Not so great news

DAniece

Crazy about the Mouse's House
Joined
Jan 14, 2007
Messages
200
Well, this isn't good news, that's for sure. DA (dear aunt) is not progressing with the stroke rehab -- the personality changes and behaviors are just brutal (more so for me than for Mr Incredible). Without intention or malice or forethought -- she's managed to hit all my buttons (that I've worked very hard over the last 20 years to hide, camaflouge or destroy) repeatedly in the last 2 or 3 weeks.

The 3 of us living together just isn't going to work out. Frankly, I don't have what it takes to make it work. The d*mn stroke is just too much.

So, instead of taking her to WDW in March :sad2: -- we're hoping to make the trip in November/December with her. We're still taking DN (dear niece) in March to celebrate her 21st birthday AND for a respite for Mr Incredible and I. Currently, looks like DA will be staying at a respite hotel (basically a room at one of the local assisted living facitlies). Also, depending on timing, she'll either be living in assisted living or staying at another respite hotel in April when we return to WDW for another visit (my 42nd birthday).

I feel like a real failure -- and goodness knows I hate failing at ANYTHING. But, the stroke is simply too much.

I now think that Mr Incredible and I were right to choose to not have children. I have nothing but the utmost respect and awe for all of you out there who have children with special needs. I worked at a children's hospital (cp, spinal injuries, brain injuries, and such) for a while and I've always thought that I could / would have handled it fine if that was what life had in store for me. Now, I think I was wrong; I would have sucked wind at being that kind of parent.

Pixie dust to you all,
EG
 
Thanks Judy,

It's not funny ha-ha, but funny ironic. The decision to consent to TpA was nerve-wracking -- but quick and easy. This decision took forever and was HARD to make ----- even MORE nerve-shattering. Right now, I just feel exhausted and drained.

Honestly, I'm looking forward to some pixie dust.
EG:tinker:
 

Many have felt the same as you do now. Sometimes the discovery and acceptance of our limitations or shortcomings helps us to move beyond them, and do more than one thought capable. That does not make you a failure.

We have found support from many sources, and key to our success. You do not need to be just you three: support groups, advocates, clergy, and counselors may lighten your load.

Didn't Mrs. Incredible have super powers which made her very flexible?
 
Thank you. It's funny, just as we throw up our hands and concede something to the stroke -- another window or doorway of possiblities opens up. We're now wondering if DA will be able to live on her own with electronic supervision. We've spent the last week or so focusing on teaching her how to live independent of us -- before we were focusing on how all 3 of us could live together. It's made a HUGE difference.

No offense intended -- but thanks to the nice folks here -- I suddenly realised, if someone w/ Down's Syndrome or some other cognitive-disability can learn to live mostly-independently, why can't a 74 year old stroke survivor? Just because she's 74 doesn't mean that she has to go to old-people-assisted-living...

EG
 












Receive up to $1,000 in Onboard Credit and a Gift Basket!
That’s right — when you book your Disney Cruise with Dreams Unlimited Travel, you’ll receive incredible shipboard credits to spend during your vacation!
CLICK HERE






DIS Facebook DIS youtube DIS Instagram DIS Pinterest DIS Tiktok DIS Twitter DIS Bluesky

Back
Top Bottom