The THYROID Thread

[macraven]

hope the new dosage will make an improvement for you!

 

[tomatecerise]

I had follicular thyroid cancer 4 years ago, no Synthroid for My fist operation it was pure Hell. i was so weak at this Time! But now i am on My 5th year and cross My fingers...

My mass was so big Then i had difficulties to breathe and swallow. It was like the pipes under the sink, My orl show me. My first opération, 7 Hours. My second 3. No bed in adult section for My recovery, i was in pediatric section with giraffes and elephants on wall lol!

6 months after My second operation i had Iodine 131 200mg

 

[macraven]

I had follicular thyroid cancer 4 years ago, no Synthroid for My fist operation it was pure Hell. i was so weak at this Time! But now i am on My 5th year and cross My fingers...

My mass was so big Then i had difficulties to breathe and swallow. It was like the pipes under the sink, My orl show me. My first opération, 7 Hours. My second 3. No bed in adult section for My recovery, i was in pediatric section with giraffes and elephants on wall lol!

6 months after My second operation i had Iodine 131 200mg

hope all will continue to be fine for you.
in your 5th year you are good and wish you a forever of staying that way!

 

[luvmarypoppins]

Interesting reading today. I hope I get the link right. I am not good at this stuff. huffingtonpost.com/danielle-nicosia/cancerversary_b_775888.html?ncid=txtlnkusaolp000592

 

[luvmarypoppins]

Well when I clicked on the link its not the original article. might be somewhere else but she says its her 3 year cancerversary today and she also has so much other stuff too. She is a fighter. Never has had an undetectable test. She is active on thyca and other places and hates when people call it the good cancer. I am happy that thy ca is getting some press.

tomatecerise - glad you are doing well now. I had symptoms like that before surgery too. My tumor was crushing my trachea.

And in other news. My poor aunt broke her hip. She is not my blood relative but my moms best friend. She live in another state and it would be too hard for me to travel right now. My heart is so sad. I did talk to her on the phone. She is legally blind and also takes care of her dh who has alzheimers.
Its ds3 last day at the hosp. today. He is still waiting on the background check for he new hosp. and they told him his magazine cover from the comm. college has been made into a poster that was given to all the high schools out here. lol. We should ask for one of those.

 

[luvmarypoppins]

Where is everyone? Hope everyone is doing ok and check in when you can.

What was one of my pop up ads but none other than Sophia Vergara advertising Synthroid. lol.

I am exhausted. Its day 3 of teaching and I am so thankful that I have 4 adult helpers at times plus the two teenagers. We have a class of 20 kids and 2 of them are autistic and sometimes they are a handful. One has trouble focusing and the other one just constantly interrupts with questions and if you dont answer him the way he wants you to or expects what the answer is he wont stop asking or talking etc. We love all the kids but none of us are actually real teachers so we are trying to do what is best for everyone. But they really are sweet kids, just so many of them. God bless real teachers. I always have a heightened respect for them after I do this for a week.

Oh and in other news my dh has decided to take ds1 and ds3 to Hawaii next week. He said his boss said he has to use some of his vacation days. Right now there is not a dog leash big enough to get dh out of the dog house he is in. I did tell him what the honey do list around the house is, but I am not holding my breath on any of it getting done. I told him since he has to use so much vacation time then just pencil me in for some scans, blood tests and drs. appts. too. lol. Yup, nothing like spending quality time together, lol.

 

[squeegee]

Where is everyone? Hope everyone is doing ok and check in when you can.

What was one of my pop up ads but none other than Sophia Vergara advertising Synthroid. lol.

I am exhausted. Its day 3 of teaching and I am so thankful that I have 4 adult helpers at times plus the two teenagers. We have a class of 20 kids and 2 of them are autistic and sometimes they are a handful. One has trouble focusing and the other one just constantly interrupts with questions and if you dont answer him the way he wants you to or expects what the answer is he wont stop asking or talking etc. We love all the kids but none of us are actually real teachers so we are trying to do what is best for everyone. But they really are sweet kids, just so many of them. God bless real teachers. I always have a heightened respect for them after I do this for a week.

Oh and in other news my dh has decided to take ds1 and ds3 to Hawaii next week. He said his boss said he has to use some of his vacation days. Right now there is not a dog leash big enough to get dh out of the dog house he is in. I did tell him what the honey do list around the house is, but I am not holding my breath on any of it getting done. I told him since he has to use so much vacation time then just pencil me in for some scans, blood tests and drs. appts. too. lol. Yup, nothing like spending quality time together, lol.

Doing alright, here, just been exceedingly busy. Got a promotion at work and have not been getting home until bedtime. Lol.

