The THYROID Thread

[luvmarypoppins]

Well Sophia Vergara was on The View. They asked her about thy ca. She said she is the spokesperson for synthroid?? I thought she did a terrible job and barely said anything of interest. Ugh. She barely glazed over thy ca and didnt even describe any thyroid symptoms. She just said go see your dr. if things dont seem right? Maybe I missed something there?

Then she was on Katie today too. I think her endo was on with her? He did a good job but it was about thyroid health and did talk about cancer.

Guess its good to get any publicity on thy stuff that we can.

The dr. did say that drs. do not routinely check the thyroid and its so simple for them to do etc.

 

[angwill]

Well Sophia Vergara was on The View. They asked her about thy ca. She said she is the spokesperson for synthroid?? I thought she did a terrible job and barely said anything of interest. Ugh. She barely glazed over thy ca and didnt even describe any thyroid symptoms. She just said go see your dr. if things dont seem right? Maybe I missed something there?

Then she was on Katie today too. I think her endo was on with her? He did a good job but it was about thyroid health and did talk about cancer.

Guess its good to get any publicity on thy stuff that we can.

The dr. did say that drs. do not routinely check the thyroid and its so simple for them to do etc.

I have seen Sophia Vergara talk about thyroid issues before and she didn't have a clue what she was talking about then either. I think she just had it and had it removed and didn't bother to understand what it is all about. The drug company asked her to be a spokesperson since she is famous and she signed on for cash payment and just says yes I have this issue see your doctor and ask for synthroid. lol Maybe they need to send a doctor with her and just use her as the face and not the information? All I can say is I really wish I didn't have weight issues with my thyroid like she obviously doesn't have.

 

[angwill]

The first thing I would have you do is call the doctor's office and ask them for a copy of the lab results for your thyroid panel. If that's a hassle for some reason, just have them read you off the values for TSH and Free T4. I'd really like to know how hypothyroid you are before I could really comment on the dosage.

Having said that, I don't have a thyroid so when I don't have meds I get very, very hypo. For people with slow acting thyroids, 25 mcg is the usual starting dose and they work their way up. If you are very hypo, though, 50 mcg is not actually that bad.

Tirosint has none of the usual fillers and it absorbs well in most people. I took it for a few months last summer and did not do well on it as it kind of gave me bowel issues. I think the dose was to much for me or it was getting into my system too fast. So I had to stop. I didn't feel like cutting back my dose and experimenting.

You are most likely have a reaction to one of the dyes or fillers in the regular thyroid preparations. You should compare Synthroid and the generic brand you were taking (you can get all that info online) and see if you can pin it down to a specific filler. It's really important to know.

There are many people out there doing very well on Tirosint so that would be great if it works. Also know that as your body gets used to synthetic thyroid hormone, you may feel worse before you feel better. There is an adjustment period. If you don't get a rash or anything with Tirosint, try to give it 6 weeks, even if you don't feel great.

Just to add to what Christine wrote, after having thyroid surgery and going super hypo for my scan my endo put me on a very high dose of levothyroxine. He did it to get me back up to normal levels asap and my body did not have any problems going hyper which is the side effects you named with heart palps and such. The only way you will get those effects is if that 50mg is too high for your levels and you go hyper. Your lab results would help to now how hypo you are. If your numbers are high enough 50mg might be your starting point to get your numbers down and on track. HTH

 

[Christine]

I have seen Sophia Vergara talk about thyroid issues before and she didn't have a clue what she was talking about then either. I think she just had it and had it removed and didn't bother to understand what it is all about. The drug company asked her to be a spokesperson since she is famous and she signed on for cash payment and just says yes I have this issue see your doctor and ask for synthroid. lol Maybe they need to send a doctor with her and just use her as the face and not the information? All I can say is I really wish I didn't have weight issues with my thyroid like she obviously doesn't have.

Sophia Vergara had her thyroid out, I think, when she was 19. She is pushing 40 now. I bet she doesn't even remember it and follow on treatment has probably not been that aggressive for her if I remember correctly.

