Just subscribed, and now I am going to vent. I have 4 children. DD12 dx'd 0ct. 17 2010, DD10 dx'd Nov. 26 2009, DD7, and DS4. We are going to
Disneyland in September (yay!) first disney trip since the big D entered our household. I actually posted about some of this in a general thread, and I should have known better. People who do not have T1 in their daily lives dont get it. So here is my dilema:
My girls are extremely able. They are healthy, active, and beautiful (I am a biased proud mama, but it is true), they swim year round competitively, and dance ballet year round, and they are good (still a proud mama), so people look at them and see very fit active girls, they dont see the D (still a good thing). So we were planning on skipping the GAC for our trip, because I know people will look at my girls and not get it. I just figured if we experienced a low in line or a show etc., that I would be able to slip out of line and grab something for them and hop back in. I guess I was wrong. On the general Disney post people were very adamant that this is line cutting (huh?), and that they would not let me back through unless I explained to them why. First off, my girls are tweens, they dont like anything that makes them different so that would completely embarrass them, and if they are low and hear me doing this, it is liable to turn into a fit, second, it isn't my disease, its theirs to share if they want, and third, its no one else s business!!! Everyone (okay, so actually just an ignorant few) went on and on how i should just be responsible and make sure i have something to treat a low at all times. At this point I gave up. How do explain to someone, that if I WAG wrong for both girls we can be in serious trouble, neither of them are making any of their own insulin anymore, and they are both growing, so they are both on rather hefty doses of insulin. That combined with heat, exhaustion, activity, we could have serious swings. We could be talking needing hundreds of carbs between the 2 of them at the same time. Of course I will take emergency stuff with me, but sometimes this disease is really a pain and wants to be difficult.
SOOOO that is my vent. Still not sure what we will do. With all the GAC abuse in the news the average guest seems to be behaving as their own investigative reporters, judging everyone they see with a GAC card. But on the flip side, if we have an emergency in line, and people are interfering we could have an ER trip on our hands. Thanks for listening. D mommas are the best, and often the only ones who really get it!
. On June 28th it will be a year since my daughter was diagnosed. She was one week shy of her 8th birthday. There is no way to put into words how much my heart hurt for her and the challenges she will face. I can tell you that it does get easier. A veteran parent told me early on that it would get a lot easier but it would never be easy and she was right. Things just take more planning now. We had a successful visit to the Magic Kingdom in December and are going on a Disney cruise this summer. My daughter is a happy well adjusted 8 year who is just amazing in her outlook on life. She is my hero! Challenges will arise but with a lot of preparation, you can be ready for almost anything! We just take one day at a time. Praying for your family.
Have an awesome trip! I haven't been to DL in oh jeez like 15 years!
I want my son tested, he's older than my daughter...but so far my insurance won't cover the testing.
