tinytreasures
DIS Veteran
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- Oct 27, 2008
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what a sweet gift 
Princess Mya's MAW Trip Report: First Day and Going Away Party Posted 3/6/09
- Thread starter macntosh
- Start date
iu97alum
DIS Veteran
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- Jun 25, 2007
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jackskellingtonsgirl
DIS Legend
- Joined
- Nov 14, 2004
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Mac - What a pleasure it was to meet you and your beautiful family!! You never know who you will bump into at Target! 
I am looking forward to hearing more about the plans you have made for the trip! It sounds spectacular.
I am looking forward to hearing more about the plans you have made for the trip! It sounds spectacular.
macntosh
Wonders if the Tag Fairy is still around?
- Joined
- Sep 8, 2005
- Messages
- 1,376
So how about a little planning and assistance...
Saturday arrival (still waiting on flight info)
Hoping for an early morning arrival
May just hang out at GKTW, but also considering US/IO as they closed at 7/8 that day.
Sunday
Animal Kingdom until about 1:30
Magic Kingdom for a 3:30 Bibbidi Bobbidi Boutique sitting
1900 Park Fare for a 5:00 Sitting
Magic Kingdom for 8:00 Wishes Show
Monday
Character Photos at GKTW
Sea World
Lunch at Backstage at Believe
Dinner back at GKTW and relax
Tuesday
This is going to be a US/IO Day
Really don't have it planned as I don't know much about them.
Wednesday
Magic Kingdom Day
8:15 before park opens Cinderella's Royal Table
Rides, Rides, Rides, Pin Trading and Autographs
I think we will rest in the Wish Room during the day
I would like to end the day at DHS to see the Fantasmic show. (Never seen before) Is there special seating available for Wish Familys?
Thursday
We are off to the Moon
NASA Day
Back for the Christmas Party that night
Friday
Check out of GKTW and take luggage to BWV for holding.
Off to DHS
Epcot that afternoon with Lunch/Dinner at 3:20 (Coral Reef)
Finish off at World Showcase with Illuminations that night (Never Seen Before)
Saturday
Day to leave
May go back to US, May buy a one day pass for MK really don't know.
Well that's our outline, any comments, ideas, recomendations?
Saturday arrival (still waiting on flight info)
Hoping for an early morning arrival
May just hang out at GKTW, but also considering US/IO as they closed at 7/8 that day.
Sunday
Animal Kingdom until about 1:30
Magic Kingdom for a 3:30 Bibbidi Bobbidi Boutique sitting
1900 Park Fare for a 5:00 Sitting
Magic Kingdom for 8:00 Wishes Show
Monday
Character Photos at GKTW
Sea World
Lunch at Backstage at Believe
Dinner back at GKTW and relax
Tuesday
This is going to be a US/IO Day
Really don't have it planned as I don't know much about them.
Wednesday
Magic Kingdom Day
8:15 before park opens Cinderella's Royal Table
Rides, Rides, Rides, Pin Trading and Autographs
I think we will rest in the Wish Room during the day
I would like to end the day at DHS to see the Fantasmic show. (Never seen before) Is there special seating available for Wish Familys?
Thursday
We are off to the Moon
NASA Day
Back for the Christmas Party that night
Friday
Check out of GKTW and take luggage to BWV for holding.
Off to DHS
Epcot that afternoon with Lunch/Dinner at 3:20 (Coral Reef)
Finish off at World Showcase with Illuminations that night (Never Seen Before)
Saturday
Day to leave
May go back to US, May buy a one day pass for MK really don't know.
Well that's our outline, any comments, ideas, recomendations?
jackskellingtonsgirl
DIS Legend
- Joined
- Nov 14, 2004
- Messages
- 25,898
Sounds great!!
Make sure Fantasmic! is showing the night you want to go. I know it is no longer nightly, but I do not know what the current schedule is.
IllumiNations is fabulous! Try to figure out which way the wind is blowing and DO NOT sit where the wind will blow the smoke in your faces!
We have never been to US/IOA so I can't help you with that. DH is pestering me to go, but I think we'll wait until 2010.
Make sure Fantasmic! is showing the night you want to go. I know it is no longer nightly, but I do not know what the current schedule is.
IllumiNations is fabulous! Try to figure out which way the wind is blowing and DO NOT sit where the wind will blow the smoke in your faces!
We have never been to US/IOA so I can't help you with that. DH is pestering me to go, but I think we'll wait until 2010.
macntosh
Wonders if the Tag Fairy is still around?
- Joined
- Sep 8, 2005
- Messages
- 1,376
Nothing like a little excitment to go with some Pre-Trip Planning.