 

[luvmarypoppins]

Well I finally got an appt. for the reclast infusion for next wed.

Did I mention how I was having a problem with my knee. Its really painful and I have had to use my knee brace and a lot of pillows on the chairs I sit in so I dont bend it too much getting up and down.

Now today oldest ds went to the ortho because he was having hip and knee problems. The ortho wants him to have a hip replacement He is only 26. He says he thinks his knee problem is the result of the hip problem. Of course he is upset and not a wealth of information or understanding. They want him to get an mri of his knee and are pulling his old surgery records. The surgeon in the group who already operated on him has retired. I know that the surgeon took a picture of ds knee and put it in his chart during the surgery because e said he never saw anything like it in his life. The cartilage is all soft and should not be like that. I know there are def. genetic stuff going on here.

My head is spinning and my heart is hurting for my ds. He said the dr. did say if he got another opinion the surgeon would say the same thing. sigh.

 

[angwill]

LMP, I am so sorry that you got such bad news for your DS. That sounds so painful. I do hope he can get it fixed maybe with not such an aggressive surgery. This has to be awful for you son to think about. Will you get a second opinion?

Ang

Well I finally got an appt. for the reclast infusion for next wed.

Did I mention how I was having a problem with my knee. Its really painful and I have had to use my knee brace and a lot of pillows on the chairs I sit in so I dont bend it too much getting up and down.

Now today oldest ds went to the ortho because he was having hip and knee problems. The ortho wants him to have a hip replacement He is only 26. He says he thinks his knee problem is the result of the hip problem. Of course he is upset and not a wealth of information or understanding. They want him to get an mri of his knee and are pulling his old surgery records. The surgeon in the group who already operated on him has retired. I know that the surgeon took a picture of ds knee and put it in his chart during the surgery because e said he never saw anything like it in his life. The cartilage is all soft and should not be like that. I know there are def. genetic stuff going on here.

My head is spinning and my heart is hurting for my ds. He said the dr. did say if he got another opinion the surgeon would say the same thing. sigh.

 

[mrsklamc]

Hi all, just wanted to say "Hi, I am here and still alive!" Lots of updates...will try to get back on later today and do that.

 

[chainkid]

Well I finally got an appt. for the reclast infusion for next wed.

Did I mention how I was having a problem with my knee. Its really painful and I have had to use my knee brace and a lot of pillows on the chairs I sit in so I dont bend it too much getting up and down.

Now today oldest ds went to the ortho because he was having hip and knee problems. The ortho wants him to have a hip replacement He is only 26. He says he thinks his knee problem is the result of the hip problem. Of course he is upset and not a wealth of information or understanding. They want him to get an mri of his knee and are pulling his old surgery records. The surgeon in the group who already operated on him has retired. I know that the surgeon took a picture of ds knee and put it in his chart during the surgery because e said he never saw anything like it in his life. The cartilage is all soft and should not be like that. I know there are def. genetic stuff going on here.

My head is spinning and my heart is hurting for my ds. He said the dr. did say if he got another opinion the surgeon would say the same thing. sigh.

I had a double hip replacement two years ago after suffering many years of crippling knee pain. I no longer have any knee pain at all and the hips feel normal. The operation for me was a piece of cake and i had each one done about 6 months apart. I initailly went to surgeon for my knees and he said to get my hips first and if I then had the same problems then I could get a knee replacement. Well I do not need one now so your SR is not blowing smoke. Hip operations today are much better than in the past and the implants last alot longer. I have lots of other problems like thyroid and breat cancer as well as diabetes but still sailed thru this and only wish i hadn't waited so long. Being pain free when walking is a true life changer

 

[mrsklamc]

LMP I am sorry to hear that about your son but I hope it helps him..

My baby boy is doing pretty well considering the DS... he has small holes in his heart that the cardiologist thinks will heal on their own, some mild to moderate hearing loss that hopefully will improve as his tiny little ear canals grow, and overall muscle weakness that is typical of down syndrome.

He's a sweet, snuggly boy and I love being his mommy.

