Quadriplegic full time ventilator user.

promisehope

Earning My Ears
Joined
Apr 11, 2013
Messages
7
In June my boyfriend and I are going to Walt Disney World. We know that some rides he can be in his wheelchair for but we are wondering can he ride regular rides too... We are wondering has anybody has been allowed to transfer on slow rides with their ventilator?

Another question how does liquid meds work for airplanes. He has irrigation solution that has to be done daily to his catheter would there be any issue of bringing it. IF i have it in its regular bottle.
 
In June my boyfriend and I are going to Walt Disney World. We know that some rides he can be in his wheelchair for but we are wondering can he ride regular rides too... We are wondering has anybody has been allowed to transfer on slow rides with their ventilator?

Another question how does liquid meds work for airplanes. He has irrigation solution that has to be done daily to his catheter would there be any issue of bringing it. IF i have it in its regular bottle.

For Tsa you be fine going through with it for more info on that go to this page.

Here the Tsa.gov web site about liquid meds

http://www.tsa.gov/traveler-information/medically-necessary-liquids

Here is the main page for disabilities that give other info and a phone number to call of you want

http://www.tsa.gov/traveler-information/travelers-disabilities-and-medical-conditions
 
I know people have been able to get onto slow rides with their oxygen or portable concentrators, so if the vent is portable and can fit into the ride, I don't see why you can't bring the vent on.

There are some rides that cannot be stopped for loading - Peter Pan is one of them.

There are also some rides that have a maximum amount of time you have to load. I know which rides those are in DL, but not WDW off the top of my head. I know that for some of the big rides you have to transfer pretty fast, or the cars back up and the ride breaks down, but those are the big ones like BTMRR or Splash, which it does not sound like he is riding anyway.

I am not certain what his level of ability is, but most rides have almost no support to hold you up. I am concerned that as a quad, he may not be able to hold himself up in the seat. Most ride cars are a fairly shallow bench with no slope or pinch to them, and lap bars or seat belts really do nothing to hold you in the seat. I know there are others here who have similar experiences to yours, so they may have more info.
 
I know people have been able to get onto slow rides with their oxygen or portable concentrators, so if the vent is portable and can fit into the ride, I don't see why you can't bring the vent on.

There are some rides that cannot be stopped for loading - Peter Pan is one of them.

There are also some rides that have a maximum amount of time you have to load. I know which rides those are in DL, but not WDW off the top of my head. I know that for some of the big rides you have to transfer pretty fast, or the cars back up and the ride breaks down, but those are the big ones like BTMRR or Splash, which it does not sound like he is riding anyway.

I am not certain what his level of ability is, but most rides have almost no support to hold you up. I am concerned that as a quad, he may not be able to hold himself up in the seat. Most ride cars are a fairly shallow bench with no slope or pinch to them, and lap bars or seat belts really do nothing to hold you in the seat. I know there are others here who have similar experiences to yours, so they may have more info.
I would agree with the description of the seats.
Many are fairly shallow slippery plastic bench seats, so would be difficult to stay in place. And, most have fairly low seat backs, so no support.
My youngest DD has cerebral palsy and is a small (and light) adult. Most of the attractions where we need to transfer her are not very easy to do. There may not be space to stand to do a transfer or anywhere to hold onto when doing the transfer.

My signature has a link to a trip report by a poster named eternaldisneyfan that might be helpful to you.
She was a quadraplegic because of Muscular Dystrophy and was pretty much all the time vent dependent. Her family made a trip to WDW several years ago and she wrote a very nice trip report with great descriptions.
She had many pictures, but she has passed away recently and I am not sure if her family left her pictures on the hosting site or not. Some attractions have changed since her trip report (and many have been added).

It would also be helpful to know which attractions you are thinking of so we can give you more specific advice (and possibly pictures).
 

My boyfriend has good trunk support for sitting up right. I use a sliding board to transfer him and it only takes me a few minutes. thank you for all the helpful help so far
 
My signature has a link to a trip report by a poster named eternaldisneyfan that might be helpful to you.
She was a quadraplegic because of Muscular Dystrophy and was pretty much all the time vent dependent. Her family made a trip to WDW several years ago and she wrote a very nice trip report with great descriptions.

OT: Thank you for pointing this out. I never read signatures and would have missed this.

It's going to be so inspiring to read. The inner strength of some people amazes me.
 

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