Rachel will be visiting all the docs at Columbia tomorrow

[3kids4me]

Please wish us luck. She will be seeing three doctors in one day. If they all agree that she should get the treatment recommended by her current team of doctors, then the insurance company will pay for a trial. (Then we may have to go through more angst to keep the treatments going, but we'll see.)

I'm glad these visits will finally be over with. I hope we come to some resolution soon.

Incidentally, the only reason that the insurance company even agreed to this much was because of the pressure from the media and the politicians (Lieberman got over 200 letters on her behalf). So I want to thank those of you who sent letters and keep us in your thoughts tomorrow.

 

[suzanneb]

for Brave Little Rachel tomorrow. I do hope she and you get good news about the treatment.

 

[Buzz2001]

GOOD LUCK RACHEL & SHARON!

 

[Parkhopper]

Wishing you good luck and hoping all goes really well!!

 

[LynniethePooh]

Sharon
I have been praying my little heart out for Rachel and your family. Also for the doctors to make the right INTELLIGENT decision which will let Rachel have this trial.

I am so glad the media got involved!

HUGS

 

[lovingthemouse]

Amazing what the power of prayer, the media and the written word can do! We know that the doctors at Columbia will see that this medicine is what she needs to have a better quality of life.
Caroline

 

[atlnewf]

Good luck!

Ashley

 

[GrayFal]

Sharon, glad to hear the letter writting campaign went well - I have my fingers and toes crossed...keep us posted here and on TUG.

 

[JudithM]

Sharon, hope all went well yesterday for your family. I am glad to read the letter writing/email & media campaign paid off (at least for now). Please know we continue to think about you all & keep you all in our prayers.