The DDA Trouble Free Zone Part 7

[Tammi67]

Hey scrapbookers....have you seen the new Disney Creative Memories products for May

 

[UP Disney]

Hey scrapbookers....have you seen the new Disney Creative Memories products for May

Ooh, don't tempt me. Can you see them on-line or do you have to know a consultant?

 

[tink2020]

How many times do I have to say... they're called OPAL FRUITS... not starbursts!!!

Global branding chews up opal fruits

Hmm.... I LOVE Starburst. Maybe I'll have to go see if Jungle Jim's has these!

 

[babytrees]

The doctor just called with the results from all his tests. It is a mixed bag. Rees refluxed 22 times during the 48 hour period. He shouldn't reflux at all with the Fundo, so the reflux is breaking through. The doctor said he feels that it is borderline with what to do. He would prefer to hold off on surgery until Rees is older, so that the Fundo would hopefully last through adulthood. The Fundo tends to break down as kids grow, so the longer you can wait the better. So the good news is he will not have surgery immediately. But the bad news is that there is a problem again. We will try to manage it with diet and medicine until the point that doesn't work anymore. We are to watch Rees for failure to gain weight, asthma attacks, pneumonia, and episodes of vomiting/retching. I'm glad we know what is going on now, but I feel like we are caught in the middle at this point. So, I'm kind of happy, but not at the same time. It's hard to explain. I guess we're in limbo.

I appreciate so much everyone's prayers.

Limbo is not the place to be!!
Hopefully the surgery can wait a good long while!!
Enjoy planning your trip now!!

 

[babytrees]

Hey scrapbookers....have you seen the new Disney Creative Memories products for May

My consultant tried to tempt me....I quickly closed her email!!

 

[Tammi67]

Ooh, don't tempt me. Can you see them on-line or do you have to know a consultant?

My consultant has them on her cm website. If you can't view them through the main site, let me know and I will send you her link.

 

[tink2020]

The doctor just called with the results from all his tests. It is a mixed bag. Rees refluxed 22 times during the 48 hour period. He shouldn't reflux at all with the Fundo, so the reflux is breaking through. The doctor said he feels that it is borderline with what to do. He would prefer to hold off on surgery until Rees is older, so that the Fundo would hopefully last through adulthood. The Fundo tends to break down as kids grow, so the longer you can wait the better. So the good news is he will not have surgery immediately. But the bad news is that there is a problem again. We will try to manage it with diet and medicine until the point that doesn't work anymore. We are to watch Rees for failure to gain weight, asthma attacks, pneumonia, and episodes of vomiting/retching. I'm glad we know what is going on now, but I feel like we are caught in the middle at this point. So, I'm kind of happy, but not at the same time. It's hard to explain. I guess we're in limbo.

I appreciate so much everyone's prayers.

Well, I'm glad he finally called and gave you SOME answers. I hope that the medication+diet regimen is enough to get you guys through with as little suffering as possible until Rees gets a bit older. You are always in our prayers!

 

[Pooh67_68]

The doctor just called with the results from all his tests. It is a mixed bag. Rees refluxed 22 times during the 48 hour period. He shouldn't reflux at all with the Fundo, so the reflux is breaking through. The doctor said he feels that it is borderline with what to do. He would prefer to hold off on surgery until Rees is older, so that the Fundo would hopefully last through adulthood. The Fundo tends to break down as kids grow, so the longer you can wait the better. So the good news is he will not have surgery immediately. But the bad news is that there is a problem again. We will try to manage it with diet and medicine until the point that doesn't work anymore. We are to watch Rees for failure to gain weight, asthma attacks, pneumonia, and episodes of vomiting/retching. I'm glad we know what is going on now, but I feel like we are caught in the middle at this point. So, I'm kind of happy, but not at the same time. It's hard to explain. I guess we're in limbo.

I appreciate so much everyone's prayers.

 

[Tammi67]

What in the H E you know what is going on with this site????

Is anyone getting the extremely annoying "page cannot be displayed" message over and over again. It seems to be only happening on the dis for me. Other internet sites are operating normal.