So now it's time for Thyrogen again....copay is $2700! Caremark says there may be some assistance in the form of a grant...we'll see I guess.

 

[angwill]

LMP I am sorry to hear that about your son but I hope it helps him..

My baby boy is doing pretty well considering the DS... he has small holes in his heart that the cardiologist thinks will heal on their own, some mild to moderate hearing loss that hopefully will improve as his tiny little ear canals grow, and overall muscle weakness that is typical of down syndrome.

He's a sweet, snuggly boy and I love being his mommy.

So now it's time for Thyrogen again....copay is $2700! Caremark says there may be some assistance in the form of a grant...we'll see I guess.

It is so wonderful finally hearing about your sweet baby boy. He sounds like a little angel. I hope all those issues he has all resolve themselves and he will forever be healthy and happy.

 

[mrsklamc]

Thank you!! And I cleaned out my full inbox.

 

[luvmarypoppins]

Micayla - I am doing a post just for you! Your little boy sounds like a wonderful little blessing! Enjoy every minute with him.

Happy lst Mothers Day!!!!

 

[luvmarypoppins]

Micayla - Are you just having to do a thyrogen only scan and no lid???

Do you have any kind of precautions with the baby??

I hope you get a nice clean scan for sure!!!

I had the reclast infusion yest. Had ds3 our almost nurse take me. I do that so he learns more plus listens about jobs etc. Heah, you gotta network alot these days. The only side effect I am having now is the bone pain. Its not that bad. Last night my R jaw popped really loud twice for no reason. Scared even dh. I did notice that the pain is only where my bones are already giving me pain and are a problem already etc. The nurse did say to take tylenol if needed.

Mon. I am going to the eye dr. I am a little worried about that. Dh and I havent been there in 4 years. I dont know if the dr. was preoccupied. She was just coming back from a leave and chemo for her ovarian cancer. She is a fighter and has had a for a long time.

But she misdiagnosed my scarred tear duct etc. I just hope she gets the eyes right and I am going to mention the tear duct to her.
Whats everyone doing for Mothers Day? We are going to church and I asked the ds to cook a brunch and a bbq for dinner. One ds mght have to work, we shall see.

Check in when you can.

 

[SingingMom]

Happy Mother's Day to all! I have been busy as musical director for our parochial school's production of "Peter Pan Jr". The director has decided he needs my voice to add some meat to the singing, so I get to dress up like a pirate and sing along. Lol Show is next Thursday & Friday. Dd20, who is a theatre major and future hopeful Disney cast member, had been helping coach Tinkerbell and Peter. Lots of fun.

"SingingMom" ....Sent from my iPad using DISBoards

 

[angwill]

Glad things went well for you with the reclast infusion. Except for that pain that I do hope is only temporary.

Good luck with the eye doctor. It is usually best to warn the doc about things going on.

I was talking to the head of my hospital's nuclear medicine department and asked him why they don't do the low sodium diet. He said they do not have a problem with enough RAI being taken into the tissues during treatment. He claims that the thyroid is made to take it up and he doesn't feel there is a need to deplete it of iodine. I asked about with the scans and he said they have no problem seeing the excess tissue, cells as well as the trac through the body that the tracer dose makes without the diet. Then he teased me and said if I want to torture myself more by going on the diet to go ahead and do it.

He actually reminds me of the absent minded genius. He told me of tests he has done with certain patients sending them all home with the tags they use for those who work around the radioactive iodine for everyone in the family including the dog. He wanted to see how much radiation they were exposed to after the thyroid patient went home after treatment. He said test after test showed that family is as effected as the healthcare workers and in his words that is not at all. I find him interesting but almost think he does his own thing based on his own opinions and testing vs reading what the experts suggest and do. I don't know where I stand on it after what I have researched vs what he has to say about it all.

Happy Mother's day to everyone!!!!

Micayla - Are you just having to do a thyrogen only scan and no lid???

Do you have any kind of precautions with the baby??

I hope you get a nice clean scan for sure!!!