I think if my DH tried to go to Hawaii without me, he'd be in biiiig trouble, too.

 

[SingingMom]

All is well here. Back from Central Europe ABD, DD had her bottom wisdom teeth pulled Tuesday and is doing fine. Starting to get her ready for her DCP internship - we 'lol be taking the Autotrain so she can have her car. DH and I are staying a week, plus a weekend, to settle her in and then stay for my birthday before we fly back.
Deciding what to pack - she'll just take some clothes now and if she gets hired after internship is over in January, we'll have to reevaluate! I'm planning at least three more trips to WDW to see her!!

 

[Christine]

Hi everyone, hope all is well. SingingMom, I am envying your trip. I took the Autotrain as a child--not sure I'd do it again but it certainly serves it purpose for getting the car there. I live about 20 minutes from the Autotrain station so if you are spending anytime around there killing time and are looking for some recommendations on things to do close by, let me know!

I keep trying to plan a "quick trip" to Disney with at least ONE of my kids but they are working and no one can find the time. I feel like singing that Cats in the Cradle song!

So, thyroid issues: Last fall (and I think I posted about this), I started having severe hot flashes only at night. Chalked it up to perimenopause (I am 51). Felt fine otherwise. I decided to back off my thyroid medication because I hadn't really slept in 6 week. Lo and behold, after a week, the hot flashes were totally gone. I kept a the lower dose for several months. My TSH was running about 1.5 or so. Then this past March, I decided to try to lose some weight. It wasn't going very well so I decided to go back to my old dose. The weight did start dropping (although I must admit I went "lower" carb at the same time) and I seemed to be tolerating that higher dose very well. So I think I've been back on that higher dose for about 4 months. The only thing I noticed was some random heart palps when things would get stressful. I'm used to those so no big deal. Then, about 2 weeks ago, the hot flashes at night started again. I finally had to cut my dose again this past Wednesday. I was really trying to hold out on this dose (with the hot flashes) to see where my TSH was. I have a doctor's appointment on August 3rd, but I couldn't do it. Lack of sleep got to me. Last time I was hot flashing, my TSH wasn't overly alarming but, IMO, my Free T4 was way too high. Higher than I've ever seen it.

I'm starting to wonder if it's something with the newly reformulated Levoxyl that I started back on in 2014. But I think if it were the meds, it wouldn't take so long for me to get the hot flash stuff. It's probably ME and my changing hormones affecting the stability of the medication. It's so weird because for 20 years I've have been SO stable. Anyway, I am going to discuss it all with my doctor in 2 weeks and maybe I'll change brands, but that's pretty disrupting too. I had a hellacious year when Levoxyl was pulled from the market. Uuughhh.

Hope everyone else is doing well. I love summer but I'm not happy with this weird, rainy cloudy weather.

 

[luvmarypoppins]

singing mom - I would love to hear about your trip and I think the auto train is a great idea.

Christine - I hope your med issues can get straightened out and that you get to a good level that you are comfortable with and that your endo visit goes well. Also hope you are able to sell the car. We always just usually run them into the ground and then donate them not including the one van that was totaled by the girl on the cell phone.

Well nothing too much new. Except for the usual bruises. At least they are not big and I see about 4 of them so far so that is good. A sweet elderly man from my church passed away yest. I guess ds2 and I will go to the viewing if it works out. Poor ds3 background check finally came through. She said she never saw one so long in her life. So now she said he might not make the orientation deadline and might have to start work in Sept. so one month with no income, sigh. Also he is going to ask if they are still going to assign him to the floor he interviewed on or will he be assigned somewhere else. We shall see.

Dh and ds1 and ds3 leave 3am on thursday morning. Just heard the baggage handlers are going n strike. Hope its not at their airline and ds3 is getting a surfing lesson from my cousins son who just moved to Hawaii. That should be fun. Its actually from his company that he works for. Ds is paying for it.

 

[SingingMom]

singing mom - I would love to hear about your trip and I think the auto train is a great idea.

Christine - I hope your med issues can get straightened out and that you get to a good level that you are comfortable with and that your endo visit goes well. Also hope you are able to sell the car. We always just usually run them into the ground and then donate them not including the one van that was totaled by the girl on the cell phone.

Well nothing too much new. Except for the usual bruises. At least they are not big and I see about 4 of them so far so that is good. A sweet elderly man from my church passed away yest. I guess ds2 and I will go to the viewing if it works out. Poor ds3 background check finally came through. She said she never saw one so long in her life. So now she said he might not make the orientation deadline and might have to start work in Sept. so one month with no income, sigh. Also he is going to ask if they are still going to assign him to the floor he interviewed on or will he be assigned somewhere else. We shall see.