So yesterday I'm at work until 3:30 and after my shift get a frantic call from my wife. She is distraught and has no idea what to do. It seams that at some point that afternoon either during Aidan's PT or after he had chosen to remove his own Trach. Well for us this is the first time to have him do this. the problem was, It wasn't going back in, nor was she able to get in the smaller size.
Aidan for the last 3-4 months had been using a Cap on his Trach for about 95% of the time and we had been planning on removing it after the Cold and Flu season, but had been praying for healing. Was this the answer we had been looking for? Was this decision being made for us? What are we suppose to do? Do we have our answer, but now by fear we are trying to push something back in that isn't suppose to go back? We were at a loss, so I rushed home to find her quite emotionaly torn. However I don't think I have seen Aidan so happy.
We called his pulmenologist and he said to get to the ER and have them replace the Trach. So with heavy heart we drove to the ER, we were quite confused and even more not wanting to follow these directions. So what do I do, but call the church. I wanted people praying for us and we needed a little support. Well one of our volunteers picked up the phone and guess what, she is an ER Nurse Full Time. (Tears are flowing as I now type) She was calm and collected, agreed with our pulmenologist report, but listened to our concerns.
We were quite torn, we didn't know if we were listening or directing. Well she said the Lord is in control and let's pray for the Doctor's, not Aidan. Let's pray they listen to the Lord, allow him to make the decison through them and with Faith believe that this direction has come from him. So this is what we did. We arrived at the ER and they rushed us right into the room. Well you walk in with a 21 month old, who has removed his own trach and people do jump through hoops. Well we get in the room, nurses moving quickly and I say, hold on folks it's really not so bad, check his stats. He was statting at 100 oxygen level. He didn't need the tube, it wasn't such a rush. Well about 30-45 minutes later and a bunch of nurses scratching their heads the Dr. came in. See there is a rule that you DON'T remove trachs in the Winter, but the boy in front of them didn't want or need it back in, we thought.
He listened to our story and wasn't really sure, he said we would need to use a Trach Stretcher and put it back. We mentioned one of his doctor's, the one that did his Cochlear's was in the hospital and he know's him well. This Doctor knew Dr. Bauer and chose to call and discuss the child. I could hear him on the phone saying how healthy he looked, how he was doing really well, how there is "the rule", it was actually quite humerous and we couldn't tell what direction they were going. He finally came back and spoke with us. This was our answer, we were going to except it.
Well it seams by a 2-1 ruling the Trach was staying OUT
. We were going to be checked into the PICU for observation overnight. I wasn't changing clothes, I wasn't eating, but sometime the next day if all goes well, my son was going home Trach Free.
Well I right this, this morning after a very calm night. No alarms, no stats below 97 and besides the ice and junk outside I think I'm waiting for a Dr. to come up this morning and release us.
Praise the Lord!
So yesterday I'm at work until 3:30 and after my shift get a frantic call from my wife. She is distraught and has no idea what to do. It seams that at some point that afternoon either during Aidan's PT or after he had chosen to remove his own Trach. Well for us this is the first time to have him do this. the problem was, It wasn't going back in, nor was she able to get in the smaller size.
Aidan for the last 3-4 months had been using a Cap on his Trach for about 95% of the time and we had been planning on removing it after the Cold and Flu season, but had been praying for healing. Was this the answer we had been looking for? Was this decision being made for us? What are we suppose to do? Do we have our answer, but now by fear we are trying to push something back in that isn't suppose to go back? We were at a loss, so I rushed home to find her quite emotionaly torn. However I don't think I have seen Aidan so happy.
We called his pulmenologist and he said to get to the ER and have them replace the Trach. So with heavy heart we drove to the ER, we were quite confused and even more not wanting to follow these directions. So what do I do, but call the church. I wanted people praying for us and we needed a little support. Well one of our volunteers picked up the phone and guess what, she is an ER Nurse Full Time. (Tears are flowing as I now type) She was calm and collected, agreed with our pulmenologist report, but listened to our concerns.
We were quite torn, we didn't know if we were listening or directing. Well she said the Lord is in control and let's pray for the Doctor's, not Aidan. Let's pray they listen to the Lord, allow him to make the decison through them and with Faith believe that this direction has come from him. So this is what we did. We arrived at the ER and they rushed us right into the room. Well you walk in with a 21 month old, who has removed his own trach and people do jump through hoops. Well we get in the room, nurses moving quickly and I say, hold on folks it's really not so bad, check his stats. He was statting at 100 oxygen level. He didn't need the tube, it wasn't such a rush. Well about 30-45 minutes later and a bunch of nurses scratching their heads the Dr. came in. See there is a rule that you DON'T remove trachs in the Winter, but the boy in front of them didn't want or need it back in, we thought.