I had the reclast infusion yest. Had ds3 our almost nurse take me. I do that so he learns more plus listens about jobs etc. Heah, you gotta network alot these days. The only side effect I am having now is the bone pain. Its not that bad. Last night my R jaw popped really loud twice for no reason. Scared even dh. I did notice that the pain is only where my bones are already giving me pain and are a problem already etc. The nurse did say to take tylenol if needed.

Mon. I am going to the eye dr. I am a little worried about that. Dh and I havent been there in 4 years. I dont know if the dr. was preoccupied. She was just coming back from a leave and chemo for her ovarian cancer. She is a fighter and has had a for a long time.

But she misdiagnosed my scarred tear duct etc. I just hope she gets the eyes right and I am going to mention the tear duct to her.
Whats everyone doing for Mothers Day? We are going to church and I asked the ds to cook a brunch and a bbq for dinner. One ds mght have to work, we shall see.

Check in when you can.

 

[angwill]

Happy Mother's Day to all! I have been busy as musical director for our parochial school's production of "Peter Pan Jr". The director has decided he needs my voice to add some meat to the singing, so I get to dress up like a pirate and sing along. Lol Show is next Thursday & Friday. Dd20, who is a theatre major and future hopeful Disney cast member, had been helping coach Tinkerbell and Peter. Lots of fun.

"SingingMom" ....Sent from my iPad using DISBoards

Happy Mother's day. That is wonderful that you are doing the Peter Pan musical. Weren't you the lady who had a problem with your vocal cords after thyroid cancer? If so that is wonderful that you are able to still sing. It sounds like a lot of fun.

 

[SingingMom]

Happy Mother's day. That is wonderful that you are doing the Peter Pan musical. Weren't you the lady who had a problem with your vocal cords after thyroid cancer? If so that is wonderful that you are able to still sing. It sounds like a lot of fun.

I was very blessed that I had an excellent surgeon who was very aware of my being a singer. Lots of surgeon skill and lots of prayer and I never had any problems. I actually sang stronger afterwards! That was my initial fear - not that I had cancer, but that I might not be able to sing again. God is good! ;-)

I have heard of people who have suffered from vocal chord paralysis, etc. thankfully, I didn't experience any problems! I DID have to refrain from singing for two months. that was hard for me! Lol

"SingingMom" ....Sent from my iPad using DISBoards

 

[3DisneyBuggs]

Hope all are doing well here. I had a 6 month follow up on my nodule today. The last FNA I had showed inconclusive so they did genetic testing and it came back benign. My ultrasound today showed it grew by 1 cm. So another biopsy was done ouch. Now I wait and worry- last time it was 2 weeks for the regular biopsy results. The Dr said there was no blodd supply and no calcifications on the nodule. My aunt and cousin had thyroid nodule removed tears ago so Im wondering if they are hereditary. Not sure what to expect from the results.Thanks for reading and Happy Mothers Day.

 

[angwill]

Singing Mom,
That is such a blessing that your voice was not touched except a bit of improvement. There is someone I have talked to in the past that was a singer and was devistated when they lost their singing voice. I am so glad that didn't happen with you. I am not a professional singer but like to sing at home and was worried about losing that ability too.

3disneybugs,
Thyroid issues are hereditary. Do you know if your family that had the nodules removed had benign tumors too?

You are in the worst stage of having a nodule, the waiting stage. It's horrible and all of us here have been there. I do hope it all comes out benign and stops growing forever. Unfortunately, it is something you will still have at the back of your head unless it is removed.
Happy mothers day to you too. Let us know how it goes.

Ang

 

[Nora03]

Hi
I haven't been on here for awhile. I had another ultrasound in early April and the doctor determined that I didn't need a biopsy as the nodules are small and had not grown. (My thyroid is multi-nodular.) So, I'm pretty happy with that. I will have an annual ultrasound and he said that if the nodules grow then he recommends surgery to remove the thyroid. So, right now I'm okay with waiting. I've managed to put it out of my mind as long as it is monitored.

Good luck to everyone on here and Happy Mother's Day!