before and now this just blows.

Does the ultrasound hurt? Is it a lot of pressure on your throat/neck?

Just want to 2nd the idea that it doesn't hurt. I have a follow up ultrasound next Tuesday (they did a thyroidectomy for Graves Disease in Feb. and found cancer). You can feel them pressing, but it's not painful in any way. It feels more odd than anything else because it's just a strange place for them to be messing around with.