He listened to our story and wasn't really sure, he said we would need to use a Trach Stretcher and put it back. We mentioned one of his doctor's, the one that did his Cochlear's was in the hospital and he know's him well. This Doctor knew Dr. Bauer and chose to call and discuss the child. I could hear him on the phone saying how healthy he looked, how he was doing really well, how there is "the rule", it was actually quite humerous and we couldn't tell what direction they were going. He finally came back and spoke with us. This was our answer, we were going to except it.
Well it seams by a 2-1 ruling the Trach was staying OUT
. We were going to be checked into the PICU for observation overnight. I wasn't changing clothes, I wasn't eating, but sometime the next day if all goes well, my son was going home Trach Free. Well I right this, this morning after a very calm night. No alarms, no stats below 97 and besides the ice and junk outside I think I'm waiting for a Dr. to come up this morning and release us.
Praise the Lord!
jessica52877
DIS Veteran
- Joined
- Feb 26, 2004
- Messages
- 6,518
What an amazing gift. I am so glad that all went well last night and will be praying for you and your family. These stories are amazingly touching (and heart wrenching). I now sit here and cry almost every day at my computer!
tinytreasures
DIS Veteran
- Joined
- Oct 27, 2008
- Messages
- 1,696
macntosh
Wonders if the Tag Fairy is still around?
- Joined
- Sep 8, 2005
- Messages
- 1,376
How about a little update.
We are still waiting on flight information and watching that countdown is getting kind of scary.
Aidan is doing really well without his trach. He's learned to cough junk out and just move on, he also seems even more alive then ever now. Tonight he also learned how to go forward on his NEW kawasaki push 4 wheeler. What a big boy he is.
Mya is being awfully protective of him, but she is one proud sister. We let her skip school to see him come home from the hospital and she can't stop holding his hand and looking at his empty neck. She is getting more excited each and everyday. She got a postcard from Arial the other day and was sure we had sent it to her. I could only prove we didn't when she saw the postmark was Orlando.
We are looking at borrowing a Double Stroller for the trip so that we don't have to return it the second to last day to MAW. I don't know what type of Strollers they provide, but we are a little picky on the cleanliness thing and we will have another Day and Half at the end without a double.
We wanted a Double to give Mya a rest if need be. I'm sure she will get worn out with all the walking.
On a more personal note I made a little prayer about some Cotton Bowl tickets. My alma mater is playing and we can't afford the $100 ticket price. Well later that day, actually a few hours I come home to an email from my Brother-In-Law. It seems that earlier that day he was offered Two tickets and wanted to know if I could go with him. The Lord does answer prayers in very satisfying ways.
Merry CHRISTmas All!
We are still waiting on flight information and watching that countdown is getting kind of scary.
Aidan is doing really well without his trach. He's learned to cough junk out and just move on, he also seems even more alive then ever now. Tonight he also learned how to go forward on his NEW kawasaki push 4 wheeler. What a big boy he is.
Mya is being awfully protective of him, but she is one proud sister. We let her skip school to see him come home from the hospital and she can't stop holding his hand and looking at his empty neck. She is getting more excited each and everyday. She got a postcard from Arial the other day and was sure we had sent it to her. I could only prove we didn't when she saw the postmark was Orlando.
We are looking at borrowing a Double Stroller for the trip so that we don't have to return it the second to last day to MAW. I don't know what type of Strollers they provide, but we are a little picky on the cleanliness thing and we will have another Day and Half at the end without a double.
We wanted a Double to give Mya a rest if need be. I'm sure she will get worn out with all the walking.
On a more personal note I made a little prayer about some Cotton Bowl tickets. My alma mater is playing and we can't afford the $100 ticket price. Well later that day, actually a few hours I come home to an email from my Brother-In-Law. It seems that earlier that day he was offered Two tickets and wanted to know if I could go with him. The Lord does answer prayers in very satisfying ways.
Merry CHRISTmas All!
hematite153
<font color=blue>DVC-Trivia Contest, Apr-2006: Hon
- Joined
- Oct 22, 2005
- Messages
- 2,599
Saturday
Day to leave
May go back to US, May buy a one day pass for MK really don't know.
Well that's our outline, any comments, ideas, recomendations?
Only recommendation...if you do decide that you want to go back to the MK upgrade your earlier tickets instead of buying a 1 day pass. (The additional day will cost you something around $10/adult whereas the one-day pass will cost about $75/adult.)
Wow...I missed this news. I'll have to keep it in mind.
What a fabulous Christmas gift!
oklamomof4boys
DIS Veteran
- Joined
- Apr 4, 2006
- Messages
- 1,317
Actually, I don't think you can upgrade the tickets since they are comp tickets.
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