Sister just diagnosed with seizer disorder

#1eeyoregirl

Loving Life, Family and everything Disney
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My sister out of the blue had a major seizure about a week ago and her doctor now has her on meds and has diagnosed her with a seizure disorder. We are all scheduled to go to Disney in 4 weeks (she says her doctor said it was still ok for her to go). My question is.....is there a good thread here or a website I can go to to find the restrictions for rides to know which ones she needs to avoid? TIA!!!
 
First read the stickies in this subforum.

You probably want her to find out what are the issues she needs to worry about.

Is it "What if she has a seizure in WDW?"
Then you need to find out about how first aid works at Disney.
Here is a blog entry about that: http://www.adventuresinfamilyhood.com/2013/08/how-to-handle-medical-emergencies-at.html

I would have her ask her doctor what types of situations she needs to avoid.
For example, Heat? Flashing lights? Getting too tired? Nothing?

This guide lets you know about aspects of rides that may be of interest:
https://wdpromedia.disney.go.com/me...ognitive-disabilities-services/wdw_matrix.pdf

Definitely have her talk to her doctor about what s/he things she should be aware of in Disney.
 

Sorry to hear of her recent challenges and a new diagnosis just before vacation. I hope she's feeling better now. Post #23 of the disABILITIES FAQs thread pinned near the top of this forum has information about rides with warnings, and post #24 is specifically about flashing lights. What are her triggers? She'll want to avoid, or take precautions to mitigate, any known triggers.

Enjoy your vacation!
 
LOL - Actually, I wrote most of the posts on the passporter thread you posted.

Sorry to hear of her recent challenges and a new diagnosis just before vacation. I hope she's feeling better now. Post #23 of the disABILITIES FAQs thread pinned near the top of this forum has information about rides with warnings, and post #24 is specifically about flashing lights. What are her triggers? She'll want to avoid, or take precautions to mitigate, any known triggers.

Enjoy your vacation!
As lanejudy mentioned, posts 23 and 24 of the disABILITIES FAQs thread have a lot of information.

This is the information copied from post 24:

Most people think of strobe lights when they think of seizures, but most people with seizures don't have any problems with strobe lights.
This is something to talk to your doctor with, but in for most people with epilepsy, the lights at WDW won't cause any problems.

Things that are very important to be aware of are sleep deprivation, dehydration and getting off schedule with medication. All of those things can lower the seizure threshold (how easy it is for a seizure to occur). It's very easy to get off schedule or forget medication while on vacation. One things we have found that helps with this is to actually use an individual dose medication container and an alarm (on our phone or iPod) as a reminder for medication times.

There are not actually any attractions at WDW that use lights that are technically strobe lights (i.e, fast, regular flashes of light) and they do not have any warnings for seizures and/or strobe lights on any attractions. Where they do have flashing lights, they are always irregularly flashing, which is a different situation.
Most true strobe lights flash many times per second, but slowing to 5 flashes per second or less means that the majority of even photosensitive epileptics are not going to have a problem. Only about 3-7% of people with epilepsy are photosensitive and have problems with lights; of those, only about 5% would have a problem with a light flashing 5 times per second or less.

If you do encounter flashing lights and are concerned, the Epilepsy Foundation recommends covering one eye and turning/looking away from the direct source of light. The reason for covering only one eye and looking away from the direct light is to prevent both eyes from sending exactly the same information to the brain.
This should work whether someone has a problem with epilepsy or has problems with lights for another reason.

This is a list of attractions I know of with light effects of some type. Many attractions have a single light or 2, so it is difficult to list all. But, I am sure that we have included most of them.
MK
  • Enchanted Tiki Room - periods of darkness with simulated lightning. The lightning is random and short.
  • Pirates - some lightning flashes in the first dark part of the ride. Some random flickering from simulated flames in the last half.
  • Big Thunder Mountain Rail Road - there are no light effects in this attraction, but if you are riding on a sunny day, you will go in and out of dark tunnels repeatedly at high speed.
  • Splash Mountain - on a sunny day, there are several places where you will go from dimly lit indoor areas to outdoor. The ride moves slowly, so the change is slow. There is a single bright flash when your picture is taken during the big drop.
  • Haunted Mansion - almost at the end of the preshow, there is a flash of lightning at the top of the ceiling. Boarding area includes flickering wall sconces.
  • Small World - the end scene includes numerous ropes of white lights that blink on and off in a regular pattern. I would describe it as a traveling pattern - as one light goes off, the next light in line goes on. So, the light travels down the strand of lights.
  • Buzz Lightyear - just before the last room of the ride, there is a long narrow tunnel room with swirling red lights and flashing white lights. The swirling and flashing are not rhythmic. The last room of the ride includes several very bright random flashes of white light.
  • Stitch's Great Escape - Most of this attraction takes place in the dark, but there are some random light flashes at times (while looking for Stitch)
  • Space Mountain - multiple flashing lights