Dh and ds1 and ds3 leave 3am on thursday morning. Just heard the baggage handlers are going n strike. Hope its not at their airline and ds3 is getting a surfing lesson from my cousins son who just moved to Hawaii. That should be fun. Its actually from his company that he works for. Ds is paying for it.

DD and DH took a surfing lesson last August for her 21st birthday. She LOVED it!!! Very good too, for her first try! The instructor was very impressed! DH did ok - said it was a lot harder than he anticipated, was happy he tried, and doesn't need to do it again. LOL

Our trip was wonderful! I'm doing a little trip report sort of thing on the Adventures by Disney forum - the title is Central Europe-Live. I started it "live", but we were too busy and wifi was spotty, so I've been updating as I get a chance! Right now I'm trying to wrap my brain around my DD leaving for her DCP internship. I hate the thought of the autotrain, because I just want to BE THERE, but we want her to have her car and we are NOT driving all the way to Florida! Virginia is far enough!

I am going to miss my little girl so much!!

 

[1Grumpy9]

A little update on the parathyroid hormone I have been taking now for a little over a month...I have been having regular bloodwork done to get my numbers back to a normal range. After upping my dosage mcg, I had bloodwork done last week and my Endo called me to let me know that my blood calcium is in the normal range!!! I have been fighting this now for 8 yrs and this is the first time I haven't had a symptom in 8 yrs. It is very weird not having a low and my nose and cheeks tingle, but it is a good weird. My endo also said that I can start backing off the calcium/vitamin D pills that I was taking with the injection. I am hoping that I can be off of them completely by the end of the year.

I have found that with this injection, I have picked some bad spots on the top of my thigh. I look like I am beating myself up with the bruises on my legs. I would hit a bad spot and it would bruise. Oh well...if that is the only problem I have...I will take it!!

 

[macraven]

i am so far behind on this thread, don't know where to start to visit with all that has posted.

i haven't been getting my email notices when a post has been made here.
went to the main board to find the thyroid thread.

now that i am wiser on connecting here, i won't be absent much longer..


hope all of you are hanging in there and feeling better.
i was due to have labs done 2 months ago for the thyroid testing levels and put it off.

i best do it soon or my endo won't renew my script......
i think my dosage is too low as i am feeling like a blob now.
hopefully, i can get the labs done one day next week.

enjoy the weekend and trip planning for those going to the motherland and places elsewhere in the world.

 

[luvmarypoppins]

singing mom - I enjoyed reading your trip report so far. It sounds like you were fun and busy! Sounds like ABD schedules and plans things well.

1Grumpy - so glad to hear the new med is helping you

macraven - I hope you are able to get the labs done. I know its not your favorite thing to do. You should treat yourself to something after you are done.

Christine - are you reading anything good? I just finished a cozy mystery and then an amish novella. I dont know what I will pick next. I have quite a pile that I have won lately. Hope you get the car sold too!

Well lets see whats new... my endo visit is in sept. and she likes my tests done before that so its august next week and then I have the vascular surgeon in Sept. and what do I get in the mail, a notice for jury duty, not the regular kind, no its the grand jury one, agh,agh, and more agh!! It says its for 4 weeks or more. I dont want to postpone it, I just want to get it over with. I am just showing up with the wheelchair because I will need it to walk and put my foot up. It should be an interesting time for sure. I will def. need a disney vacation after all of this!!

And since I got that notice I decided to at least get the sonogram done, so I am doing that next tues. The blood test I can do on a week end if need be.

The happy wanderers return from paradise tomm. Lol. I am happy they got to spend time with their cousin well its like 2nd cousin to them I think. Dh hurt his foot stepping on coral and he said ds3 fixed it up. Hope its ok. One other good thing was while they were there ds1 said he got a call back from a company he already had an interview at and they want him to come again for another interview. They originally told him it was between him and 4 other candidates, so I am praying for sure!! Ds3 missed the orientation deadline, so now he cantstart until Sept.10th I think but they are having him on the same floor so that is good I guess.

Hope everyone is doing ok. Check in when you can.

 

[bababear_50]

Hi
My name is Mel
Guess i am feeling sorry for myself today and am looking to share and maybe find someone who has experienced some of the things I've gone through and am going through.

Background,,20o4 multiple nodules found on the thyroid gland,,boy was I sick.
Hyperthyroidism Dx.
Muscle wasting, extreme heart pap,--I was given radioactive iodine. Lab test were lost and since I didn't know I needed replacement therapy after the radioactive iodine,, I never got put on anything for 3 month and by that time everyone was so scared I was going to die they were all blaming each other,,hell I just wanted someone to say sorry and give me the pills.
Hair loss and ,weight gain,skin issues--Hypo.
I don't have an endo as I found her to be a very poor doctor.
I have a new good family doctor whom I trust,,,this took alot of searching this past year.
I currently take levothyroxine 100mcg.