 

[Tinkaroo]

My consultant has them on her cm website. If you can't view them through the main site, let me know and I will send you her link.

Tammi, if you'd send me the link, that would be great! I'm looking to make my nieces autograph books when they go with us in 2007, and I saw someone's (what I'm guessing was a CM product) book in March that I really liked. I want it to be extra special for them - it will probably be part of their early Christmas present from us that year.

 

[UP Disney]

My consultant tried to tempt me....I quickly closed her email!!

I looked them up online. I have to say that the Mickey album would be great for Pal Mickey's DDA adventure!

 

[triplefigs]

thanks for the good wishes. I am totally depressed. Knowing he is refluxing again is horrible. He literally almost died from it the first time around, so for this to be starting again is making me sick. John is very upset with the results too. Having it be "medium" was our worst fear. Yes, it is bad, but we won't fix it with surgery. The first time, it took us almost 2 years of agony, hospitalizations, etc to convince the doc to do the Fundo surgery. He is one of those that surgery is absolutely the last resort and will try anything and everything else first. After the Fundo, Rees was a different child and it was a complete success! So now, I'm worried he's "playing" us again and will make us try everything else under the sun before redoing the surgery.

I've actually contacted my good friend who has a personal friend that is a Peds GI doc and surgeon down at Emory University Med School. Last time, he suggested the Fundo a year before we got it. I'll be interested to hear his opinion. John and I both think there is more to this than the tests showed. I think my mom instinct has kicked in. I'm worried, and I don't know why. Thanks for listening to me ramble. I know I should think this is good news, but I just feel like something is amiss.

 

[UP Disney]

What in the H E you know what is going on with this site????

Is anyone getting the extremely annoying "page cannot be displayed" message over and over again. It seems to be only happening on the dis for me. Other internet sites are operating normal.

It only happened to me once. It was acting strange for about 15 minutes in many ways though.

 

[tmfranlk]

Have y'all seen the new Disney gift card?
http://disney.go.com/disneygiftcard/index.html

I have SO been waiting for this to happen! I got so excited when I saw rumor of it a year or so ago. Guess what I am asking for or my birthday!

 

[tmfranlk]

Hey

the doctor has no idea what is going on and decided to send Nick for a CT Scan - so we headed to Children's Hospital and he was uncooperative and freaked when they put him in the machine so he will have to be sedated - unfortunately he had eaten a few hours before and he has to go 8 hours without eating - so we could wait until tonight to see when they could fit us in or go back tomorrow at 12:30

we decided to wait - I think it is good the doctor doesn't feel the test is urgent - and she told me she really does not expect the test to find anything but she really wants to rule out all the "yucky stuff: (her words) first

I am doing my best to keep the negative thoughts out - but they of course creep in every once in a while

she told me obviously the first concern is a brain tumor with the symptoms - but he does not present as a child with a tumor - his motor skills and function is normal - but she would rather be safe than sorry

So I am in for a long 24 hours as I am sure I will not sleep well - please keep Nick in your prayers!!

and and prayers for Nick and you. I hope that they can find answers quickly that will keep him from further pain.

 

[UP Disney]

I was bummed because nothing looked good on TV. Then I flipped to the Travel channel and what is on. Walt Disney World : Behind the Scenes. Woohoo! Good tv!

 

[ellenbenny]

Hey

the doctor has no idea what is going on and decided to send Nick for a CT Scan - so we headed to Children's Hospital and he was uncooperative and freaked when they put him in the machine so he will have to be sedated - unfortunately he had eaten a few hours before and he has to go 8 hours without eating - so we could wait until tonight to see when they could fit us in or go back tomorrow at 12:30

we decided to wait - I think it is good the doctor doesn't feel the test is urgent - and she told me she really does not expect the test to find anything but she really wants to rule out all the "yucky stuff: (her words) first

I am doing my best to keep the negative thoughts out - but they of course creep in every once in a while

she told me obviously the first concern is a brain tumor with the symptoms - but he does not present as a child with a tumor - his motor skills and function is normal - but she would rather be safe than sorry

So I am in for a long 24 hours as I am sure I will not sleep well - please keep Nick in your prayers!!