Epcot
  • Spaceship Earth - the first part of the ride and the last part of the ride are dark, long and narrow.
    The entrance 'tunnel' has screens high on the wall, warning that your 'time capsule' will turn and descend at some point during the ride. The screens are bright compared to the walls.
    The exit tunnel has some lighting effects, but not flashes.
  • Ellen's Energy adventure - includes a movie where parts are dark and then light suddenly appears (the 'Big Bang' theory of earth's creation). Also includes a section with ‘confetti’ lights in different colors ‘falling’ from a point in the ceiling to the floor across guests.
  • Mission Space - Includes a flash of light for a picture and flashing instrument lights to alert ‘astronauts’ to push particular buttons. There are also small amber colored flashing alarm beacons at the end of the ‘runway’ when you are landing on Mars.
  • Test Track - the walls and ceiling in most of this attraction are black, with colored strips of light. On pictures they look like neon lights, but are probably fiberoptic lights. The lights do not move or flicker. There is one section where your car looks like it will run into a truck, which has suddenly turned its lights on. Soon after that, the car travels outside, so if the day is bright, you ill go into bright sunlight.
  • Living with the Land - simulated thunderstorm in the first few scenes. The first part of the attraction is dim; the second part is in a greenhouse, where the light can be a bit of a shock when you first enter. At one point, the boat enters a 'fish farm' part of the greenhouse, which has dim red lighting. After traveling thru that part, you will agin be in a greenhouse. The ride boat moves slowly though, so it is not difficult to adjust to the different lighting..
  • Soarin' - in the old movie (in case they ever show it again) One of the last scenes includes soaring over a city at night, over a highway. The headlights of cars are either white (headlights) or red (taillights) and are moving quickly. The end scene includes fireworks. In the new version of Soarin' there are some bright lights on the Eiffel Tower, which lead to one search light. There are fireworks at the end.
  • Journey into Your Imagination - Some flashes of light. One bright flash near the end where a picture used to be taken.
  • El Rio del Tiempo (Mexico) - fiber optic fireworks in the ceiling and wall in the last scene
  • American Adventure - the Chief Joseph sequence has a few stokes of lightning. The World War 2 sequence on a ship includes arcs of welding light.
Studio
  • Star Tours - flashes of light during the attraction (you are in a space ship and end up in a spaceship fight)
  • Voyage of the Little Mermaid - some flashing light, some twinkling lights and some pulsating blue/green laser lights above your head to simulate the top of the water. All are random
  • Rock N Roller Coaster - one bright flash of light during picture taking and random flashes of light as you 'drive' down the highway
  • Tower of Terror - one bright flash of light during picture taking. Elevator door opens suddenly to give a view of outdoors (so bright light on a sunny day). Some twinkling lights during the early part of the ride and I was too busy being scared and holding DD down to notice any more.
  • Frozen Sing Along - Includes some flashing lights/lights to simulate snow that moved/beamed across the stage and sometimes the audience.
  • Fantasmic - includes some bright flashes of white lights that beam across the audience, fireworks, 'eye lights' from dragon and snake. Many people are using light up toys which may be set on rapid flashing. Glow with the show ears change color in synch with the show. Most of the color changes are slow transitions.The ear part is translucent white plastic.
AK
  • Festival of the Lion King - one act includes twirling flaming sticks and there are some bright lights that beam across the theater. Most come from high and/or the ceiling, especially during the aerial act sequence. There are other random lights beaming as spotlights get into position to light different singers
  • Dinosaur - dark ride with sudden appearance of dinosaurs in front of you. Random flashes of light. One big flash as a picture is taken.
  • Expedition Everest - includes some bright light effects
My mother has migraines and finds that reflections off water (especially the World Showcase Lagoon) bother her on a very bright day. She also has problems sometimes with the 360 movies in China and Canada because they are all around.
 
My DD was diagnosed with epilepsy last year. She was 10 years old at the time. She was put on medication after her second known seizure. We had more time between diagnosis and our first trip. It was probably 6 months. She responded really well to her medication. We have been to Disney three times since, and we haven't had any issues at Disney. I make sure I carry medication with me at all times, so if we are out late, she still takes it at the right time. I also make sure she stays hydrated. I think we spent a ton of money on water on our last trip.

I know that it can vary drastically with each person, but she rides all the rides and hasn't had an issue. I tried to do an easy ride first to see how she did. She isn't bothered by 3D movies.

I still worry that she will have a seizure. We talk about how if she does, she is in a great place and we will probably see a different side of Disney.
 
I have seizures and have been to WDW many times and never had an issue. Just make sure your sister gets enough sleep, food and fluids. If there are flashing lights, have her look away or cover one eye. Seizures are no fun, but as long as you have meds that work and don't skip meals or sleep, it's a pretty normal life. Just as a side note, make sure that your sister tells her doctors that she has a seizure history and what meds she is on whenever she gets prescriptions for another illness. I was seizure free for over two decades and then two doctors in the last five years prescribed meds (antibiotics, pain killers) that cancelled out my anti-convulsants and caused me to have seizures again.
 
Re: Water

Walt Disney World counter service restaurants will give you a free cup of water (ask for a large cup!).
 












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