Off to see the MS specialist today...**I'm back**

[phorsenuf]

I have an appointment later this morning to meet with the MS Dr. When I saw them last month I had a bunch of tests done so today I go for the official results and talk some more about my (?) condition.
I hope he has some answers......

 

[AllyandJack]

Good luck. I have a friend who developed MS after delivering her 3rd child. It took a few months to get it controlled, but now she lives a normal life and even went on to have a 4th baby.

I hope you get good news.

 

[luvwinnie]

Good luck! IF you do have it, I recommend getting the magazine the MS Society publishes. We made a donation and now get the magazine. It's interesting to me since I also have an autoimmune disease.

 

[L107ANGEL]

Good Luck!!

 

[cynsaun]

Good luck!

 

[Pixiedust34]

I hope your appointment goes well.

 

[grinningghost]

Good luck! And remember, if you ever need to talk about things, I have MS, and you can certainly PM me anytime. I know how confused I was early on, and I wished I had the internet to communicate back then. Remember, it's no inconvenience to me - I'm here all day, everyday.

 

[GraysMom]

Hope all goes well with your appt .

GraysMom

 

[Tinks]

I hope you get some solid answers that will lead you to a treatment plan. Hang in there!

 

[phorsenuf]

Well, I'm back. Thanks for all the well wishes.

The hospital where I got the MRI's done never sent the films to the Drs so they couldn't look at them but according to the report nothing there that screams MS.

All my other tests were normal aside from my thyroid again. So they want me to see an endocrinologist and they recommend getting a biospy done. I have a huge goiter (always have) and while the odds of it being cancerous are slim to none it needs to be checked. Once that's taken care of and those issues are settled then we will move on to a spinal tap if the symptons are still bad.

So, no diagnosis of MS but still not sure exactly what's going on.


So that's the scoop....more waiting!

 

[grinningghost]

Well, I guess no news is still good news.

But just to let you know, I have been getting MRI's since 1990, and not once, have any lesions shown up to show definitive MS.

BUT - I still have an MS diagnosis. According to my neurologist (who is one of the top guys in the country and who developed Avonex), MRI lesions are not the be-all and end-all of an MS diagnosis. Apparently, an MRI takes "slices" of brain tissue, where lesions can be present in areas not seen on MRI, and there doesn't have to be a gazillion lesions hiding in there either - there could be one or two tiny ones that can create great havoc.

The only absolute definitive diagnosis of MS must be made during an autopsy when the brain can be cut up - and I doubt anyone wants a diagnosis THAT bad.

There are so many criteria to get an MS diagnosis. More than one exacerbation with MS-like symptoms being the main one. After all, before MRI, they used to diagnose people by sticking them in a hot bathtub and seeing if they experienced numbness in their extremities!

So, don't let them go. See the endocrinologist, and if that turns up nothing, keep pressing for a diagnosis. You know you're not nuts.