I feel like I'm getting old before my time,bone pain,aches,bones creaking and snapping,GERD, and
I could take a nap every afternoon if possible. This past week I experienced extreme pain in my throat and it hurt even more when I tried to inhale. The pain is worse when trying to lie down.
I am easily weepy,I can cry at a sad commercial.(This is just not me).
I had obvious signs of tendonitis in the rotator cuff (ultrasound,xray), yet I did nothing to cause this--no injury.
I saw a back-up doc today(mine is on Holidays) and she is sending me for a throat scan,somehow I feel like here we go again and I am not sure I have the strength to do this again.
So if this is the Parathyroid Glands acting up is there anything I can do the ease any of the symptoms? or does anyone have any thoughts?
Thank-you for listening.
Hugs Mel

 

[macraven]

Mel

hang in there....

someone will come along to answer your questions as others have experienced more than i have with the thyroid issue.
my only surgery has been the salivary glands but i am treated for hasimoto and on meds for that and the vitamin d deficiency.

i have not had any experience with the parathryroid glands.

rotator cuff i have experienced.
my left rotator cuff i had full should surgery to repair the r.c. and the snapped tendons.
months later, had the right side done but that one was not as bad.

some peeps use an endo others use the internist.
i did it both ways but was forced to go with the endo as internist could not help me anymore.
a good endo is hard to find and when you do, could be a 6 month wait before an appointment can be made.
i went through that myself.

i know you are suffering.
with hypo thyroid diagnosis, lots of us suffer from the tiredness, palps, weight gain, tears, etc.

you've come to the right place as many here can share with you.

 

[bababear_50]

Mel

hang in there....

someone will come along to answer your questions as others have experienced more than i have with the thyroid issue.
my only surgery has been the salivary glands but i am treated for hasimoto and on meds for that and the vitamin d deficiency.

i have not had any experience with the parathryroid glands.

rotator cuff i have experienced.
my left rotator cuff i had full should surgery to repair the r.c. and the snapped tendons.
months later, had the right side done but that one was not as bad.

some peeps use an endo others use the internist.
i did it both ways but was forced to go with the endo as internist could not help me anymore.
a good endo is hard to find and when you do, could be a 6 month wait before an appointment can be made.
i went through that myself.

i know you are suffering.
with hypo thyroid diagnosis, lots of us suffer from the tiredness, palps, weight gain, tears, etc.

you've come to the right place as many here can share with you.

Hi Hon
Thanks for the kind words of support.
Yeah I guess I am just very nervous about what they might find although that is stupid because I've always been a "lets figure this out and deal with it kind of person".
Just when I figured out everything I needed to know about the Thyroid I get something new to learn about (Parathyroid Glands).
Well nothing I can do about it until I call Monday for a scan appt and even then I'll have to wait for the test and then the results.
Maybe it's time for me to redirect my thoughts to xmas shopping in Aug,,lol,,,lol. which usually drives my family crazy. But I love shopping for xmas in the summer.
Thanks for caring
Hugs Mel

 

[Christine]

Mel,

This doesn't sound like a parathyroid gland issue to me. That mainly comes with tingling and muscle tetany.

It sounds to me as if you are still not fully medicated properly and are still hypothyroid. Do you know what your latest lab values are?

Also, if you remain hypothyroid for too long, you definitely get other issues happening such as low vitamin D and low iron which can make the hypo symptoms much worse. All of your symptoms sound like hypothyroidism to me, but I guess I could be wrong. Easy to pull/tear muscles for no reason when you are hypo.

 

[SingingMom]

Mel - sorry for all that you are going through. Try to see if you can find a good endocrinologist. They really are the best route. Thyroid trouble is more tricky than most realize I was just talking to an internist friend of mine last evening who said that thyroid trouble triggers so many different problems. Best of luck to you!

 

[bababear_50]

Mel,

This doesn't sound like a parathyroid gland issue to me. That mainly comes with tingling and muscle tetany.

It sounds to me as if you are still not fully medicated properly and are still hypothyroid. Do you know what your latest lab values are?

Also, if you remain hypothyroid for too long, you definitely get other issues happening such as low vitamin D and low iron which can make the hypo symptoms much worse. All of your symptoms sound like hypothyroidism to me, but I guess I could be wrong. Easy to pull/tear muscles for no reason when you are hypo.

Hi Hon
I will double check with my doc what my levels are,I guess I should inquire more often but perhaps mistakenly I leave it up to her to monitor.
Hugs
Mel