Kate, You and Nick will be in my thoughts. While I really believe it won't be anything too serious, it definitely is not fun waiting for the test and the results. Prayers and PD for tomorrow.

Ellen

 

[tmfranlk]

The doctor just called with the results from all his tests. It is a mixed bag. Rees refluxed 22 times during the 48 hour period. He shouldn't reflux at all with the Fundo, so the reflux is breaking through. The doctor said he feels that it is borderline with what to do. He would prefer to hold off on surgery until Rees is older, so that the Fundo would hopefully last through adulthood. The Fundo tends to break down as kids grow, so the longer you can wait the better. So the good news is he will not have surgery immediately. But the bad news is that there is a problem again. We will try to manage it with diet and medicine until the point that doesn't work anymore. We are to watch Rees for failure to gain weight, asthma attacks, pneumonia, and episodes of vomiting/retching. I'm glad we know what is going on now, but I feel like we are caught in the middle at this point. So, I'm kind of happy, but not at the same time. It's hard to explain. I guess we're in limbo.

I appreciate so much everyone's prayers.

Denise. I wish the news was better, but I am glad to hear that the surgery can at least wait. If nothing else, maybe the longer it can wait the more comfortably Rees will be with the idea if and when it comes. Many prayers that diet and medication will be very effective and keep your sweet boy happy, healthy and comfortable for a long time to come.

 

[tmfranlk]

thanks for the good wishes. I am totally depressed. Knowing he is refluxing again is horrible. He literally almost died from it the first time around, so for this to be starting again is making me sick. John is very upset with the results too. Having it be "medium" was our worst fear. Yes, it is bad, but we won't fix it with surgery. The first time, it took us almost 2 years of agony, hospitalizations, etc to convince the doc to do the Fundo surgery. He is one of those that surgery is absolutely the last resort and will try anything and everything else first. After the Fundo, Rees was a different child and it was a complete success! So now, I'm worried he's "playing" us again and will make us try everything else under the sun before redoing the surgery.

I've actually contacted my good friend who has a personal friend that is a Peds GI doc and surgeon down at Emory University Med School. Last time, he suggested the Fundo a year before we got it. I'll be interested to hear his opinion. John and I both think there is more to this than the tests showed. I think my mom instinct has kicked in. I'm worried, and I don't know why. Thanks for listening to me ramble. I know I should think this is good news, but I just feel like something is amiss.

More after reading this as well, Denise. It sounds like you have a good friend available to offer some advice. I hope that he is able to give you some additional information that is helping. That mom-insinct of yours is amazing so I know that you will make what needs to happen happen.

 

[ellenbenny]

thanks for the good wishes. I am totally depressed. Knowing he is refluxing again is horrible. He literally almost died from it the first time around, so for this to be starting again is making me sick. John is very upset with the results too. Having it be "medium" was our worst fear. Yes, it is bad, but we won't fix it with surgery. The first time, it took us almost 2 years of agony, hospitalizations, etc to convince the doc to do the Fundo surgery. He is one of those that surgery is absolutely the last resort and will try anything and everything else first. After the Fundo, Rees was a different child and it was a complete success! So now, I'm worried he's "playing" us again and will make us try everything else under the sun before redoing the surgery.

I've actually contacted my good friend who has a personal friend that is a Peds GI doc and surgeon down at Emory University Med School. Last time, he suggested the Fundo a year before we got it. I'll be interested to hear his opinion. John and I both think there is more to this than the tests showed. I think my mom instinct has kicked in. I'm worried, and I don't know why. Thanks for listening to me ramble. I know I should think this is good news, but I just feel like something is amiss.

Denise, I am so sorry that you have to be in this limbo. I do think you are doing the right thing to ask a second opinion if your instinct is that the first doctor's approach might not be right. Continued wishes of Prayers, PD, and strength to you and your family.