MommytoIsabel
Earning My Ears
- Joined
- May 27, 2012
- Messages
- 13
Hello All! I am planning a last minute trip for my daughter (14) and I during her spring break in Mid April. The last time we went to Disney was during her make a wish trip at 6 years old! Since I am last minute planning, I have a lot to figure out and try to coordinate to make this the best trip for her! My daughter has Autism (non verbal), developmental delays, Pulmonary Hypertension secondary to chronic lung disease, and a feeding tube. There are other things but these are the most impactful for this post!
I have downloaded the Disney guide for those with cognitive disabilities. It was really helpful and awesome to find that they included places to rest in the theme parks! The list included first aid stations as well.
My question is… Does anyone know if I might be able to bolus tube feed my daughter at a first aide station? I am assuming that the medical stations include an elevated bed (one you would normally see in a nurse’s office in a public school). Due to my daughter’s hyperactivity/comprehension/etc…, I am not able to feed her while she is sitting straight up. She needs to be at an incline so I am wondering what I might be able to do (or what other’s have done) at the parks. I am going to try and work the parks around her feedings as best as I can, but she is fed typically every three hours.
Thanks in advance!
I have downloaded the Disney guide for those with cognitive disabilities. It was really helpful and awesome to find that they included places to rest in the theme parks! The list included first aid stations as well.
My question is… Does anyone know if I might be able to bolus tube feed my daughter at a first aide station? I am assuming that the medical stations include an elevated bed (one you would normally see in a nurse’s office in a public school). Due to my daughter’s hyperactivity/comprehension/etc…, I am not able to feed her while she is sitting straight up. She needs to be at an incline so I am wondering what I might be able to do (or what other’s have done) at the parks. I am going to try and work the parks around her feedings as best as I can, but she is fed typically every three hours.
Thanks in advance!