I recently just got diagnosed with this. I had a headache but localized to the area behind my ear, going into neck. So I first went to General Practioner he just prescribed me Flexeril. Well it didn't go away. So i made an appointment with a Head/Neck Surgeon. He diagnosed it instantly as Occipital Neuralgia. I was like HUH?
He then rubbed the area and asked if it felt better, and it did. SO then he said he wanted to do a cortisone injection. Now I have had these in my feet, and knees BUT when he said HEAD, I thought I was gonna run out of that chair and to my car. But I said do it, because that pain just wasn't easing up and starting to consume me where all I wanted to do was sleep. ANd hello I am a mom and that is not possible, plus not a good way to live your life. SO he did it, and really it didn't hurt. I just didn't like the noises it made when the shot hit the nerve, kind of crunchy. Well after the shot the DIZZINESS stopped and yes I had that also. I felt great when I got home. The only side effects I had were that I couldn't sleep the ENTIRE NIGHT 
The next morning the pain was back but not nearly as bad. The doctor did say that some people need these in a series of three. SO I talked to the doctor on Friday and he told me to come in tomorrow, Monday. He also prescribed me pain meds with and without codeine, and to take the Flexeril in between the headache meds. Also he told me to get a massage to loosen the muscles. I am thinking that i don't need another shot yet. It has lessened but now it is real sore to the touch. I am going to go get a massage hopefully tomorrow or Monday and see if that helps. And then go back to doctor on Thursday.
Anyone ever have this done, any suggestions, as to what form of treatment you had...When I stress out it goes right to my neck and well now my head. The doctor didn't do any other tests. I did have a CT of my sinuses just days prior and he got results and said it was clear and I just finished with my yearly Blood work and that was all good. SO well sometimes when I get something I always think bad things but do believe this is just what he says because it is so localized, kind of strange how it just hurts in one spot.
Again any help or tips would be greatly appreciated. I just wonder when or how long does this take to completely go away, and am i now going to be prone to these?
He then rubbed the area and asked if it felt better, and it did. SO then he said he wanted to do a cortisone injection. Now I have had these in my feet, and knees BUT when he said HEAD, I thought I was gonna run out of that chair and to my car. But I said do it, because that pain just wasn't easing up and starting to consume me where all I wanted to do was sleep. ANd hello I am a mom and that is not possible, plus not a good way to live your life. SO he did it, and really it didn't hurt. I just didn't like the noises it made when the shot hit the nerve, kind of crunchy. Well after the shot the DIZZINESS stopped and yes I had that also. I felt great when I got home. The only side effects I had were that I couldn't sleep the ENTIRE NIGHT The next morning the pain was back but not nearly as bad. The doctor did say that some people need these in a series of three. SO I talked to the doctor on Friday and he told me to come in tomorrow, Monday. He also prescribed me pain meds with and without codeine, and to take the Flexeril in between the headache meds. Also he told me to get a massage to loosen the muscles. I am thinking that i don't need another shot yet. It has lessened but now it is real sore to the touch. I am going to go get a massage hopefully tomorrow or Monday and see if that helps. And then go back to doctor on Thursday. Anyone ever have this done, any suggestions, as to what form of treatment you had...When I stress out it goes right to my neck and well now my head. The doctor didn't do any other tests. I did have a CT of my sinuses just days prior and he got results and said it was clear and I just finished with my yearly Blood work and that was all good. SO well sometimes when I get something I always think bad things but do believe this is just what he says because it is so localized, kind of strange how it just hurts in one spot.
Again any help or tips would be greatly appreciated. I just wonder when or how long does this take to completely go away, and am i now going to be prone to these?
I have been on a slew of different meds and have had several tests, sinus CT, MRI of my head and the last was a neck CT, but my insurance won't pay for a MRI of my neck unless I do another 6 weeks of PT, but I've been through PT twice now. 
So far what works best for me is Toradol. It's a NSAID. They will only give you 20 per month and supposedly you are not suppose to take it for more than 5 days in a row, but I've been on it since August. I know I can't just keep taking it, but it's the only think that has worked so far.
...Went trick or treating with my son, and i noticed it, but kept going. 
