New epilepsy dx; any advice?

ireland_nicole

<font color=green>No brainer- the fairy wins it<br
Joined
Feb 1, 2008
Messages
4,152
So, DD's brain decided our life was getting entirely too predictable, and... Alakazam, here we are in Dell Children's medical center, enjoying the fabulous accomodations until such time as we are seizure free (considering that we've had 16 so far today, we'll probably be here a while;) We're grateful that so far they all seem to occur while she's sleeping (which, when you think about it, is pretty cool, b/c she's already laying down in a soft place, so two thumbs up on the increased safety factor) and they're very short. But the doctors aren't yet being particularly wordy about how this is going to effect Caitie's every day life. Are there basic precautions everyone has to take? How limiting is it to take them? How would it effect a Disney Trip (we have one coming up in three weeks) I'm searching the web from our hospital room, but mostly finding drug therapy info, etc. I'd love some real world experience, knim? Thanks ya'll.
 


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